Psychosocial aspects, features, and concerns of male breast cancer, male BRCA1/2 mutation carriers and family members, and of other cancers and conditions associated with males and BRCA1/2 mutation status
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- Motivation and family communication in hereditary prostate cancer genetic testing: Survey of patients from a US tertiary medical center.
- Finn CM, McCormick S, Peterson D, Niendorf KB, Rodgers LH.
- J Genet Couns. 2022 Aug 8. doi: 10.1002/jgc4.1624. Epub ahead of print.
- PMID: 35941805
- PubMed abstract
- Source abstract
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- Initial outcomes and insights from a novel high-risk prostate cancer screening clinic.
- Harper JB, Greenberg SE, Hunt TC, Cooney KA, O'Neil BB.
- Prostate. 2022 Oct 7. doi: 10.1002/pros.24447. Epub ahead of print.
- PMID: 36207779
- PubMed abstract
- Source abstract
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- Insight into how patients with prostate cancer interpret and communicate genetic test results: implications for families.
- Leader AE, Mercado J, Klein A, Hyatt C, Gross L, Brandt R, Giri VN.
- J Community Genet. 2022 Jul 22. doi: 10.1007/s12687-022-00603-1. Epub ahead of print.
- PMID: 35869324
- PubMed abstract
- Source abstract
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- A systematic literature review of the management, oncological outcomes and psychosocial implications of male breast cancer.
- Rutherford CL, Goodman D, Lannigan A.
- Eur J Surg Oncol. 2022 Jun 10:S0748-7983(22)00488-7. doi: 10.1016/j.ejso.2022.06.004. Epub ahead of print.
- PMID: 35725681
- PubMed abstract
- Source abstract
- Review
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- Partner Spotlight: Sharsheret.
- Montoto R.
- FORCE. Blog. 2022 Apr 8.
- Blog post
- Free Full Text
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- Psychological Determinants of Men's Adherence to Cascade Screening for BRCA1/2.
- Ongaro G, Petrocchi S, Calvello M, Bonanni B, Feroce I, Pravettoni G.
- Curr Oncol. 2022 Apr 2;29(4):2490-2503. doi: 10.3390/curroncol29040203.
- PMID: 35448177
- PubMed abstract
- Source abstract
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- Spare Parts: Navigating Ovarian Cancer as a Transgender Man.
- Bilash T, Walker LM.
- J Clin Oncol. 2022 Mar 20;40(9):1027-1029. doi: 10.1200/JCO.21.01249. Epub 2022 Jan 12.
- PMID: 35020447
- PubMed abstract
- Source abstract
- Commentary
- Free Full Text
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- Investigating men's motivations to engage in genetic screening for BRCA1 and BRCA2 mutations.
- Annoni AM, Longhini C.
- PLoS One. 2022 Mar 18;17(3):e0265387. doi: 10.1371/journal.pone.0265387.
- PMID: 35303741
- PubMed abstract
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- BRCA2, Early-Stage Prostate Cancer and a Decision at 54.
- Axler J.
- FORCE. Blog. 2022 Feb 11.
- Blog post
- Free Full Text
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- Communication processes about predictive genetic testing within high-risk breast cancer families: a two-phase study design.
- Blomen CL, Pott A, Volk AE, Budäus L, Witzel I.
- Sci Rep. 2021 Oct 11;11(1):20178. doi: 10.1038/s41598-021-98737-8.
- PMID: 34635688
- PubMed abstract
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- Coping response and family communication of cancer risk in men harboring a BRCA mutation: A mixed methods study.
- Dwyer AA, Hesse-Biber S, Shea H, Zeng Z, Yi S.
- Psychooncology. 2021 Sep 28. doi: 10.1002/pon.5831. Epub ahead of print.
- PMID: 34582073
- PubMed abstract
- Source abstract
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- Volunteer Spotlight - Scott Lanman
- Lanman S.
- FORCE. Blog. 2021 Jun 30.
- Blog post
- Free Full Text
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- The evolving role of germline genetic testing and management in prostate cancer: Report from the Princess Margaret Cancer Centre International Retreat.
- Clark R, Kenk M, McAlpine K, Thain E, Farncombe KM, Pritchard CC, Nussbaum R, Wyatt AW, de Bono J, Vesprini D, Bombard Y, Lorentz J, Narod S, Kim R, Fleshner N.
- Can Urol Assoc J. 2021 Jun 22. doi: 10.5489/cuaj.7383. Epub ahead of print.
- PMID: 34171218
- PubMed abstract
- Source abstract
- Conference news
- Free Full Text (PDF)
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- Ashkenazi Dads Can Pass the BRCA Mutation to Their Kids. It Turns Out I Did.
- Hertz B.
- Kveller. 2021 Jun 14.
- Blog post
- Free Full Text
Blog post: Surviving, and Thriving, as a Dad with a Cancer Gene Mutation. (FORCE Blog)
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- Family planning in carriers of BRCA1 and BRCA2 pathogenic variants.
- Haddad JM, Robison K, Beffa L, Laprise J, ScaliaWilbur J, Raker CA, Clark MA, Hofstatter E, Dalela D, Brown A, Bradford L, Toland M, Stuckey A.
- J Genet Couns. 2021 Apr 27. doi: 10.1002/jgc4.1423. Epub ahead of print.
- PMID: 33904624
- PubMed abstract
- Source abstract
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- Parent of Origin Effects on Family Communication of Risk in BRCA+ Women: A Qualitative Investigation of Human Factors in Cascade Screening.
- Dwyer AA, Hesse-Biber S, Flynn B, Remick S.
- Cancers (Basel). 2020 Aug 17;12(8):2316. doi: 10.3390/cancers12082316.
- PMID: 32824510
- PubMed abstract
- Source abstract
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- Engaging Men With BRCA-Related Cancer Risks: Practical Advice for BRCA Risk Management From Male Stakeholders.
- Dean M, Campbell-Salome G, Rauscher EA.
- Am J Mens Health. 2020 May-Jun;14(3):1557988320924932. doi: 10.1177/1557988320924932.
- PMID: 32449425
- PubMed abstract
- Source abstract
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- Delayed presentation, diagnosis, and psychosocial aspects of male breast cancer.
- Co M, Lee A, Kwong A.
- Cancer Med. 2020 Mar 13. doi: 10.1002/cam4.2953. [Epub ahead of print]
- PMID: 32167660
- PubMed abstract
- Source abstract
- Review
- Free Full Text
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- Italian Men Tested for BRCA1/2 Mutation: Psychological Distress during 6-Month Follow-Up.
- Pellini F, Mirandola S, Granuzzo E, Urbani S, Piccinni Leopardi G, Pollini GP.
- J Oncol. 2020 Jan 31;2020:3987935. doi: 10.1155/2020/3987935. eCollection 2020.
- PMID: 32089686
- PubMed abstract
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- "How do we rally around the one who was positive?" Familial uncertainty management in the context of men managing BRCA-related cancer risks.
- Rauscher EA, Dean M, Campbell-Salome G, Barbour JB.
- Soc Sci Med. 2019 Oct 11;242:112592. doi: 10.1016/j.socscimed.2019.112592. [Epub ahead of print]
- PMID: 31629161
- PubMed abstract
- Source abstract
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- Parental disclosure of positive BRCA1/2 mutation status to children 10 years after genetic testing.
- Troïan J, Apostolidis T, Touzani R, Mouret-Fourme E, Stoppa-Lyonnet D, Lasset C, Berthet P, Julian-Reynier C, Mancini J, Noguès C, Bouhnik AD.
- Psychol Health Med. 2019 Sep 11:1-11. doi: 10.1080/13548506.2019.1659981. [Epub ahead of print]
- PMID: 31505944
- PubMed abstract
- Source abstract
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- Expectations versus reality: The impact of men's expectancy violations in conversations with healthcare providers about BRCA-related cancer risks.
- Dean M, Rauscher E, Gomez E, Fischer C.
- Patient Educ Couns. 2019 Apr 6. pii: S0738-3991(19)30135-1. doi: 10.1016/j.pec.2019.04.010. [Epub ahead of print]
- PMID: 31000351
- PubMed abstract
- Source abstract
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- Psychosocial impact of undergoing prostate cancer screening for men with BRCA1 or BRCA2 mutations.
- Bancroft EK, Saya S, Page EC, Myhill K, Thomas S, Pope J, Chamberlain A, Hart R, Glover W, Cook J, Rosario DJ, Helfand BT, Hutten Selkirk C, Davidson R, Longmuir M, Eccles DM, Gadea N, Brewer C, Barwell J, Salinas M, Greenhalgh L, Tischkowitz M, Henderson A, Evans DG, Buys SS; IMPACT Study Steering Committee; IMPACT Collaborators, Eeles RA, Aaronson NK.
- BJU Int. 2019 Feb;123(2):284-292. doi: 10.1111/bju.14412. Epub 2018 Jun 22.
- PMID: 29802810
- PubMed abstract
- Source abstract
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- Response to "Male Patients With Breast Cancer: Addressing Needs Using an Educational Task Force".
- Mahon SM.
- Clin J Oncol Nurs. 2018 Dec 1;22(6):610. doi: 10.1188/18.CJON.610.
- PMID: 30452015
- PubMed abstract
- Letter, Comment
- Free Full Text
Original Research: Male Patients With Breast Cancer: Addressing Needs Using an Educational Task Force. (Clinical Journal of Oncology Nursing)
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- "I Am Uncertain About What My Uncertainty Even Is": Men's Uncertainty and Information Management of Their BRCA-Related Cancer Risks.
- Rauscher EA, Dean M, Campbell-Salome GM.
- J Genet Couns. 2018 Dec;27(6):1417-1427. doi: 10.1007/s10897-018-0276-y. Epub 2018 Jul 3.
- PMID: 29971606
- PubMed abstract
- Source abstract
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- Men's and Women's Approaches to Disclosure About BRCA-Related Cancer Risks and Family Planning Decision-Making.
- Dean M, Rauscher EA.
- Qual Health Res. 2018 Dec;28(14):2155-2168. doi: 10.1177/1049732318788377. Epub 2018 Jul 27.
- PMID: 30051759
- PubMed abstract
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- Male Patients With Breast Cancer: Addressing Needs Using an Educational Task Force.
- Cutrone JN, Segna AN, Baron RH.
- Clin J Oncol Nurs. 2018 Aug 1;22(4):415-420. doi: 10.1188/18.CJON.415–420.
Letter, Comment:
Response to "Male Patients With Breast Cancer: Addressing Needs Using an Educational Task Force".
- PMID: 30452015
- PubMed abstract
- Free Full Text
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- Identification as a Mutation Carrier and Effects on Life According to Experiences of Finnish Male BRCA1/2 Mutation Carriers.
- Kajula O, Kuismin O, Kyngäs H.
- J Genet Couns. 2018 Aug;27(4):874-884. doi: 10.1007/s10897-017-0209-1. Epub 2018 Jan 13.
- PMID: 29332197
- PubMed abstract
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- “Second-Class Status?” Insight into Communication Patterns and Common Concerns Among Men with Hereditary Breast and Ovarian Cancer Syndrome.
- Suttman A, Pilarski R, Agnese DM, Senter L.
- J Genet Couns. 2018 Aug;27(4):885-893. doi: 10.1007/s10897-018-0214-z. Epub 2018 Feb 5.
- PMID: 29404823
- PubMed abstract
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- "Guys Don't Have Breasts": The Lived Experience of Men Who Have BRCA Gene Mutations and Are at Risk for Male Breast Cancer.
- Skop M, Lorentz J, Jassi M, Vesprini D, Einstein G.
- Am J Mens Health. 2018 Jul;12(4):961-972. doi: 10.1177/1557988317753241. Epub 2018 Feb 5.
- PMID: 29400121
- PubMed abstract
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- A Trans-Feminine Youth with a BRCA1 Mutation: Case Study.
- Wolf-Gould CS, Riley MR, Carswell JM.
- LGBT Health. 2018 May/Jun;5(4):270-272. doi: 10.1089/lgbt.2017.0148. Epub 2018 May 11.
- PMID: 29750596
- PubMed abstract
- Source abstract
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- "I've just never gotten around to doing it": Men's approaches to managing BRCA-related cancer risks.
- Rauscher EA, Dean M.
- Patient Educ Couns. 2018 Feb;101(2):340-345. doi: 10.1016/j.pec.2017.07.015. Epub 2017 Jul 23.
- PMID: 28757302
- PubMed abstract
- Source abstract
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- Men's information-seeking behavior regarding cancer risk and screening: A meta-narrative systematic review.
- Saab MM, Reidy M, Hegarty J, O'Mahony M, Murphy M, Von Wagner C, Drummond FJ.
- Psychooncology. 2018 Feb;27(2):410-419. doi: 10.1002/pon.4506. Epub 2017 Aug 18.
- PMID: 28728212
- PubMed abstract
- Source abstract
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- Genetics of Breast and Gynecologic Cancers (PDQ®): Health Professional Version. Psychosocial Issues in Inherited Breast and Ovarian Cancer Syndromes. Family Effects.
- PDQ Cancer Genetics Editorial Board.
- PDQ Cancer Information Summaries [Internet]. Bethesda, MD: National Cancer Institute. Updated 2017 Nov 30. Accessed 2017 Dec 8.
- PMID: 26389210
- PubMed abstract
- Section link
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- Ambiguity in a masculine world: Being a BRCA1/2 mutation carrier and a man with prostate cancer.
- Moynihan C, Bancroft EK, Mitra A, Ardern-Jones A, Castro E, Page EC, Eeles RA.
- Psychooncology. 2017 Nov;26(11):1987-1993. doi: 10.1002/pon.4530. Epub 2017 Sep 18.
- PMID: 28812325
- PubMed abstract
- Source abstract
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- Within-Gender Differences in Medical Decision Making Among Male Carriers of the BRCA Genetic Mutation for Hereditary Breast Cancer.
- Hesse-Biber S, An C.
- Am J Mens Health. 2017 Sep;11(5):1444-1459. doi: 10.1177/1557988315610806. Epub 2015 Oct 14.
- PMID: 26468160
- PubMed abstract
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- The Quality of Genetic Counseling and Connected Factors as Evaluated by Male BRCA1/2 Mutation Carriers in Finland.
- Kajula O, Kääriäinen M, Moilanen JS, Kyngäs H.
- J Genet Couns. 2016 Jun;25(3):413-21. doi: 10.1007/s10897-015-9885-x. Epub 2015 Sep 29.
- PMID: 26416184
- PubMed abstract
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- 'Marginalised malignancies': A qualitative synthesis of men's accounts of living with breast cancer.
- Quincey K, Williamson I, Winstanley S.
- Soc Sci Med. 2016 Jan;149:17-25. doi: 10.1016/j.socscimed.2015.11.032. Epub 2015 Nov 26.
- PMID: 26689631
- PubMed abstract
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- "The BRCA Responder" on Genetic Testing, Family Histories, and Why Counseling Is Key.
- Kelly Johnson.
- Oncology Nursing News. 2015 Aug 31.
- Press article
- Free Full Text
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- Podcast: Real Men Get Genetic Counseling.
- [No author given]
- My Gene Counsel. 2015 Jun 30.
- Blog post, Podcast
- Free Full Text
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- Male breast cancer networking and telephone support group: a model for supporting a unique population.
- Farrell E, Borstelmann N, Meyer F, Partridge A, Winer E, Ruddy K.
- Psychooncology. 2014 Aug;23(8):956-8. doi: 10.1002/pon.3519. Epub 2014 Apr 2.
- PMID: 24700635
- PubMed abstract
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- BRCA BROTHERHOOD.
- Amy Byer Shainman @BRCAresponder.
- The BRCA Responder, 2014 Jan 30.
- Blog post
- Free Full Text
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- A follow-up study on men tested for BRCA1/BRCA2 mutations: impacts and coping processes.
- Shiloh S, Dagan E, Friedman I, Blank N, Friedman E.
- Psychooncology. 2013 Feb;22(2):417-25. doi: 10.1002/pon.2106. Epub 2011 Dec 2.
- PMID: 22135240
- PubMed abstract
- Source abstract