Any aspect pertaining to changes of public knowledge/awareness/opinions of HBOC related to Angelina Jolie's disclosures of her own experiences
List was last updated on
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- Uptake and Effectiveness of Risk-Reducing Surgeries in Unaffected Female BRCA1 and BRCA2 Carriers: A Single Institution Experience in the Czech Republic.
- Zimovjanova M, Bielcikova Z, Miskovicova M, Vocka M, Zimovjanova A, Marian Rybar M, Novotny J, Petruzelka L.
- Cancers (Basel). 2023 Feb 8;15(4):1072. doi: 10.3390/cancers15041072.
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- Celebrities Share Their Breast Cancer Stories.
- [No author given]
- My Gene Counsel. Genetic Journal. 2020 Oct 7.
- Blog post
- Free Full Text
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- Implications of celebrity endorsement of prostate cancer awareness in a tertiary referral unit- The "Fry-Turnbull" Effect.
- Lovegrove CE, Musbahi O, Ranasinha N, Omer A, Lopez F, Campbell A, Bryant RJ, Leslie T, Bell R, Brewster S, Hamdy FC, Wright B, Lamb AD.
- BJU Int. 2020 Jan 7. doi: 10.1111/bju.14992. [Epub ahead of print]
- PMID: 31910313
- PubMed abstract
- Source abstract
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- Celebrity Influence Affecting Public Interest in Plastic Surgery Procedures: Google Trends Analysis.
- Tijerina JD, Morrison SD, Nolan IT, Parham MJ, Richardson MT, Nazerali R.
- Aesthetic Plast Surg. 2019 Aug 7. doi: 10.1007/s00266-019-01466-7. [Epub ahead of print]
- PMID: 31392394
- PubMed abstract
- Source abstract
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- Global celebrities' effect on health awareness among Jordanians: A study using the case of Angelina Jolie.
- Al-Hussaini M, Ammar K, Kasasbeh N, Sultan H, Al-Omari A.
- J Genet Couns. 2019 Aug 6. doi: 10.1002/jgc4.1154. [Epub ahead of print]
- PMID: 31386265
- PubMed abstract
- Source abstract
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- Current knowledge of risk reducing mastectomy: Indications, techniques, results, benefits, harms.
- Baildam AD.
- Breast. 2019 Mar 29;46:48-51. doi: 10.1016/j.breast.2019.03.011. [Epub ahead of print]
- PMID: 31082761
- PubMed abstract
- Source abstract
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- College Women's Responses to a Celebrity Health Disclosure.
- Drizin JH, Malcarne VL, Schiaffino MK, Wells KJ.
- Health Commun. 2018 Oct;33(10):1302-1307. doi: 10.1080/10410236.2017.1351276. Epub 2017 Aug 18.
- PMID: 28820618
- PubMed abstract
- Source abstract
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- Risk-reducing mastectomy rates in the US: a closer examination of the Angelina Jolie effect.
- Liede A, Cai M, Crouter TF, Niepel D, Callaghan F, Evans DG.
- Breast Cancer Res Treat. 2018 Sep;171(2):435-442. doi: 10.1007/s10549-018-4824-9. Epub 2018 May 28.
- PMID: 29808287
- PubMed abstract
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- Angelina's Impact: Advocates Share.
- [No author given]
- My Gene Counsel. 2018 May 14.
- Blog post
- Free Full Text
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- Angelina's Impact: Genetic Counselors Share.
- [No author given]
- My Gene Counsel. 2018 May 14.
- Blog post
- Free Full Text
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- The risk of unjustified BRCA testing after the "Angelina Jolie effect": how can we save (laboratory) medicine from the Internet?
- Lippi G.
- Clin Chem Lab Med. 2018 Jan 26;56(2):e33-e35. doi: 10.1515/cclm-2017-0551.
- PMID: 28753535
- PubMed abstract
- Source abstract
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- Twitter and Non-Elites: Interpreting Power Dynamics in the Life Story of the (#)BRCA Twitter Stream.
- Vicari S.
- Soc Media Soc. 2017 Sep 23;3(3):2056305117733224. doi: 10.1177/2056305117733224. eCollection 2017 Sep.
- PMID: 29278246
- PubMed abstract
- Source abstract
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- 4 Years Post-Gene Patents: How Has Life Changed In The Genomics World?
- [No author given]
- My Gene Counsel. 2017 Jun 13.
- Blog post
- Free Full Text
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- Use of BRCA Mutation Test in the U.S., 2004-2014.
- Guo F, Hirth JM, Lin YL, Richardson G, Levine L, Berenson AB, Kuo YF.
- Am J Prev Med. 2017 Jun;52(6):702-709. doi: 10.1016/j.amepre.2017.01.027. Epub 2017 Mar 22.
- PMID: 28342662
- PubMed abstract
- Source abstract
Press: BRCA Testing Has Skyrocketed, but Misses High-Risk Women. (Medscape)
Letter, Comment:
Increased Use of BRCA Mutation Test in Unaffected Women Over the Period 2004-2014 in the U.S.: Further Evidence of the "Angelina Jolie Effect"?
- PMID: 29054246
- PubMed abstract
- Source abstract
Letter, Reply:
Authors' Response: "Angelina Jolie Effect" on the Shifting Role of BRCA Testing in the U.S.
- PMID: 29054247
- PubMed abstract
- Source abstract
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- Influence of the Angelina Jolie Announcement and Insurance Reimbursement on Practice Patterns for Hereditary Breast Cancer.
- Lee J, Kim S, Kang E, Park S, Kim Z, Lee MH; Korean Breast Cancer Society.
- J Breast Cancer. 2017 Jun;20(2):203-207. doi: 10.4048/jbc.2017.20.2.203. Epub 2017 Jun 26.
- PMID: 28690658
- PubMed abstract
- Source abstract
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- Familial breast cancer: Genetic counseling over time, including patients´ expectations and initiators considering the Angelina Jolie effect.
- Evers C, Fischer C, Dikow N, Schott S.
- PLoS One. 2017 May 25;12(5):e0177893. doi: 10.1371/journal.pone.0177893. eCollection 2017.
- PMID: 28542378
- PubMed abstract
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- The effect of a celebrity health disclosure on demand for health care: trends in BRCA testing and subsequent health services use.
- Roberts MC, Dusetzina SB.
- J Community Genet. 2017 Apr;8(2):141-146. doi: 10.1007/s12687-017-0295-7. Epub 2017 Mar 15.
- PMID: 28299592
- PubMed abstract
- Source abstract
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- A Retrospective Exploration of the Impact of the 'Angelina Jolie Effect' on the Single State-Wide Familial Cancer Program in Perth, Western Australia.
- Freedman R, Mountain H, Karina D, Schofield L.
- J Genet Couns. 2017 Feb;26(1):52-62. doi: 10.1007/s10897-016-9982-5. Epub 2016 Jun 6.
- PMID: 27265404
- PubMed abstract
- Source abstract
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- Understanding breast cancer - The long and winding road.
- Lukong KE.
- BBA Clin. 2017 Jan 27;7:64-77. doi: 10.1016/j.bbacli.2017.01.001. eCollection 2017.
- PMID: 28194329
- PubMed abstract
- Review
- Free Full Text
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- "Angelina Jolie Effect”: What Should I Know About Hereditary Cancer and Testing?
- Erica Ramos.
- NSGC Blog. 2017 Jan 18.
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- Do celebrity endorsements matter? Observational study of BRCA gene testing and mastectomy rates after Angelina Jolie's New York Times editorial.
- Desai S, Jena AB.
- BMJ. 2016 Dec 14;355:i6357. doi: 10.1136/bmj.i6357.
- PMID: 27974323
- PubMed abstract
Research News:
Angelina Jolie's mastectomy triggered sharp rise in gene testing.
- PMID: 27979800
- PubMed abstract
- Source abstract
Research News: Angelina Jolie spoke out on BRCA testing: Did genetic testing increase? (FORCE)
Blog post: "Angelina Jolie Effect”: What Should I Know About Hereditary Cancer and Testing? (NSGC Blog)
Research News: Were women foolish to follow Angelina Jolie into BRCA cancer gene testing? (STAT)
Research News: Jolie Effect: BRCA Tests Up but No Change in Mastectomy. (Medscape)
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- The Impact of Angelina Jolie (AJ)'s Story on Genetic Referral and Testing at an Academic Cancer Centre in Canada.
- Raphael J, Verma S, Hewitt P, Eisen A.
- J Genet Couns. 2016 Dec;25(6):1309-1316. Epub 2016 May 26.
- PMID: 27228984
- PubMed abstract
- Source abstract
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- Celebrities Share Cancer Stories Part 1.
- [No author given]
- My Gene Counsel. 2016 Sep 27.
- Blog post
- Free Full Text
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- Trends in Media Reports of Celebrities' Breast Cancer Treatment Decisions.
- Sabel MS, Cin SD.
- Ann Surg Oncol. 2016 Sep;23(9):2795-801. doi: 10.1245/s10434-016-5202-7. Epub 2016 Apr 6.
- PMID: 27052646
- PubMed abstract
- Source abstract
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- Media Exposure and Genetic Literacy Skills to Evaluate Angelina Jolie's Decision for Prophylactic Mastectomy.
- Abrams LR, Koehly LM, Hooker GW, Paquin RS, Capella JN, McBride CM.
- Public Health Genomics. [2016 Sep;]19(5):282-9. doi: 10.1159/000447944. Epub 2016 Jul 19.
- PMID: 27427958
- PubMed abstract
- Source abstract
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- Changes of Socio-demographic data of clients seeking genetic counseling for hereditary breast and ovarian cancer due to the "Angelina Jolie Effect".
- Staudigl C, Pfeiler G, Hrauda K, Renz R, Berger A, Lichtenschopf R, Singer CF, Tea MM.
- BMC Cancer. 2016 Jul 8;16:436. doi: 10.1186/s12885-016-2472-1.
- PMID: 27391110
- PubMed abstract
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- Celebrity Health Announcements and Online Health Information Seeking: An Analysis of Angelina Jolie's Preventative Health Decision.
- Dean M.
- Health Commun. 2016 Jun;31(6):752-61. doi: 10.1080/10410236.2014.995866. Epub 2015 Nov 17.
- PMID: 26574936
- PubMed abstract
- Source abstract
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- [BRCA mutations: from Angelina Jolie to specific therapies].
- Lopez VA, Stravodimou A, Unger S, Perey L, Zaman K.
- Rev Med Suisse. 2016 May 18;12(519):973-4, 976-7.
- PMID: 27424423
- PubMed abstract
- Source abstract
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- Angelina's Impact: Genetic Counselors Share.
- [No author given]
- My Gene Counsel. 2016 May 14.
- Blog post
- Free Full Text
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- Angelina's Impact: Advocates Share.
- [No author given]
- My Gene Counsel. 2016 May 14.
- Blog post
- Free Full Text
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- More People Seek Genetic Testing, But There Aren't Enough Counselors.
- Todd Bookman.
- NPR. Morning Edition. 2016 Apr 18.
- News, Audio/Transcript
- Free Full Text
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- Celebrity Influence and Identification: A Test of the Angelina Effect.
- Kosenko KA, Binder AR, Hurley R.
- J Health Commun. 2016 Mar;21(3):318-26. doi: 10.1080/10810730.2015.1064498. Epub 2016 Jan 15.
- PMID: 26192626
- PubMed abstract
- Source abstract
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- The Angelina effect revisited: Exploring a media-related impact on public awareness.
- Lebo PB, Quehenberger F, Kamolz LP, Lumenta DB.
- Cancer. 2015 Nov 15;121(22):3959-3964. doi: 10.1002/cncr.29461. Epub 2015 Sep 28.
- PMID: 26414603
- PubMed abstract
- Source abstract
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- Education Program to Increase Awareness of Genetic Testing Launched.
- [No author given]
- Clinical OMICs. 2015 Sep 21.
- News
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- The Angelina Effect and the Mixed Blessing of Celebrities and Risk Awareness.
- Hilda Bastian.
- Absolutely Maybe. PLoS Blogs. 2015 Aug 9.
- Blog post
- Free Full Text
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- Celebrity disclosures and information seeking: the case of Angelina Jolie.
- Juthe RH, Zaharchuk A, Wang C.
- Genet Med. 2015 Jul 2;17(7):545-553. doi: 10.1038/gim.2014.141. Epub 2014 Oct 23.
- PMID: 25341112
- PubMed abstract
- Source abstract
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- 20 Years Since BRCA2: Where Are We Now in Cancer Screening?
- Eric J. Topol, Nazneen Rahman.
- Medscape, Eric Topol on Medscape, Medscape One-on-One. 2015 Apr 13.
- Press article, Video
- Free Full Text
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- Discussion: Sex After Oophorectomy, Hysterectomy.
- [No author given]
- My Gene Counsel. 2015 Apr 7.
- Blog post
- Free Full Text
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- Nature: Gene Counsellors Expect Resurgence of 'Jolie Effect'.
- [No author given]
- My Gene Counsel. 2015 Apr 3.
- Blog post
- Free Full Text
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- Angelina Jolie Pitt's Op-ed This Week Sparks Wider Discussion on Hereditary Cancer.
- [No author given]
- My Gene Counsel. 2015 Mar 26.
- Blog post
- Free Full Text
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- Angelina Jolie's message was 'choose what's right for you,' and experts agree.
- Christine Mai-Duc
- LA Times, 2015 Mar 24.
- Press article
- Free Full Text
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- Angelina Jolie Pitt: Diary of a Surgery.
- Angelina Jolie Pitt
- NY Times, 2015 Mar 24.
- Narrative, Editorial / Commentary
- Free Full Text
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- Lizzie Stark's ‘Real Steps to Survival’
- Seth Berkman
- The Sisterhood, 2015 Jan 6
- Blog post
- Free Full Text
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- Angelina Jolie and medical decision science.
- Bhatti J, Redelmeier DA.
- Med Decis Making. 2015 Jan;35(1):4-5. doi: 10.1177/0272989X14558882. Epub 2014 Nov 5.
- PMID: 25378296
- PubMed abstract
- Source abstract
- Editorial / Commentary
- Free Full Text
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- Cancer information seeking in the digital age: effects of Angelina Jolie's prophylactic mastectomy announcement.
- Noar SM, Althouse BM, Ayers JW, Francis DB, Ribisl KM.
- Med Decis Making. 2015 Jan;35(1):16-21. doi: 10.1177/0272989X14556130. Epub 2014 Oct 27.
- PMID: 25349187
- PubMed abstract
- Source abstract
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- The Angelina effect: immediate reach, grasp, and impact of going public.
- Borzekowski DL, Guan Y, Smith KC, Erby LH, Roter DL.
- Genet Med. 2014 Jul;16(7):516-21. doi: 10.1038/gim.2013.181. Epub 2013 Dec 19.
- PMID: 24357847
- PubMed abstract
- Source abstract
Introductory article:
In this Issue.
- PMID: 24987949
- PubMed abstract
- Free Full Text
Podcast: Genetics in Medicine, Celebrities, Genetics and Tough Decisions: the Angelina Effect. (Genetics in Medicine GenePod)
Press: Angelina Didn't Help Educate People About Breast Cancer Risk. (NPR. Your Health. Shots.)
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- Angelina Jolie's faulty gene: newspaper coverage of a celebrity's preventive bilateral mastectomy in Canada, the United States, and the United Kingdom.
- Kamenova K, Reshef A, Caulfield T.
- Genet Med. 2014 Jul;16(7):522-8. doi: 10.1038/gim.2013.199. Epub 2013 Dec 19.
- PMID: 24357851
- PubMed abstract
- Source abstract
Introductory article:
In this Issue.
- PMID: 24987949
- PubMed abstract
- Free Full Text
Podcast: Genetics in Medicine, Celebrities, Genetics and Tough Decisions: the Angelina Effect. (Genetics in Medicine GenePod)
Press: Angelina Didn't Help Educate People About Breast Cancer Risk. (NPR. Your Health. Shots.)
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- Angelina Jolie Effect: One Year Later.
- Joy Larsen Haidle.
- NSGC Blog. 2014 May 14.
- Blog post
- Free Full Text
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- Increase in breast cancer gene screening: the Angelina Jolie effect.
- Deborah Kotz.
- Boston Globe. 2013 Dec 3.
- Press article
- Free Full Text
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- Angelina's choice.
- Goel NS.
- South Asian J Cancer. 2013 Oct;2(4):285-7. doi: 10.4103/2278-330X.119903.
- PMID: 24455660
- PubMed abstract
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- More Women Consider Gene Test After Angelina Jolie Mastectomy Revelation.
- Amy Norton.
- HealthDay. 2013 Aug 14.
- News
- Free Full Text
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- Breast cancer gene tests may treble on Welsh NHS.
- Gemma Ryall.
- BBC News. 2013 Aug 2.
- News
- Free Full Text
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- A Public Health Education Initiative for Women With a Family History of Breast/Ovarian Cancer: Why Did it Take Angelina Jolie?
- Nisker J.
- J Obstet Gynaecol Can. 2013 Aug;35(8):689-91.
- PMID: 24007702
- PubMed abstract
- Source abstract
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- Risk management: Jolie's decision sparks debate, need for more education.
- Trossman S.
- Am Nurse. 2013 Jul-Aug;45(4):1, 6.
- PMID: 24079102
- PubMed abstract
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- Genomic Medicine Just Hit the Accelerator.
- Eric J. Topol.
- Medscape Internal Medicine. 2013 Jun 17.
- Press article
- Free Full Text
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- Star Power.
- Robert Resta.
- The DNA Exchange. 2013 Jun 16.
- Blog post
- Free Full Text
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- Lou Gehrig, Angelina Jolie, and cancer genetics.
- Burstein HJ.
- J Natl Compr Canc Netw. 2013 Jun 1;11(6):631-2.
- PMID: 23744861
- PubMed abstract
- Source abstract
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- The Angelina effect.
- Kluger J, Park A.
- Time. 2013 May 27;181(20):28-33.
- PMID: 24044164
- PubMed abstract
- Source
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- Scotland expands breast cancer predictive genetic testing.
- Philippa Brice.
- PHG Foundation. 2013 May 22.
- News
- Free Full Text
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- No Easy Choices on Breast Reconstruction.
- Roni Caryn Rabini.
- NY Times. Well. 2013 May 20.
- Blog post
- Free Full Text
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- Celebrity impact. Benefits, risks seen in hype over Jolie's disclosure.
- Lee J.
- Mod Healthc. 2013 May 20;43(20):10-1.
- PMID: 23947266
- PubMed abstract
- News
- Free Full Text
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- Angelina Jolie's Mastectomy: BRCA Testing in the Spotlight.
- Kate Johnson.
- Medscape Medical News. Oncology. 2013 May 16.
- News
- Free Full Text
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- Angelina Jolie’s double mastectomy highlights tough decisions on genetic screening.
- Deborah Kotz.
- Boston Globe. 2013 May 14.
- Press article
- Free Full Text
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- Genetic Counseling Can Help Women At Risk For Breast Cancer.
- Melissa Block, Audie Cornish.
- NPR. All Things Considered. 2013 May 14.
- Audio, Transcript
- Free Full Text
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- My Medical Choice.
- Angelina Jolie.
- NY Times. The Opinion Pages. 2013 May 14.
- Narrative, Commentary
- Free Full Text