Dealing more specifically with psychosocial concerns regarding: Any features of, associations with, or risks of a family history of breast cancer and/or ovarian cancer, or other cancers or conditions that have been associated with these.
List was last updated on
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- Predicting Openness of Communication in Families With Hereditary Breast and Ovarian Cancer Syndrome: Natural Language Processing Analysis.
- Baroutsou V, Cerqueira Gonzalez Pena R, Schweighoffer R, Caiata-Zufferey M, Kim S, Hesse-Biber S, Ciorba FM, Lauer G, Katapodi M; CASCADE Consortium.
- JMIR Form Res. 2023 Jan 19;7:e38399. doi: 10.2196/38399.
- PMID: 36656633
- PubMed abstract
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- Genetic Testing in the Latinx community: Impact of acculturation and provider relationships.
- Ioffe YJ, Hong L, Joachim-Célestin M, Soret C, Montgomery S, Unternaehrer JJ.
- Gynecol Oncol. 2022 Dec 26;169:125-130. doi: 10.1016/j.ygyno.2022.12.001. Epub ahead of print.
- PMID: 36577267
- PubMed abstract
- Source abstract
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- Informational needs of individuals from BRCA-harboring families: a systematic review and content analysis.
- Park SY, Kim Y, Kim S, Katapodi MC.
- Genet Med. 2022 Dec 18:S1098-3600(22)01068-1. doi: 10.1016/j.gim.2022.100001. Epub ahead of print.
- Review
- Free Full Text
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- Study: Teens and young adults respond well to learning about familial cancer risk
- [No author given]
- FORCE. XRAY. 2022 Oct 11.
- Research news
- Free Full Text
Original research:
Long-Term Adaptation Among Adolescent and Young Adult Children to Familial Cancer Risk.
- PMID: 35859209
- PubMed abstract
- Source abstract
Commentary:
Breaking Down the Barriers of Hereditary Cancer Risk Disclosure in AYA.
- PMID: 35859132
- PubMed abstract
- Source abstract
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- Validation of the modified Chinese Information and Support Needs Questionnaire (ISNQ-C) for daughters of mothers with breast cancer.
- Fang SY, Chen TC.
- Palliat Support Care. 2022 Oct 11:1-9. doi: 10.1017/S1478951522001407. Epub ahead of print.
- PMID: 36217687
- PubMed abstract
- Source abstract
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- How do women who are informed that they are at increased risk of breast cancer appraise their risk? A systematic review of qualitative research.
- Woof VG, Howell A, McWilliams L, Gareth Evans D, French DP.
- Br J Cancer. 2022 Aug 24. doi: 10.1038/s41416-022-01944-x. Epub ahead of print.
- PMID: 36002751
- PubMed abstract
- Review
- Free Full Text
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- Long-Term Adaptation Among Adolescent and Young Adult Children to Familial Cancer Risk.
- McDonnell GA, Peshkin BN, DeMarco TA, Peterson SK, Arun BK, Miesfeldt S, O'Neill SC, Schneider K, Garber J, Isaacs C, Luta G, Tercyak KP.
- Pediatrics. 2022 Aug 1;150(2):e2022056339. doi: 10.1542/peds.2022-056339.
- PMID: 35859209
- PubMed abstract
- Source abstract
Commentary:
Breaking Down the Barriers of Hereditary Cancer Risk Disclosure in AYA.
- PMID: 35859132
- PubMed abstract
- Free Full Text
Research news: TITLE (FORCE. XRAYS)
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- The Communication Chain of Genetic Risk: Analyses of Narrative Data Exploring Proband–Provider and Proband–Family Communication in Hereditary Breast and Ovarian Cancer.
- Pedrazzani C, Aceti M, Schweighoffer R, Kaiser-Grolimund A, Bürki N, Chappuis PO, Graffeo R, Monnerat C, Pagani O, Rabaglio M, Katapodi MC, Caiata-Zufferey M.
- J Pers Med. 2022 Jul 29;12(8):1249. doi: 10.3390/jpm12081249.
- PMID: 36013197
- PubMed abstract
- Source abstract
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- Population-based BRCA1/2 testing programmes are highly acceptable in the Jewish community: results of the JeneScreen Study.
- Tiller JM, Cousens NE, Kaur R, Rowley S, Ko YA, Mahale S, Bankier A, Meiser B, Barlow-Stewart K, Burnett L, Jacobs C, James P, Trainer A, Neil S, Campbell IG, Andrews L, Delatycki M.
- J Med Genet. 2022 Jun 3:jmedgenet-2022-108519. doi: 10.1136/jmedgenet-2022-108519. Epub ahead of print.
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- Perceptions and care Recommendations from Previvors: Qualitative analysis of female BRCA1/2 mutation Carriers' experience with genetic testing and counseling.
- Dibble KE, Donorfio LKM, Britner PA, Bellizzi KM.
- Gynecol Oncol Rep. 2022 May 2 [eCollection 2022 Jun];41:100989. doi: 10.1016/j.gore.2022.100989.
- PMID: 35540028
- PubMed abstract
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- Psychiatric symptoms in a Spanish sample with hereditary cancer risk.
- Costa-Requena G, Garcia-Garijo M, Richart-Aznar P, Segura-Huerta Á.
- J Community Genet. 2022 Jun;13(3):339-346. doi: 10.1007/s12687-022-00580-5. Epub 2022 Feb 8.
- PMID: 35133604
- PubMed abstract
- Source abstract
Identifier: NCT04428710: Assessment Psychological Distress for Cancer Heredity Test. (ClinicalTrials.gov)
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- Transgender patients' perspectives on their cancer genetic counseling experiences.
- Rolle L, Zayhowski K, Koeller D, Chiluiza D, Carmichael N.
- J Genet Couns. 2022 Jun;31(3):781-791. doi: 10.1002/jgc4.1544. Epub 2021 Dec 28.
- PMID: 34964220
- PubMed abstract
- Source abstract
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- Perceived risk and risk reduction behaviours of female first-degree relatives of breast cancer patients attending care at Uganda cancer institute.
- Ainembabazi P, Abila DB, Manyangwa G, Anguzu G, Musaazi J, Mutyaba I, Osingada CP, Mwaka AD.
- Psychooncology. 2022 May 18. doi: 10.1002/pon.5963. Epub ahead of print.
- PMID: 35584282
- PubMed abstract
- Source abstract
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- African American Women Need to Know More About High-Risk Breast Cancer.
- Johnson F.
- FORCE. Blog. 2022 May 2.
- Blog post
- Free Full Text
Video: Felicia's Story: Genetic Testing Sheds Light on a Family's Cancer History. (YouTube / Breastcancer.org)
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- Pancreatic cancer risk to siblings of probands in bilineal cancer settings.
- Rabe KG, Stevens MA, Hernández AT, Chandra S, Hubbard JM, Kemppainen JL, Majumder S, Petersen GM.
- Genet Med. 2022 May;24(5):1008-1016. doi: 10.1016/j.gim.2022.01.016. Epub 2022 Feb 25.
- PMID: 35227607
- PubMed abstract
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- "I have always lived with the disease in the family": family adaptation to hereditary cancer-risk.
- Silva E, Gomes P, Matos PM, Silva ER, Silva J, Brandão C, Castro F, Neves MC, Sales CMD.
- BMC Prim Care. 2022 Apr 23;23(1):93. doi: 10.1186/s12875-022-01704-z.
- PMID: 35461227
- PubMed abstract
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- Genetic testing and family entanglements.
- Dimond R, Doheny S, Ballard L, Clarke A.
- Soc Sci Med. 2022 Apr;298:114857. doi: 10.1016/j.socscimed.2022.114857. Epub 2022 Feb 24.
- PMID: 35245754
- PubMed abstract
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- Investigating men's motivations to engage in genetic screening for BRCA1 and BRCA2 mutations.
- Annoni AM, Longhini C.
- PLoS One. 2022 Mar 18;17(3):e0265387. doi: 10.1371/journal.pone.0265387.
- PMID: 35303741
- PubMed abstract
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- "You Always Have It in the Back of Your Mind"-Feelings, Coping, and Support Needs of Women with Pathogenic Variants in Moderate-Risk Genes for Hereditary Breast Cancer Attending Genetic Counseling in Germany: A Qualitative Interview Study.
- Stracke C, Lemmen C, Rhiem K, Schmutzler R, Kautz-Freimuth S, Stock S.
- Int J Environ Res Public Health. 2022 Mar 16;19(6):3525. doi: 10.3390/ijerph19063525.
- PMID: 35329227
- PubMed abstract
- Source abstract
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- Transforming the 2-week wait (2WW) pathway: management of breast pain in primary care.
- Jahan M, Bartholomeuz T, Milburn N, Rogers V, Sibbering M, Robertson J.
- BMJ Open Qual. 2022 Mar;11(1):e001634. doi: 10.1136/bmjoq-2021-001634.
- PMID: 35289304
- PubMed abstract
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- Genetic Literacy and Communication of Genetic Information in Families Concerned with Hereditary Breast and Ovarian Cancer: A Cross-Study Comparison in Two Countries and within a Timeframe of More Than 10 Years.
- Pedrazzani C, Ming C, Bürki N, Caiata-Zufferey M, Chappuis PO, Duquette D, Heinimann K, Heinzelmann-Schwarz V, Graffeo-Galbiati R, Merajver SD, Milliron KJ, Monnerat C, Pagani O, Rabaglio M, Katapodi MC.
- Cancers (Basel). 2021 Dec 13;13(24):6254. doi: 10.3390/cancers13246254.
- PMID: 34944873
- PubMed abstract
- Source abstract
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- The Challenges and Rewards of Being a Caregiver in a Hereditary Cancer Family.
- Walens A.
- FORCE. Blog. 2021 Dec 13.
- Blog post
- Free Full Text
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- The DAMA25 Study: Feasibility of a Lifestyle Intervention Programme for Cancer Risk Reduction in Young Italian Women with Breast Cancer Family History.
- Masala G, Palli D, Ermini I, Occhini D, Facchini L, Sequi L, Castaldo M, Caini S, Bendinelli B, Saieva C, Assedi M, Zanna I.
- Int J Environ Res Public Health. 2021 Nov 23;18(23):12287. doi: 10.3390/ijerph182312287.
- PMID: 34886036
- PubMed abstract
- Source abstract
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- Conference Session Highlight: I'm Not White, Can I Still Have a Mutation?
- Stallings E, Goldberg D.
- FORCE. Blog. 2021 Nov 19.
- Blog post
- Free Full Text
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- Experience and Perceptions of a Family Health History Risk Assessment Tool among Multi-Ethnic Asian Breast Cancer Patients.
- Yoon S, Goh H, Fung SM, Tang S, Matchar D, Ginsburg GS, Orlando LA, Ngeow J, Wu RR.
- J Pers Med. 2021 Oct 19;11(10):1046. doi: 10.3390/jpm11101046.
- PMID: 34683187
- PubMed abstract
- Source abstract
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- "The Continuous Shadow of My Mother's Breast Cancer": exploring the voice of daughters.
- Fang SY, Wang YM, Lee KT.
- Support Care Cancer. 2021 Sep 16. doi: 10.1007/s00520-021-06551-9. Epub ahead of print.
- PMID: 34532754
- PubMed abstract
- Source abstract
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- Frequency of Contralateral Prophylactic Mastectomy in Breast Cancer Patients with a Negative BRCA1 and BRCA2 Rapid Genetic Test Result.
- Metcalfe KA, Eisen A, Poll A, Candib A, McCready D, Cil T, Wright F, Demsky R, Mancuso T, Sun P, Narod SA.
- Ann Surg Oncol. 2021 Sep;28(9):4967-4973. doi: 10.1245/s10434-021-09855-6. Epub 2021 Mar 24.
- PMID: 33761021
- PubMed abstract
- Source abstract
Commentary:
Genetic Testing and De-escalation of Contralateral Prophylactic Mastectomy.
- PMID: 33796999
- PubMed abstract
- Free Full Text
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- Breast cancer worry in higher-risk women offered preventive therapy: a UK multicentre prospective study.
- Lloyd KE, Hall LH, Ziegler L, Smith SG; ENGAGE investigators.
- Breast Cancer Res Treat. 2021 Aug;188(3):703-712. doi: 10.1007/s10549-021-06183-x. Epub 2021 Mar 17.
- PMID: 33733302
- PubMed abstract
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- Psychological consequences of MRI-based screening among women with strong family histories of breast cancer.
- Castelo M, Brown Z, D'Abbondanza JA, Wasilewski NV, Eisen A, Muradali D, Hansen BE, Grunfeld E, Scheer AS.
- Breast Cancer Res Treat. 2021 Jul 2. doi: 10.1007/s10549-021-06300-w. Epub ahead of print.
- PMID: 34213659
- PubMed abstract
- Source abstract
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- Volunteer Spotlight - Scott Lanman
- Lanman S.
- FORCE. Blog. 2021 Jun 30.
- Blog post
- Free Full Text
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- One Woman’s Breast Cancer Journey: It’s Not Just About the Breast.
- [No author given]
- FORCE. Blog. 2021 Jun 21.
- Blog post, Book review
- Free Full Text
Information: It's Not (Just) About the Breast. (Well Strong Courage)
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- Influencers of the Decision to Undergo Contralateral Prophylactic Mastectomy among Women with Unilateral Breast Cancer.
- Singareeka Raghavendra A, Alameddine HF, Andersen CR, Selber JC, Brewster AM, Barcenas CH, Caudle AS, Arun BK, Tripathy D, Ibrahim NK.
- Cancers (Basel). 2021 Apr 23;13(9):2050. doi: 10.3390/cancers13092050.
- PMID: 33922702
- PubMed abstract
- Source abstract
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- Correspondence on "Assessing relatives' readiness for hereditary cancer cascade genetic testing" by Bednar et al.
- Carlson J.
- Genet Med. 2021 Mar 19. doi: 10.1038/s41436-020-01094-6. Epub ahead of print.
- PMID: 33742172
- PubMed abstract
- Source abstract
Original research:
Assessing relatives' readiness for hereditary cancer cascade genetic testing.
- PMID: 31857708
- PubMed abstract
- Source abstract
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- Genetic Testing Challenges in Oncology: Forged Genetic Test Report Leads to Incorrect Management.
- Ray T.
- Precision Oncology News. Diagnostics. 2021 Mar 1.
- Press
- Free Full Text
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- Parent-Child Communication and Reproductive Considerations in Families with Genetic Cancer Predisposition Syndromes: A Systematic Review.
- Dattilo TM, Lipak KG, Clark OE, Gehred A, Sampson A, Quinn G, Zajo K, Sutter ME, Bowman-Curci M, Gardner M, Gerhardt CA, Nahata L.
- J Adolesc Young Adult Oncol. 2021 Feb;10(1):15-25. doi: 10.1089/jayao.2020.0084. Epub 2020 Sep 8.
- PMID: 32898455
- PubMed abstract
- Source abstract
- Review
- Free PMC article
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- Influence of lived experience on risk perception among women who received a breast cancer polygenic risk score: 'Another piece of the pie'.
- Willis AM, Smith SK, Meiser B, James PA, Ballinger ML, Thomas DM, Yanes T, Young MA.
- J Genet Couns. 2021 Jan 19. doi: 10.1002/jgc4.1384. Epub ahead of print.
- PMID: 33470033
- PubMed abstract
- Source abstract
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- Experiences, expectations and preferences regarding MRI and mammography as breast cancer screening tools in women at familial risk.
- Geuzinge HA, Heijnsdijk EAM, Obdeijn IM, de Koning HJ, Tilanus-Linthorst MMA; FaMRIsc study group.
- Breast. 2021 Jan 18;56:1-6. doi: 10.1016/j.breast.2021.01.002. Epub ahead of print.
- PMID: 33515770
- PubMed abstract
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- BRCA Family Traditions.
- Spittal K.
- FORCE. Blog. 2020 Dec 10.
- Blog post
- Free Full Text
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- A PALB2 Gene has Taken a Terrible Toll on my Family.
- Apke M.
- FORCE. Blog. 2020 Nov 20.
- Blog post
- Free Full Text
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- Previvor at 25 - The Beginning has just Begun.
- Wilson L.
- FORCE. Blog. 2020 Nov 10.
- Blog post
- Free Full Text
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- Group Therapy for Patients With Medical Illness.
- Leszcz M.
- Am J Psychother. 2020 Oct 22:appipsychotherapy20200005. doi: 10.1176/appi.psychotherapy.20200005. Epub ahead of print.
- PMID: 33086863
- PubMed abstract
- Source abstract
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- Health orientation and individual tendencies of a sample of Italian genetic testing consumers.
- Oliveri S, Durosini I, Cutica I, Cincidda C, Spinella F, Baldi M, Gorini A, Pravettoni G.
- Mol Genet Genomic Med. 2020 Jun 5:e1291. doi: 10.1002/mgg3.1291. Epub ahead of print.
- PMID: 32500972
- PubMed abstract
- Source abstract
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- Expectations and psychological issues before genetic counseling: analysis of distress determinant factors.
- Ballatore Z, Bracci R, Maccaroni E, Svarca L, Bianchi F, Belvederesi L, Bruciati C, Pagliaretta S, Murrone A, Bini F, Pistelli M, Ricci G, Berardi R.
- Hered Cancer Clin Pract. 2020 Apr 29;18:10. doi: 10.1186/s13053-020-00142-1. eCollection 2020.
- PMID: 32368313
- PubMed abstract
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- Cancer-related worry and risk perception in Brazilian individuals seeking genetic counseling for hereditary breast cancer.
- Palmero EI, Campacci N, Schüler-Faccini L, Giugliani R, Rocha JCCD, Vargas FR, Ashton-Prolla P.
- Genet Mol Biol. 2020 Apr 22;43(2):e20190097. doi: 10.1590/1678-4685-GMB-2019-0097. eCollection 2020.
- PMID: 32325485
- PubMed abstract
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- Comparison of mammography behaviors, health beliefs, and fear levels of women with and without familial breast cancer history.
- Erdogan E, Tuzcu A.
- Women Health. 2020 Apr 6:1-16. doi: 10.1080/03630242.2020.1746949. [Epub ahead of print]
- PMID: 32252615
- PubMed abstract
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- Assessing relatives' readiness for hereditary cancer cascade genetic testing.
- Bednar EM, Sun CC, McCurdy S, Vernon SW.
- Genet Med. 2020 Apr;22(4):719-726. doi: 10.1038/s41436-019-0735-3. Epub 2019 Dec 20.
- PMID: 31857708
- PubMed abstract
- Source abstract
Letter:
Correspondence on "Assessing relatives' readiness for hereditary cancer cascade genetic testing" by Bednar et al.
- PMID: 33742172
- PubMed abstract
- Source abstract
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- Ethical Issues in Genetic Testing for Inherited Cancer Predisposition Syndromes: the Potentially Conflicting Interests of Patients and Their Relatives.
- Kenny J, Burcher S, Kohut K, Eastman N.
- Curr Genet Med Rep. 2020 Mar 17. doi: 10.1007/s40142-020-00186-8. [Epub ahead of print]
- Review, Case report
- Free Full Text
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- A Systematized review of experiences of individuals in Arnett's emerging adulthood stage who live with or are at-risk for genetic conditions.
- Shelley AR, McCarthy Veach P, LeRoy B, Redlinger-Grosse K.
- J Genet Couns. 2020 Mar 7. doi: 10.1002/jgc4.1238. [Epub ahead of print]
- PMID: 32146730
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- Factors that impact risk management decisions among women with pathogenic variants in moderate penetrance genes associated with hereditary breast cancer.
- Napoli M, Lewis J, Hopper J, Widmeyer K.
- J Genet Couns. 2020 Feb 3. doi: 10.1002/jgc4.1220. [Epub ahead of print]
- PMID: 32012395
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- Talking across generations: Family communication about BRCA1 and BRCA2 genetic cancer risk.
- Young AL, Butow PN, Rhodes P, Tucker KM, Williams R, Healey E, Wakefield CE.
- J Genet Couns. 2019 Jun;28(3):516-532. doi: 10.1002/jgc4.1055. Epub 2019 Jan 29.
- PMID: 30694012
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- Cancer genetic health communication in families tested for hereditary breast/ovarian cancer risk: a qualitative investigation of impact on children's genetic health literacy and psychosocial adjustment.
- Tercyak KP, Bronheim SM, Kahn N, Robertson HA, Anthony BJ, Mays D, O'Neill SC, Peterson SK, Miesfeldt S, Peshkin BN, DeMarco TA.
- Transl Behav Med. 2019 May 16;9(3):493-503. doi: 10.1093/tbm/ibz012.
- PMID: 31094441
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- Scientific supremacy as an obstacle to establishing and sustaining interdisciplinary dialogue across knowledge paradigms in health medicine.
- Gripsrud BH, Solbrække KN.
- Med Health Care Philos. 2019 Apr 25. doi: 10.1007/s11019-019-09901-x. [Epub ahead of print]
- PMID: 31025263
- PubMed abstract
- Commentary
- Free Full Text
Commentary:
Our genes, our selves: hereditary breast cancer and biological citizenship in Norway.
- PMID: 28939999
- PubMed abstract
- Free Full Text
Our genes, our selves: hereditary breast cancer and biological citizenship in Norway.
- PMID: 27709396
- PubMed abstract
- Source abstract
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- Factors Influencing Not Perceiving Family Health History Assessments as Important: Opportunities to Improve Dissemination of Evidence-Based Population Screening for Cancer.
- Allen CG, Escoffery C, Haardörfer R, McBride CM.
- Public Health Genomics. 2019 Apr 9:1-10. doi: 10.1159/000499125. [Epub ahead of print]
- PMID: 30965345
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- Predictive Power of PEN-3 Model Constructs in Breast Cancer Screening Behaviors among Teachers: A Cross- Sectional Study in Central Iran.
- Moghaddam ES, Shahnazi H, Hassanzadeh A.
- Eur J Breast Health. 2019 Apr 1;15(2):105-110. doi: 10.5152/ejbh.2019.4417. eCollection 2019 Apr.
- PMID: 31001612
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- Risk perception and screening behavior of Filipino women at risk for breast cancer: implications for cancer genetic counseling.
- Lagarde JBB, Laurino MY, San Juan MD, Cauyan JML, Tumulak MJR, Ventura ER.
- J Community Genet. 2019 Apr;10(2):281-289. doi: 10.1007/s12687-018-0391-3. Epub 2018 Sep 27.
- PMID: 30259342
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- Legacies and Relationships: Diverse Social Networks and BRCA1/2 Risk Management Decisions and Actions.
- Ersig AL, Werner-Lin A, Hoskins L, Young J, Loud JT, Peters J, Greene MH.
- J Fam Nurs. 2019 Feb;25(1):28-53. doi: 10.1177/1074840718815844. Epub 2018 Dec 12.
- PMID: 30537877
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- Family storytelling about hereditary cancer: Framing shared understandings of risk.
- Campbell-Salome G, Rauscher EA.
- J Genet Couns. 2020 Jan 22. doi: 10.1002/jgc4.1218. [Epub ahead of print]
- PMID: 31970844
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- Reminders of cancer risk and pain catastrophizing: relationships with cancer worry and perceived risk in women with a first-degree relative with breast cancer.
- Whitney CA, Dorfman CS, Shelby RA, Keefe FJ, Gandhi V, Somers TJ.
- Fam Cancer. 2019 Jan;18(1):9-18. doi: 10.1007/s10689-018-0082-6.
- PMID: 29679190
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- False-positive screening events and worry influence decisions about surgery among high-risk women.
- Andersen MR, Karlan BY, Drescher CW, Paley P, Hawley S, Palomares M, Daly MB, Urban N.
- Health Psychol. 2019 Jan;38(1):43-52. doi: 10.1037/hea0000647. Epub 2018 Nov 15.
- PMID: 30431292
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- Preventative Health and Risk Behaviors Among Adolescent Girls With and Without Family Histories of Breast Cancer.
- Schwartz LA, Henry-Moss D, Egleston B, Patrick-Miller L, Markman E, Daly M, Tuchman L, Moore C, Rauch PK, Karpink K, Sands CB, Domchek SM, Bradbury AR.
- J Adolesc Health. 2019 Jan;64(1):116-123. doi: 10.1016/j.jadohealth.2018.07.011. Epub 2018 Oct 6.
- PMID: 30301677
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- BRCA Testing Dichotomy in Saudi Arabia.
- Abusanad A.
- J Glob Oncol. 2019 Jan;(5):1-2. doi: 10.1200/JGO.18.00188.
- PMID: 30707664
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- A randomized controlled trial of a supportive expressive group intervention for women with a family history of breast cancer.
- Esplen MJ, Leszcz M, Hunter J, Wong J, Leung YW, Toner B, Messner S, Glendon G, Stuckless N, Butler C.
- Psychooncology. 2018 Nov;27(11):2645-2653. doi: 10.1002/pon.4822. Epub 2018 Jul 17.
- PMID: 29952047
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- A Systematic Review of How Young People Live with Inherited Disease: What Can We Learn for Li-Fraumeni Syndrome?
- Forbes Shepherd R, Lewis A, Keogh LA, Werner-Lin A, Delatycki MB, Forrest LE.
- J Adolesc Young Adult Oncol. 2018 Oct;7(5):525-545. doi: 10.1089/jayao.2018.0028. Epub 2018 Jul 13.
- PMID: 30004834
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- Cancer experience in families affects decision making.
- [No author given]
- FORCE. XRAYS. 2018 Sep 25.
Press: How a Loved One’s Experience With Cancer Guides Breast Cancer Decisions. (U.S. News & World Report)
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- Does stress increase risk of breast cancer? A 15-year prospective study.
- Butow P, Price M, Coll J, Tucker K, Meiser B, Milne R, Wilson J, Heiniger L, Baylock B, Bullen T, Weideman P, Phillips KA; kConFab investigators; kConFab Clinical Follow-Up investigators; kConFab psychosocial investigators.
- Psychooncology. 2018 Aug;27(8):1908-1914. doi: 10.1002/pon.4740. Epub 2018 May 4.
- PMID: 29677398
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- Psychological outcomes and surgical decisions after genetic testing in women newly diagnosed with breast cancer with and without a family history.
- Meiser B, Quinn VF, Mitchell G, Tucker K, Watts KJ, Rahman B, Peate M, Saunders C, Geelhoed E, Gleeson M, Barlow-Stewart K, Field M, Harris M, Antill YC, Susman R, Bowen MT, Mills L, Kirk J; TFGT Collaborative Group.
- Eur J Hum Genet. 2018 Jul;26(7):972-983. doi: 10.1038/s41431-017-0057-3. Epub 2018 Mar 30.
- PMID: 29599518
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- Health education models application by peer group for improving breast cancer screening among Iranian women with a family history of breast cancer: A randomized control trial.
- Fathollahi-Dehkordi F, Farajzadegan Z.
- Med J Islam Repub Iran. 2018 Jun 21;32:51. doi: 10.14196/mjiri.32.51. eCollection 2018.
- PMID: 30175077
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- Development of a Tool to Guide Parents Carrying a BRCA1/2 Mutation Share Genetic Results with Underage Children.
- Santerre-Theil A, Bouchard K, St-Pierre D, Drolet AM, Chiquette J, Dorval M; Centre ROSE.
- J Cancer Educ. 2018 Jun;33(3):569-575. doi: 10.1007/s13187-016-1127-x.
- PMID: 27804029
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- [To know or not to know, that is the question - screening for BRCA].
- Johannsson OT.
- Laeknabladid. 2018 Jun;104(6):281. doi: 10.17992/lbl.2018.06.187.
- PMID: 29863481
- PubMed abstract
- Editorial, [Article in Icelandic]
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- [Views of Icelandic women towards genetic counseling - and testing of BRCA2 mutations].
- Jonsdottir T, Valdimarsdottir H, Tryggvadottir L, Lund SH, Thordardottir M, Magnusson MK, Valdimarsdottir U.
- Laeknabladid. 2018 Jun;104(6):289-296. doi: 10.17992/lbl.2018.06.189.
- PMID: 29863481
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- [Article in Icelandic]
- Free Full Text [Icelandic]
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- Our genes, our selves: hereditary breast cancer and biological citizenship in Norway.
- Møller P, Hovig E.
- Med Health Care Philos. 2018 Jun;21(2):239-242. doi: 10.1007/s11019-017-9803-0.
- PMID: 28939999
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Our genes, our selves: hereditary breast cancer and biological citizenship in Norway.
- PMID: 27709396
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Commentary, Reply:
Scientific supremacy as an obstacle to establishing and sustaining interdisciplinary dialogue across knowledge paradigms in health medicine.
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- Communicating with Daughters About Familial Risk of Breast Cancer: Individual, Family, and Provider Influences on Women's Knowledge of Cancer Risk.
- Peipins LA, Rodriguez JL, Hawkins NA, Soman A, White MC, Hodgson ME, DeRoo LA, Sandler DP.
- J Womens Health (Larchmt). 2018 May;27(5):630-639. doi: 10.1089/jwh.2017.6528. Epub 2018 Jan 29.
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- Breast Cancer Screening Behaviors of First Degree Relatives of Women Receiving Breast Cancer Treatment and the Affecting Factors.
- Kırca N, Tuzcu A, Gözüm S.
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- Heightened perception of breast cancer risk in young women at risk of familial breast cancer.
- Glassey R, O'Connor M, Ives A, Saunders C; kConFab Investigators, O'Sullivan S, Hardcastle SJ.
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- Influences on anticipated time to ovarian cancer symptom presentation in women at increased risk compared to population risk of ovarian cancer.
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- BMC Cancer. 2017 Dec 4;17(1):814. doi: 10.1186/s12885-017-3835-y.
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- Experiencing the cancer of a loved one influences decision-making for breast cancer prevention.
- Padamsee TJ, Muraveva A, Yee LD, Wills CE, Paskett ED.
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- All in the family? Communication of cancer survivors with their families.
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- Case report
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- Moving In and Out of the What-Ifs: The Experiences of Unaffected Women Living in Families Where a Breast Cancer 1 or 2 Genetic Mutation Was Not Found.
- Schroeder D, Duggleby W, Cameron BL.
- Cancer Nurs. 2017 Sep/Oct;40(5):386-393. doi: 10.1097/NCC.0000000000000438.
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- Living Under a Cloud of Threat: The Experience of Iranian Female Caregivers with a first-degree relative with breast cancer.
- Hashemi-Ghasemabadi M, Taleghani F, Kohan S, Yousefy A.
- Psychooncology. 2017 May;26(5):625-631. doi: 10.1002/pon.4198. Epub 2016 Jul 14.
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- Our genes, our selves: hereditary breast cancer and biological citizenship in Norway.
- Solbrække KN, Søiland H, Lode K, Gripsrud BH.
- Med Health Care Philos. 2017 Mar;20(1):89-103. doi: 10.1007/s11019-016-9737-y.
- PMID: 27709396
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Commentary:
Our genes, our selves: hereditary breast cancer and biological citizenship in Norway.
- PMID: 28939999
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- Preparing young people for future decision-making about cancer risk in families affected or at risk from hereditary breast cancer: A qualitative interview study.
- Rowland E, Plumridge G, Considine AM, Metcalfe A.
- Eur J Oncol Nurs. 2016 Dec;25:9-15. doi: 10.1016/j.ejon.2016.08.006. Epub 2016 Sep 20.
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- When knowledge of a heritable gene mutation comes out of the blue: treatment-focused genetic testing in women newly diagnosed with breast cancer.
- Meiser B, Quinn VF, Gleeson M, Kirk J, Tucker KM, Rahman B, Saunders C, Watts KJ, Peate M, Geelhoed E, Barlow-Stewart K, Field M, Harris M, Antill YC, Mitchell G.
- Eur J Hum Genet. 2016 Nov;24(11):1517-1523. doi: 10.1038/ejhg.2016.69. Epub 2016 Jun 22.
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- BRACAVENIR - impact of a psychoeducational intervention on expectations and coping in young women (aged 18-30 years) exposed to a high familial breast/ovarian cancer risk: study protocol for a randomized controlled trial.
- Kwiatkowski F, Dessenne P, Laquet C, Daures JP, Gay-Bellile M, Bignon YJ.
- Trials. 2016 Oct 21;17(1):509.
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- Psychosocial Adjustment and Perceived Risk Among Adolescent Girls From Families With BRCA1/2 or Breast Cancer History.
- Bradbury AR, Patrick-Miller L, Schwartz LA, Egleston BL, Henry-Moss D, Domchek SM, Daly MB, Tuchman L, Moore C, Rauch PK, Shorter R, Karpink K, Sands CB.
- J Clin Oncol. 2016 Oct 1;34(28):3409-16. doi: 10.1200/JCO.2015.66.3450. Epub 2016 Aug 22.
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- The psychological impact of genetic information on children: a systematic review.
- Wakefield CE, Hanlon LV, Tucker KM, Patenaude AF, Signorelli C, McLoone JK, Cohn RJ.
- Genet Med. 2016 Aug;18(8):755-62. doi: 10.1038/gim.2015.181. Epub 2016 Jan 7.
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- Review
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Commentary:
Predictive genetic testing of minors: evidence and experience with families.
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- The double-edged sword of ovarian cancer information for women at increased risk who have previously taken part in screening.
- Smits S, Boivin J, Menon U, Brain K.
- Ecancermedicalscience. 2016 Jun 30;10:650. doi: 10.3332/ecancer.2016.650. eCollection 2016.
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- Coping Together, Side by Side: Enriching Mother–Daughter Communication Across the Breast Cancer Journey. Written by Carla L. Fisher. Hampton Press Inc., New York, NY, 2014. 242 pp. Price: $29.95 (US), ₤17.01 (UK). ISBN: 978-1612891415 (paperbound).
- David Wellisch, Valerie Yarema.
- Psycho-Oncology. 25(6):744. doi: 10.1002/pon.4122. 2016 Jun.
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- Iranian women's attitude toward prophylactic mastectomy for breast cancer.
- Majidzadeh-A K, Farahmand L, Zare AA, Esmaeili R, Salehi M, Habibi M.
- J Cancer Res Ther. 2016 Apr-Jun;12(2):915-9. doi: 10.4103/0973-1482.171363.
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- Cancer Risk Awareness and Concern among Women with a Family History of Breast or Ovarian Cancer.
- Andersen MR, Thorpe J, Buist DS, Beatty JD, Watabayashi K, Hanson N, Resta R, Chubak J, Urban N.
- Behav Med. 2016 Jan-Mar;42(1):18-28. doi: 10.1080/08964289.2014.947234. Epub 2014 Nov 3.
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- Internet-based physical activity intervention for women with a family history of breast cancer.
- Hartman SJ, Dunsiger SI, Marinac CR, Marcus BH, Rosen RK, Gans KM.
- Health Psychol. 2015 Dec;34 Suppl:1296-304. doi: 10.1037/hea0000307.
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- Podcast: Real Men Get Genetic Counseling.
- [No author given]
- My Gene Counsel. 2015 Jun 30.
- Blog post, Podcast
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- Beliefs about weight and breast cancer: an interview study with high risk women following a 12 month weight loss intervention.
- Wright CE, Harvie M, Howell A, Evans DG, Hulbert-Williams N, Donnelly LS.
- Hered Cancer Clin Pract. 2015 Jan 9;13(1):1. doi: 10.1186/s13053-014-0023-9. eCollection 2015.
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- Perceived breast cancer risk and breast cancer worry among women with a family history of breast cancer: a new perspective on coping as a mediator.
- Molina Y, Ceballos RM, Dolan ED, Albano D, McGregor BA.
- Psychooncology. 2015 Jan;24(1):113-6. doi: 10.1002/pon.3587. Epub 2014 Jul 2.
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- Letter
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- The loss of a mother and dealing with genetic cancer risk: women who have undergone prophylactic removal of the ovaries.
- Mæland MK, Eriksen EO, Synnes O.
- Eur J Oncol Nurs. 2014 Oct;18(5):521-6. doi: 10.1016/j.ejon.2014.04.006. Epub 2014 May 28.
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- Does perceived risk predict breast cancer screening use? Findings from a prospective cohort study of female relatives from the Ontario site of the breast cancer family registry.
- Walker MJ, Mirea L, Glendon G, Ritvo P, Andrulis IL, Knight JA, Chiarelli AM.
- Breast. 2014 Aug;23(4):482-8. doi: 10.1016/j.breast.2014.04.001. Epub 2014 May 10.
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- Experience of BRCA1/2 mutation-negative young women from families with hereditary breast and ovarian cancer: a qualitative study.
- Macrae L, de Souza AN, Loiselle CG, Wong N.
- Hered Cancer Clin Pract. 2013 Oct 16;11(1):14. doi: 10.1186/1897-4287-11-14.
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- Perceived risk and adherence to breast cancer screening guidelines among women with a familial history of breast cancer: a review of the literature.
- Walker MJ, Chiarelli AM, Knight JA, Mirea L, Glendon G, Ritvo P.
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- The impact of having a sister diagnosed with breast cancer on cancer-related distress and breast cancer risk perception.
- Metcalfe KA, Quan ML, Eisen A, Cil T, Sun P, Narod SA.
- Cancer. 2013 May 1;119(9):1722-8. doi: 10.1002/cncr.27924. Epub 2013 Feb 7.
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- Impact of family history on choosing risk-reducing surgery among BRCA mutation carriers.
- Singh K, Lester J, Karlan B, Bresee C, Geva T, Gordon O.
- Am J Obstet Gynecol. 2013 Apr;208(4):329.e1-6. doi: 10.1016/j.ajog.2013.01.026. Epub 2013 Jan 17.
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- A multi-case report of the pathways to and through genetic testing and cancer risk management for BRCA mutation-positive women aged 18-25.
- Hoskins LM, Werner-Lin A.
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- Family history of cancer and its association with breast cancer risk perception and repeat mammography.
- Haber G, Ahmed NU, Pekovic V.
- Am J Public Health. 2012 Dec;102(12):2322-9. doi: 10.2105/AJPH.2012.300786. Epub 2012 Oct 18.
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- Familial breast cancer: less emotional distress in adult daughters if they provide emotional support to their affected mother.
- Vodermaier A, Stanton AL.
- Fam Cancer. 2012 Dec;11(4):645-52. doi: 10.1007/s10689-012-9566-y.
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- Beliefs about optimal age and screening frequency predict breast screening adherence in a prospective study of female relatives from the Ontario site of the Breast Cancer Family Registry.
- Ritvo P, Edwards SA, Glendon G, Mirea L, Knight JA, Andrulis IL, Chiarelli AM.
- BMC Public Health. 2012 Jul 12;12:518. doi: 10.1186/1471-2458-12-518.
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- When parents disclose BRCA1/2 test results: Their communication and perceptions of offspring response.
- Bradbury AR, Patrick-Miller L, Egleston BL, Olopade OI, Daly MB, Moore CW, Sands CB, Schmidheiser H, Kondamudi PK, Feigon M, Ibe CN, Daugherty CK.
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Press: Most parents who get tested for breast cancer genes share results with their children. (EurekAlert!)
Press: Most Parents Disclose Cancer Gene Results to Children. (Medscape)
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- Exploration of the family's role and strengths after a young woman is diagnosed with breast cancer: views of women and their families.
- Coyne E, Wollin J, Creedy DK.
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