Psychosocial ~ Male BRCA / Breast Cancer
~ Genetics of Breast & Ovarian Cancer

Psychosocial aspects, features, and concerns of male breast cancer, male BRCA1/2 mutation carriers and family members, and of other cancers and conditions associated with males and BRCA1/2 mutation status

List was last updated on Oct 20, 2019 @ 9:48 am.


    • "How do we rally around the one who was positive?" Familial uncertainty management in the context of men managing BRCA-related cancer risks.
    • Rauscher EA, Dean M, Campbell-Salome G, Barbour JB.
    • Soc Sci Med. 2019 Oct 11;242:112592. doi: 10.1016/j.socscimed.2019.112592. [Epub ahead of print]
    • Parental disclosure of positive BRCA1/2 mutation status to children 10 years after genetic testing.
    • Troïan J, Apostolidis T, Touzani R, Mouret-Fourme E, Stoppa-Lyonnet D, Lasset C, Berthet P, Julian-Reynier C, Mancini J, Noguès C, Bouhnik AD.
    • Psychol Health Med. 2019 Sep 11:1-11. doi: 10.1080/13548506.2019.1659981. [Epub ahead of print]
    • Expectations versus reality: The impact of men's expectancy violations in conversations with healthcare providers about BRCA-related cancer risks.
    • Dean M, Rauscher E, Gomez E, Fischer C.
    • Patient Educ Couns. 2019 Apr 6. pii: S0738-3991(19)30135-1. doi: 10.1016/j.pec.2019.04.010. [Epub ahead of print]
    • Psychosocial impact of undergoing prostate cancer screening for men with BRCA1 or BRCA2 mutations.
    • Bancroft EK, Saya S, Page EC, Myhill K, Thomas S, Pope J, Chamberlain A, Hart R, Glover W, Cook J, Rosario DJ, Helfand BT, Hutten Selkirk C, Davidson R, Longmuir M, Eccles DM, Gadea N, Brewer C, Barwell J, Salinas M, Greenhalgh L, Tischkowitz M, Henderson A, Evans DG, Buys SS; IMPACT Study Steering Committee; IMPACT Collaborators, Eeles RA, Aaronson NK.
    • BJU Int. 2019 Feb;123(2):284-292. doi: 10.1111/bju.14412. Epub 2018 Jun 22.
    • Response to "Male Patients With Breast Cancer: Addressing Needs Using an Educational Task Force".
    • Mahon SM.
    • Clin J Oncol Nurs. 2018 Dec 1;22(6):610. doi: 10.1188/18.CJON.610.

    Original Research: Male Patients With Breast Cancer: Addressing Needs Using an Educational Task Force. (Clinical Journal of Oncology Nursing)

    • "I Am Uncertain About What My Uncertainty Even Is": Men's Uncertainty and Information Management of Their BRCA-Related Cancer Risks.
    • Rauscher EA, Dean M, Campbell-Salome GM.
    • J Genet Couns. 2018 Dec;27(6):1417-1427. doi: 10.1007/s10897-018-0276-y. Epub 2018 Jul 3.
    • Men's and Women's Approaches to Disclosure About BRCA-Related Cancer Risks and Family Planning Decision-Making.
    • Dean M, Rauscher EA.
    • Qual Health Res. 2018 Dec;28(14):2155-2168. doi: 10.1177/1049732318788377. Epub 2018 Jul 27.
    • Male Patients With Breast Cancer: Addressing Needs Using an Educational Task Force.
    • Cutrone JN, Segna AN, Baron RH.
    • Clin J Oncol Nurs. 2018 Aug 1;22(4):415-420. doi: 10.1188/18.CJON.415–420.

    Letter, Comment:

    Response to "Male Patients With Breast Cancer: Addressing Needs Using an Educational Task Force".

    • Identification as a Mutation Carrier and Effects on Life According to Experiences of Finnish Male BRCA1/2 Mutation Carriers.
    • Kajula O, Kuismin O, Kyngäs H.
    • J Genet Couns. 2018 Aug;27(4):874-884. doi: 10.1007/s10897-017-0209-1. Epub 2018 Jan 13.
    • “Second-Class Status?” Insight into Communication Patterns and Common Concerns Among Men with Hereditary Breast and Ovarian Cancer Syndrome.
    • Suttman A, Pilarski R, Agnese DM, Senter L.
    • J Genet Couns. 2018 Aug;27(4):885-893. doi: 10.1007/s10897-018-0214-z. Epub 2018 Feb 5.
    • "Guys Don't Have Breasts": The Lived Experience of Men Who Have BRCA Gene Mutations and Are at Risk for Male Breast Cancer.
    • Skop M, Lorentz J, Jassi M, Vesprini D, Einstein G.
    • Am J Mens Health. 2018 Jul;12(4):961-972. doi: 10.1177/1557988317753241. Epub 2018 Feb 5.
    • A Trans-Feminine Youth with a BRCA1 Mutation: Case Study.
    • Wolf-Gould CS, Riley MR, Carswell JM.
    • LGBT Health. 2018 May/Jun;5(4):270-272. doi: 10.1089/lgbt.2017.0148. Epub 2018 May 11.
    • Letter, Case report
    • "I've just never gotten around to doing it": Men's approaches to managing BRCA-related cancer risks.
    • Rauscher EA, Dean M.
    • Patient Educ Couns. 2018 Feb;101(2):340-345. doi: 10.1016/j.pec.2017.07.015. Epub 2017 Jul 23.
    • Men's information-seeking behavior regarding cancer risk and screening: A meta-narrative systematic review.
    • Saab MM, Reidy M, Hegarty J, O'Mahony M, Murphy M, Von Wagner C, Drummond FJ.
    • Psychooncology. 2018 Feb;27(2):410-419. doi: 10.1002/pon.4506. Epub 2017 Aug 18.
    • Review
    • Genetics of Breast and Gynecologic Cancers (PDQ®): Health Professional Version. Psychosocial Issues in Inherited Breast and Ovarian Cancer Syndromes. Family Effects.
    • PDQ Cancer Genetics Editorial Board.
    • PDQ Cancer Information Summaries [Internet]. Bethesda, MD: National Cancer Institute. Updated 2017 Nov 30. Accessed 2017 Dec 8.
    • Ambiguity in a masculine world: Being a BRCA1/2 mutation carrier and a man with prostate cancer.
    • Moynihan C, Bancroft EK, Mitra A, Ardern-Jones A, Castro E, Page EC, Eeles RA.
    • Psychooncology. 2017 Nov;26(11):1987-1993. doi: 10.1002/pon.4530. Epub 2017 Sep 18.
    • Within-Gender Differences in Medical Decision Making Among Male Carriers of the BRCA Genetic Mutation for Hereditary Breast Cancer.
    • Hesse-Biber S, An C.
    • Am J Mens Health. 2017 Sep;11(5):1444-1459. doi: 10.1177/1557988315610806. Epub 2015 Oct 14.
    • The Quality of Genetic Counseling and Connected Factors as Evaluated by Male BRCA1/2 Mutation Carriers in Finland.
    • Kajula O, Kääriäinen M, Moilanen JS, Kyngäs H.
    • J Genet Couns. 2016 Jun;25(3):413-21. doi: 10.1007/s10897-015-9885-x. Epub 2015 Sep 29.
    • 'Marginalised malignancies': A qualitative synthesis of men's accounts of living with breast cancer.
    • Quincey K, Williamson I, Winstanley S.
    • Soc Sci Med. 2016 Jan;149:17-25. doi: 10.1016/j.socscimed.2015.11.032. Epub 2015 Nov 26.
    • Review
    • "The BRCA Responder" on Genetic Testing, Family Histories, and Why Counseling Is Key.
    • Kelly Johnson.
    • Oncology Nursing News. 2015 Aug 31.
    • Podcast: Real Men Get Genetic Counseling.
    • [No author given]
    • My Gene Counsel. 2015 Jun 30.
    • Male breast cancer networking and telephone support group: a model for supporting a unique population.
    • Farrell E, Borstelmann N, Meyer F, Partridge A, Winer E, Ruddy K.
    • Psychooncology. 2014 Aug;23(8):956-8. doi: 10.1002/pon.3519. Epub 2014 Apr 2.
    • Letter
    • BRCA BROTHERHOOD.
    • Amy Byer Shainman @BRCAresponder.
    • The BRCA Responder, 2014 Jan 30.
    • A follow-up study on men tested for BRCA1/BRCA2 mutations: impacts and coping processes.
    • Shiloh S, Dagan E, Friedman I, Blank N, Friedman E.
    • Psychooncology. 2013 Feb;22(2):417-25. doi: 10.1002/pon.2106. Epub 2011 Dec 2.