Public Knowledge / Awareness of Breast Cancer or HBOC and Related Topics
~ Genetics of Breast & Ovarian Cancer

Articles or methods for increasing knowledge/awareness of such topics (including popular press articles covering HBOC and related); Measures or surveys of public (or subgroups') knowledge of such topics. Includes breast/ovarian cancer risk perceptions, knowledge/opinions on breast/ovarian cancer causes/risk factors, awareness/knowledge of HBOC and genetic testing/counseling, etc.

List was last updated on Dec 6, 2019 @ 6:19 am.


    • Racial and Ethnic Differences in BRCA1/2 and Multigene Panel Testing Among Young Breast Cancer Patients.
    • Jones T, Trivedi MS, Jiang X, Silverman T, Underhill M, Chung WK, Kukafka R, Crew KD.
    • J Cancer Educ. 2019 Dec 4. doi: 10.1007/s13187-019-01646-8. [Epub ahead of print]
    • Culturally Targeted Video Improves Psychosocial Outcomes in Latina Women at Risk of Hereditary Breast and Ovarian Cancer.
    • Hurtado-de-Mendoza A, Graves KD, Gómez-Trillos S, Carrera P, Campos C, Anderson L, Luta G, Peshkin BN, Schwartz MD, Cupertino AP, Gonzalez N, Sheppard VB.
    • Int J Environ Res Public Health. 2019 Nov 29;16(23). pii: E4793. doi: 10.3390/ijerph16234793.
    • Impact of Genetic Testing on Risk-Management Behavior of Black Breast Cancer Survivors: A Longitudinal, Observational Study.
    • Conley CC, Kasting ML, Augusto BM, Garcia JD, Cragun D, Gonzalez BD, Kim J, Ashing KT, Knott CL, Hughes-Halbert C, Pal T, Vadaparampil ST.
    • Ann Surg Oncol. 2019 Nov 1. doi: 10.1245/s10434-019-07982-9. [Epub ahead of print]
    • Who should access Germline Genome Sequencing? A mixed methods study of patient views.
    • Best MC, Butow P, Jacobs C, Savard J, Biesecker B, Ballinger ML, Bartley N, Davies G, Napier CE, Smit AK, Thomas DM, Newson AJ; And members of the PiGeOn Project.
    • Clin Genet. 2019 Nov 1. doi: 10.1111/cge.13664. [Epub ahead of print]
    • How Do We Respond to Men with BRCA Mutations when They Ask About Prostate Cancer?
    • Karzai F, Madan RA, Dahut WL.
    • Eur Urol. 2019 Oct 29. pii: S0302-2838(19)30767-5. doi: 10.1016/j.eururo.2019.10.001. [Epub ahead of print]
    • Editorial
    • New Consumer Podcast Highlights Steps Individuals Can Take to Understand Cancer Risk.
    • [No author given]
    • NSGC blog, 2019 Oct 29.

    Podcast: Genetic Counselors and You — Breast Cancer Awareness Month. (NSGC "Genetic Counselors & You" Podcast Series)

    • Genetic counselling and personalised risk assessment in the Australian pancreatic cancer screening program.
    • Dwarte T, McKay S, Johns A, Tucker K, Spigelman AD, Williams D, Stoita A.
    • Hered Cancer Clin Pract. 2019 Oct 23;17:30. doi: 10.1186/s13053-019-0129-1. eCollection 2019.
    • Decision Making About Genetic Testing Among Women With a Personal and Family History of Breast Cancer.
    • Scott D, Friedman S, Telli ML, Kurian AW.
    • J Oncol Pract. 2019 Oct 15:JOP1900221. doi: 10.1200/JOP.19.00221. [Epub ahead of print]
    • Exploring factors that impact uptake of risk-reducing bilateral salpingo-oophorectomy (RRBSO) in high-risk women.
    • Hickey M, Rio I, Trainer A, Marino JL, Wrede CD, Peate M.
    • Menopause. 2019 Oct 14. doi: 10.1097/GME.0000000000001422. [Epub ahead of print]
    • "How do we rally around the one who was positive?" Familial uncertainty management in the context of men managing BRCA-related cancer risks.
    • Rauscher EA, Dean M, Campbell-Salome G, Barbour JB.
    • Soc Sci Med. 2019 Oct 11;242:112592. doi: 10.1016/j.socscimed.2019.112592. [Epub ahead of print]
    • Do Women who Receive a Negative BRCA1/2 Risk Result Understand the Implications for Breast Cancer Risk?
    • Guan Y, Condit CM, Escoffery C, Bellcross CA, McBride CM.
    • Public Health Genomics. 2019 Oct 9:1-8. doi: 10.1159/000503129. [Epub ahead of print]
    • Who Should Consider Genetic Counseling and Testing for Breast and Ovarian Cancer? Guidelines Have Expanded.
    • [No author given]
    • My Gene Counsel. 2019 Oct 3.
    • Health professional and at-risk BRCA young adult perspectives about information needs: What does Gen Y need to know?
    • Young AL, Butow PN, Tucker KM, Williams R, Healey E, Wakefield CE.
    • J Genet Couns. 2019 Sep 19. doi: 10.1002/jgc4.1167. [Epub ahead of print]
    • Race/ethnicity and accuracy of self-reported female first-degree family history of breast and other cancers in the Northern California Breast Cancer Family Registry.
    • John EM, Canchola AJ, Sanagaramoorthy M, Koo J, Whittemore AS, West DW.
    • Cancer Epidemiol Biomarkers Prev. 2019 Sep 5. pii: cebp.0444.2019. doi: 10.1158/1055-9965.EPI-19-0444. [Epub ahead of print]
    • Epigenetic Risk Assessment of Female Cancers: Women's Information Needs and Attitudes.
    • Rebitschek FG, Reisel D, Lein I, Wegwarth O.
    • Public Health Genomics. 2019 Sep 4;22(1-2):46-57. doi: 10.1159/000501975. [Epub ahead of print]
    • Cancer: more genetic BRCA testing for men.
    • Marabelli M, Calvello M, Bonanni B.
    • Nature. 2019 Sep;573(7774):346. doi: 10.1038/d41586-019-02775-2.

    Commentary:

    New name for breast-cancer syndrome could help to save lives.

    • Risk Estimation, Anxiety and Breast Cancer Worry in Women at Risk for Breast Cancer: A Single-Arm Trial of Personalized Risk Communication.
    • Xie Z, Wenger N, Stanton A, Sepucha K, Kaplan C, Madlensky L, Elashoff D, Trent J, Petruse A, Johansen L, Layton T, Naeim A.
    • Psychooncology. 2019 Aug 28. doi: 10.1002/pon.5211. [Epub ahead of print]
    • The Genetic Education for Men (GEM) Trial: Development of Web-Based Education for Untested Men in BRCA1/2-Positive Families.
    • Peshkin BN, Ladd MK, Isaacs C, Segal H, Jacobs A, Taylor KL, Graves KD, O'Neill SC, Schwartz MD.
    • J Cancer Educ. 2019 Aug 11. doi: 10.1007/s13187-019-01599-y. [Epub ahead of print]
    • Effect of interventions including provision of personalised cancer risk information on accuracy of risk perception and psychological responses: A systematic review and meta-analysis.
    • Bayne M, Fairey M, Silarova B, Griffin SJ, Sharp SJ, Klein WMP, Sutton S, Usher-Smith JA.
    • Patient Educ Couns. 2019 Aug 11. pii: S0738-3991(19)30350-7. doi: 10.1016/j.pec.2019.08.010. [Epub ahead of print]
    • Global celebrities' effect on health awareness among Jordanians: A study using the case of Angelina Jolie.
    • Al-Hussaini M, Ammar K, Kasasbeh N, Sultan H, Al-Omari A.
    • J Genet Couns. 2019 Aug 6. doi: 10.1002/jgc4.1154. [Epub ahead of print]
    • Willingness to decrease mammogram frequency among women at low risk for hereditary breast cancer.
    • Guan Y, Nehl E, Pencea I, Condit CM, Escoffery C, Bellcross CA, McBride CM.
    • Sci Rep. 2019 Jul 3;9(1):9599. doi: 10.1038/s41598-019-45967-6.
    • Knowledge, attitudes, and perceived barriers towards genetic testing across three rural Illinois communities.
    • Fogleman AJ, Zahnd WE, Lipka AE, Malhi RS, Ganai S, Delfino KR, Jenkins WD.
    • J Community Genet. 2019 Jul;10(3):417-423. doi: 10.1007/s12687-019-00407-w. Epub 2019 Jan 23.
    • New name for breast-cancer syndrome could help to save lives.
    • Pritchard CC.
    • Nature. 2019 Jul;571(7763):27-29. doi: 10.1038/d41586-019-02015-7.

    Letter:

    Cancer: more genetic BRCA testing for men.

    Press: New Name of 'King Syndrome' for Hereditary BRCA Mutations. (Medscape Oncology)

    • Barriers to the utilization of genetic testing and genetic counseling in patients with suspected hereditary breast and ovarian cancers.
    • Swink A, Nair A, Hoof P, Matthews A, Burden C, Johnson K, Blum JL.
    • Proc (Bayl Univ Med Cent). 2019 Jun 11;32(3):340-344. doi: 10.1080/08998280.2019.1612702. eCollection 2019 Jul.
    • Awareness and acceptability of population-based screening for pathogenic BRCA variants: Do race and ethnicity matter?
    • Rubinsak LA, Kleinman A, Quillin J, Gordon SW, Sullivan SA, Sutton AL, Sheppard VB, Temkin SM.
    • Gynecol Oncol. 2019 Jun 22. pii: S0090-8258(19)31320-4. doi: 10.1016/j.ygyno.2019.06.009. [Epub ahead of print]
    • Female family members lack understanding of indeterminate negative BRCA1/2 test results shared by probands.
    • Himes DO, Gibbons DK, Birmingham WC, Beckstrand RL, Gammon A, Kinney AY, Clayton MF.
    • J Genet Couns. 2019 Jun 14. doi: 10.1002/jgc4.1147. [Epub ahead of print]
    • Differences in referral patterns based on race for women at high-risk for ovarian cancer in the southeast: Results from a Gynecologic Cancer Risk Assessment Clinic.
    • Boitano TKL, Barrington DA, Batra S, McGwin G Jr, Turner TB, Farmer MB, Brown AM, Straughn MJ Jr, Leath CA 3rd.
    • Gynecol Oncol. 2019 Jun 10. pii: S0090-8258(19)31275-2. doi: 10.1016/j.ygyno.2019.05.031. [Epub ahead of print]
    • Genetic testing and eHealth usage among Deaf women.
    • Kushalnagar P, Holcomb J, Sadler GR.
    • J Genet Couns. 2019 Jun 10. doi: 10.1002/jgc4.1134. [Epub ahead of print]
    • A young woman's story of genetic testing and risk-reducing mastectomy.
    • [No author given]
    • FORCE. XRAYS. 2019 Jun 6.

    Narrative: I Had a Preventive Mastectomy—Then Found Out I Already Had Breast Cancer. (Health)

    • Understanding Factors Associated with Uptake of BRCA1/2 Genetic Testing among Orthodox Jewish Women in the USA Using a Mixed-Methods Approach.
    • Trivedi MS, Colbeth H, Yi H, Vanegas A, Starck R, Chung WK, Appelbaum PS, Kukafka R, Schechter I, Crew KD.
    • Public Health Genomics. 2019 Jun 4:1-11. doi: 10.1159/000499852. [Epub ahead of print]
    • A randomized study to improve care for young women with breast cancer at community and academic medical oncology practices in the United States: The Young and Strong study.
    • Partridge AH, Ruddy KJ, Barry WT, Greaney ML, Ligibel JA, Sprunck-Harrild KM, Rosenberg SM, Baker EL, Hoverman JR, Emmons KM.
    • Cancer. 2019 Jun 1;125(11):1799-1806. doi: 10.1002/cncr.31984. Epub 2019 Feb 1.
    • What does risk of future cancer mean to breast cancer patients?
    • Kaiser K, Cameron KA, Beaumont J, Garcia SF, Lacson L, Moran M, Karavites L, Rodgers C, Kulkarni S, Hansen NM, Khan SA.
    • Breast Cancer Res Treat. 2019 Jun;175(3):579-584. doi: 10.1007/s10549-019-05182-3. Epub 2019 Mar 6.
    • Disparities in genetic services utilization in a random sample of young breast cancer survivors.
    • Nikolaidis C, Duquette D, Mendelsohn-Victor KE, Anderson B, Copeland G, Milliron KJ, Merajver SD, Janz NK, Northouse LL, Duffy SA, Katapodi MC.
    • Genet Med. 2019 Jun;21(6):1363-1370. doi: 10.1038/s41436-018-0349-1. Epub 2018 Nov 2.
    • Factors affecting breast cancer patients' need for genetic risk information: From information insufficiency to information need.
    • Hong SJ, Biesecker B, Ivanovich J, Goodman M, Kaphingst KA.
    • J Genet Couns. 2019 Jun;28(3):543-557. doi: 10.1002/jgc4.1087. Epub 2019 Jan 24.
    • Are young women ready for BRCA testing? Comparing attitudes and comprehension of two age groups of healthy Italian women.
    • Gavaruzzi T, Tasso A, Franiuk M, Varesco L, Lotto L.
    • Patient Educ Couns. 2019 Jun;102(6):1210-1216. doi: 10.1016/j.pec.2019.01.022. Epub 2019 Jan 28.
    • Genetic counseling, genetic testing, and risk perceptions for breast and colorectal cancer: Results from the 2015 National Health Interview Survey.
    • Turbitt E, Roberts MC, Taber JM, Waters EA, McNeel TS, Biesecker BB, Klein WMP.
    • Prev Med. 2019 Jun;123:12-19. doi: 10.1016/j.ypmed.2019.02.027. Epub 2019 Feb 25.
    • Developing a culturally targeted video to enhance the use of genetic counseling in Latina women at increased risk for hereditary breast and ovarian cancer.
    • Hurtado-de-Mendoza A, Graves KD, Gómez-Trillos S, Song M, Anderson L, Campos C, Carrera P, Ostrove N, Peshkin BN, Schwartz MD, Ficca N, Cupertino AP, Gonzalez N, Otero A, Huerta E, Sheppard VB.
    • J Community Genet. 2019 May 18. doi: 10.1007/s12687-019-00423-w. [Epub ahead of print]
    • Cancer genetic health communication in families tested for hereditary breast/ovarian cancer risk: a qualitative investigation of impact on children's genetic health literacy and psychosocial adjustment.
    • Tercyak KP, Bronheim SM, Kahn N, Robertson HA, Anthony BJ, Mays D, O'Neill SC, Peterson SK, Miesfeldt S, Peshkin BN, DeMarco TA.
    • Transl Behav Med. 2019 May 16;9(3):493-503. doi: 10.1093/tbm/ibz012.
    • Exploring Predictors of Genetic Counseling and Testing for Hereditary Breast and Ovarian Cancer: Findings from the 2015 U.S. National Health Interview Survey.
    • Allen CG, Roberts M, Guan Y.
    • J Pers Med. 2019 May 10;9(2). pii: E26. doi: 10.3390/jpm9020026.
    • Effectiveness of interventions to identify and manage patients with familial cancer risk in primary care: a systematic review.
    • Lee SI, Patel M, Dutton B, Weng S, Luveta J, Qureshi N.
    • J Community Genet. 2019 May 6. doi: 10.1007/s12687-019-00419-6. [Epub ahead of print]
    • Review
    • Understanding BRCA Mutation Carriers' Preferences for Communication of Genetic Modifiers of Breast Cancer Risk.
    • Hovick SR, Tan N, Morr L, Senter L, Kinnamon DD, Pyatt RE, Toland AE.
    • J Health Commun. 2019 May 6:1-8. doi: 10.1080/10810730.2019.1604912. [Epub ahead of print]
    • Nutrition knowledge, attitudes, and practice towards breast cancer prevention among the female population of Iran University of medical science students.
    • Raji Lahiji M, Dehdari T, Shokouhi Shoormasti R, Hosseini AF, Navaei M, Zarrati M.
    • Nutr Cancer. 2019 May 6:1-10. doi: 10.1080/01635581.2019.1607410. [Epub ahead of print]
    • Accuracy in risk understanding among BRCA1/2-mutation carriers.
    • Speiser D, Rebitschek FG, Feufel MA, Brand H, Besch L, Kendel F.
    • Patient Educ Couns. 2019 May 5. pii: S0738-3991(18)30887-5. doi: 10.1016/j.pec.2019.05.007. [Epub ahead of print]
    • Attitude towards and factors affecting uptake of population-based BRCA testing in the Ashkenazi Jewish population: a cohort study.
    • Manchanda R, Burnell M, Gaba F, Sanderson S, Loggenberg K, Gessler S, Wardle J, Side L, Desai R, Brady AF, Dorkins H, Wallis Y, Chapman C, Jacobs C, Tomlinson I, Beller U, Menon U, Jacobs I.
    • BJOG. 2019 May;126(6):784-794. doi: 10.1111/1471-0528.15654. Epub 2019 Mar 18.
    • A randomized controlled intervention to promote readiness to genetic counseling for breast cancer survivors.
    • Kasting ML, Conley CC, Hoogland AI, Scherr CL, Kim J, Thapa R, Reblin M, Meade CD, Lee MC, Pal T, Quinn GP, Vadaparampil ST.
    • Psychooncology. 2019 May;28(5):980-988. doi: 10.1002/pon.5059. Epub 2019 Apr 11.
    • Women's perceptions of personalized risk-based breast cancer screening and prevention: An international focus group study.
    • Rainey L, Jervaeus A, Donnelly LS, Evans DG, Hammarström M, Hall P, Wengström Y, Broeders MJM, van der Waal D.
    • Psychooncology. 2019 May;28(5):1056-1062. doi: 10.1002/pon.5051. Epub 2019 Mar 25.
    • Cases in Precision Medicine: When Patients Present With Direct-to-Consumer Genetic Test Results.
    • Artin MG, Stiles D, Kiryluk K, Chung WK.
    • Ann Intern Med. 2019 Apr 30. doi: 10.7326/M18-2356. [Epub ahead of print]
    • Case report
    • Shared-patient physician networks and their impact on the uptake of genomic testing in breast cancer.
    • Rotter J, Wilson L, Greiner MA, Pollack CE, Dinan M.
    • Breast Cancer Res Treat. 2019 Apr 26. doi: 10.1007/s10549-019-05248-2. [Epub ahead of print]
    • Uptake of genetic testing for germline BRCA1/2 pathogenic variants in a predominantly Hispanic population.
    • McGuinness JE, Trivedi MS, Silverman T, Marte A, Mata J, Kukafka R, Crew KD.
    • Cancer Genet. 2019 Apr 24. pii: S2210-7762(19)30059-6. doi: 10.1016/j.cancergen.2019.04.063. [Epub ahead of print]
    • "A natural progression" - Australian women's attitudes about an individualised breast screening model.
    • Lippey J, Keogh LA, Mann GB, Campbell IG, Forrest LE.
    • Cancer Prev Res (Phila). 2019 Apr 19. pii: canprevres.0443.2018. doi: 10.1158/1940-6207.CAPR-18-0443. [Epub ahead of print]
    • Hereditary Breast Cancer Risk Analysis in Uninsured Mexican-Origin Women Living in the U.S.-Mexico Border Region.
    • Salinas JJ, Roy R, Dwivedi AK, Shokar NK.
    • Hisp Health Care Int. 2019 Apr 12:1540415319837850. doi: 10.1177/1540415319837850. [Epub ahead of print]
    • Factors Influencing Not Perceiving Family Health History Assessments as Important: Opportunities to Improve Dissemination of Evidence-Based Population Screening for Cancer.
    • Allen CG, Escoffery C, Haardörfer R, McBride CM.
    • Public Health Genomics. 2019 Apr 9:1-10. doi: 10.1159/000499125. [Epub ahead of print]
    • Racial/Ethnic Disparities in BRCA Counseling and Testing: a Narrative Review.
    • Williams CD, Bullard AJ, O'Leary M, Thomas R, Redding TS 4th, Goldstein K.
    • J Racial Ethn Health Disparities. 2019 Apr 8. doi: 10.1007/s40615-018-00556-7. [Epub ahead of print]
    • Review
    • Expectations versus reality: The impact of men's expectancy violations in conversations with healthcare providers about BRCA-related cancer risks.
    • Dean M, Rauscher E, Gomez E, Fischer C.
    • Patient Educ Couns. 2019 Apr 6. pii: S0738-3991(19)30135-1. doi: 10.1016/j.pec.2019.04.010. [Epub ahead of print]
    • A clinically structured and partnered approach to genetic testing in Trinidadian women with breast cancer and their families.
    • Donenberg T, George S, Ali J, Bravo G, Hernandez K, Sookar N, Ashing KT, Narod SA, Akbari MR, Hurley J.
    • Breast Cancer Res Treat. 2019 Apr;174(2):469-477. doi: 10.1007/s10549-018-5045-y. Epub 2018 Dec 4.
    • Development and pilot testing of a leaflet informing women with breast cancer about genomic testing for polygenic risk.
    • Kaur R, Meiser B, Yanes T, Young MA, Barlow-Stewart K, Roscioli T, Smith S, James PA.
    • Fam Cancer. 2019 Apr;18(2):147-152. doi: 10.1007/s10689-018-0104-4.
    • Boosting care and knowledge about hereditary cancer: European Reference Network on Genetic Tumour Risk Syndromes.
    • Vos JR, Giepmans L, Röhl C, Geverink N, Hoogerbrugge N; ERN GENTURIS.
    • Fam Cancer. 2019 Apr;18(2):281-284. doi: 10.1007/s10689-018-0110-6.
    • High-risk women's risk perception after receiving personalized polygenic breast cancer risk information.
    • Forrest LE, Sawyer SD, Hallowell N, James PA, Young MA.
    • J Community Genet. 2019 Apr;10(2):197-206. doi: 10.1007/s12687-018-0378-0. Epub 2018 Aug 10.
    • Risk perception and screening behavior of Filipino women at risk for breast cancer: implications for cancer genetic counseling.
    • Lagarde JBB, Laurino MY, San Juan MD, Cauyan JML, Tumulak MJR, Ventura ER.
    • J Community Genet. 2019 Apr;10(2):281-289. doi: 10.1007/s12687-018-0391-3. Epub 2018 Sep 27.
    • Evaluation of the template letter regarding the disclosure of genetic information within the family in France.
    • Zordan C, Monteil L, Haquet E, Cordier C, Toussaint E, Roche P, Dorian V, Maillard A, Lhomme E, Richert L, Pasquier L, Akloul L, Taris N, Lacombe D.
    • J Community Genet. 2019 Mar 27. doi: 10.1007/s12687-019-00418-7. [Epub ahead of print]
    • Does family communication matter? Exploring knowledge of breast cancer genetics in cancer families.
    • Himes DO, Davis SH, Lassetter JH, Peterson NE, Clayton MF, Birmingham WC, Kinney AY.
    • J Community Genet. 2019 Mar 15. doi: 10.1007/s12687-019-00413-y. [Epub ahead of print]
    • Gaps in information about breast cancer risk and prevention impact African American women.
    • [No author given]
    • FORCE. XRAYS. 2019 Mar 14.

    Original research:

    Layers of information: interacting constraints on breast cancer risk-management by high-risk African American women.

    • Impact of Implementing B-RSTTM to Screen for Hereditary Breast and Ovarian Cancer on Risk Perception and Genetic Counseling Uptake Among Women in an Academic Safety Net Hospital.
    • Wernke K, Bellcross C, Gabram S, Ali N, Stanislaw C.
    • Clin Breast Cancer. 2019 Mar 11. pii: S1526-8209(18)30730-4. doi: 10.1016/j.clbc.2019.02.014. [Epub ahead of print]
    • Painting a portrait: Analysis of national health survey data for cancer genetic counseling.
    • Stamp MH, Gordon OK, Childers CP, Childers KK.
    • Cancer Med. 2019 Mar;8(3):1306-1314. doi: 10.1002/cam4.1864. Epub 2019 Feb 7.
    • Psychosocial, attitudinal, and demographic correlates of cancer-related germline genetic testing in the 2017 Health Information National Trends Survey.
    • Roberts MC, Turbitt E, Klein WMP.
    • J Community Genet. 2019 Feb 20. doi: 10.1007/s12687-018-00405-4. [Epub ahead of print]
    • Consumer and clinician perspectives on personalising breast cancer prevention information.
    • Keogh LA, Steel E, Weideman P, Butow P, Collins IM, Emery JD, Mann GB, Bickerstaffe A, Trainer AH, Hopper LJ, Phillips KA.
    • Breast. 2019 Feb;43:39-47. doi: 10.1016/j.breast.2018.11.002. Epub 2018 Nov 7.
    • Concordance with BRCA1/2 testing guidelines among women in The Health of Women (HOW) Study®.
    • Silver MI, Klein W, Samimi G, Minasian L, Loud J, Roberts MC.
    • Breast Cancer Res Treat. 2019 Feb;173(3):719-726. doi: 10.1007/s10549-018-5035-0. Epub 2018 Nov 9.
    • Genetic Testing Across Young Hispanic and Non-Hispanic White Breast Cancer Survivors: Facilitators, Barriers, and Awareness of the Genetic Information Nondiscrimination Act.
    • Cragun D, Weidner A, Kechik J, Pal T.
    • Genet Test Mol Biomarkers. 2019 Feb;23(2):75-83. doi: 10.1089/gtmb.2018.0253. Epub 2019 Jan 24.
    • Disseminating universal genetic testing to a diverse, indigent patient population at a county hospital gynecologic oncology clinic.
    • Bednar EM, Sun CC, Camacho B, Terrell J, Rieber AG, Ramondetta LM, Freedman RS, Lu KH.
    • Gynecol Oncol. 2019 Feb;152(2):328-333. doi: 10.1016/j.ygyno.2018.12.001. Epub 2018 Dec 8.
    • Legacies and Relationships: Diverse Social Networks and BRCA1/2 Risk Management Decisions and Actions.
    • Ersig AL, Werner-Lin A, Hoskins L, Young J, Loud JT, Peters J, Greene MH.
    • J Fam Nurs. 2019 Feb;25(1):28-53. doi: 10.1177/1074840718815844. Epub 2018 Dec 12.
    • The Impact of a Risk-Based Breast Cancer Screening Decision Aid on Initiation of Mammography Among Younger Women: Report of a Randomized Trial.
    • Schapira MM, Hubbard RA, Seitz HH, Conant EF, Schnall M, Cappella JN, Harrington T, Inge C, Armstrong K.
    • MDM Policy Pract. 2019 Jan 17;4(1):2381468318812889. doi: 10.1177/2381468318812889. eCollection 2019 Jan-Jun.
    • Psychosocial and behavioral outcomes of genomic testing in cancer: a systematic review.
    • Yanes T, Willis AM, Meiser B, Tucker KM, Best M.
    • Eur J Hum Genet. 2019 Jan;27(1):28-35. doi: 10.1038/s41431-018-0257-5. Epub 2018 Sep 11.
    • Review
    • Preventative Health and Risk Behaviors Among Adolescent Girls With and Without Family Histories of Breast Cancer.
    • Schwartz LA, Henry-Moss D, Egleston B, Patrick-Miller L, Markman E, Daly M, Tuchman L, Moore C, Rauch PK, Karpink K, Sands CB, Domchek SM, Bradbury AR.
    • J Adolesc Health. 2019 Jan;64(1):116-123. doi: 10.1016/j.jadohealth.2018.07.011. Epub 2018 Oct 6.
    • BRCA Testing Dichotomy in Saudi Arabia.
    • Abusanad A.
    • J Glob Oncol. 2019 Jan;(5):1-2. doi: 10.1200/JGO.18.00188.
    • Development of Breast Cancer Choices: a decision support tool for young women with breast cancer deciding whether to have genetic testing for BRCA1/2 mutations.
    • Grimmett C, Brooks C, Recio-Saucedo A, Armstrong A, Cutress RI, Gareth Evans D, Copson E, Turner L, Meiser B, Wakefield CE, Eccles D, Foster C.
    • Support Care Cancer. 2019 Jan;27(1):297-309. doi: 10.1007/s00520-018-4307-x. Epub 2018 Jun 28.
    • Patients' Medical and Psychosocial Experiences After Detection of a CDH1 Variant With Multigene Panel Testing.
    • Hamilton JG, Long JM, Brandt AC, Brower J, Symecko H, Salo-Mullen EE, Christian SN, Harstad T, Couch FJ, Garber JE, Offit K, Robson ME, Domchek SM.
    • JCO Precis Oncol. 2019;3. doi: 10.1200/PO.18.00300. Epub 2019 Mar 28.
    • Layers of information: interacting constraints on breast cancer risk-management by high-risk African American women.
    • Padamsee TJ, Meadows R, Hils M.
    • Ethn Health. 2018 Dec 27:1-24. doi: 10.1080/13557858.2018.1562053. [Epub ahead of print]

    Research news: Gaps in information about breast cancer risk and prevention impact African American women (FORCE. XRAYS.)

    • Cancer communication research in the era of genomics and precision medicine: a scoping review.
    • Kaphingst KA, Peterson E, Zhao J, Gaysynsky A, Elrick A, Hong SJ, Krakow M, Pokharel M, Ratcliff CL, Klein WMP, Khoury MJ, Chou WS.
    • Genet Med. 2018 Dec 21. doi: 10.1038/s41436-018-0402-0. [Epub ahead of print]
    • Review
    • Black and Minority Ethnic women's decision-making for risk reduction strategies after BRCA testing: Use of context and knowledge.
    • Machirori M, Patch C, Metcalfe A.
    • Eur J Med Genet. 2018 Dec 12. pii: S1769-7212(18)30405-1. doi: 10.1016/j.ejmg.2018.12.006. [Epub ahead of print]
    • An Applied Framework in Support of Shared Decision Making about BRCA Genetic Testing.
    • Silverman TB, Kuperman GJ, Vanegas A, Sin M, Dimond J, Crew KD, Kukafka R.
    • AMIA Annu Symp Proc. 2018 Dec 5;2018:961-969. eCollection 2018.
    • Communication About Hereditary Cancers on Social Media: A Content Analysis of Tweets About Hereditary Breast and Ovarian Cancer and Lynch Syndrome.
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    • Response to "Male Patients With Breast Cancer: Addressing Needs Using an Educational Task Force".
    • Mahon SM.
    • Clin J Oncol Nurs. 2018 Dec 1;22(6):610. doi: 10.1188/18.CJON.610.

    Original Research: Male Patients With Breast Cancer: Addressing Needs Using an Educational Task Force. (Clinical Journal of Oncology Nursing)

    • XRAYS (eXamining Relevance of Articles to Young Survivors) Program Survey of Information Needs and Media Use by Young Breast Cancer Survivors and Young Women at High-Risk for Breast Cancer.
    • Yi RHP, Rezende LF, Huynh J, Kramer K, Cranmer M, Schlager L, Dearfield CT, Friedman SJ.
    • Health Commun. 2018 Dec;33(12):1525-1530. doi: 10.1080/10410236.2017.1372051. Epub 2017 Sep 28.

    Research news: FORCE online survey: What breast cancer information do young women want and where do they look for it? (FORCE. XRAYS.)

    • "I Am Uncertain About What My Uncertainty Even Is": Men's Uncertainty and Information Management of Their BRCA-Related Cancer Risks.
    • Rauscher EA, Dean M, Campbell-Salome GM.
    • J Genet Couns. 2018 Dec;27(6):1417-1427. doi: 10.1007/s10897-018-0276-y. Epub 2018 Jul 3.
    • The influence of Malay cultural beliefs on breast cancer screening and genetic testing: A focus group study.
    • Shaw T, Ishak D, Lie D, Menon S, Courtney E, Li ST, Ngeow J.
    • Psychooncology. 2018 Dec;27(12):2855-2861. doi: 10.1002/pon.4902. Epub 2018 Oct 16.
    • 9 Myths About Men and Hereditary Cancer.
    • [No author given]
    • My Gene Counsel. 2018 Nov 19.
    • The iPrevent Online Breast Cancer Risk Assessment and Risk Management Tool: Usability and Acceptability Testing.
    • Lo LL, Collins IM, Bressel M, Butow P, Emery J, Keogh L, Weideman P, Steel E, Hopper JL, Trainer AH, Mann GB, Bickerstaffe A, Antoniou AC, Cuzick J, Phillips KA.
    • JMIR Form Res. 2018 Nov 7;2(2):e24. doi: 10.2196/formative.9935.
    • Role of the general practitioner in the care of BRCA1 and BRCA2 mutation carriers: General practitioner and patient perspectives.
    • Vande Perre P, Toledano D, Corsini C, Escriba E, Laporte M, Bertet H, Yauy K, Toledano A, Galibert V, Baudry K, Clotet L, Million E, Picot MC, Geneviève D, Pujol P.
    • Mol Genet Genomic Med. 2018 Nov;6(6):957-965. doi: 10.1002/mgg3.464. Epub 2018 Oct 11.
    • A randomized controlled trial of a supportive expressive group intervention for women with a family history of breast cancer.
    • Esplen MJ, Leszcz M, Hunter J, Wong J, Leung YW, Toner B, Messner S, Glendon G, Stuckless N, Butler C.
    • Psychooncology. 2018 Nov;27(11):2645-2653. doi: 10.1002/pon.4822. Epub 2018 Jul 17.
    • Knowledge regarding and patterns of genetic testing in patients newly diagnosed with breast cancer participating in the iCanDecide trial.
    • Gornick MC, Kurian AW, An LC, Fagerlin A, Jagsi R, Katz SJ, Hawley ST.
    • Cancer. 2018 Oct 15;124(20):4000-4009. doi: 10.1002/cncr.31731. Epub 2018 Oct 5.
    • Genetic Counselors: Don’t Wait for an Invitation. Crash the Party.
    • Matloff E.
    • NSGC blog, 2018 Oct 3.
    • Comparison of gynecologic cancer risk factors, incidence and mortality trends between South Korea and Israel, 1999-2013.
    • Michaan N, Park SY, Won YJ, Lim MC.
    • Jpn J Clin Oncol. 2018 Oct 1;48(10):884-891. doi: 10.1093/jjco/hyy111.
    • College Women's Responses to a Celebrity Health Disclosure.
    • Drizin JH, Malcarne VL, Schiaffino MK, Wells KJ.
    • Health Commun. 2018 Oct;33(10):1302-1307. doi: 10.1080/10410236.2017.1351276. Epub 2017 Aug 18.
    • Direct-to-consumer genetic testing for breast cancer risk.
    • Reed EK, Edelman EA.
    • J Am Assoc Nurse Pract. 2018 Oct;30(10):548-550. doi: 10.1097/JXX.0000000000000146.
    • Review
    • Cancer experience in families affects decision making.
    • [No author given]
    • FORCE. XRAYS. 2018 Sep 25.

    Press: How a Loved One’s Experience With Cancer Guides Breast Cancer Decisions. (U.S. News & World Report)

    • In Their Own Words: A Qualitative Study of Kenyan Breast Cancer Survivors' Knowledge, Experiences, and Attitudes Regarding Breast Cancer Genetics.
    • Lee S, Gedleh A, Hill JA, Qaiser S, Umukunda Y, Odiyo P, Kitonyi G, Dimaras H.
    • J Glob Oncol. 2018 Sep;(4):1-9. doi: 10.1200/JGO.17.00061. Epub 2017 Dec 4.
    • Establishment of the Alabama Hereditary Cancer Cohort - strategies for the inclusion of underrepresented populations in cancer genetics research.
    • Bishop MR, Shah A, Shively M, Huskey ALW, Omeler SM, Bilgili EP, Jackson E, Daniell K, Stallworth E, Spina S, Shepp K, Bergstresser S, Davis A, Dean H, Gibson J, Johnson B, Merner ND.
    • Mol Genet Genomic Med. 2018 Sep;6(5):766-778. doi: 10.1002/mgg3.443. Epub 2018 Jul 1.
    • [The Population Need in Genetic Tests for Predisposition to Breast Cancer].
    • Ishkineeva FF, Ozerova KA, Kaveeva AD, Husnullina ES.
    • Probl Sotsialnoi Gig Zdravookhranenniiai Istor Med. 2018 Sep;26(5):276-281. doi: 10.32687/0869-866X-2018-26-5-276-281.
    • Review, [Article in Russian]
    • Study protocol: a cluster randomized controlled trial of web-based decision support tools for increasing BRCA1/2 genetic counseling referral in primary care.
    • Silverman TB, Vanegas A, Marte A, Mata J, Sin M, Ramirez JCR, Tsai WY, Crew KD, Kukafka R.
    • BMC Health Serv Res. 2018 Aug 13;18(1):633. doi: 10.1186/s12913-018-3442-x.
    • Male Patients With Breast Cancer: Addressing Needs Using an Educational Task Force.
    • Cutrone JN, Segna AN, Baron RH.
    • Clin J Oncol Nurs. 2018 Aug 1;22(4):415-420. doi: 10.1188/18.CJON.415–420.

    Letter, Comment:

    Response to "Male Patients With Breast Cancer: Addressing Needs Using an Educational Task Force".

    • Risk communication in genetic counseling: Exploring uptake and perception of recurrence numbers, and their impact on patient outcomes.
    • Borle K, Morris E, Inglis A, Austin J.
    • Clin Genet. 2018 Aug;94(2):239-245. doi: 10.1111/cge.13379. Epub 2018 Jun 12.
    • Breast Cancer Genetics Knowledge and Testing Intentions among Nigerian Professional Women.
    • Ngene SO, Adedokun B, Adejumo P, Olopade O.
    • J Genet Couns. 2018 Aug;27(4):863-873. doi: 10.1007/s10897-017-0194-4. Epub 2017 Dec 19.
    • “Second-Class Status?” Insight into Communication Patterns and Common Concerns Among Men with Hereditary Breast and Ovarian Cancer Syndrome.
    • Suttman A, Pilarski R, Agnese DM, Senter L.
    • J Genet Couns. 2018 Aug;27(4):885-893. doi: 10.1007/s10897-018-0214-z. Epub 2018 Feb 5.
    • A qualitative study of barriers to genetic counseling and potential for mobile technology education among women with ovarian cancer.
    • Vogel RI, Niendorf K, Lee H, Petzel S, Lee HY, Geller MA.
    • Hered Cancer Clin Pract. 2018 Jul 4;16:13. doi: 10.1186/s13053-018-0095-z. eCollection 2018.
    • The Cancer Worry Scale Revised for Breast Cancer Genetic Counseling.
    • Caruso A, Vigna C, Gremigni P.
    • Cancer Nurs. 2018 Jul/Aug;41(4):311-319. doi: 10.1097/NCC.0000000000000511.
    • Information and support needs of young women regarding breast cancer risk and genetic testing: adapting effective interventions for a novel population.
    • O'Neill SC, Evans C, Hamilton RJ, Peshkin BN, Isaacs C, Friedman S, Tercyak KP.
    • Fam Cancer. 2018 Jul;17(3):351-360. doi: 10.1007/s10689-017-0059-x.
    • From the laboratory to the clinic: sharing BRCA VUS reclassification tools with practicing genetics professionals.
    • Augusto BM, Lake P, Scherr CL, Couch FJ, Lindor NM, Vadaparampil ST.
    • J Community Genet. 2018 Jul;9(3):209-215. doi: 10.1007/s12687-017-0343-3. Epub 2017 Nov 9.
    • Knowledge of Genetic Counseling Among Patients With Breast Cancer and Their Relatives at a Nigerian Teaching Hospital.
    • Adejumo P, Aniagwu T, Oluwatosin A, Fagbenle O, Ajayi O, Ogungbade D, Oluwamotemi A, Olatoye-Wahab F, Oni A, Olajide O, Adedokun B, Ogundiran T, Olopade O.
    • J Glob Oncol. 2018 Jul;(4):1-8. doi: 10.1200/JGO.17.00158.

    Editorial:

    Clinical Cancer Genetics in a Lower-Middle Income Country: Considerations for Policymaking.

    • Clinical Cancer Genetics in a Lower-Middle Income Country: Considerations for Policymaking.
    • Ginsburg O, Narod SA.
    • J Glob Oncol. 2018 Jul;(4):1-3. doi: 10.1200/JGO.18.00081.

    Knowledge of Genetic Counseling Among Patients With Breast Cancer and Their Relatives at a Nigerian Teaching Hospital.

    • Health education models application by peer group for improving breast cancer screening among Iranian women with a family history of breast cancer: A randomized control trial.
    • Fathollahi-Dehkordi F, Farajzadegan Z.
    • Med J Islam Repub Iran. 2018 Jun 21;32:51. doi: 10.14196/mjiri.32.51. eCollection 2018.
    • Implementation of a quality improvement project for universal genetic testing in women with ovarian cancer.
    • Uyar D, Neary J, Monroe A, Nugent M, Simpson P, Geurts JL.
    • Gynecol Oncol. 2018 Jun;149(3):565-569. doi: 10.1016/j.ygyno.2018.03.059. Epub 2018 Apr 10.
    • Making Sense of SNPs: Women's Understanding and Experiences of Receiving a Personalized Profile of Their Breast Cancer Risks.
    • Young MA, Forrest LE, Rasmussen VM, James P, Mitchell G, Sawyer SD, Reeve K, Hallowell N.
    • J Genet Couns. 2018 Jun;27(3):702-708. doi: 10.1007/s10897-017-0162-z. Epub 2017 Nov 22.
    • [To know or not to know, that is the question - screening for BRCA].
    • Johannsson OT.
    • Laeknabladid. 2018 Jun;104(6):281. doi: 10.17992/lbl.2018.06.187.
    • [Views of Icelandic women towards genetic counseling - and testing of BRCA2 mutations].
    • Jonsdottir T, Valdimarsdottir H, Tryggvadottir L, Lund SH, Thordardottir M, Magnusson MK, Valdimarsdottir U.
    • Laeknabladid. 2018 Jun;104(6):289-296. doi: 10.17992/lbl.2018.06.189.
    • Accuracy of self-reported family history of cancer, mutation status and tumor characteristics in patients with early onset breast cancer.
    • Augustinsson A, Ellberg C, Kristoffersson U, Borg Å, Olsson H.
    • Acta Oncol. 2018 May;57(5):595-603. doi: 10.1080/0284186X.2017.1404635. Epub 2017 Nov 22.
    • Communicating with Daughters About Familial Risk of Breast Cancer: Individual, Family, and Provider Influences on Women's Knowledge of Cancer Risk.
    • Peipins LA, Rodriguez JL, Hawkins NA, Soman A, White MC, Hodgson ME, DeRoo LA, Sandler DP.
    • J Womens Health (Larchmt). 2018 May;27(5):630-639. doi: 10.1089/jwh.2017.6528. Epub 2018 Jan 29.
    • Hereditary Cancer Genetic Testing in Community-Based Obstetrics and Gynecology Settings.
    • Obstet Gynecol. 2018 May;131(5):119s. doi: 10.1097/01.AOG.0000533506.01865.a1.
    • Risk Screening for Hereditary Cancer During Obstetrical Care: Barriers to Testing and Health Disparities.
    • Lua LL, Jackson D, Foggia M, Rosenbaum A.
    • Obstet Gynecol. 2018 May;131(5):148s. doi: 10.1097/01.AOG.0000533083.79347.8c.
    • Systematic review of the empirical investigation of resources to support decision-making regarding BRCA1 and BRCA2 genetic testing in women with breast cancer.
    • Grimmett C, Pickett K, Shepherd J, Welch K, Recio-Saucedo A, Streit E, Seers H, Armstrong A, Cutress RI, Evans DG, Copson E, Meiser B, Eccles D, Foster C.
    • Patient Educ Couns. 2018 May;101(5):779-788. doi: 10.1016/j.pec.2017.11.016. Epub 2017 Nov 26.
    • Review
    • Investigating barriers to genetic counseling and germline mutation testing in women with suspected hereditary breast and ovarian cancer syndrome and Lynch syndrome.
    • Shaw J, Bulsara C, Cohen PA, Gryta M, Nichols CB, Schofield L, O'Sullivan S, Pachter N, Hardcastle SJ.
    • Patient Educ Couns. 2018 May;101(5):938-944. doi: 10.1016/j.pec.2017.12.011. Epub 2017 Dec 12.
    • Gaps in Receipt of Clinically Indicated Genetic Counseling After Diagnosis of Breast Cancer.
    • Katz SJ, Ward KC, Hamilton AS, Mcleod MC, Wallner LP, Morrow M, Jagsi R, Hawley ST, Kurian AW.
    • J Clin Oncol. 2018 Apr 20;36(12):1218-1224. doi: 10.1200/JCO.2017.76.2369. Epub 2018 Mar 12.

    Press: Many Breast Cancer Patients Not Receiving Genetic Evaluation. (Medscape)

    • Trends in utilization and costs of BRCA testing among women aged 18-64 years in the United States, 2003-2014.
    • Chen Z, Kolor K, Grosse SD, Rodriguez JL, Lynch JA, Green RF, Dotson WD, Bowen MS, Khoury MJ.
    • Genet Med. 2018 Apr;20(4):428-434. doi: 10.1038/gim.2017.118. Epub 2017 Sep 21.
    • Disparities in genetics assessment for women with ovarian cancer: Can we do better?
    • Manrriquez E, Chapman JS, Mak J, Blanco AM, Chen LM.
    • Gynecol Oncol. 2018 Apr;149(1):84-88. doi: 10.1016/j.ygyno.2017.10.034.
    • Germline BRCA mutation in male carriers-ripe for precision oncology?
    • Leão RRN, Price AJ, James Hamilton R.
    • Prostate Cancer Prostatic Dis. 2018 Apr;21(1):48-56. doi: 10.1038/s41391-017-0018-5. Epub 2017 Dec 14.
    • Review
    • Health literacy and the perception of risk in a breast cancer family history clinic.
    • Rutherford EJ, Kelly J, Lehane EA, Livingstone V, Cotter B, Butt A, O'Sullivan MJ, O Connell F, Redmond HP, Corrigan MA.
    • Surgeon. 2018 Apr;16(2):82-88. doi: 10.1016/j.surge.2016.06.003. Epub 2016 Nov 29.
    • Take your time, follow your heart: strategies for communication about family planning.
    • [No author given]
    • FORCE. XRAYS. 2018 Mar 28.

    "Take your time, then follow your heart:" Previvors' advice for communicating about family planning after testing positive for a BRCA genetic variant.

    • The Right Not to Know: When Ignorance Is Bliss but Deadly.
    • Clausen AM.
    • Global Health NOW. 2018 Mar 20.

    Commentary: The right not to know when not knowing is dangerous. (FORCE. XRAYS.)

    • FDA approves breast cancer test kits: how useful are they?
    • [No author given]
    • FORCE. XRAYS. 2018 Mar 19.

    FDA News Release: FDA authorizes, with special controls, direct-to-consumer test that reports three mutations in the BRCA breast cancer genes (U.S. Food & Drug Administration)

    Press: Oncology Community Sees Potential for Patient Harm in FDA OK of 23andMe BRCA Test (GenomeWeb)

    Press: FDA Authorizes 23andMe DTC Test Report for Three BRCA Mutations (GenomeWeb)

    • Medical Strategy or Marketing Strategy?
    • Resta R.
    • The DNA Exchange. 2018 Mar 18.
    • NSGC Responds to U.S. Food and Drug Administration Approval of Direct-to-Consumer Cancer Test that Reports Three BRCA Mutations.
    • [No author given]
    • NSGC blog, 2018 Mar 6.

    FDA News Release: FDA authorizes, with special controls, direct-to-consumer test that reports three mutations in the BRCA breast cancer genes (U.S. Food & Drug Administration)

    • FDA authorizes, with special controls, direct-to-consumer test that reports three mutations in the BRCA breast cancer genes.
    • [No author given]
    • U.S. Food & Drug Administration. FDA News Release. 2018 Mar 6.

    Blog post, News: NSGC Responds to U.S. Food and Drug Administration Approval of Direct-to-Consumer Cancer Test that Reports Three BRCA Mutations (NSGC Blog)

    News: FDA approves breast cancer test kits: how useful are they? (FORCE. XRAYS)

    • Clinical testing of BRCA1 and BRCA2: a worldwide snapshot of technological practices.
    • Toland AE, Forman A, Couch FJ, Culver JO, Eccles DM, Foulkes WD, Hogervorst FBL, Houdayer C, Levy-Lahad E, Monteiro AN, Neuhausen SL, Plon SE, Sharan SK, Spurdle AB, Szabo C, Brody LC; BIC Steering Committee.
    • NPJ Genom Med. 2018 Feb 15;3:7. doi: 10.1038/s41525-018-0046-7. eCollection 2018.
    • Adaptation of Genetic Counseling According to an Individual's Literacy Regarding Genomics.
    • Nakamura S, Narimatsu H.
    • J Clin Oncol. 2018 Feb 10;36(5):516-517. doi: 10.1200/JCO.2017.76.3300. Epub 2018 Jan 2.
    • Letter, Comment

    National Estimates of Genetic Testing in Women With a History of Breast or Ovarian Cancer.

    Letter, Reply:

    Reply to S. Nakamura et al and S. Narod et al.

    • Population-Based Genetic Testing for BRCA1 and BRCA2.
    • Narod S, Akbari MR.
    • J Clin Oncol. 2018 Feb 10;36(5):517. doi: 10.1200/JCO.2017.75.8490. Epub 2018 Jan 2.
    • Letter

    Editorial:

    Genetic Testing: What Problem Are We Trying to Solve?

    National Estimates of Genetic Testing in Women With a History of Breast or Ovarian Cancer.

    Letter, Comment:

    Reply to S. Nakamura et al and S. Narod et al.

    • Provider Discussions of Genetic Tests With U.S. Women at Risk for a BRCA Mutation.
    • Hull LE, Haas JS, Simon SR.
    • Am J Prev Med. 2018 Feb;54(2):221-228. doi: 10.1016/j.amepre.2017.10.015. Epub 2017 Dec 11.
    • Cancer Genetic Counseling and Testing: Perspectives of Epithelial Ovarian Cancer Patients and Gynecologic Oncology Healthcare Providers.
    • Liang MI, Wong DH, Walsh CS, Farias-Eisner R, Cohen JG.
    • J Genet Couns. 2018 Feb;27(1):177-186. doi: 10.1007/s10897-017-0135-2. Epub 2017 Aug 7.
    • "I've just never gotten around to doing it": Men's approaches to managing BRCA-related cancer risks.
    • Rauscher EA, Dean M.
    • Patient Educ Couns. 2018 Feb;101(2):340-345. doi: 10.1016/j.pec.2017.07.015. Epub 2017 Jul 23.
    • Examination of the Patient-Focused Impact of Cancer Telegenetics Among a Rural Population: Comparison with Traditional In-Person Services.
    • Solomons NM, Lamb AE, Lucas FL, McDonald EF, Miesfeldt S.
    • Telemed J E Health. 2018 Feb;24(2):130-138. doi: 10.1089/tmj.2017.0073. Epub 2017 Jul 21.
    • Preferences for learning different types of genome sequencing results among young breast cancer patients: Role of psychological and clinical factors.
    • Kaphingst KA, Ivanovich J, Lyons S, Biesecker B, Dresser R, Elrick A, Matsen C, Goodman M.
    • Transl Behav Med. 2018 Jan 29;8(1):71-79. doi: 10.1093/tbm/ibx042.
    • Genetic Testing for Hereditary Breast Cancer: The Decision to Decline.
    • White VB, Walsh KK, Foss KS, Amacker-North L, Lenarcic S, McNeely L, White RL Jr..
    • Am Surg. 2018 Jan 1;84(1):154-160.
    • Breast Cancer Screening Behaviors of First Degree Relatives of Women Receiving Breast Cancer Treatment and the Affecting Factors.
    • Kırca N, Tuzcu A, Gözüm S.
    • Eur J Breast Health. 2018 Jan 1;14(1):23-28. doi: 10.5152/ejbh.2017.3272. eCollection 2018 Jan.
    • Heightened perception of breast cancer risk in young women at risk of familial breast cancer.
    • Glassey R, O'Connor M, Ives A, Saunders C; kConFab Investigators, O'Sullivan S, Hardcastle SJ.
    • Fam Cancer. 2018 Jan;17(1):15-22. doi: 10.1007/s10689-017-0001-2.
    • From the small screen to breast cancer screening: examining the effects of a television storyline on awareness of genetic risk factors.
    • Rosenthal EL, de Castro Buffington S, Cole G.
    • J Commun Healthc. 2018;11(2):140-150. doi: 10.1080/17538068.2018.1438766. Epub 2018 Feb 15.
    • Influences on anticipated time to ovarian cancer symptom presentation in women at increased risk compared to population risk of ovarian cancer.
    • Smits S, Boivin J, Menon U, Brain K.
    • BMC Cancer. 2017 Dec 4;17(1):814. doi: 10.1186/s12885-017-3835-y.
    • National Estimates of Genetic Testing in Women With a History of Breast or Ovarian Cancer.
    • Childers CP, Childers KK, Maggard-Gibbons M, Macinko J.
    • J Clin Oncol. 2017 Dec 1;35(34):3800-3806. doi: 10.1200/JCO.2017.73.6314. Epub 2017 Aug 18.

    Editorial:

    Genetic Testing: What Problem Are We Trying to Solve?

    Letter:

    Population-Based Genetic Testing for BRCA1 and BRCA2.

    Press: Huge Underuse of Genetic Testing Among Cancer Survivors. (Medscape Oncology)

    • Experiencing the cancer of a loved one influences decision-making for breast cancer prevention.
    • Padamsee TJ, Muraveva A, Yee LD, Wills CE, Paskett ED.
    • J Health Psychol. 2017 Dec 1:1359105317746480. doi: 10.1177/1359105317746480. [Epub ahead of print]
    • "Take your time, then follow your heart:" Previvors' advice for communicating about family planning after testing positive for a BRCA genetic variant.
    • Rauscher EA, Dean M.
    • Fam Syst Health. 2017 Dec;35(4):486-497. doi: 10.1037/fsh0000312.

    Research news: Take your time, follow your heart: strategies for communication about family planning. (FORCE. XRAYS.)

    • Family Communication, Risk Perception and Cancer Knowledge of Young Adults from BRCA1/2 Families: a Systematic Review.
    • Young AL, Butow PN, Vetsch J, Quinn VF, Patenaude AF, Tucker KM, Wakefield CE.
    • J Genet Couns. 2017 Dec;26(6):1179-1196. doi: 10.1007/s10897-017-0125-4. Epub 2017 Jun 30.
    • Review
    • Insights into BRCA1/2 Genetic Counseling from Ethnically Diverse Latina Breast Cancer Survivors.
    • Rajpal N, Muñoz J, Peshkin BN, Graves KD.
    • J Genet Couns. 2017 Dec;26(6):1221-1237. doi: 10.1007/s10897-017-0096-5. Epub 2017 Apr 4.
    • Genetics of Breast and Gynecologic Cancers (PDQ®): Health Professional Version. Psychosocial Issues in Inherited Breast and Ovarian Cancer Syndromes. What People Bring to Genetic Testing: Impact of Risk Perception, Health Beliefs, and Personality Characteristics.
    • PDQ Cancer Genetics Editorial Board.
    • PDQ Cancer Information Summaries [Internet]. Bethesda, MD: National Cancer Institute. Updated 2017 Nov 30. Accessed 2017 Dec 8.
    • Testing for BRCA1/2 Mutations.
    • Sefton P.
    • JAMA. 2017 Nov 28;318(20):2054. doi: 10.1001/jama.2017.17280.
    • What?s Happening to Your DNA Data?: Genetic Testing Services Abound, but Consumers Opting to Use Them Should Be Aware of the Pitfalls.
    • Grifantini K.
    • IEEE Pulse. 2017 Nov-Dec;8(6):10-14. doi: 10.1109/MPUL.2017.2751121.
    • Commentary
    • Validity of self-reported breast cancer characteristics in a nationwide cohort of women with a family history of breast cancer.
    • D'Aloisio AA, Nichols HB, Hodgson ME, Deming-Halverson SL, Sandler DP.
    • BMC Cancer. 2017 Oct 23;17(1):692. doi: 10.1186/s12885-017-3686-6.
    • To Have Or Not To Have Genetic Testing?
    • [No author given]
    • My Gene Counsel. 2017 Oct 17.
    • Risk Perception and Psychological Distress in Genetic Counselling for Hereditary Breast and/or Ovarian Cancer.
    • Cicero G, De Luca R, Dorangricchia P, Lo Coco G, Guarnaccia C, Fanale D, Calò V, Russo A.
    • J Genet Couns. 2017 Oct;26(5):999-1007. doi: 10.1007/s10897-017-0072-0. Epub 2017 Mar 10.
    • Twitter and Non-Elites: Interpreting Power Dynamics in the Life Story of the (#)BRCA Twitter Stream.
    • Vicari S.
    • Soc Media Soc. 2017 Sep 23;3(3):2056305117733224. doi: 10.1177/2056305117733224. eCollection 2017 Sep.
    • Referral to cancer genetic counseling: do migrant status and patients’ educational background matter?
    • van der Giessen JAM, van Riel E, Velthuizen ME, van Dulmen AM, Ausems MGEM.
    • J Community Genet. 2017 Sep 4. doi: 10.1007/s12687-017-0326-4. [Epub ahead of print]
    • "When information is not enough": A model for understanding BRCA-positive previvors' information needs regarding hereditary breast and ovarian cancer risk.
    • Dean M, Scherr CL, Clements M, Koruo R, Martinez J, Ross A.
    • Patient Educ Couns. 2017 Sep;100(9):1738-1743. doi: 10.1016/j.pec.2017.03.013. Epub 2017 Mar 10.
    • The power of shared experience: Empowering women to face their cancer risk.
    • Caitlin Lopez
    • NSGC blog, 2017 Aug 30.
    • Why Is Cancer Genetic Counseling Underutilized by Women Identified as at Risk for Hereditary Breast Cancer? Patient Perceptions of Barriers Following a Referral Letter.
    • Kne A, Zierhut H, Baldinger S, Swenson KK, Mink P, Veach PM, Tsai ML.
    • J Genet Couns. 2017 Aug;26(4):697-715. doi: 10.1007/s10897-016-0040-0. Epub 2016 Nov 8.
    • Breast Cancer Risk Assessment at the Time of Screening Mammography: Perceptions and Clinical Management Outcomes for Women at High Risk.
    • Morman NA, Byrne L, Collins C, Reynolds K, Bell JG.
    • J Genet Couns. 2017 Aug;26(4):776-784. doi: 10.1007/s10897-016-0050-y. Epub 2017 Jan 26.
    • Predictors of BRCA1/2 genetic testing among Black women with breast cancer: a population-based study.
    • Jones T, McCarthy AM, Kim Y, Armstrong K.
    • Cancer Med. 2017 Jul;6(7):1787-1798. doi: 10.1002/cam4.1120. Epub 2017 Jun 19.
    • Barriers to genetic testing in newly diagnosed breast cancer patients: do surgeons limit testing?
    • Hafertepen L, Pastorino A, Morman N, Snow J, Halaharvi D, Byrne L, Cripe M.
    • Am J Surg. 2017 Jul;214(1):105-110. doi: 10.1016/j.amjsurg.2016.08.012. Epub 2016 Sep 9.
    • Does biomarker information impact breast cancer patients' preferences and physician recommendation for adjuvant chemotherapy?
    • Partridge AH, Sepucha K, O'Neill A, Miller KD, Baker E, Dang CT, Northfelt DW, Sledge GW, Schneider BP.
    • Breast Cancer Res Treat. 2017 Jun 23. doi: 10.1007/s10549-017-4338-x. [Epub ahead of print]
    • Online self-test identifies women at high familial breast cancer risk in population-based breast cancer screening without inducing anxiety or distress.
    • van Erkelens A, Sie AS, Manders P, Visser A, Duijm LE, Mann RM, Ten Voorde M, Kroeze H, Prins JB, Hoogerbrugge N.
    • Eur J Cancer. 2017 Jun;78:45-52. doi: 10.1016/j.ejca.2017.03.014. Epub 2017 Apr 14.
    • Population screening for BRCA1/BRCA2 mutations: lessons from qualitative analysis of the screening experience.
    • Lieberman S, Lahad A, Tomer A, Cohen C, Levy-Lahad E, Raz A.
    • Genet Med. 2017 Jun;19(6):628-634. doi: 10.1038/gim.2016.175. Epub 2016 Dec 1.
    • Factors Associated with Interest in Gene-Panel Testing and Risk Communication Preferences in Women from BRCA1/2 Negative Families.
    • Flores KG, Steffen LE, McLouth CJ, Vicuña BE, Gammon A, Kohlmann W, Vigil L, Dayao ZR, Royce ME, Kinney AY.
    • J Genet Couns. 2017 Jun;26(3):480-490. doi: 10.1007/s10897-016-0001-7. Epub 2016 Aug 6.
    • Familial breast cancer: Genetic counseling over time, including patients´ expectations and initiators considering the Angelina Jolie effect.
    • Evers C, Fischer C, Dikow N, Schott S.
    • PLoS One. 2017 May 25;12(5):e0177893. doi: 10.1371/journal.pone.0177893. eCollection 2017.
    • Discussing molecular testing in oncology care: Comparing patient and physician information preferences.
    • Pinheiro APM, Pocock RH, Switchenko JM, Dixon MD, Shaib WL, Ramalingam SS, Pentz RD.
    • Cancer. 2017 May 1;123(9):1610-1616. doi: 10.1002/cncr.30494. Epub 2017 Jan 31.
    • Population-Based Study of Attitudes toward BRCA Genetic Testing among Orthodox Jewish Women.
    • Tang EY, Trivedi MS, Kukufka R, Chung WK, David R, Respler L, Leifer S, Schechter I, Crew KD.
    • Breast J. 2017 May;23(3):333-337. doi: 10.1111/tbj.12736. Epub 2016 Nov 30.
    • Tracking the dissemination of a culturally targeted brochure to promote awareness of hereditary breast and ovarian cancer among Black women.
    • Scherr CL, Bomboka L, Nelson A, Pal T, Vadaparampil ST.
    • Patient Educ Couns. 2017 May;100(5):805-811. doi: 10.1016/j.pec.2016.10.026. Epub 2016 Oct 31.

    Editorial, Comment:

    Special section on psychological aspects of cancer: Patient and clinician perspectives.

    • Living Under a Cloud of Threat: The Experience of Iranian Female Caregivers with a first-degree relative with breast cancer.
    • Hashemi-Ghasemabadi M, Taleghani F, Kohan S, Yousefy A.
    • Psychooncology. 2017 May;26(5):625-631. doi: 10.1002/pon.4198. Epub 2016 Jul 14.
    • Can an educational application increase risk perception accuracy amongst patients attending a high-risk breast cancer clinic?
    • Keohane D, Lehane E, Rutherford E, Livingstone V, Kelly L, Kaimkhani S, O'Connell F, Redmond HP, Corrigan MA.
    • Breast. 2017 Apr;32:192-198. doi: 10.1016/j.breast.2017.02.009. Epub 2017 Feb 23.
    • Breast Health Services: Accuracy of Benefit Coverage Information in the Individual Insurance Marketplace.
    • Hamid MS, Kolenic GE, Dozier J, Dalton VK, Carlos RC.
    • J Am Coll Radiol. 2017 Apr;14(4):482-487.e5. doi: 10.1016/j.jacr.2016.12.002. Epub 2017 Feb 3.
    • Breast cancer genetic counseling among Dutch patients from Turkish and Moroccan descent: participation determinants and perspectives of patients and healthcare professionals.
    • Baars JE, van Dulmen AM, Velthuizen ME, van Riel E, Ausems MG.
    • J Community Genet. 2017 Apr;8(2):97-108. doi: 10.1007/s12687-016-0290-4. Epub 2017 Jan 12.
    • Orthodox Jewish Thought Leaders' Insights Regarding BRCA Mutations: A Descriptive Study.
    • Bressler T, Popp B.
    • J Oncol Pract. 2017 Apr;13(4):e303-e309. doi: 10.1200/JOP.2016.015503. Epub 2016 Nov 22.
    • Awareness and attitude regarding reproductive options of persons carrying a BRCA mutation and their partners.
    • Gietel-Habets JJ, de Die-Smulders CE, Derks-Smeets IA, Tibben A, Tjan-Heijnen VC, van Golde R, Gomez-Garcia E, Kets CM, van Osch LA.
    • Hum Reprod. 2017 Mar 1;32(3):588-597. doi: 10.1093/humrep/dew352.
    • An exploratory study of patients' views about being at high-risk for breast cancer and risk management beliefs and intentions, before and after risk counselling: Preliminary evidence of the influence of beliefs on post-counselling prevention intentions.
    • Paquet L, Simmonds L, Yang C, Verma S.
    • Patient Educ Couns. 2017 Mar;100(3):575-582. doi: 10.1016/j.pec.2016.10.005. Epub 2016 Oct 11.
    • Effect on perceived control and psychological distress of genetic knowledge in women with breast cancer receiving a BRCA1/2 test result.
    • Brédart A, Kop JL, De Pauw A, Caron O, Fajac A, Noguès C, Stoppa-Lyonnet D, Dolbeault S.
    • Breast. 2017 Feb;31:121-127. doi: 10.1016/j.breast.2016.10.024. Epub 2016 Nov 9.
    • A Retrospective Exploration of the Impact of the 'Angelina Jolie Effect' on the Single State-Wide Familial Cancer Program in Perth, Western Australia.
    • Freedman R, Mountain H, Karina D, Schofield L.
    • J Genet Couns. 2017 Feb;26(1):52-62. doi: 10.1007/s10897-016-9982-5. Epub 2016 Jun 6.
    • The Role of Knowledge on Genetic Counseling and Testing in Black Cancer Survivors at Increased Risk of Carrying a BRCA1/2 Mutation.
    • Hurtado-de-Mendoza A, Jackson MC, Anderson L, Sheppard VB.
    • J Genet Couns. 2017 Feb;26(1):113-121. doi: 10.1007/s10897-016-9986-1. Epub 2016 Jul 12.
    • The 'cause' of my cancer, beliefs about cause among breast cancer patients and survivors who do and do not seek IO care.
    • Andersen MR, Afdem K, Hager S, Gaul M, Sweet E, Standish LJ.
    • Psychooncology. 2017 Feb;26(2):248-254. doi: 10.1002/pon.4028. Epub 2015 Nov 9.
    • Engagement with Genetic Information and Uptake of Genetic Testing: the Role of Trust and Personal Cancer History.
    • Roberts MC, Taber JM, Klein WM.
    • J Cancer Educ. 2017 Jan 20. doi: 10.1007/s13187-016-1160-9. [Epub ahead of print]
    • "Angelina Jolie Effect”: What Should I Know About Hereditary Cancer and Testing?
    • Erica Ramos.
    • NSGC Blog. 2017 Jan 18.
    • Blog post
    • Community attitudes towards a Jewish community BRCA1/2 testing program.
    • Cousens N, Kaur R, Meiser B, Andrews L.
    • Fam Cancer. 2017 Jan;16(1):17-28. doi: 10.1007/s10689-016-9918-0.
    • The knowledge of risk factors and prevention of breast cancer in Polish women.
    • Chmaj-Wierzchowska K, Jurczyk MU, Czech-Szczapa B, Wilczak M.
    • Eur J Gynaecol Oncol. 2017;38(3):387-390.
    • Preparing young people for future decision-making about cancer risk in families affected or at risk from hereditary breast cancer: A qualitative interview study.
    • Rowland E, Plumridge G, Considine AM, Metcalfe A.
    • Eur J Oncol Nurs. 2016 Dec;25:9-15. doi: 10.1016/j.ejon.2016.08.006. Epub 2016 Sep 20.
    • Experience of Norwegian Female BRCA1 and BRCA2 Mutation-Carrying Participants in Educational Support Groups: a Qualitative Study.
    • Myklebust M, Gjengedal E, Strømsvik N.
    • J Genet Couns. 2016 Dec;25(6):1198-1206. Epub 2016 Apr 19.
    • Getting Beyond Impressions: An Evaluation of Engagement with Breast Cancer-related Facebook Content.
    • Theiss SK, Burke RM, Cory JL, Fairley TL.
    • Mhealth. 2016 Nov 7;2(41). doi: 10.21037/mhealth.2016.10.02.
    • New Toolkit Can Help Debunk Myths About Genetic Testing for Gynecologic Cancer.
    • Casey A.
    • Cure. 2016 Oct 27.

    Review. Toolkit: 2016 Genetics Toolkit (Society of Gynecologic Oncology)

    • Be a “Know-It-All” About Your Breast Cancer Risk.
    • Mary Freivogel.
    • NSGC Blog. 2016 Oct 26.
    • Blog post
    • BRACAVENIR - impact of a psychoeducational intervention on expectations and coping in young women (aged 18-30 years) exposed to a high familial breast/ovarian cancer risk: study protocol for a randomized controlled trial.
    • Kwiatkowski F, Dessenne P, Laquet C, Daures JP, Gay-Bellile M, Bignon YJ.
    • Trials. 2016 Oct 21;17(1):509.
    • Advocacy group anecdotes present one-sided picture of genetic testing for breast cancer.
    • Mary Chris Jaklevic
    • Health News Review. 2016 Oct 13.

    Comments from NSGC Discussion Forum Cancer SIG

    Subject: Conflict of Interest and BRCA

    • Psychosocial Adjustment and Perceived Risk Among Adolescent Girls From Families With BRCA1/2 or Breast Cancer History.
    • Bradbury AR, Patrick-Miller L, Schwartz LA, Egleston BL, Henry-Moss D, Domchek SM, Daly MB, Tuchman L, Moore C, Rauch PK, Shorter R, Karpink K, Sands CB.
    • J Clin Oncol. 2016 Oct 1;34(28):3409-16. doi: 10.1200/JCO.2015.66.3450. Epub 2016 Aug 22.
    • Effective Referral of Low-Income Women at Risk for Hereditary Breast and Ovarian Cancer to Genetic Counseling: A Randomized Delayed Intervention Control Trial.
    • Pasick RJ, Joseph G, Stewart S, Kaplan C, Lee R, Luce J, Davis S, Marquez T, Nguyen T, Guerra C.
    • Am J Public Health. 2016 Oct;106(10):1842-1848. Epub 2016 Aug 23.
    • Genomic Disparities in Breast Cancer Among Latinas.
    • Lynce F, Graves KD, Jandorf L, Ricker C, Castro E, Moreno L, Augusto B, Fejerman L, Vadaparampil ST.
    • Cancer Control. 2016 Oct;23(4):359-372.
    • Predictors of Self-Reported Family Health History of Breast Cancer.
    • Ricks-Santi LJ, Thompson N, Ewing A, Harrison B, Higginbotham K, Spencer C, Laiyemo A, DeWitty R, Wilson L, Horton S, Dunmore-Griffith J, Williams C, Frederick W.
    • J Immigr Minor Health. 2016 Oct;18(5):1175-82. doi: 10.1007/s10903-015-0253-6.
    • Why I Won’t Get the Genetic Test for Breast Cancer.
    • Cynthia Graber.
    • Wired. Science. 2016 Sep 27.

    News: Genetic testing has become more affordable and available. Should you get it? (FORCE)

    • Sue Friedman, Founder of FORCE, Shares
    • Sue Friedman
    • My Gene Counsel. 2016 Sep 21.
    • Trends in Media Reports of Celebrities' Breast Cancer Treatment Decisions.
    • Sabel MS, Cin SD.
    • Ann Surg Oncol. 2016 Sep;23(9):2795-801. doi: 10.1245/s10434-016-5202-7. Epub 2016 Apr 6.
    • Media Exposure and Genetic Literacy Skills to Evaluate Angelina Jolie's Decision for Prophylactic Mastectomy.
    • Abrams LR, Koehly LM, Hooker GW, Paquin RS, Capella JN, McBride CM.
    • Public Health Genomics. [2016 Sep;]19(5):282-9. doi: 10.1159/000447944. Epub 2016 Jul 19.
    • Can Pancreatic Cancer Be Inherited?
    • [No author given]
    • Insight. Dana-Farber Cancer Institute. 2016 Aug 17.
    • "It's not if I get cancer, it's when I get cancer": BRCA-positive patients' (un)certain health experiences regarding hereditary breast and ovarian cancer risk.
    • Dean M.
    • Soc Sci Med. 2016 Aug;163:21-7. doi: 10.1016/j.socscimed.2016.06.039. Epub 2016 Jun 23.
    • Genetic testing and personalized ovarian cancer screening: a survey of public attitudes.
    • Meisel SF, Rahman B, Side L, Fraser L, Gessler S, Lanceley A, Wardle J; PROMISE-2016 study team.
    • BMC Womens Health. 2016 Jul 26;16(1):46. doi: 10.1186/s12905-016-0325-3.
    • What Men Should Know About BRCA Variant Testing.
    • Michelle Jacobs
    • Michigan Health. July 22, 2016.
    • Changes of Socio-demographic data of clients seeking genetic counseling for hereditary breast and ovarian cancer due to the "Angelina Jolie Effect".
    • Staudigl C, Pfeiler G, Hrauda K, Renz R, Berger A, Lichtenschopf R, Singer CF, Tea MM.
    • BMC Cancer. 2016 Jul 8;16:436. doi: 10.1186/s12885-016-2472-1.
    • Willingness of Japanese patients with breast cancer to have genetic testing of BRCA without burden of expenses.
    • Nakagomi H, Sakamoto I, Hirotsu Y, Amemiya K, Mochizuki H, Inoue M, Nakagomi S, Kubota T, Omata M.
    • Breast Cancer. 2016 Jul;23(4):649-53. doi: 10.1007/s12282-015-0618-7. Epub 2015 May 30.

    Comments on NSGC Discussion Forum

    Subject: Article request - Breast Cancer

    • Are changes in breast self-exam recommendations and early misperceptions of breast cancer risk increasing women's future risks?
    • Polek C, Hardie T.
    • J Am Assoc Nurse Pract. 2016 Jul;28(7):379-86. doi: 10.1002/2327-6924.12325. Epub 2015 Nov 24.
    • Understanding Genetic Breast Cancer Risk: Processing Loci of the BRCA Gist Intelligent Tutoring System.
    • Wolfe CR, Reyna VF, Widmer CL, Cedillos-Whynott EM, Brust-Renck PG, Weil AM, Hu X.
    • Learn Individ Differ. 2016 Jul;49:178-189. doi: 10.1016/j.lindif.2016.06.009. Epub 2016 Jul 1.
    • Clinical follow-up and breast and ovarian cancer screening of true BRCA1/2 noncarriers: a qualitative investigation.
    • Pelletier S, Wong N, El Haffaf Z, Foulkes WD, Chiquette J, Hamet P, Simard J, Dorval M.
    • Genet Med. 2016 Jun;18(6):627-34. doi: 10.1038/gim.2015.135. Epub 2015 Nov 5.
    • Targeted Ovarian Cancer Education for Hispanic Women: A Pilot Program in Arizona.
    • Schlumbrecht M, Yarian R, Salmon K, Niven C, Singh D.
    • J Community Health. 2016 Jun;41(3):619-25. doi: 10.1007/s10900-015-0137-7.
    • Ovarian Cancer and BRCA1/2 Testing: Opportunities to Improve Clinical Care and Disease Prevention.
    • Karakasis K, Burnier JV, Bowering V, Oza AM, Lheureux S.
    • Front Oncol. 2016 May 11;6:119. doi: 10.3389/fonc.2016.00119. eCollection 2016.
    • Who Should Consider Genetic Counseling and Testing for Breast and Ovarian Cancer? : Guidelines Have Expanded.
    • [No author given]
    • My Gene Counsel. 2016 Apr 5.
    • Iranian women's attitude toward prophylactic mastectomy for breast cancer.
    • Majidzadeh-A K, Farahmand L, Zare AA, Esmaeili R, Salehi M, Habibi M.
    • J Cancer Res Ther. 2016 Apr-Jun;12(2):915-9. doi: 10.4103/0973-1482.171363.
    • Sweeping Up after the Kardashians: What We Wish had been Covered in Their Genetic Testing Episode.
    • [No author given]
    • My Gene Counsel. 2016 Jan 22.
    • Hereditary Cancer: Example of a Public Health Approach to Ensure Population Health Benefits of Genetic Medicine.
    • Cragun D, Lewis C, Camperlengo L, Pal T.
    • Healthcare (Basel). 2016 Jan 8;4(1). pii: E6. doi: 10.3390/healthcare4010006.
    • Cancer Risk Awareness and Concern among Women with a Family History of Breast or Ovarian Cancer.
    • Andersen MR, Thorpe J, Buist DS, Beatty JD, Watabayashi K, Hanson N, Resta R, Chubak J, Urban N.
    • Behav Med. 2016 Jan-Mar;42(1):18-28. doi: 10.1080/08964289.2014.947234. Epub 2014 Nov 3.
    • Women's beliefs about breast cancer causation in a breast cancer case-control study.
    • Lizama N, Rogers P, Thomson A, Slevin T, Fritschi L, Saunders C, Heyworth J.
    • Psychooncology. 2016 Jan;25(1):36-42. doi: 10.1002/pon.3869. Epub 2015 Jun 18.
    • Current Status of the Management of Hereditary Breast and Ovarian Cancer in Asia: First Report by the Asian BRCA Consortium.
    • Nakamura S, Kwong A, Kim SW, Iau P, Patmasiriwat P, Dofitas R, Aryandono T, Hu Z, Huang CS, Ginsburg O, Rashid MU, Sarin R, Teo SH.
    • Public Health Genomics. [2016 Jan;]19(1):53-60. doi: 10.1159/000441714. Epub 2015 Nov 18.
    • I Do Not Even Say "It" - a Mixed Methods Study on Breast Cancer Awareness of Omani Women.
    • Alkhasawneh E, Siddiqui ST, Leocadio M, Seshan V, Al-Farsi Y, Al-Moundhri MS.
    • Asian Pac J Cancer Prev. 2016;17(4):2247-54.
    • Evaluation of the Relationship Between Family History of Breast Cancer and Risk Perception and Impacts on Repetition of Mammography.
    • Khoshravesh S, Taymoori P, Roshani D.
    • Asian Pac J Cancer Prev. 2016;17 Spec No.:135-41.
    • Acceptance of, inclination for, and barriers in genetic testing for gene mutations that increase the risk of breast and ovarian cancers among female residents of Warsaw.
    • Olejniczak D, Dera P, Religioni U, Duda-Zalewska A, Deptała A.
    • Contemp Oncol (Pozn). 2016;20(1):80-5. doi: 10.5114/wo.2016.58504. Epub 2016 Mar 16.
    • 2016 Genetics Toolkit
    • Society of Gynecologic Oncology
    • Society of Gynecologic Oncology. 2016.

    News: New Toolkit Can Help Debunk Myths About Genetic Testing for Gynecologic Cancer. (Cure)

    • Identifying Women at Risk for Hereditary Breast and Ovarian Cancer Syndrome Utilizing Breast Care Nurse Navigation at Mammography and Imaging Centers.
    • Appel SJ, Cleiment RJ.
    • J Natl Black Nurses Assoc. 2015 Dec;26(2):17-26.
    • Getting Tested For The 'Breast Cancer Genes'
    • Justin Lorentz
    • Huffington Post Canada, Living, 2015 Oct 30
    • The Insider’s Guide on Genetic Testing for Breast Cancer.
    • [No author given]
    • My Gene Counsel. 2015 Oct 6.
    • Why do women not return family history forms when referred to breast cancer genetics services? A mixed-method study.
    • Hanning KA, Steel M, Goudie D, McLeish L, Dunlop J, Myring J, Sullivan F, Berg J, Humphris G, Ozakinci G.
    • Health Expect. 2015 Oct;18(5):1735-43. doi: 10.1111/hex.12166. Epub 2014 Jan 5.
    • Personalized Medicine Through SNP Testing for Breast Cancer Risk: Clinical Implementation.
    • Howe R, Miron-Shatz T, Hanoch Y, Omer ZB, O'Donoghue C, Ozanne EM.
    • J Genet Couns. 2015 Oct;24(5):744-51. doi: 10.1007/s10897-014-9803-7. Epub 2014 Dec 18.
    • Your Checklist For Ovarian Cancer Genetic Counseling.
    • [No author given].
    • My Gene Counsel. 2015 Sep 24.
    • Education Program to Increase Awareness of Genetic Testing Launched.
    • [No author given]
    • Clinical OMICs. 2015 Sep 21.
    • Attitudes Toward Breast Cancer Genetic Testing in Five Special Population Groups.
    • Ramirez AG, Chalela P, Gallion KJ, Muñoz E, Holden AE, Burhansstipanov L, Smith SA, Wong-Kim E, Wyatt SW, Suarez L.
    • J Health Dispar Res Pract. 2015 Fall;8(4):124-135.
    • Factors influencing breast cancer screening and risk assessment among young African American women: An integrative review of the literature.
    • Jones TP, Katapodi MC, Lockhart JS.
    • J Am Assoc Nurse Pract. 2015 Sep;27(9):521-9. doi: 10.1002/2327-6924.12223. Epub 2015 Mar 3.
    • Review
    • "The BRCA Responder" on Genetic Testing, Family Histories, and Why Counseling Is Key.
    • Kelly Johnson.
    • Oncology Nursing News. 2015 Aug 31.
    • Genetic Testing Can Lead to Insights — Or Uncertainty.
    • Lauren M. Green.
    • Cure. 2015 Aug 13.
    • Why Breast Cancer Risk by the Numbers Is Not Enough: Evaluation of a Decision Aid in Multi-Ethnic, Low-Numerate Women.
    • Kukafka R, Yi H, Xiao T, Thomas P, Aguirre A, Smalletz C, David R, Crew K.
    • J Med Internet Res. 2015 Jul 14;17(7):e165. doi: 10.2196/jmir.4028.
    • Can the breast screening appointment be used to provide risk assessment and prevention advice?
    • Evans DG, Howell A.
    • Breast Cancer Res. 2015 Jul 9;17(1):84. doi: 10.1186/s13058-015-0595-y.
    • Assessing absolute changes in breast cancer risk due to modifiable risk factors.
    • Quante AS, Herz J, Whittemore AS, Fischer C, Strauch K, Terry MB.
    • Breast Cancer Res Treat. 2015 Jul;152(1):193-7. doi: 10.1007/s10549-015-3411-6. Epub 2015 May 27.
    • Public perception of risk-reducing salpingectomy for preventing ovarian cancer.
    • Kang JH, Nam SH, Song T, Kim WY, Lee KW, Kim KH.
    • Obstet Gynecol Sci. 2015 Jul;58(4):284-8. doi: 10.5468/ogs.2015.58.4.284. Epub 2015 Jul 16.
    • 8 Myths About Men and Hereditary Cancer.
    • [No author given].
    • My Gene Counsel. 2015 Jun 21.
    • Podcast: Yes, Men Can Get Breast Cancer.
    • Ellen T. Matloff.
    • My Gene Counsel. 2015 Jun 8.
    • Adjusting the frequency of mammography screening on the basis of genetic risk: Attitudes among women in the UK.
    • Meisel SF, Pashayan N, Rahman B, Side L, Fraser L, Gessler S, Lanceley A, Wardle J.
    • Breast. 2015 Jun;24(3):237-41. doi: 10.1016/j.breast.2015.02.001. Epub 2015 Feb 21.
    • What Black Women Know and Want to Know About Counseling and Testing for BRCA1/2.
    • Adams I, Christopher J, Williams KP, Sheppard VB.
    • J Cancer Educ. 2015 Jun;30(2):344-52. doi: 10.1007/s13187-014-0740-9.
    • Participation of Korean families at high risk for hereditary breast and ovarian cancer in BRCA1/2 genetic testing.
    • Sun Y, Kang E, Baek H, Jung J, Hwang E, Koo , Kim , Kim SW.
    • Jpn J Clin Oncol. 2015 Jun;45(6):527-32. doi: 10.1093/jjco/hyv044. Epub 2015 Apr 2.
    • Concerns about cancer risk and experiences with genetic testing in a diverse population of patients with breast cancer.
    • Jagsi R, Griffith KA, Kurian AW, Morrow M, Hamilton AS, Graff JJ, Katz SJ, Hawley ST.
    • J Clin Oncol. 2015 May 10;33(14):1584-91. doi: 10.1200/JCO.2014.58.5885. Epub 2015 Apr 6.

    Comment / Letter:

    Discussing the Implications of Genetic Testing With Patients.

    Comment / Letter:

    Reply to S.M. Sorscher and A.B. Hafeez Bhatti.

    Comment / Letter:

    Discussing Genetic Testing With Patients With Breast Cancer in Developing Countries: Should We Be Judicious?

    Press: Women With Breast Cancer Concerned About Genetic Risk. (Medscape Oncology)

    • The relationship between the belief in a genetic cause for breast cancer and bilateral mastectomy.
    • Petrie KJ, Myrtveit SM, Partridge AH, Stephens M, Stanton AL.
    • Health Psychol. 2015 May;34(5):473-6. doi: 10.1037/hea0000118. Epub 2014 Aug 18.
    • Feelings of Women With Strong Family Histories Who Subsequent to Their Breast Cancer Diagnosis Tested BRCA Positive.
    • Joseph M, Rab F, Panabaker K, Nisker J.
    • Int J Gynecol Cancer. 2015 May;25(4):584-92. doi: 10.1097/IGC.0000000000000403.
    • Are Women Willing to Change Breast Cancer Screening Guidelines?
    • Cohn W, Novicoff W, Dean MM, Guterbock T, Rexrode D, Eggleston C, Harvey J, Knaus W.
    • Cancer Epidemiol Biomarkers Prev. 2015 Apr;24(4):765. ASPO 39th Annual Meeting Abstracts. doi: 10.1158/1055-9965.EPI-15-0116.
    • Conference abstract
    • Learning from Angelina Jolie's genetic testing for our own health.
    • Elizabeth Cohen
    • CNN, 2015 Mar 25.
  1. v
    • Angelina Jolie Pitt: Diary of a Surgery.
    • Angelina Jolie Pitt
    • NY Times, 2015 Mar 24.
    • Genetic Testing and Ovarian Cancer.
    • Leigha Ann Senter-Jamieson.
    • NSGC Blog, 2015 Mar 23.
    • Population-based genetic risk prediction and stratification for ovarian cancer: views from women at high risk.
    • Rahman B, Meisel SF, Fraser L, Side L, Gessler S, Wardle J, Lanceley A.
    • Fam Cancer. 2015 Mar;14(1):135-44. doi: 10.1007/s10689-014-9769-5.
    • General practice and the Internet revolution. Use of an Internet social network to communicate information on prevention in France.
    • Veuillotte I, Morel G, Pitois S, Haler R, Mercier P, Aubry C, Cannet D.
    • Health Informatics J. 2015 Mar;21(1):3-9. doi: 10.1177/1460458213494905.
    • Knowledge about hereditary cancer of women with family histories of breast, colorectal, or both types of cancer.
    • Campacci N, de Lima JO, Ramadan L, Palmero EI.
    • J Cancer Educ. 2015 Mar;30(1):167-72. doi: 10.1007/s13187-014-0663-5.
    • Cognitive and affective influences on perceived risk of ovarian cancer.
    • Peipins LA, McCarty F, Hawkins NA, Rodriguez JL, Scholl LE, Leadbetter S.
    • Psychooncology. 2015 Mar;24(3):279-86. doi: 10.1002/pon.3593. Epub 2014 Jun 11.
    • American BRCA Outcomes and Utilization of Testing (ABOUT) Study: A Pragmatic Research Model that Incorporates Personalized Medicine/Patient-Centered Outcomes in a Real World Setting.
    • Armstrong J, Toscano M, Kotchko N, Friedman S, Schwartz MD, Virgo KS, Lynch K, Andrews JE, Aguado Loi CX, Bauer JE, Casares C, Teten RT, Kondoff MR, Molina AD, Abdollahian M, Brand L, Walker GS, Sutphen R.
    • J Genet Couns. 2015 Feb;24(1):18-28. doi: 10.1007/s10897-014-9750-3. Epub 2014 Sep 12.
    • BRCA Genetic Counseling Among At-Risk Latinas in New York City: New Beliefs Shape New Generation.
    • Sussner KM, Edwards T, Villagra C, Rodriguez MC, Thompson HS, Jandorf L, Valdimarsdottir HB.
    • J Genet Couns. 2015 Feb;24(1):134-48. doi: 10.1007/s10897-014-9746-z. Epub 2014 Aug 15.
    • Beliefs about weight and breast cancer: an interview study with high risk women following a 12 month weight loss intervention.
    • Wright CE, Harvie M, Howell A, Evans DG, Hulbert-Williams N, Donnelly LS.
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    Press: Few women at high-risk for hereditary breast and ovarian cancer receive genetic counseling (EurekAlert!)

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    Press: One in five women don't believe their breast cancer risk. (Medical Xpress)

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    Comment, Editorial:

    Decision aids for breast cancer chemoprevention.

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