Angelina Jolie Effect ~ Public Education / Opinion / Preference
~ Genetics of Breast & Ovarian Cancer

Any aspect pertaining to changes of public knowledge/awareness/opinions of HBOC related to Angelina Jolie's disclosures of her own experiences

List was last updated on Aug 9, 2019 @ 4:06 am.


    • Celebrity Influence Affecting Public Interest in Plastic Surgery Procedures: Google Trends Analysis.
    • Tijerina JD, Morrison SD, Nolan IT, Parham MJ, Richardson MT, Nazerali R.
    • Aesthetic Plast Surg. 2019 Aug 7. doi: 10.1007/s00266-019-01466-7. [Epub ahead of print]
    • Global celebrities' effect on health awareness among Jordanians: A study using the case of Angelina Jolie.
    • Al-Hussaini M, Ammar K, Kasasbeh N, Sultan H, Al-Omari A.
    • J Genet Couns. 2019 Aug 6. doi: 10.1002/jgc4.1154. [Epub ahead of print]
    • Current knowledge of risk reducing mastectomy: Indications, techniques, results, benefits, harms.
    • Baildam AD.
    • Breast. 2019 Mar 29;46:48-51. doi: 10.1016/j.breast.2019.03.011. [Epub ahead of print]
    • Review
    • College Women's Responses to a Celebrity Health Disclosure.
    • Drizin JH, Malcarne VL, Schiaffino MK, Wells KJ.
    • Health Commun. 2018 Oct;33(10):1302-1307. doi: 10.1080/10410236.2017.1351276. Epub 2017 Aug 18.
    • Risk-reducing mastectomy rates in the US: a closer examination of the Angelina Jolie effect.
    • Liede A, Cai M, Crouter TF, Niepel D, Callaghan F, Evans DG.
    • Breast Cancer Res Treat. 2018 Sep;171(2):435-442. doi: 10.1007/s10549-018-4824-9. Epub 2018 May 28.
    • Angelina's Impact: Advocates Share.
    • [No author given]
    • My Gene Counsel. 2018 May 14.
    • Angelina's Impact: Genetic Counselors Share.
    • [No author given]
    • My Gene Counsel. 2018 May 14.
    • The risk of unjustified BRCA testing after the "Angelina Jolie effect": how can we save (laboratory) medicine from the Internet?
    • Lippi G.
    • Clin Chem Lab Med. 2018 Jan 26;56(2):e33-e35. doi: 10.1515/cclm-2017-0551.
    • Letter
    • Twitter and Non-Elites: Interpreting Power Dynamics in the Life Story of the (#)BRCA Twitter Stream.
    • Vicari S.
    • Soc Media Soc. 2017 Sep 23;3(3):2056305117733224. doi: 10.1177/2056305117733224. eCollection 2017 Sep.
    • 4 Years Post-Gene Patents: How Has Life Changed In The Genomics World?
    • [No author given]
    • My Gene Counsel. 2017 Jun 13.
    • Use of BRCA Mutation Test in the U.S., 2004-2014.
    • Guo F, Hirth JM, Lin YL, Richardson G, Levine L, Berenson AB, Kuo YF.
    • Am J Prev Med. 2017 Jun;52(6):702-709. doi: 10.1016/j.amepre.2017.01.027. Epub 2017 Mar 22.

    Press: BRCA Testing Has Skyrocketed, but Misses High-Risk Women. (Medscape)

    Letter, Comment:

    Increased Use of BRCA Mutation Test in Unaffected Women Over the Period 2004-2014 in the U.S.: Further Evidence of the "Angelina Jolie Effect"?

    Letter, Reply:

    Authors' Response: "Angelina Jolie Effect" on the Shifting Role of BRCA Testing in the U.S.

    • Influence of the Angelina Jolie Announcement and Insurance Reimbursement on Practice Patterns for Hereditary Breast Cancer.
    • Lee J, Kim S, Kang E, Park S, Kim Z, Lee MH; Korean Breast Cancer Society.
    • J Breast Cancer. 2017 Jun;20(2):203-207. doi: 10.4048/jbc.2017.20.2.203. Epub 2017 Jun 26.
    • Familial breast cancer: Genetic counseling over time, including patients´ expectations and initiators considering the Angelina Jolie effect.
    • Evers C, Fischer C, Dikow N, Schott S.
    • PLoS One. 2017 May 25;12(5):e0177893. doi: 10.1371/journal.pone.0177893. eCollection 2017.
    • The effect of a celebrity health disclosure on demand for health care: trends in BRCA testing and subsequent health services use.
    • Roberts MC, Dusetzina SB.
    • J Community Genet. 2017 Apr;8(2):141-146. doi: 10.1007/s12687-017-0295-7. Epub 2017 Mar 15.
    • A Retrospective Exploration of the Impact of the 'Angelina Jolie Effect' on the Single State-Wide Familial Cancer Program in Perth, Western Australia.
    • Freedman R, Mountain H, Karina D, Schofield L.
    • J Genet Couns. 2017 Feb;26(1):52-62. doi: 10.1007/s10897-016-9982-5. Epub 2016 Jun 6.
    • Understanding breast cancer - The long and winding road.
    • Lukong KE.
    • BBA Clin. 2017 Jan 27;7:64-77. doi: 10.1016/j.bbacli.2017.01.001. eCollection 2017.
    • "Angelina Jolie Effect”: What Should I Know About Hereditary Cancer and Testing?
    • Erica Ramos.
    • NSGC Blog. 2017 Jan 18.
    • Blog post
    • Do celebrity endorsements matter? Observational study of BRCA gene testing and mastectomy rates after Angelina Jolie's New York Times editorial.
    • Desai S, Jena AB.
    • BMJ. 2016 Dec 14;355:i6357. doi: 10.1136/bmj.i6357.

    Research News:

    Angelina Jolie's mastectomy triggered sharp rise in gene testing.

    Research News: Angelina Jolie spoke out on BRCA testing: Did genetic testing increase? (FORCE)

    Blog post: "Angelina Jolie Effect”: What Should I Know About Hereditary Cancer and Testing? (NSGC Blog)

    Research News: Were women foolish to follow Angelina Jolie into BRCA cancer gene testing? (STAT)

    Research News: Jolie Effect: BRCA Tests Up but No Change in Mastectomy. (Medscape)

    • The Impact of Angelina Jolie (AJ)'s Story on Genetic Referral and Testing at an Academic Cancer Centre in Canada.
    • Raphael J, Verma S, Hewitt P, Eisen A.
    • J Genet Couns. 2016 Dec;25(6):1309-1316. Epub 2016 May 26.
    • Celebrities Share Cancer Stories Part 1.
    • [No author given]
    • My Gene Counsel. 2016 Sep 27.
    • Trends in Media Reports of Celebrities' Breast Cancer Treatment Decisions.
    • Sabel MS, Cin SD.
    • Ann Surg Oncol. 2016 Sep;23(9):2795-801. doi: 10.1245/s10434-016-5202-7. Epub 2016 Apr 6.
    • Media Exposure and Genetic Literacy Skills to Evaluate Angelina Jolie's Decision for Prophylactic Mastectomy.
    • Abrams LR, Koehly LM, Hooker GW, Paquin RS, Capella JN, McBride CM.
    • Public Health Genomics. [2016 Sep;]19(5):282-9. doi: 10.1159/000447944. Epub 2016 Jul 19.
    • Changes of Socio-demographic data of clients seeking genetic counseling for hereditary breast and ovarian cancer due to the "Angelina Jolie Effect".
    • Staudigl C, Pfeiler G, Hrauda K, Renz R, Berger A, Lichtenschopf R, Singer CF, Tea MM.
    • BMC Cancer. 2016 Jul 8;16:436. doi: 10.1186/s12885-016-2472-1.
    • Celebrity Health Announcements and Online Health Information Seeking: An Analysis of Angelina Jolie's Preventative Health Decision.
    • Dean M.
    • Health Commun. 2016 Jun;31(6):752-61. doi: 10.1080/10410236.2014.995866. Epub 2015 Nov 17.
    • [BRCA mutations: from Angelina Jolie to specific therapies].
    • Lopez VA, Stravodimou A, Unger S, Perey L, Zaman K.
    • Rev Med Suisse. 2016 May 18;12(519):973-4, 976-7.
    • Review, [Article in French]
    • Angelina's Impact: Genetic Counselors Share.
    • [No author given]
    • My Gene Counsel. 2016 May 14.
    • Angelina's Impact: Advocates Share.
    • [No author given]
    • My Gene Counsel. 2016 May 14.
    • More People Seek Genetic Testing, But There Aren't Enough Counselors.
    • Todd Bookman.
    • NPR. Morning Edition. 2016 Apr 18.
    • Celebrity Influence and Identification: A Test of the Angelina Effect.
    • Kosenko KA, Binder AR, Hurley R.
    • J Health Commun. 2016 Mar;21(3):318-26. doi: 10.1080/10810730.2015.1064498. Epub 2016 Jan 15.
    • The Angelina effect revisited: Exploring a media-related impact on public awareness.
    • Lebo PB, Quehenberger F, Kamolz LP, Lumenta DB.
    • Cancer. 2015 Nov 15;121(22):3959-3964. doi: 10.1002/cncr.29461. Epub 2015 Sep 28.
    • Education Program to Increase Awareness of Genetic Testing Launched.
    • [No author given]
    • Clinical OMICs. 2015 Sep 21.
    • The Angelina Effect and the Mixed Blessing of Celebrities and Risk Awareness.
    • Hilda Bastian.
    • Absolutely Maybe. PLoS Blogs. 2015 Aug 9.
    • Celebrity disclosures and information seeking: the case of Angelina Jolie.
    • Juthe RH, Zaharchuk A, Wang C.
    • Genet Med. 2015 Jul 2;17(7):545-553. doi: 10.1038/gim.2014.141. Epub 2014 Oct 23.
    • 20 Years Since BRCA2: Where Are We Now in Cancer Screening?
    • Eric J. Topol, Nazneen Rahman.
    • Medscape, Eric Topol on Medscape, Medscape One-on-One. 2015 Apr 13.
    • Discussion: Sex After Oophorectomy, Hysterectomy.
    • [No author given]
    • My Gene Counsel. 2015 Apr 7.
    • Nature: Gene Counsellors Expect Resurgence of 'Jolie Effect'.
    • [No author given]
    • My Gene Counsel. 2015 Apr 3.
    • Angelina Jolie Pitt's Op-ed This Week Sparks Wider Discussion on Hereditary Cancer.
    • [No author given]
    • My Gene Counsel. 2015 Mar 26.
    • Angelina Jolie's message was 'choose what's right for you,' and experts agree.
    • Christine Mai-Duc
    • LA Times, 2015 Mar 24.
    • Angelina Jolie Pitt: Diary of a Surgery.
    • Angelina Jolie Pitt
    • NY Times, 2015 Mar 24.
    • Lizzie Stark's ‘Real Steps to Survival’
    • Seth Berkman
    • The Sisterhood, 2015 Jan 6
    • Angelina Jolie and medical decision science.
    • Bhatti J, Redelmeier DA.
    • Med Decis Making. 2015 Jan;35(1):4-5. doi: 10.1177/0272989X14558882. Epub 2014 Nov 5.
    • Cancer information seeking in the digital age: effects of Angelina Jolie's prophylactic mastectomy announcement.
    • Noar SM, Althouse BM, Ayers JW, Francis DB, Ribisl KM.
    • Med Decis Making. 2015 Jan;35(1):16-21. doi: 10.1177/0272989X14556130. Epub 2014 Oct 27.
    • The Angelina effect: immediate reach, grasp, and impact of going public.
    • Borzekowski DL, Guan Y, Smith KC, Erby LH, Roter DL.
    • Genet Med. 2014 Jul;16(7):516-21. doi: 10.1038/gim.2013.181. Epub 2013 Dec 19.

    Introductory article:

    In this Issue.

    Podcast: Genetics in Medicine, Celebrities, Genetics and Tough Decisions: the Angelina Effect. (Genetics in Medicine GenePod)

    Archive

    Press: Angelina Didn't Help Educate People About Breast Cancer Risk. (NPR. Your Health. Shots.)

    • Angelina Jolie's faulty gene: newspaper coverage of a celebrity's preventive bilateral mastectomy in Canada, the United States, and the United Kingdom.
    • Kamenova K, Reshef A, Caulfield T.
    • Genet Med. 2014 Jul;16(7):522-8. doi: 10.1038/gim.2013.199. Epub 2013 Dec 19.

    Introductory article:

    In this Issue.

    Podcast: Genetics in Medicine, Celebrities, Genetics and Tough Decisions: the Angelina Effect. (Genetics in Medicine GenePod)

    Archive

    Press: Angelina Didn't Help Educate People About Breast Cancer Risk. (NPR. Your Health. Shots.)

    • Angelina Jolie Effect: One Year Later.
    • Joy Larsen Haidle.
    • NSGC Blog. 2014 May 14.
    • Increase in breast cancer gene screening: the Angelina Jolie effect.
    • Deborah Kotz.
    • Boston Globe. 2013 Dec 3.
    • Angelina's choice.
    • Goel NS.
    • South Asian J Cancer. 2013 Oct;2(4):285-7. doi: 10.4103/2278-330X.119903.
    • More Women Consider Gene Test After Angelina Jolie Mastectomy Revelation.
    • Amy Norton.
    • HealthDay. 2013 Aug 14.
    • Breast cancer gene tests may treble on Welsh NHS.
    • Gemma Ryall.
    • BBC News. 2013 Aug 2.
    • A Public Health Education Initiative for Women With a Family History of Breast/Ovarian Cancer: Why Did it Take Angelina Jolie?
    • Nisker J.
    • J Obstet Gynaecol Can. 2013 Aug;35(8):689-91.
    • Editorial
    • Risk management: Jolie's decision sparks debate, need for more education.
    • Trossman S.
    • Am Nurse. 2013 Jul-Aug;45(4):1, 6.
    • Genomic Medicine Just Hit the Accelerator.
    • Eric J. Topol.
    • Medscape Internal Medicine. 2013 Jun 17.
    • Star Power.
    • Robert Resta.
    • The DNA Exchange. 2013 Jun 16.
    • Lou Gehrig, Angelina Jolie, and cancer genetics.
    • Burstein HJ.
    • J Natl Compr Canc Netw. 2013 Jun 1;11(6):631-2.
    • Editorial
    • The Angelina effect.
    • Kluger J, Park A.
    • Time. 2013 May 27;181(20):28-33.
    • Press article
    • Scotland expands breast cancer predictive genetic testing.
    • Philippa Brice.
    • PHG Foundation. 2013 May 22.
    • No Easy Choices on Breast Reconstruction.
    • Roni Caryn Rabini.
    • NY Times. Well. 2013 May 20.
    • Celebrity impact. Benefits, risks seen in hype over Jolie's disclosure.
    • Lee J.
    • Mod Healthc. 2013 May 20;43(20):10-1.
    • Angelina Jolie's Mastectomy: BRCA Testing in the Spotlight.
    • Kate Johnson.
    • Medscape Medical News. Oncology. 2013 May 16.
    • Angelina Jolie’s double mastectomy highlights tough decisions on genetic screening.
    • Deborah Kotz.
    • Boston Globe. 2013 May 14.
    • Genetic Counseling Can Help Women At Risk For Breast Cancer.
    • Melissa Block, Audie Cornish.
    • NPR. All Things Considered. 2013 May 14.
    • My Medical Choice.
    • Angelina Jolie.
    • NY Times. The Opinion Pages. 2013 May 14.