Management / Therapy / Treatment Concerns ~ Psychosocial
~ Genetics of Breast & Ovarian Cancer

Psychosocial issues with and decision-making concerns on medical management aspects of HBOC risk status, including prophylactic risk reduction, cancer treatment options (and satisfaction with results), adjusting to risk-reducing surgery and treatment choices, etc.

List was last updated on Oct 13, 2019 @ 4:46 am.


    • “How do we rally around the one who was positive?” Familial uncertainty management in the context of men managing BRCA-related cancer risks.
    • Rauscher EA, Dean M, Campbell-Salome G, Barbour JB.
    • Soc Sci Med. 2019 Oct 11. pii: S0277-9536(19)30587-8. doi: 10.1016/j.socscimed.2019.112592. [Epub ahead of print]
    • Interventions to improve psychosocial well-being in female BRCA-mutation carriers following risk-reducing surgery.
    • Jeffers L, Reid J, Fitzsimons D, Morrison PJ, Dempster M.
    • Cochrane Database Syst Rev. 2019 Oct 9;10:CD012894. doi: 10.1002/14651858.CD012894.pub2. [Epub ahead of print]
    • Review

    Original research:

    Mindfulness-based stress reduction for menopausal symptoms after risk-reducing salpingo-oophorectomy (PURSUE study): a randomised controlled trial.

    Original research:

    Addressing sexual dysfunction after risk-reducing salpingo-oophorectomy: effects of a brief, psychosexual intervention.

    • Health-related quality of life in patients with a germline BRCA mutation and metastatic pancreatic cancer receiving maintenance olaparib.
    • Hammel P, Kindler HL, Reni M, Cutsem EV, Macarulla T, Hall MJ, Park JO, Hochhauser D, Arnold D, Oh DY, Reinacher-Schick A, Tortora G, Algül H, O'Reilly EM, McGuinness D, Cui KY, Joo S, Yoo HK, Patel N, Golan T.
    • Ann Oncol. 2019 Sep 28. pii: mdz406. doi: 10.1093/annonc/mdz406. [Epub ahead of print]
    • Health professional and at-risk BRCA young adult perspectives about information needs: What does Gen Y need to know?
    • Young AL, Butow PN, Tucker KM, Williams R, Healey E, Wakefield CE.
    • J Genet Couns. 2019 Sep 19. doi: 10.1002/jgc4.1167. [Epub ahead of print]
    • Trends in contralateral prophylactic mastectomy rate according to clinicopathologic and socioeconomic status.
    • Jeon HJ, Park HS, Park JS, Nam EJ, Lee ST, Han J.
    • Ann Surg Treat Res. 2019 Sep;97(3):113-118. doi: 10.4174/astr.2019.97.3.113. Epub 2019 Aug 29.
    • Risk Estimation, Anxiety and Breast Cancer Worry in Women at Risk for Breast Cancer: A Single-Arm Trial of Personalized Risk Communication.
    • Xie Z, Wenger N, Stanton A, Sepucha K, Kaplan C, Madlensky L, Elashoff D, Trent J, Petruse A, Johansen L, Layton T, Naeim A.
    • Psychooncology. 2019 Aug 28. doi: 10.1002/pon.5211. [Epub ahead of print]
    • Risk Assessment, Genetic Counseling, and Genetic Testing for BRCA-Related Cancer: US Preventive Services Task Force Recommendation Statement.
    • US Preventive Services Task Force, Owens DK, Davidson KW, Krist AH, Barry MJ, Cabana M, Caughey AB, Doubeni CA, Epling JW Jr, Kubik M, Landefeld CS, Mangione CM, Pbert L, Silverstein M, Simon MA, Tseng CW, Wong JB.
    • JAMA. 2019 Aug 20;322(7):652-665. doi: 10.1001/jama.2019.10987.

    Evidence report, Review:

    Risk Assessment, Genetic Counseling, and Genetic Testing for BRCA-Related Cancer in Women: Updated Evidence Report and Systematic Review for the US Preventive Services Task Force.

    Guidelines [Internet]:

    Risk Assessment, Genetic Counseling, and Genetic Testing for BRCA1/2-Related Cancer in Women: A Systematic Review for the U.S. Preventive Services Task Force [Internet].

    Editorial:

    Broadening Criteria for BRCA1/2 Evaluation: Placing the USPSTF Recommendation in Context.

    Editorial:

    USPSTF Recommendations for BRCA1 and BRCA2 Testing in the Context of a Transformative National Cancer Control Plan.

    Editorial:

    Hereditary Cancer Evaluation in 2019-a Rapidly Evolving Landscape.

    Editorial:

    US Preventive Services Task Force Breast Cancer Recommendation Statement on Risk Assessment, Genetic Counseling, and Genetic Testing for BRCA-Related Cancer.

    News:

    USPSTF Calls for More BRCA Screening.

    Patient Page:

    Should I Be Tested for BRCA Mutations?

    Audio Interview, CME Activity: USPSTF Recommendation: Assessment, Counseling, and Testing for BRCA-Related Cancer. (JAMA)

    Press: USPSTF Recommendations on BRCA Mutation Testing. (Medscape Oncology)

    • Risk Assessment, Genetic Counseling, and Genetic Testing for BRCA-Related Cancer in Women: Updated Evidence Report and Systematic Review for the US Preventive Services Task Force.
    • Nelson HD, Pappas M, Cantor A, Haney E, Holmes R.
    • JAMA. 2019 Aug 20;322(7):666-685. doi: 10.1001/jama.2019.8430.

    Guidelines:

    Risk Assessment, Genetic Counseling, and Genetic Testing for BRCA-Related Cancer: US Preventive Services Task Force Recommendation Statement.

    Guidelines:

    Risk Assessment, Genetic Counseling, and Genetic Testing for BRCA1/2-Related Cancer in Women: A Systematic Review for the U.S. Preventive Services Task Force [Internet].

    • Should I Be Tested for BRCA Mutations?
    • Jin J.
    • JAMA. 2019 Aug 20;322(7):702. doi: 10.1001/jama.2019.11251.

    Guidelines:

    Risk Assessment, Genetic Counseling, and Genetic Testing for BRCA-Related Cancer: US Preventive Services Task Force Recommendation Statement.

    • USPSTF Recommendation: Assessment, Counseling, and Testing for BRCA-Related Cancer.
    • Mangione CM.
    • JAMA. 2019 Aug 20.

    Guidelines:

    Risk Assessment, Genetic Counseling, and Genetic Testing for BRCA-Related Cancer: US Preventive Services Task Force Recommendation Statement.

    • A systematic review of factors affecting quality of life after postmastectomy breast reconstruction in women with breast cancer.
    • Sousa H, Castro S, Abreu J, Pereira MG.
    • Psychooncology. 2019 Aug 16. doi: 10.1002/pon.5206. [Epub ahead of print]
    • Review
    • Patient-physician relationships, health self-efficacy, and gynecologic cancer screening among women with Lynch syndrome.
    • McGarragle KM, Aronson M, Semotiuk K, Holter S, Hare CJ, Ferguson SE, Cohen Z, Hart TL.
    • Hered Cancer Clin Pract. 2019 Aug 13;17:24. doi: 10.1186/s13053-019-0123-7. eCollection 2019.
    • Women's initial experiences of their appearance after mastectomy and/or breast reconstruction: A qualitative study.
    • Herring B, Paraskeva N, Tollow P, Harcourt D.
    • Psychooncology. 2019 Aug 6. doi: 10.1002/pon.5196. [Epub ahead of print]
    • Impact of genetic counseling on the uptake of contralateral prophylactic mastectomy among younger women with breast cancer.
    • Terkelsen T, Rønning H, Skytte AB.
    • Acta Oncol. 2019 Aug 5:1-6. doi: 10.1080/0284186X.2019.1648860. [Epub ahead of print]
    • Effectiveness of decision aids for female BRCA1 and BRCA2 mutation carriers: a systematic review.
    • Krassuski L, Vennedey V, Stock S, Kautz-Freimuth S.
    • BMC Med Inform Decis Mak. 2019 Aug 1;19(1):154. doi: 10.1186/s12911-019-0872-2.
    • Patient-Reported Satisfaction after Prophylactic Operations of the Breast.
    • Keller K, Meisel C, Grübling N, Petzold A, Wimberger P, Kast K.
    • Breast Care (Basel). 2019 Aug;14(4):217-223. doi: 10.1159/000496398. Epub 2019 Feb 15.
    • Warranting the decision-maker, not the decision: How healthcare practitioners evaluate the legitimacy of patients' unprompted requests for risk-reducing mastectomy.
    • Brown SL, Beesley H, Holcombe C, Saini P, Salmon P.
    • Patient Educ Couns. 2019 Aug;102(8):1446-1451. doi: 10.1016/j.pec.2019.03.007. Epub 2019 Mar 18.
    • Risk Assessment, Genetic Counseling, and Genetic Testing for BRCA1/2-Related Cancer in Women: A Systematic Review for the U.S. Preventive Services Task Force [Internet].
    • Nelson HD, Pappas M, Cantor A, Haney E, Holmes R, Stillman L.
    • Rockville (MD): Agency for Healthcare Research and Quality (US); 2019 Aug. Report No.: 19-05251-EF-1. U.S. Preventive Services Task Force Evidence Syntheses, formerly Systematic Evidence Reviews.

    Guidelines:

    Risk Assessment, Genetic Counseling, and Genetic Testing for BRCA-Related Cancer: US Preventive Services Task Force Recommendation Statement.

    Guidelines:

    Risk Assessment, Genetic Counseling, and Genetic Testing for BRCA-Related Cancer in Women: Updated Evidence Report and Systematic Review for the US Preventive Services Task Force.

    • Willingness to decrease mammogram frequency among women at low risk for hereditary breast cancer.
    • Guan Y, Nehl E, Pencea I, Condit CM, Escoffery C, Bellcross CA, McBride CM.
    • Sci Rep. 2019 Jul 3;9(1):9599. doi: 10.1038/s41598-019-45967-6.
    • Can I Keep My Nipple? Factors Influencing the Surgical Decision between Skin-Sparing and Nipple-Sparing Mastectomy.
    • Wang M, Huang J, Chagpar AB.
    • Am Surg. 2019 Jul 1;85(7):768-771.
    • Risk-reducing surgery in BRCA1/BRCA2 mutation carriers: are there factors associated with the choice?
    • Manoukian S, Alfieri S, Bianchi E, Peissel B, Azzollini J, Borreani C.
    • Psychooncology. 2019 Jul 1. doi: 10.1002/pon.5166. [Epub ahead of print]
    • A Simple Way to Make Genetic Counseling More Efficient and Accessible.
    • Markman M.
    • Medscape Oncology. 2019 Jun 14.

    Original research:

    Modified panel-based genetic counseling for ovarian cancer susceptibility: A randomized non-inferiority study.

    • A young woman's story of genetic testing and risk-reducing mastectomy.
    • [No author given]
    • FORCE. XRAYS. 2019 Jun 6.

    Narrative: I Had a Preventive Mastectomy—Then Found Out I Already Had Breast Cancer. (Health)

    • Choosing high-risk screening vs. surgery and the effect of treatment modality on anxiety and breast-specific sensuality in BRCA mutation carriers.
    • Rojas KE, Butler E, Gutierrez J, Kwait R, Laprise J, Wilbur JS, Spinette S, Raker CA, Robison K, Legare R, Gass J, Stuckey A.
    • Gland Surg. 2019 Jun;8(3):249-257. doi: 10.21037/gs.2019.04.08.
    • Online decision support for persons having a genetic predisposition to cancer and their partners during reproductive decision-making.
    • Reumkens K, Tummers MHE, Gietel-Habets JJG, van Kuijk SMJ, Aalfs CM, van Asperen CJ, Ausems MGEM, Collée M, Dommering CJ, Kets CM, van der Kolk LE, Oosterwijk JC, Tjan-Heijnen VCG, van der Weijden T1, de Die-Smulders CEM, van Osch LADM.
    • J Genet Couns. 2019 Jun;28(3):533-542. doi: 10.1002/jgc4.1056. Epub 2018 Dec 21.
    • Trans-counseling: A case series of transgender individuals at high risk for BRCA1 pathogenic variants.
    • Sacca RE, Koeller DR, Rana HQ, Garber JE, Morganstern DE.
    • J Genet Couns. 2019 Jun;28(3):708-716. doi: 10.1002/jgc4.1046. Epub 2019 Jan 24.
    • NF1 Patients Receiving Breast Cancer Screening: Insights from The Ontario High Risk Breast Screening Program.
    • Maani N, Westergard S, Yang J, Scaranelo AM, Telesca S, Thain E, Schachter NF, McCuaig JM, Kim RH.
    • Cancers (Basel). 2019 May 22;11(5). pii: E707. doi: 10.3390/cancers11050707.
    • Clinical background and outcomes of risk-reducing salpingo-oophorectomy for hereditary breast and ovarian cancers in Japan.
    • Nomura H, Sekine M, Yokoyama S, Arai M, Enomoto T, Takeshima N, Nakamura S.
    • Int J Clin Oncol. 2019 May 4. doi: 10.1007/s10147-019-01456-4. [Epub ahead of print]
    • Decisional conflict among breast cancer patients considering contralateral prophylactic mastectomy.
    • Manne S, Smith B, Mitarotondo A, Frederick S, Toppmeyer D, Kirstein L.
    • Patient Educ Couns. 2019 May;102(5):902-908. doi: 10.1016/j.pec.2018.12.008. Epub 2018 Dec 10.
    • Women's perceptions of personalized risk-based breast cancer screening and prevention: An international focus group study.
    • Rainey L, Jervaeus A, Donnelly LS, Evans DG, Hammarström M, Hall P, Wengström Y, Broeders MJM, van der Waal D.
    • Psychooncology. 2019 May;28(5):1056-1062. doi: 10.1002/pon.5051. Epub 2019 Mar 25.
    • Factors associated with intentions for breast cancer risk management: Does risk group matter?
    • Conley CC, Agnese DM, Vadaparampil ST, Andersen BL.
    • Psychooncology. 2019 May;28(5):1119-1126. doi: 10.1002/pon.5066. Epub 2019 Apr 10.
    • Bilateral risk-reducing mastectomy in BRCA mutation carriers: A difficult decision-making.
    • Franceschini G, Masetti R.
    • Breast J. 2019 Apr 9. doi: 10.1111/tbj.13287. [Epub ahead of print]
    • Letter
    • "It felt like unfinished business, it feels like that's finished now": Women's experiences of decision making around Contralateral Prophylactic Mastectomy (CPM).
    • Tollow P, Williams VS, Harcourt D, Paraskeva N.
    • Psychooncology. 2019 Apr 8. doi: 10.1002/pon.5086. [Epub ahead of print]
    • Body image problems in women with and without breast cancer 6-20 years after bilateral risk-reducing surgery - A prospective follow-up study.
    • Bai L, Arver B, Johansson H, Sandelin K, Wickman M, Brandberg Y.
    • Breast. 2019 Apr;44:120-127. doi: 10.1016/j.breast.2019.01.013. Epub 2019 Feb 1.
    • Communication about genetic testing with breast and ovarian cancer patients: a scoping review.
    • Jacobs C, Patch C, Michie S.
    • Eur J Hum Genet. 2019 Apr;27(4):511-524. doi: 10.1038/s41431-018-0310-4. Epub 2018 Dec 20.
    • Modified panel-based genetic counseling for ovarian cancer susceptibility: A randomized non-inferiority study.
    • McCuaig JM, Tone AA, Maganti M, Romagnuolo T, Ricker N, Shuldiner J, Rodin G, Stockley T, Kim RH, Bernardini MQ.
    • Gynecol Oncol. 2019 Apr;153(1):108-115. doi: 10.1016/j.ygyno.2018.12.027. Epub 2019 Jan 10.

    Commentary: A Simple Way to Make Genetic Counseling More Efficient and Accessible. (Medscape Oncology)

    • Risk perception and screening behavior of Filipino women at risk for breast cancer: implications for cancer genetic counseling.
    • Lagarde JBB, Laurino MY, San Juan MD, Cauyan JML, Tumulak MJR, Ventura ER.
    • J Community Genet. 2019 Apr;10(2):281-289. doi: 10.1007/s12687-018-0391-3. Epub 2018 Sep 27.
    • Experiences and interpretations of BRCA1/2 testing among women affected by breast or ovarian cancer who received a negative result.
    • Stafford L, Flehr A, Judd F, Lindeman GJ, Gibson P, Komiti A, Mann GB, Kentwell M.
    • J Community Genet. 2019 Mar 27. doi: 10.1007/s12687-019-00415-w. [Epub ahead of print]
    • Surgery to Reduce Ovarian Cancer Risk — One Step or Two?
    • Harrison P
    • Medscape. Medscape Oncology. 2019 Mar 25.
    • Gaps in information about breast cancer risk and prevention impact African American women.
    • [No author given]
    • FORCE. XRAYS. 2019 Mar 14.

    Original research:

    Layers of information: interacting constraints on breast cancer risk-management by high-risk African American women.

    • Concerns and Expectations of Risk-Reducing Surgery in Women with Hereditary Breast and Ovarian Cancer Syndrome.
    • Modaffari P, Ponzone R, Ferrari A, Cipullo I, Liberale V, D'Alonzo M, Maggiorotto F, Biglia N.
    • J Clin Med. 2019 Mar 5;8(3). pii: E313. doi: 10.3390/jcm8030313.
    • Chemoprevention acceptance and adherence in women with high-risk breast lesions.
    • Roche CA, Tang R, Coopey SB, Hughes KS.
    • Breast J. 2019 Mar;25(2):190-195. doi: 10.1111/tbj.13064. Epub 2018 May 21

    Editorial:

    Applying the Hippocratic Oath in breast cancer-The case for promoting prevention.

    Press: Chemoprevention of Breast Cancer: Personal Touch Helps Uptake. (Medscape Oncology)

    • A qualitative exploration of race-based differences in social support needs of diverse women with breast cancer on adjuvant therapy.
    • Paladino AJ, Anderson JN, Graff JC, Krukowski RA, Blue R, Jones TN, Buzaglo J, Kocak M, Vidal GA, Graetz I.
    • Psychooncology. 2019 Mar;28(3):570-576. doi: 10.1002/pon.4979. Epub 2019 Feb 5.
    • BRACAVENIR: an observational study of expectations and coping in young women with high hereditary risk of breast and ovarian cancer.
    • Kwiatkowski F, Gay-Bellile M, Dessenne P, Laquet C, Boussion V, Béguinot M, Petit MF, Grémeau AS, Verlet C, Chaptal C, Broult M, Jouvency S, Duclos M, Bignon YJ.
    • Hered Cancer Clin Pract. 2019 Feb 27;17:7. doi: 10.1186/s13053-019-0107-7. eCollection 2019.
    • The cost of cancer care and impact of financial hardship on treatment.
    • [No author given]
    • FORCE. XRAYS. 2019 Feb 8.

    Original research:

    BRCA1 and BRCA2 Testing in Medically Underserved Medicare Beneficiaries With Breast or Ovarian Cancer.

    News: Labs, Advocacy Groups Push Back on Medicare Policy Shift on NGS Testing for Hereditary Cancer Risk. (GenomeWeb)

    News: Pricey Precision Medicine Often Financially Toxic For Cancer Patients. (Kaiser Health News)

    • Mindfulness-based stress reduction for menopausal symptoms after risk-reducing salpingo-oophorectomy (PURSUE study): a randomised controlled trial.
    • van Driel C, de Bock GH, Schroevers MJ, Mourits MJ.
    • BJOG. 2019 Feb;126(3):402-411. doi: 10.1111/1471-0528.15471. Epub 2018 Oct 23.

    Review:

    Interventions to improve psychosocial well-being in female BRCA-mutation carriers following risk-reducing surgery.

    • Psychosocial impact of undergoing prostate cancer screening for men with BRCA1 or BRCA2 mutations.
    • Bancroft EK, Saya S, Page EC, Myhill K, Thomas S, Pope J, Chamberlain A, Hart R, Glover W, Cook J, Rosario DJ, Helfand BT, Hutten Selkirk C, Davidson R, Longmuir M, Eccles DM, Gadea N, Brewer C, Barwell J, Salinas M, Greenhalgh L, Tischkowitz M, Henderson A, Evans DG, Buys SS; IMPACT Study Steering Committee; IMPACT Collaborators, Eeles RA, Aaronson NK.
    • BJU Int. 2019 Feb;123(2):284-292. doi: 10.1111/bju.14412. Epub 2018 Jun 22.
    • Trends in use of bilateral prophylactic mastectomy vs high-risk surveillance in unaffected carriers of inherited breast cancer syndromes in the Inherited Cancer Registry (ICARE).
    • Henry DA, Lee MC, Almanza D, Ahmed KA, Sun W, Boulware DC, Laronga C.
    • Breast Cancer Res Treat. 2019 Feb;174(1):39-45. doi: 10.1007/s10549-018-5057-7. Epub 2018 Nov 24.
    • Legacies and Relationships: Diverse Social Networks and BRCA1/2 Risk Management Decisions and Actions.
    • Ersig AL, Werner-Lin A, Hoskins L, Young J, Loud JT, Peters J, Greene MH.
    • J Fam Nurs. 2019 Feb;25(1):28-53. doi: 10.1177/1074840718815844. Epub 2018 Dec 12.
    • Perioperative Management of Women Undergoing Risk-reducing Surgery for Hereditary Breast and Ovarian Cancer.
    • AlHilli MM, Al-Hilli Z.
    • J Minim Invasive Gynecol. 2019 Feb;26(2):253-265. doi: 10.1016/j.jmig.2018.09.767. Epub 2018 Sep 19.
    • Determinants of hormone therapy uptake and decision-making after bilateral oophorectomy (BO): A narrative review.
    • Siyam T, Carbon J, Ross S, Yuksel N.
    • Maturitas. 2019 Feb;120:68-76. doi: 10.1016/j.maturitas.2018.11.005. Epub 2018 Nov 12.
    • Risk factors for sexual dysfunction in BRCA mutation carriers after risk-reducing salpingo-oophorectomy.
    • Chan JL, Senapati S, Johnson LNC, DiGiovanni L, Voong C, Butts SF, Domchek SM.
    • Menopause. 2019 Feb;26(2):132-139. doi: 10.1097/GME.0000000000001176.
    • Reframing the conversation about contralateral prophylactic mastectomy: Preparing women for postsurgical realities.
    • Bloom DL, Chapman BM, Wheeler SB, McGuire KP, Lee CN, Weinfurt K, Rosenstein DL, Plichta JK, Jacobson Vann JC, Hwang ES.
    • Psychooncology. 2019 Feb;28(2):394-400. doi: 10.1002/pon.4955. Epub 2018 Dec 28.
    • The Benefits and Blinders of Do-Goodism.
    • Resta R.
    • The DNA Exchange. 2019 Jan 20.
    • Development and Testing of a Decision Aid for Unaffected Women with a BRCA1 or BRCA2 Mutation.
    • Jabaley T, Underhill-Blazey ML, Berry DL.
    • J Cancer Educ. 2019 Jan 19. doi: 10.1007/s13187-019-1470-9. [Epub ahead of print]
    • Helping Patients Manage the Anxiety Behind Contralateral Prophylactic Mastectomy.
    • Schapira L, Parker P.
    • Medscape. Medscape Oncology. 2019 Jan 17.

    Original research:

    Prospective Study of Psychosocial Outcomes of Having Contralateral Prophylactic Mastectomy Among Women With Nonhereditary Breast Cancer.

    • Improving outcomes for young women with breast cancer: fertility and childbearing issues.
    • [No author given]
    • FORCE. XRAYS. 2019 Jan 7.

    ClinicalTrials.gov: Pregnancy Outcome and Safety of Interrupting Therapy for Women With Endocrine Responsive Breast Cancer (POSITIVE) (NIH. ClinicalTrials.gov.)

    • Risk-Reducing Mastectomy in BRCA1 and BRCA2 Mutation Carriers: A Complex Discussion.
    • Domchek SM.
    • JAMA. 2019 Jan 1;321(1):27. doi: 10.1001/jama.2018.18942.
    • Review, Commentary
    • Different Patterns of Risk Reducing Decisions in Affected or Unaffected BRCA Pathogenic Variant Carriers.
    • Lee EG, Kang HJ, Lim MC, Park B, Park SJ, Jung SY, Lee S, Kang HS, Park SY, Park B, Joo J, Han JH, Kong SY, Lee ES.
    • Cancer Res Treat. 2019 Jan;51(1):280-288. doi: 10.4143/crt.2018.079. Epub 2018 May 4.
    • Psychosocial and behavioral outcomes of genomic testing in cancer: a systematic review.
    • Yanes T, Willis AM, Meiser B, Tucker KM, Best M.
    • Eur J Hum Genet. 2019 Jan;27(1):28-35. doi: 10.1038/s41431-018-0257-5. Epub 2018 Sep 11.
    • Review
    • The development of an online decision aid to support persons having a genetic predisposition to cancer and their partners during reproductive decision-making: a usability and pilot study.
    • Reumkens K, Tummers MHE, Gietel-Habets JJG, van Kuijk SMJ, Aalfs CM, van Asperen CJ, Ausems MGEM, Collée M, Dommering CJ, Kets CM, van der Kolk LE, Oosterwijk JC, Tjan-Heijnen VCG, van der Weijden T, de Die-Smulders CEM, van Osch LADM.
    • Fam Cancer. 2019 Jan;18(1):137-146. doi: 10.1007/s10689-018-0092-4.
    • Effects of bilateral salpingo-oophorectomy on menopausal symptoms and sexual functioning among women with a BRCA1 or BRCA2 mutation.
    • Hall E, Finch A, Jacobson M, Rosen B, Metcalfe K, Sun P, Narod SA, Kotsopoulos J.
    • Gynecol Oncol. 2019 Jan;152(1):145-150. doi: 10.1016/j.ygyno.2018.10.040. Epub 2018 Nov 7.
    • False-positive screening events and worry influence decisions about surgery among high-risk women.
    • Andersen MR, Karlan BY, Drescher CW, Paley P, Hawley S, Palomares M, Daly MB, Urban N.
    • Health Psychol. 2019 Jan;38(1):43-52. doi: 10.1037/hea0000647. Epub 2018 Nov 15.
    • BRCA Testing Dichotomy in Saudi Arabia.
    • Abusanad A.
    • J Glob Oncol. 2019 Jan;(5):1-2. doi: 10.1200/JGO.18.00188.
    • Bilateral prophylactic mastectomy in BRCA mutation carriers: what surgeons need to know.
    • Franceschini G, Di Leone A, Terribile D, Sanchez MA, Masetti R.
    • Ann Ital Chir. 2019;90:1-2.
    • Review
    • Layers of information: interacting constraints on breast cancer risk-management by high-risk African American women.
    • Padamsee TJ, Meadows R, Hils M.
    • Ethn Health. 2018 Dec 27:1-24. doi: 10.1080/13557858.2018.1562053. [Epub ahead of print]

    Research news: Gaps in information about breast cancer risk and prevention impact African American women (FORCE. XRAYS.)

    • Black and Minority Ethnic women's decision-making for risk reduction strategies after BRCA testing: Use of context and knowledge.
    • Machirori M, Patch C, Metcalfe A.
    • Eur J Med Genet. 2018 Dec 12. pii: S1769-7212(18)30405-1. doi: 10.1016/j.ejmg.2018.12.006. [Epub ahead of print]
    • Cancer Risk Estimates for Study of Multiple-Gene Testing After Diagnosis of Breast Cancer.
    • Narod SA.
    • JAMA Oncol. 2018 Dec 1;4(12):1787-1788. doi: 10.1001/jamaoncol.2018.4931.
    • Letter, Comment

    Original Research:

    Uptake, Results, and Outcomes of Germline Multiple-Gene Sequencing After Diagnosis of Breast Cancer.

    Letter, reply:

    Cancer Risk Estimates for Study of Multiple-Gene Testing After Diagnosis of Breast Cancer—Reply

    • Satisfaction and Impact on Quality of Life of Clinical and Instrumental Surveillance and Prophylactic Surgery in BRCA-mutation Carriers.
    • D'Alonzo M, Piva E, Pecchio S, Liberale V, Modaffari P, Ponzone R, Biglia N.
    • Clin Breast Cancer. 2018 Dec;18(6):e1361-e1366. doi: 10.1016/j.clbc.2018.07.015. Epub 2018 Jul 26.
    • Uptake of Preimplantation Genetic Diagnosis in Female BRCA1 and BRCA2 Mutation Carriers.
    • Mor P, Brennenstuhl S, Metcalfe KA.
    • J Genet Couns. 2018 Dec;27(6):1386-1394. doi: 10.1007/s10897-018-0264-2. Epub 2018 Jun 1.
    • "I Am Uncertain About What My Uncertainty Even Is": Men's Uncertainty and Information Management of Their BRCA-Related Cancer Risks.
    • Rauscher EA, Dean M, Campbell-Salome GM.
    • J Genet Couns. 2018 Dec;27(6):1417-1427. doi: 10.1007/s10897-018-0276-y. Epub 2018 Jul 3.
    • Predictors of risk-reducing surgery intentions following genetic counseling for hereditary breast and ovarian cancer.
    • Ladd MK, Peshkin BN, Senter L, Baldinger S, Isaacs C, Segal H, Philip S, Phillips C, Shane K, Martin A, Weinstein V, Pilarski R, Jeter J, Sweet K, Hatten B, Wurtmann EJ, Phippen S, Bro D, Schwartz MD.
    • Transl Behav Med. 2018 Nov 10. doi: 10.1093/tbm/iby101. [Epub ahead of print]
    • A randomized controlled trial of a supportive expressive group intervention for women with a family history of breast cancer.
    • Esplen MJ, Leszcz M, Hunter J, Wong J, Leung YW, Toner B, Messner S, Glendon G, Stuckless N, Butler C.
    • Psychooncology. 2018 Nov;27(11):2645-2653. doi: 10.1002/pon.4822. Epub 2018 Jul 17.
    • Adaptation of couples living with a high risk of breast/ovarian cancer and the association with risk-reducing surgery.
    • Shapira R, Turbitt E, Erby LH, Biesecker BB, Klein WMP3, Hooker GW.
    • Fam Cancer. 2018 Oct;17(4):485-493. doi: 10.1007/s10689-017-0065-z.
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    • Response to "A Psychological Perspective on Factors Predicting Prophylactic Salpingo-Oophorectomy in a Sample of Italian Women from the General Population. Results from a Hypothetical Study in the Context of BRCA Mutations".
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    • Letter

    A Psychological Perspective on Factors Predicting Prophylactic Salpingo-Oophorectomy in a Sample of Italian Women from the General Population. Results from a Hypothetical Study in the Context of BRCA Mutations.

    Letter, Reply:

    Letter to the Editor: Response to Cox (2018).

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    • Previvor: An Oncology Nurse's Story of Cancer Risk Reduction Through Genetic Testing.
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    Blog post: I felt empowered by choosing not to have a reconstruction. (Breast Cancer Care)

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    • The Relationship Between Body Image, Gender, Subjective Norms, and the Decision to Undergo Preventive Mastectomy Among Arab and Jewish BRCA Carriers.
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    Summary: Women should be aware of their true risk of developing breast cancer and the limitations of current evidence when considering risk-reducing mastectomy. (Cochrane Library)

    • Patient experience and utility of genetic information: a cross-sectional study among patients tested for cancer susceptibility and thrombophilia.
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    • Impact of Multigene Panel Testing on Surgical Decision Making in Breast Cancer Patients.
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    • Take your time, follow your heart: strategies for communication about family planning.
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    • FORCE. XRAYS. 2018 Mar 28.

    "Take your time, then follow your heart:" Previvors' advice for communicating about family planning after testing positive for a BRCA genetic variant.

    • When BRCA Mutations Meet Complications.
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    • FORCE. XRAYS. 2018 Feb 1.

    Press: Biannual MRI Better Than Annual Mammogram at Detecting Breast Cancer in High-risk Women, Study Finds. (Breast Cancer News)

    Press: For women with genetic risk, semi-annual MRI beats mammograms. (ScienceDaily)

    • Previvors' Uncertainty Management Strategies for Hereditary Breast and Ovarian Cancer.
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    • Self-compassion, physical fitness and climacteric symptoms in oophorectomized BRCA1/2 mutation carriers.
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    • Influences on decision-making for young women undergoing bilateral prophylactic mastectomy.
    • Glassey R, O'Connor M, Ives A, Saunders C, Hardcastle SJ; kConFab Investigators.
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    • "I've just never gotten around to doing it": Men's approaches to managing BRCA-related cancer risks.
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    • Review
    • Perceived influence of psychological consultation on psychological well-being, body image, and intimacy following bilateral prophylactic mastectomy: A qualitative analysis.
    • Glassey R, Hardcastle SJ, O'Connor M, Ives A; kConFab Investigators, Saunders C.
    • Psychooncology. 2018 Feb;27(2):633-639. doi: 10.1002/pon.4558. Epub 2017 Oct 16.
    • Preferences for learning different types of genome sequencing results among young breast cancer patients: Role of psychological and clinical factors.
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    • Severity and duration of menopausal symptoms after risk-reducing salpingo-oophorectomy.
    • Stuursma A, van Driel CMG, Wessels NJ, de Bock GH, Mourits MJE.
    • Maturitas. 2018 Jan 12. pii: S0378-5122(17)30950-7. doi: 10.1016/j.maturitas.2018.01.012. [Epub ahead of print]

    Press: Menopausal Symptoms May Last Over 10 Years After Risk-reducing Ovarian Surgery. (Medscape/Reuters)

    • Rationale for Mastectomy after Neoadjuvant Chemotherapy.
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    • Breast Cancer Screening Behaviors of First Degree Relatives of Women Receiving Breast Cancer Treatment and the Affecting Factors.
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    • Review
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    • The association between patient attitudes and values and the strength of consideration for contralateral prophylactic mastectomy in a population-based sample of breast cancer patients.
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    • Cancer. 2017 Dec 1;123(23):4547-4555. doi: 10.1002/cncr.30924. Epub 2017 Aug 15.
    • Experiencing the cancer of a loved one influences decision-making for breast cancer prevention.
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    • Facilitating decision-making in women undergoing genetic testing for hereditary breast cancer: BRECONDA randomized controlled trial results.
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    • "Take your time, then follow your heart:" Previvors' advice for communicating about family planning after testing positive for a BRCA genetic variant.
    • Rauscher EA, Dean M.
    • Fam Syst Health. 2017 Dec;35(4):486-497. doi: 10.1037/fsh0000312.

    Research news: Take your time, follow your heart: strategies for communication about family planning. (FORCE. XRAYS.)

    • Universal BRCA1/BRCA2 Testing for Ovarian Cancer Patients is Welcomed, but with Care: How Women and Staff Contextualize Experiences of Expanded Access.
    • Shipman H, Flynn S, MacDonald-Smith CF, Brenton J, Crawford R, Tischkowitz M; GTEOC Study Group, Hulbert-Williams NJ.
    • J Genet Couns. 2017 Dec;26(6):1280-1291. doi: 10.1007/s10897-017-0108-5. Epub 2017 May 24.
    • Genetics of Breast and Gynecologic Cancers (PDQ®): Health Professional Version. Psychosocial Issues in Inherited Breast and Ovarian Cancer Syndromes. Psychosocial Aspects of Cancer Risk Management for Hereditary Breast and Ovarian Cancer.
    • PDQ Cancer Genetics Editorial Board.
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    • Genetics of Breast and Gynecologic Cancers (PDQ®): Health Professional Version. Psychosocial Issues in Inherited Breast and Ovarian Cancer Syndromes. Psychosocial Outcome Studies.
    • PDQ Cancer Genetics Editorial Board.
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    • Sexual Health Is Paramount in the Counseling of Women at Risk for Breast or Ovarian Cancer Undergoing Risk-Reducing Surgery.
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    • Commentary
    • The management of sexuality, intimacy, and menopause symptoms (SIMS) after prophylactic bilateral salpingo-oophorectomy: How to maintain sexual health in "previvors".
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    • Review
    • Risk Perception and Psychological Distress in Genetic Counselling for Hereditary Breast and/or Ovarian Cancer.
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    • J Genet Couns. 2017 Oct;26(5):999-1007. doi: 10.1007/s10897-017-0072-0. Epub 2017 Mar 10.
    • Performing and Declining PGD: Accounts of Jewish Israeli Women Who Carry a BRCA1/2 Mutation or Partners of Male Mutation Carriers.
    • Dagan E, Birenbaum-Carmeli D, Friedman E, Feldman B.
    • J Genet Couns. 2017 Oct;26(5):1070-1079. doi: 10.1007/s10897-017-0087-6. Epub 2017 Mar 6.
    • A Psychological Perspective on Factors Predicting Prophylactic Salpingo-Oophorectomy in a Sample of Italian Women from the General Population. Results from a Hypothetical Study in the Context of BRCA Mutations.
    • Gavaruzzi T, Tasso A, Franiuk M, Varesco L, Lotto L.
    • J Genet Couns. 2017 Oct;26(5):1144-1152. doi: 10.1007/s10897-017-0093-8. Epub 2017 Mar 23.

    Letter:

    Response to "A Psychological Perspective on Factors Predicting Prophylactic Salpingo-Oophorectomy in a Sample of Italian Women from the General Population. Results from a Hypothetical Study in the Context of BRCA Mutations".

    Letter, Reply:

    Letter to the Editor: Response to Cox (2018).

    • Qualitatively understanding patients' and health professionals' experiences of the BRECONDA breast reconstruction decision aid.
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    • JNCI Cancer Spectr. 2017 Sep;1(1):pkx002. doi: 10.1093/jncics/pkx002. Epub 2017 Sep 22.
    • How do women at increased breast cancer risk perceive and decide between risks of cancer and risk-reducing treatments? A synthesis of qualitative research.
    • Fielden HG, Brown SL, Saini P, Beesley H, Salmon P.
    • Psychooncology. 2017 Sep;26(9):1254-1262. doi: 10.1002/pon.4349. Epub 2017 Jan 26.
    • Quality of Patient Decisions About Breast Reconstruction After Mastectomy.
    • Lee CN, Deal AM, Huh R, Ubel PA, Liu YJ, Blizard L, Hunt C, Pignone MP.
    • JAMA Surg. 2017 Aug 1;152(8):741-748. doi: 10.1001/jamasurg.2017.0977.
    • Radiation and depression associated with complications of tissue expander reconstruction.
    • Chuba PJ, Stefani WA, Dul C, Szpunar S, Falk J, Wagner R, Edhayan E, Rabbani A, Browne CH, Aref A.
    • Breast Cancer Res Treat. 2017 Aug;164(3):641-647. doi: 10.1007/s10549-017-4277-6. Epub 2017 May 13.
    • Preoperative genetic testing impacts surgical decision making in BRCA mutation carriers with breast cancer: a retrospective cohort analysis.
    • Yadav S, Reeves A, Campian S, Sufka A, Zakalik D.
    • Hered Cancer Clin Pract. 2017 Jul 26;15:11. doi: 10.1186/s13053-017-0071-z. eCollection 2017.
    • Genetic Testing in Patients With Newly Diagnosed Breast Cancer: Room for Improvement.
    • Ahn S, Port ER.
    • J Clin Oncol. 2017 Jul 10;35(20):2221-2223. doi: 10.1200/JCO.2017.72.8816. Epub 2017 Apr 14.
    • Gaps in Incorporating Germline Genetic Testing Into Treatment Decision-Making for Early-Stage Breast Cancer.
    • Kurian AW, Li Y, Hamilton AS, Ward KC, Hawley ST, Morrow M, McLeod MC, Jagsi R, Katz SJ.
    • J Clin Oncol. 2017 Jul 10;35(20):2232-2239. doi: 10.1200/JCO.2016.71.6480. Epub 2017 Apr 12.

    Press: Lack of Understanding of Genetic Breast Cancer Testing. (Medscape)

    • Longitudinal cancer risk management trajectories of BRCA1/2 mutation-positive reproductive-age women.
    • Young JL, Werner-Lin A, Mueller R, Hoskins L, Epstein N, Greene MH.
    • J Psychosoc Oncol. 2017 Jul-Aug;35(4):393-408. doi: 10.1080/07347332.2017.1292574. Epub 2017 Feb 14.
    • Women at familial risk of breast cancer electing for prophylactic mastectomy: frequencies, procedures, and decision-making characteristics.
    • Schott S, Vetter L, Keller M, Bruckner T, Golatta M, Eismann S, Dikow N, Evers C, Sohn C, Heil J.
    • Arch Gynecol Obstet. 2017 Jun;295(6):1451-1458. doi: 10.1007/s00404-017-4376-y. Epub 2017 Apr 24.
    • Health-related quality of life in Black breast cancer survivors with and without triple-negative breast cancer (TNBC).
    • Vadaparampil ST, Christie J, Donovan KA, Kim J, Augusto B, Kasting ML, Holt CL, Ashing K, Halbert CH, Pal T.
    • Breast Cancer Res Treat. 2017 Jun;163(2):331-342. doi: 10.1007/s10549-017-4173-0. Epub 2017 Mar 3.
    • "I Don't Want to Be an Ostrich": Managing Mothers' Uncertainty during BRCA1/2 Genetic Counseling.
    • Fisher CL, Roccotagliata T, Rising CJ, Kissane DW, Glogowski EA, Bylund CL.
    • J Genet Couns. 2017 Jun;26(3):455-468. doi: 10.1007/s10897-016-9998-x. Epub 2016 Jul 30.
    • Factors Associated with Interest in Gene-Panel Testing and Risk Communication Preferences in Women from BRCA1/2 Negative Families.
    • Flores KG, Steffen LE, McLouth CJ, Vicuña BE, Gammon A, Kohlmann W, Vigil L, Dayao ZR, Royce ME, Kinney AY.
    • J Genet Couns. 2017 Jun;26(3):480-490. doi: 10.1007/s10897-016-0001-7. Epub 2016 Aug 6.
    • Breast Cancer Risk Reduction Decisions of the BRCA-Positive Patient: An Observational Study at a Single Institution.
    • Johns D, Agarwal J, Anderson L, Ying J, Kohlmann W.
    • J Womens Health (Larchmt). 2017 Jun;26(6):702-706. doi: 10.1089/jwh.2016.5931. Epub 2016 Dec 6.
    • Review Article: Sexuality and Risk-Reducing Salpingo-oophorectomy.
    • Tucker PE, Cohen PA.
    • Int J Gynecol Cancer. 2017 May;27(4):847-852. doi: 10.1097/IGC.0000000000000943.
    • Review
    • The effect of ovarian cancer screening on sexual activity and functioning: results from the UK collaborative trial of ovarian cancer screening RCT.
    • Fallowfield L, Solis-Trapala I, Menon U, Langridge C, May S, Jacobs I, Jenkins V.
    • Br J Cancer. 2017 Apr 11;116(8):1111-1117. doi: 10.1038/bjc.2017.72. Epub 2017 Mar 21.
    • Psychosocial factors associated with the uptake of contralateral prophylactic mastectomy among BRCA1/2 mutation noncarriers with newly diagnosed breast cancer.
    • Hamilton JG, Genoff MC, Salerno M, Amoroso K, Boyar SR, Sheehan M, Fleischut MH, Siegel B, Arnold AG, Salo-Mullen EE, Hay JL, Offit K, Robson ME.
    • Breast Cancer Res Treat. 2017 Apr;162(2):297-306. doi: 10.1007/s10549-017-4123-x. Epub 2017 Feb 1.
    • The experience of women carriers of BRCA mutations following risk-reducing surgery: A cultural perspective.
    • Mahat-Shamir M, Possick C.
    • Health Care Women Int. 2017 Apr;38(4):344-360. doi: 10.1080/07399332.2016.1267182. Epub 2016 Dec 7.
    • Decision making for breast cancer prevention among women at elevated risk.
    • Padamsee TJ, Wills CE, Yee LD, Paskett ED.
    • Breast Cancer Res. 2017 Mar 24;19(1):34. doi: 10.1186/s13058-017-0826-5.
    • High demoralization in a minority of oophorectomized BRCA1/2 mutation carriers influences quality of life.
    • Arts-de Jong M, DeJong CA, Hermens RP, Kissane DW, Massuger LM, Hoogerbrugge N, Prins JB, deHullu JA.
    • J Psychosom Obstet Gynaecol. 2017 Mar 10:1-9. doi: 10.1080/0167482X.2017.1296429. [Epub ahead of print]
    • Second Opinions From Medical Oncologists for Early-Stage Breast Cancer: Prevalence, Correlates, and Consequences.
    • Kurian AW, Friese CR, Bondarenko I, Jagsi R, Li Y, Hamilton AS, Ward KC, Katz SJ.
    • JAMA Oncol. 2017 Mar 1;3(3):391-397. doi: 10.1001/jamaoncol.2016.5652.
    • "The Absence Doubled?" Photo-Poetic Narratives of Prophylactic Mastectomy.
    • Bolaki S.
    • Lit Med. [2017 Spring;]35(1):1-26. doi: 10.1353/lm.2017.0000.
    • Commentary
    • Effect of decision aid for breast cancer prevention on decisional conflict in women with a BRCA1 or BRCA2 mutation: a multisite, randomized, controlled trial.
    • Metcalfe KA, Dennis CL, Poll A, Armel S, Demsky R, Carlsson L, Nanda S, Kiss A, Narod SA.
    • Genet Med. 2017 Mar;19(3):330-336. doi: 10.1038/gim.2016.108. Epub 2016 Sep 1.
    • An exploratory study of patients' views about being at high-risk for breast cancer and risk management beliefs and intentions, before and after risk counselling: Preliminary evidence of the influence of beliefs on post-counselling prevention intentions.
    • Paquet L, Simmonds L, Yang C, Verma S.
    • Patient Educ Couns. 2017 Mar;100(3):575-582. doi: 10.1016/j.pec.2016.10.005. Epub 2016 Oct 11.
    • Health Behaviors and their Relationship with Disease Control in People Attending Genetic Clinics with a Family History of Breast or Colorectal Cancer.
    • Anderson AS, Caswell S, Macleod M, Steele RJ, Berg J, Dunlop J, Stead M, Eadie D, O'Carroll RE.
    • J Genet Couns. 2017 Feb;26(1):40-51. doi: 10.1007/s10897-016-9977-2. Epub 2016 Jun 17.
    • The 'cause' of my cancer, beliefs about cause among breast cancer patients and survivors who do and do not seek IO care.
    • Andersen MR, Afdem K, Hager S, Gaul M, Sweet E, Standish LJ.
    • Psychooncology. 2017 Feb;26(2):248-254. doi: 10.1002/pon.4028. Epub 2015 Nov 9.
    • Commentary: Bilateral risk-reducing mastectomy is the safest strategy in BRCA1 carriers.
    • Glassey R, Saunders C, Hardcastle SJ.
    • Front Psychol. 2017 Jan 31;8:121. doi: 10.3389/fpsyg.2017.00121. eCollection 2017.

    Review:

    Bilateral risk-reducing mastectomy is the safest strategy in BRCA1 carriers

    • Anxiety and depression symptoms among women attending group-based patient education courses for hereditary breast and ovarian cancer.
    • Listøl W, Høberg-Vetti H, Eide GE, Bjorvatn C.
    • Hered Cancer Clin Pract. 2017 Jan 11;15:2. doi: 10.1186/s13053-016-0062-5. eCollection 2017.
    • Sexuality and quality of life in women with a prior diagnosis of breast cancer after risk-reducing salpingo-oophorectomy.
    • Tucker PE, Saunders C, Bulsara MK, Tan JJ, Salfinger SG, Green H, Cohen PA.
    • Breast. 2016 Dec;30:26-31. doi: 10.1016/j.breast.2016.08.005. Epub 2016 Sep 2.
    • Psychological factors associated with the intention to choose for risk-reducing mastectomy in family cancer clinic attendees.
    • van Driel CM, Oosterwijk JC, Meijers-Heijboer EJ, van Asperen CJ, Zeijlmans van Emmichoven IA, de Vries J, Mourits MJ, Henneman L, Timmermans DR, de Bock GH.
    • Breast. 2016 Dec;30:66-72. doi: 10.1016/j.breast.2016.08.016. Epub 2016 Sep 14.
    • Preparing young people for future decision-making about cancer risk in families affected or at risk from hereditary breast cancer: A qualitative interview study.
    • Rowland E, Plumridge G, Considine AM, Metcalfe A.
    • Eur J Oncol Nurs. 2016 Dec;25:9-15. doi: 10.1016/j.ejon.2016.08.006. Epub 2016 Sep 20.
    • Experience of Norwegian Female BRCA1 and BRCA2 Mutation-Carrying Participants in Educational Support Groups: a Qualitative Study.
    • Myklebust M, Gjengedal E, Strømsvik N.
    • J Genet Couns. 2016 Dec;25(6):1198-1206. Epub 2016 Apr 19.
    • Experience of Social Media Support Group for BRCA Carriers.
    • Stefansdottir V.
    • J Genet Couns. 2016 Dec;25(6):1342-1344. Epub 2016 Sep 13.
    • Letter
    • Family involvement for breast cancer decision making among Chinese-American women.
    • Lee SK, Knobf MT.
    • Psychooncology. 2016 Dec;25(12):1493-1499. doi: 10.1002/pon.3989. Epub 2015 Sep 16.
    • When knowledge of a heritable gene mutation comes out of the blue: treatment-focused genetic testing in women newly diagnosed with breast cancer.
    • Meiser B, Quinn VF, Gleeson M, Kirk J, Tucker KM, Rahman B, Saunders C, Watts KJ, Peate M, Geelhoed E, Barlow-Stewart K, Field M, Harris M, Antill YC, Mitchell G.
    • Eur J Hum Genet. 2016 Nov;24(11):1517-1523. doi: 10.1038/ejhg.2016.69. Epub 2016 Jun 22.
    • An exploratory study of patients' views about being at high-risk for breast cancer and risk management beliefs and intentions, before and after risk counselling: Preliminary evidence of the influence of beliefs on post-counselling prevention intentions.
    • Paquet L, Simmonds L, Yang C, Verma S.
    • Patient Educ Couns. 2016 Oct 11. pii: S0738-3991(16)30455-4. doi: 10.1016/j.pec.2016.10.005. [Epub ahead of print]
    • Impact that Timing of Genetic Mutation Diagnosis has on Surgical Decision Making and Outcome for BRCA1/BRCA2 Mutation Carriers with Breast Cancer.
    • Chiba A, Hoskin TL, Hallberg EJ, Cogswell JA, Heins CN, Couch FJ, Boughey JC.
    • Ann Surg Oncol. 2016 Oct;23(10):3232-8. doi: 10.1245/s10434-016-5328-7. Epub 2016 Jun 23.

    Comments on NSGC Discussion Forum Cancer SIG

    Subject: Impact of Timing of BRCA Testing

    • Genetic Testing and Post-Testing Decision Making among BRCA-Positive Mutation Women: A Psychosocial Approach.
    • Hesse-Biber S, An C.
    • J Genet Couns. 2016 Oct;25(5):978-992. Epub 2016 Jan 13.
    • Trends in Media Reports of Celebrities' Breast Cancer Treatment Decisions.
    • Sabel MS, Cin SD.
    • Ann Surg Oncol. 2016 Sep;23(9):2795-801. doi: 10.1245/s10434-016-5202-7. Epub 2016 Apr 6.
    • "An addendum to breast cancer": the triple negative experience.
    • Turkman YE, Kennedy HP, Harris LN, Knobf MT.
    • Support Care Cancer. 2016 Sep;24(9):3715-21. doi: 10.1007/s00520-016-3184-4. Epub 2016 Apr 1.
    • Women Need More Information to Cope With Aftermath of BRCA-Prompted Preventive Surgery.
    • Ellie Leick.
    • Oncology Nursing News. 2016 Aug 1
    • Decision making, psychological wellbeing and psychosocial outcomes for high risk women who choose to undergo bilateral prophylactic mastectomy - A review of the literature.
    • Glassey R, Ives A, Saunders C, Musiello T.
    • Breast. 2016 Aug;28:130-5. doi: 10.1016/j.breast.2016.05.012. Epub 2016 Jun 15.
    • Review
    • The double-edged sword of ovarian cancer information for women at increased risk who have previously taken part in screening.
    • Smits S, Boivin J, Menon U, Brain K.
    • Ecancermedicalscience. 2016 Jun 30;10:650. doi: 10.3332/ecancer.2016.650. eCollection 2016.
    • Understanding the Needs of Young Women Regarding Breast Cancer Risk Assessment and Genetic Testing: Convergence and Divergence among Patient-Counselor Perceptions and the Promise of Peer Support.
    • Evans C, Hamilton RJ, Tercyak KP, Peshkin BN, Rabemananjara K, Isaacs C, O'Neill SC.
    • Healthcare (Basel). 2016 Jun 28;4(3). pii: E35. doi: 10.3390/healthcare4030035.
    • BRCA1 and BRCA2 Mutation Testing in Young Women With Breast Cancer.
    • Rosenberg SM, Ruddy KJ, Tamimi RM, Gelber S, Schapira L, Come S, Borges VF, Larsen B, Garber JE, Partridge AH.
    • JAMA Oncol. 2016 Jun 1;2(6):730-6. doi: 10.1001/jamaoncol.2015.5941.

    Editorial

    Increased Reach of Genetic Cancer Risk Assessment as a Tool for Precision Management of Hereditary Breast Cancer.

    Press: BRCA Mutation Testing Increasing in Younger Women (Medscape Oncology)

    Press: More than 'Angelina Jolie Effect': BRCA tests spike among breast cancer patients. (Fred Hutch News Service)

    Press: More Young Women With Breast Cancer Are Undergoing Genetic Testing, Study Finds. (GenomeWeb)

    • Quality of life among patients after bilateral prophylactic mastectomy: a systematic review of patient-reported outcomes.
    • Razdan SN, Patel V, Jewell S, McCarthy CM.
    • Qual Life Res. 2016 Jun;25(6):1409-21. doi: 10.1007/s11136-015-1181-6. Epub 2015 Nov 14.
    • Women's Health Issues for BRCA Mutation Carriers.
    • Sabatini ME, Ellisen LW.
    • Am Soc Clin Oncol Educ Book. 2016 May;(36):14-17. doi: 10.1200/EDBK_100001.
    • Prevalence and factors associated with cognitive deficit in women with gynecologic malignancies.
    • Van Arsdale A, Rosenbaum D, Kaur G, Pinto P, Kuo DY, Barrera R, Goldberg GL, Nevadunsky NS.
    • Gynecol Oncol. 2016 May;141(2):323-8. doi: 10.1016/j.ygyno.2016.03.001. Epub 2016 Mar 14.
    • Women's preferences for contralateral prophylactic mastectomy: An investigation using protection motivation theory.
    • Tesson S, Richards I, Porter D, Phillips KA, Rankin N, Musiello T, Marven M, Butow P.
    • Patient Educ Couns. 2016 May;99(5):814-22.
    • Iranian women's attitude toward prophylactic mastectomy for breast cancer.
    • Majidzadeh-A K, Farahmand L, Zare AA, Esmaeili R, Salehi M, Habibi M.
    • J Cancer Res Ther. 2016 Apr-Jun;12(2):915-9. doi: 10.4103/0973-1482.171363.
    • Adherence to the breast cancer surveillance program for women at risk for familial breast and ovarian cancer versus overscreening: a monocenter study in Germany.
    • Vetter L, Keller M, Bruckner T, Golatta M, Eismann S, Evers C, Dikow N, Sohn C, Heil J, Schott S.
    • Breast Cancer Res Treat. 2016 Apr;156(2):289-99. doi: 10.1007/s10549-016-3748-5. Epub 2016 Mar 9.
    • Influence of Personal Exposure to the Cancer of a Loved One on the Breast Cancer Prevention Decisions of High Risk Women.
    • Padamsee TJ, Muraveva A, Wills C, Yee L, Paskett E.
    • Cancer Epidemiol Biomarkers Prev. 2016 Mar;25(3):561. 40th Annual (2016) ASPO meeting. doi: 10.1158/1055-9965.EPI-16-0090.
    • Conference abstract
    • Study on the psychosocial aspects of risk-reducing salpingo-oophorectomy (RRSO) in BRCA1/2 mutation carriers in Japan: a preliminary report.
    • Shigehiro M, Kita M, Takeuchi S, Ashihara Y, Arai M, Okamura H.
    • Jpn J Clin Oncol. 2016 Mar;46(3):254-9. doi: 10.1093/jjco/hyv190. Epub 2015 Dec 18.
    • Information requirements of young women with breast cancer treated with mastectomy or breast conserving surgery: A systematic review.
    • Recio-Saucedo A, Gerty S, Foster C, Eccles D, Cutress RI.
    • Breast. 2016 Feb;25:1-13. doi: 10.1016/j.breast.2015.11.001. Epub 2015 Nov 30.
    • Review
    • Women's Health Issues for BRCA Mutation Carriers.
    • Sabatini ME, Ellisen LW.
    • Am Soc Clin Oncol Educ Book. 2016;35:14-17. doi: 10.14694/EDBK_100001.

    Comments from NSGC Discussion Forum Cancer SIG

    Subject: hormonal birth control with ATM mutations?

    • Associations between Reoperations and Psychological Factors after Contralateral Risk-Reducing Mastectomy: A Two-Year Follow-Up Study.
    • Unukovych D, Wickman M, Sandelin K, Arver B, Johansson H, Brandberg Y.
    • Int J Breast Cancer. 2016;2016:4604852. doi: 10.1155/2016/4604852. Epub 2016 May 26.
    • National Caregivers Month: Gabbie & Meaghan’s Story.
    • [No author given].
    • My Gene Counsel. 2015 Nov 19.
    • A Woman's Decision to Choose Bilateral Mastectomy.
    • Jerome-D'Emilia B, Suplee PD, Boiler JL, D'Emilia JC.
    • Cancer Nurs. 2015 Nov-Dec;38(6):426-35. doi: 10.1097/NCC.0000000000000232.
    • Podcast: Prophylactic Surgery Decisions Before BRCA Testing.
    • [No author given]
    • My Gene Counsel. 2015 Sep 29.
    • Challenges in managing genetic cancer risk: a long-term qualitative study of unaffected women carrying BRCA1/BRCA2 mutations.
    • Caiata-Zufferey M, Pagani O, Cina V, Membrez V, Taborelli M, Unger S, Murphy A, Monnerat C, Chappuis PO.
    • Genet Med. 2015 Sep 2;17(9):726-32. doi: 10.1038/gim.2014.183. Epub 2014 Dec 11.
    • Implementing a telephone based peer support intervention for women with a BRCA1/2 mutation.
    • Farrelly A, White V, Young MA, Jefford M, Ieropoli S, Duffy J, Winship I, Meiser B.
    • Fam Cancer. 2015 Sep;14(3):373-82. doi: 10.1007/s10689-015-9797-9.
    • Factors influencing breast cancer screening and risk assessment among young African American women: An integrative review of the literature.
    • Jones TP, Katapodi MC, Lockhart JS.
    • J Am Assoc Nurse Pract. 2015 Sep;27(9):521-9. doi: 10.1002/2327-6924.12223. Epub 2015 Mar 3.
    • Review
    • Redefining Risk and Benefit: Understanding the Decision to Undergo Contralateral Prophylactic Mastectomy.
    • Rendle KA, Halley MC, May SG, Frosch DL.
    • Qual Health Res. 2015 Sep;25(9):1251-9. doi: 10.1177/1049732314557085. Epub 2014 Nov 4.
    • Familial risk for lifestyle-related chronic diseases: can family health history be used as a motivational tool to promote health behaviour in young adults?
    • Prichard I, Lee A, Hutchinson AD, Wilson C.
    • Health Promot J Austr. 2015 Aug;26(2):122-8.
    • Surgical Treatment of Breast Cancer in BRCA-Mutation Carriers.
    • Özmen V.
    • J Breast Health (2013). 2015 Jul 1;11(3):101-105. doi: 10.5152/tjbh.2015.0001. eCollection 2015.
    • Effects of false-positive cancer screenings and cancer worry on risk-reducing surgery among BRCA1/2 carriers.
    • Portnoy DB, Loud JT, Han PK, Mai PL, Greene MH.
    • Health Psychol. 2015 Jul;34(7):709-17. doi: 10.1037/hea0000156. Epub 2014 Sep 22.
    • Discussion: Sex After Oophorectomy, Hysterectomy.
    • Georgia Hurst, Amy Byer Shainman, Sharon Bober.
    • My Gene Counsel. 2015 May 5.
    • The relationship between the belief in a genetic cause for breast cancer and bilateral mastectomy.
    • Petrie KJ, Myrtveit SM, Partridge AH, Stephens M, Stanton AL.
    • Health Psychol. 2015 May;34(5):473-6. doi: 10.1037/hea0000118. Epub 2014 Aug 18.
    • Feelings of Women With Strong Family Histories Who Subsequent to Their Breast Cancer Diagnosis Tested BRCA Positive.
    • Joseph M, Rab F, Panabaker K, Nisker J.
    • Int J Gynecol Cancer. 2015 May;25(4):584-92. doi: 10.1097/IGC.0000000000000403.
    • Provider perspectives on presenting risk information and managing worry about recurrence among breast cancer survivors.
    • Janz NK, Leinberger RL, Zikmund-Fisher BJ, Hawley ST, Griffith K, Jagsi R.
    • Psychooncology. 2015 May;24(5):592-600. doi: 10.1002/pon.3625. Epub 2014 Jul 23.
    • Prophylactic Mastectomy Among BRCA1/2 Noncarriers with Newly-diagnosed Breast Cancer: Examining Cognitive, Emotional, and Sociodemographic Influences.
    • Hamilton JG, Salerno M, Amoroso K, Sheehan M, Harlan FM, Glogowski E, Siegel B, Arnold AG, Salo-Mullen EE, Hay J, Offit K, Robson ME.
    • Cancer Epidemiol Biomarkers Prev. 2015 Apr;24(4):760. ASPO 39th Annual Meeting Abstracts. doi: 10.1158/1055-9965.EPI-15-0104.
    • Conference abstract
    • Factors Affecting Informed Decision-Making in Women with Increased Breast Cancer Risk or DCIS Pursuing Contralateral Prophylactic Mastectomy.
    • Valente J, Stybio T, Hyde S, Lipscomb J, Gillespie TW.
    • Cancer Epidemiol Biomarkers Prev. 2015 Apr;24(4):761. ASPO 39th Annual Meeting Abstracts. doi: 10.1158/1055-9965.EPI-15-0105.
    • Conference abstract
    • Breast cancer under age 40: a different approach.
    • Ribnikar D, Ribeiro JM, Pinto D, Sousa B, Pinto AC, Gomes E, Moser EC, Cardoso MJ, Cardoso F.
    • Curr Treat Options Oncol. 2015 Apr;16(4):334. doi: 10.1007/s11864-015-0334-8.
    • Review
    • Long-term outcomes of risk-reducing surgery in unaffected women at increased familial risk of breast and/or ovarian cancer.
    • Heiniger L, Butow PN, Coll J, Bullen T, Wilson J, Baylock B, Meiser B, Price MA.
    • Fam Cancer. 2015 Mar;14(1):105-15. doi: 10.1007/s10689-014-9759-7.
    • Population-based genetic risk prediction and stratification for ovarian cancer: views from women at high risk.
    • Rahman B, Meisel SF, Fraser L, Side L, Gessler S, Wardle J, Lanceley A.
    • Fam Cancer. 2015 Mar;14(1):135-44. doi: 10.1007/s10689-014-9769-5.
    • Beliefs about weight and breast cancer: an interview study with high risk women following a 12 month weight loss intervention.
    • Wright CE, Harvie M, Howell A, Evans DG, Hulbert-Williams N, Donnelly LS.
    • Hered Cancer Clin Pract. 2015 Jan 9;13(1):1. doi: 10.1186/s13053-014-0023-9. eCollection 2015.
    • Addressing sexual dysfunction after risk-reducing salpingo-oophorectomy: effects of a brief, psychosexual intervention.
    • Bober SL, Recklitis CJ, Bakan J, Garber JE, Patenaude AF.
    • J Sex Med. 2015 Jan;12(1):189-97. doi: 10.1111/jsm.12713. Epub 2014 Oct 14.

    Review:

    Interventions to improve psychosocial well-being in female BRCA-mutation carriers following risk-reducing surgery.

    • Cancer risk management decision making for BRCA+ women.
    • Leonarczyk TJ, Mawn BE.
    • West J Nurs Res. 2015 Jan;37(1):66-84. doi: 10.1177/0193945913519870. Epub 2014 Jan 26.
    • Randomized Controlled Trial of a Telephone-Based Peer-Support Program for Women Carrying a BRCA1 or BRCA2 Mutation: Impact on Psychological Distress.
    • White VM, Young MA, Farrelly A, Meiser B, Jefford M, Williamson E, Ieropoli S, Duffy J, Winship I.
    • J Clin Oncol. 2014 Dec 20;32(36):4073-80. doi: 10.1200/JCO.2013.54.1607. Epub 2014 Nov 17.
    • Adapting the coping in deliberation (CODE) framework: A multi-method approach in the context of familial ovarian cancer risk management.
    • Witt J, Elwyn G, Wood F, Rogers MT, Menon U, Brain K.
    • Patient Educ Couns. 2014 Nov;97(2):200-10. doi: 10.1016/j.pec.2014.07.004. Epub 2014 Jul 14.
    • Social and Clinical Determinants of Contralateral Prophylactic Mastectomy.
    • Hawley ST, Jagsi R, Morrow M, Janz NK, Hamilton A, Graff JJ, Katz SJ.
    • JAMA Surg. 2014 Jun;149(6):582-9. doi: 10.1001/jamasurg.2013.5689.

    Comment:

    Contralateral Prophylactic Mastectomy: An Opportunity for Shared Decision Making.

    • Seeking Balance: Decision Support Needs of Women Without Cancer and a Deleterious BRCA1 or BRCA2 Mutation.
    • Underhill ML, Crotser CB.
    • J Genet Couns. 2014 Jun;23(3):350-62. doi: 10.1007/s10897-013-9667-2. Epub 2013 Nov 22.
    • The Genetic Testing Experience of BRCA-Positive Women: Deciding Between Surveillance and Surgery.
    • Hesse-Biber S.
    • Qual Health Res. 2014 Jun;24(6):773-789. Epub 2014 Apr 18.
    • Perceived versus objective breast cancer risk in diverse women.
    • Fehniger J, Livaudais-Toman J, Karliner L, Kerlikowske K, Tice JA, Quinn J, Ozanne E, Kaplan CP.
    • J Womens Health (Larchmt). 2014 May;23(5):420-7. doi: 10.1089/jwh.2013.4516. Epub 2013 Dec 28.
    • Long-term satisfaction and quality of life following risk reducing surgery in BRCA1/2 mutation carriers.
    • Hooker GW, King L, Vanhusen L, Graves K, Peshkin BN, Isaacs C, Taylor KL, Poggi E, Schwartz MD.
    • Hered Cancer Clin Pract. 2014 Apr 2;12(1):9. doi: 10.1186/1897-4287-12-9.
    • In their own words: treating very young BRCA1/2 mutation-positive women with care and caution.
    • Hoskins LM, Werner-Lin A, Greene MH.
    • PLoS One. 2014 Feb 28;9(2):e87696. doi: 10.1371/journal.pone.0087696. eCollection 2014.
    • Risk reducing mastectomy, breast reconstruction and patient satisfaction in Norwegian BRCA1/2 mutation carriers.
    • Hagen AI, Mæhle L, Vedå N, Vetti HH, Stormorken A, Ludvigsen T, Guntvedt B, Isern AE, Schlichting E, Kleppe G, Bofin A, Gullestad HP, Møller P.
    • Breast. 2014 Feb;23(1):38-43. doi: 10.1016/j.breast.2013.10.002. Epub 2013 Nov 5.
    • Providing care for previvors: implications for oncology nurses.
    • Mahon SM.
    • Clin J Oncol Nurs. 2014 Feb;18(1):21-4. doi: 10.1188/14.CJON.21-24.
    • Review, Case reports
    • The psychological impact of breast and ovarian cancer preventive options in BRCA1 and BRCA2 mutation carriers.
    • Borreani C, Manoukian S, Bianchi E, Brunelli C, Peissel B, Caruso A, Morasso G, Pierotti M.
    • Clin Genet. 2014 Jan;85(1):7-15. doi: 10.1111/cge.12298. Epub 2013 Nov 5.
    • Patient compliance based on genetic medicine: a literature review.
    • Schneider KI, Schmidtke J.
    • J Community Genet. 2014 Jan;5(1):31-48. doi: 10.1007/s12687-013-0160-2. Epub 2013 Aug 10.
    • The importance of understanding the psychological meaning of Angelina Jolie's surgery.
    • Goin MK.
    • J Psychiatr Pract. 2014 Jan;20(1):61-2. doi: 10.1097/01.pra.0000442939.69198.0c.
    • Oophorectomy can reduce ovarian cancer risk in women with BRCA mutations: Patients benefit from counseling, support.
    • Printz C.
    • Cancer. 2013 Nov 15;119(22):3897-8. doi: 10.1002/cncr.28455.
    • Variants of uncertain significance in BRCA testing: evaluation of surgical decisions, risk perception, and cancer distress.
    • Culver J, Brinkerhoff C, Clague J, Yang K, Singh K, Sand S, Weitzel J.
    • Clin Genet. 2013 Nov;84(5):464-472. doi: 10.1111/cge.12097. Epub 2013 Feb 20.
    • A literature review of the social and psychological needs of ovarian cancer survivors.
    • Roland KB, Rodriguez JL, Patterson JR, Trivers KF.
    • Psychooncology. 2013 Nov;22(11):2408-18. doi: 10.1002/pon.3322. Epub 2013 Jun 13.
    • Young breast cancer patients' involvement in treatment decisions: the major role played by decision-making about surgery.
    • Seror V, Cortaredona S, Bouhnik AD, Meresse M, Cluze C, Viens P, Rey D, Peretti-Watel P.
    • Psychooncology. 2013 Nov;22(11):2546-56. doi: 10.1002/pon.3316. Epub 2013 Jun 7.
    • A qualitative study of women's experiences of familial ovarian cancer screening.
    • Lifford KJ, Clements A, Fraser L, Lancastle D, Brain K; PsyFOCS Management Group.
    • Psychooncology. 2013 Nov;22(11):2576-84. doi: 10.1002/pon.3324. Epub 2013 Jun 26.
    • Young breast cancer patients often opt for mastectomy.
    • Printz C.
    • Cancer. 2013 Oct 1;119(19):3425. doi: 10.1002/cncr.28362.
    • What do women do when they test positive for a BRCA mutation?
    • Garcia C, Wendt J, Lyon L, Jones J, Raine-Bennett T, Littell R, Powell CB.
    • Gynecologic Oncology. 2013 Oct;131(1):256. doi: 10.1016/j.ygyno.2013.07.024.
    • Conference abstract
    • Challenging and complex decisions in the management of the BRCA mutation carrier.
    • Stan DL, Shuster LT, Wick MJ, Swanson CL, Pruthi S, Bakkum-Gamez JN.
    • J Womens Health (Larchmt). 2013 Oct;22(10):825-34. doi: 10.1089/jwh.2013.4407. Epub 2013 Aug 29.
    • Perceptions, knowledge, and satisfaction with contralateral prophylactic mastectomy among young women with breast cancer: a cross-sectional survey.
    • Rosenberg SM, Tracy MS, Meyer ME, Sepucha K, Gelber S, Hirshfield-Bartek J, Troyan S, Morrow M, Schapira L, Come SE, Winer EP, Partridge AH.
    • Ann Intern Med. 2013 Sep 17;159(6):373-81. doi: 10.7326/0003-4819-159-6-201309170-00003.

    Editorial, Comment:

    Contralateral prophylactic mastectomy: perceptions versus reality.

    Summary for Patients:

    Do women with breast cancer overestimate their risk for cancer in the unaffected breast?

    News:

    Women With Breast Cancer Who Opt for Contralateral Prophylactic Mastectomy May Overestimate Future Risk.

    News:

    Young women fearing recurrence opt for prophylactic mastectomy.

    • Contralateral prophylactic mastectomy: perceptions versus reality.
    • Portschy PR, Tuttle TM.
    • Ann Intern Med. 2013 Sep 17;159(6):428-9. doi: 10.7326/0003-4819-159-6-201309170-00011.
    • Editorial, Comment

    Perceptions, knowledge, and satisfaction with contralateral prophylactic mastectomy among young women with breast cancer: a cross-sectional survey.

    • Do women with breast cancer overestimate their risk for cancer in the unaffected breast?
    • [No authors listed]
    • Ann Intern Med. 2013 Sep 17;159(6):I-30. doi: 10.7326/0003-4819-159-6-201309170-00001.

    Perceptions, knowledge, and satisfaction with contralateral prophylactic mastectomy among young women with breast cancer: a cross-sectional survey.

    • Body image issues after bilateral prophylactic mastectomy with breast reconstruction in healthy women at risk for hereditary breast cancer.
    • Gopie JP, Mureau MA, Seynaeve C, Ter Kuile MM, Menke-Pluymers MB, Timman R, Tibben A.
    • Fam Cancer. 2013 Sep;12(3):479-87. doi: 10.1007/s10689-012-9588-5.
    • Body Image and Sexuality After Surgery, Cancer and/or Treatment, for Survivors and Previvors.
    • Sharon Bober
    • FORCE. Be Empowered Webinars. 2013 Aug 28.
    • Contralateral prophylactic mastectomy for breast cancer: addressing peace of mind.
    • Katz SJ, Morrow M.
    • JAMA. 2013 Aug 28;310(8):793-4.
    • Commentary
    • Management of breast cancer in very young women.
    • Freedman RA, Partridge AH.
    • Breast. 2013 Aug;22 Suppl 2:S176-9. doi: 10.1016/j.breast.2013.07.034.
    • Review
    • Comparison of the Screening Practices of Unaffected Noncarriers under 40 and between 40 and 49 in BRCA1/2 Families.
    • Duprez C, Christophe V, Milhabet I, Krzeminski A, Adenis C, Berthet P, Peyrat JP, Vennin P.
    • J Genet Couns. 2013 Aug;22(4):469-81. doi: 10.1007/s10897-012-9569-8. Epub 2013 Jan 25.
    • Genetic Counseling, Cancer Screening, Breast Cancer Characteristics, and General Health among a Diverse Population of BRCA Genetic Testers.
    • Beattie MS, Copeland K, Fehniger J, Cheung E, Joseph G, Lee R, Luce J.
    • J Health Care Poor Underserved. [2013 Aug;]24(3):1150-66. doi: 10.1353/hpu.2013.0151.
    • Belief in numbers: When and why women disbelieve tailored breast cancer risk statistics.
    • Scherer LD, Ubel PA, McClure J, Greene SM, Alford SH, Holtzman L, Exe N, Fagerlin A.
    • Patient Educ Couns. 2013 Aug;92(2):253-9. doi: 10.1016/j.pec.2013.03.016. Epub 2013 Apr 24.

    Press: One in five women don't believe their breast cancer risk. (Medical Xpress)

    • Body image in recently diagnosed young women with early breast cancer.
    • Rosenberg SM, Tamimi RM, Gelber S, Ruddy KJ, Kereakoglow S, Borges VF, Come SE, Schapira L, Winer EP, Partridge AH.
    • Psychooncology. 2013 Aug;22(8):1849-55. doi: 10.1002/pon.3221. Epub 2012 Nov 7.
    • Cancer risk comparative perception and overscreening behaviours of non-carriers from BRCA1/2 families.
    • Milhabet I, Duprez C, Krzeminski A, Christophe V.
    • Eur J Cancer Care (Engl). 2013 Jul;22(4):540-8. doi: 10.1111/ecc.12060. Epub 2013 Jun 3.
    • Association between genomic recurrence risk and well-being among breast cancer patients.
    • Retèl VP, Groothuis-Oudshoorn CG, Aaronson NK, Brewer NT, Rutgers EJ, van Harten WH.
    • BMC Cancer. 2013 Jun 18;13:295. doi: 10.1186/1471-2407-13-295.
    • Intentions for bilateral mastectomy among newly diagnosed breast cancer patients.
    • King L, O'Neill SC, Spellman E, Peshkin BN, Valdimarsdottir H, Willey S, Leventhal KG, Demarco T, Nusbaum R, Feldman E, Jandorf L, Schwartz MD.
    • J Surg Oncol. 2013 Jun;107(7):772-6. doi: 10.1002/jso.23307. Epub 2012 Dec 27.
    • Results from a randomized trial of a web-based, tailored decision aid for women at high risk for breast cancer.
    • Banegas MP, McClure JB, Barlow WE, Ubel PA, Smith DM, Zikmund-Fisher BJ, Greene SM, Fagerlin A.
    • Patient Educ Couns. 2013 Jun;91(3):364-71. doi: 10.1016/j.pec.2012.12.014. Epub 2013 Feb 8.
    • Psychometric properties of a French version of a Dutch scale for assessing breast and body image (BBIS) in healthy women.
    • Resseguier N, Noguès C, Giorgi R, Julian-Reynier C.
    • BMC Womens Health. 2013 May 16;13:24. doi: 10.1186/1472-6874-13-24.
    • Understanding the Needs of Women Considering Risk-Reducing Salpingo-oophorectomy.
    • Cherry C, Ropka M, Lyle J, Napolitano L, Daly MB.
    • Cancer Nurs. 2013 May-Jun;36(3):E33-8. doi: 10.1097/NCC.0b013e3182642cb5.
    • Much more than a gene: hereditary breast and ovarian cancer, reproductive choices and family life.
    • Dekeuwer C, Bateman S.
    • Med Health Care Philos. 2013 May;16(2):231-44. doi: 10.1007/s11019-011-9361-9.
    • Impact of family history on choosing risk-reducing surgery among BRCA mutation carriers.
    • Singh K, Lester J, Karlan B, Bresee C, Geva T, Gordon O.
    • Am J Obstet Gynecol. 2013 Apr;208(4):329.e1-6. doi: 10.1016/j.ajog.2013.01.026. Epub 2013 Jan 17.
    • Reproductive decision-making in young female carriers of a BRCA mutation.
    • Donnelly LS, Watson M, Moynihan C, Bancroft E, Evans DG, Eeles R, Lavery S, Ormondroyd E.
    • Hum Reprod. 2013 Apr;28(4):1006-12. doi: 10.1093/humrep/des441. Epub 2013 Jan 4.
    • The counselees' self-reported request for psychological help in genetic counseling for hereditary breast/ovarian cancer: not only psychopathology matters.
    • Vos J, van Asperen CJ, Oosterwijk JC, Menko FH, Collee MJ, Garcia EG, Tibben A.
    • Psychooncology. 2013 Apr;22(4):902-10. doi: 10.1002/pon.3081. Epub 2012 Jun 27.
    • [Multidisciplinary clinical management for prophylactic mastectomy: views of women from one centre in Quebec City].
    • Dorval M, Pelletier S, Bouchard K, Desbiens C, Chiquette J.
    • Bull Cancer. 2013 Mar;100(3):201-11. doi: 10.1684/bdc.2013.1708.
    • [Article in French]
    • Catalysts to withdrawal from familial ovarian cancer screening for surgery and reactions to discontinued screening: a qualitative study.
    • Lifford KJ, Clements A, Fraser L, Lancastle D, Brain K.
    • Fam Cancer. 2013 Mar;12(1):19-26. doi: 10.1007/s10689-012-9567-x.
    • Psychosocial factors and uptake of risk-reducing salpingo-oophorectomy in women at high risk for ovarian cancer.
    • Meiser B, Price MA, Butow PN, Karatas J, Wilson J, Heiniger L, Baylock B, Charles M, McLachlan SA, Phillips KA.
    • Fam Cancer. 2013 Mar;12(1):101-9. doi: 10.1007/s10689-012-9585-8.
    • Factors associated with surgical decision making in women with early-stage breast cancer: a literature review.
    • Mac Bride MB, Neal L, Dilaveri CA, Sandhu NP, Hieken TJ, Ghosh K, Wahner-Roedler DL.
    • J Womens Health (Larchmt). 2013 Mar;22(3):236-42. doi: 10.1089/jwh.2012.3969. Epub 2013 Feb 21.
    • Review
    • Long-term psychological distress in women at risk for hereditary breast cancer adhering to regular surveillance: a risk profile.
    • den Heijer M, Seynaeve C, Vanheusden K, Timman R, Duivenvoorden HJ, Tilanus-Linthorst M, Menke-Pluijmers MB, Tibben A.
    • Psychooncology. 2013 Mar;22(3):598-604. doi: 10.1002/pon.3039. Epub 2012 Feb 7.
    • A multi-case report of the pathways to and through genetic testing and cancer risk management for BRCA mutation-positive women aged 18-25.
    • Hoskins LM, Werner-Lin A.
    • J Genet Couns. 2013 Feb;22(1):27-38. doi: 10.1007/s10897-012-9521-y. Epub 2012 Aug 3.
    • A follow-up study on men tested for BRCA1/BRCA2 mutations: impacts and coping processes.
    • Shiloh S, Dagan E, Friedman I, Blank N, Friedman E.
    • Psychooncology. 2013 Feb;22(2):417-25. doi: 10.1002/pon.2106. Epub 2011 Dec 2.
    • The impact of prophylactic salpingo-oophorectomy on quality of life and psychological distress in women with a BRCA mutation.
    • Finch A, Metcalfe KA, Chiang J, Elit L, McLaughlin J, Springate C, Esplen MJ, Demsky R, Murphy J, Rosen B, Narod SA.
    • Psychooncology. 2013 Jan;22(1):212-9. doi: 10.1002/pon.2041. Epub 2011 Sep 13.
    • Evaluation of breast self-examination (BSE) application in first and second degree relatives of patients with breast cancer.
    • Bebis H, Altunkurek SZ, Acikel C, Akar I, Altunkurek SZ.
    • Asian Pac J Cancer Prev. 2013;14(8):4925-30.
    • Cognitive and Psychological Impact of BRCA Genetic Counseling in Before and After Definitive Surgery Breast Cancer Patients.
    • Christie J, Quinn GP, Malo T, Lee JH, Zhao X, McIntyre J, Brzosowicz J, Jacobsen PB, Vadaparampil ST.
    • Ann Surg Oncol. 2012 Dec;19(13):4003-11. doi: 10.1245/s10434-012-2460-x. Epub 2012 Jul 6.

    News:

    Pretest genetic counseling informs patients with BRCA mutation.

    Press Release: Pre-Test Genetic Counseling Increases Cancer Knowledge for BRCA Patients (Moffitt Cancer Center)

    • Psychological outcomes of familial ovarian cancer screening: No evidence of long-term harm.
    • Brain KE, Lifford KJ, Fraser L, Rosenthal AN, Rogers MT, Lancastle D, Phelps C, Watson EK, Clements A, Menon U.
    • Gynecol Oncol. 2012 Dec;127(3):556-63. doi: 10.1016/j.ygyno.2012.08.034. Epub 2012 Aug 31.
    • Anticipatory loss and early mastectomy for young female BRCA1/2 mutation carriers.
    • Hoskins LM, Greene MH.
    • Qual Health Res. 2012 Dec;22(12):1633-46. doi: 10.1177/1049732312458182. Epub 2012 Aug 27.
    • Contralateral prophylactic mastectomy in breast cancer patients with a family history: A prospective 2-years follow-up study of health related quality of life, sexuality and body image.
    • Unukovych D, Sandelin K, Liljegren A, Arver B, Wickman M, Johansson H, Brandberg Y.
    • Eur J Cancer. 2012 Nov;48(17):3150-6. doi: 10.1016/j.ejca.2012.04.023. Epub 2012 Jun 11.
    • 'Cancer doesn't have an age': Genetic testing and cancer risk management in BRCA1/2 mutation-positive women aged 18-24.
    • Werner-Lin A, Hoskins LM, Doyle MH, Greene MH.
    • Health (London). 2012 Nov;16(6):636-54. doi: 10.1177/1363459312442420. Epub 2012 Apr 30.
    • Anxiety and specific distress in women at intermediate and high risk of breast cancer before and after surveillance by magnetic resonance imaging and mammography versus standard mammography.
    • Brédart A, Kop JL, Fall M, Pelissier S, Simondi C, Dolbeault S, Livartowski A, Tardivon A; Magnetic Resonance Imaging study group (STIC IRM 2005).
    • Psychooncology. 2012 Nov;21(11):1185-94. doi: 10.1002/pon.2025. Epub 2011 Aug 3.
    • Are we being overly cautious? A qualitative inquiry into the experiences and perceptions of treatment-focused germline BRCA genetic testing amongst women recently diagnosed with breast cancer.
    • Zilliacus E, Meiser B, Gleeson M, Watts K, Tucker K, Lobb EA, Mitchell G.
    • Support Care Cancer. 2012 Nov;20(11):2949-58. doi: 10.1007/s00520-012-1427-6. Epub 2012 Mar 24.
    • Being young, female, and BRCA positive.
    • Hamilton R.
    • Am J Nurs. 2012 Oct;112(10):26-31, quiz 46, 32.
    • [Prophylactic surgery in common hereditary cancer syndromes].
    • Noguès C, Mouret-Fourme E.
    • Bull Acad Natl Med. 2012 Oct;196(7):1237-45.
    • Breast cancer genetic counseling after diagnosis but before treatment: A pilot study on treatment consequences and psychological impact.
    • Wevers MR, Hahn DE, Verhoef S, Bolhaar MD, Ausems MG, Aaronson NK, Bleiker EM.
    • Patient Educ Couns. 2012 Oct;89(1):89-95. doi: 10.1016/j.pec.2012.03.019. Epub 2012 Apr 28.

    Comments from NSGC Discussion Forum Cancer SIG

    Subject: Article requests

    • Surveillance for hereditary cancer: does the benefit outweigh the psychological burden?--A systematic review.
    • Gopie JP, Vasen HF, Tibben A.
    • Crit Rev Oncol Hematol. 2012 Sep;83(3):329-40. doi: 10.1016/j.critrevonc.2012.01.004. Epub 2012 Feb 25.
    • Review
    • [The effect of prophylactic mastectomy with recontruction on quality of life in BRCA positive women].
    • Spurná Z, Dražan L, Foretová L, Dvorská L.
    • Klin Onkol. [2012 Aug;]25 Suppl:S74-7.
    • [Article in Czech]
    • How should we discuss genetic testing with women newly diagnosed with breast cancer? Design and implementation of a randomized controlled trial of two models of delivering education about treatment-focused genetic testing to younger women newly diagnosed with breast cancer.
    • Watts KJ, Meiser B, Mitchell G, Kirk J, Saunders C, Peate M, Duffy J, Kelly PJ, Gleeson M, Barlow-Stewart K, Rahman B, Friedlander M, Tucker K; TFGT Collaborative Group.
    • BMC Cancer. 2012 Jul 28;12:320. doi: 10.1186/1471-2407-12-320.
    • Beliefs about optimal age and screening frequency predict breast screening adherence in a prospective study of female relatives from the Ontario site of the Breast Cancer Family Registry.
    • Ritvo P, Edwards SA, Glendon G, Mirea L, Knight JA, Andrulis IL, Chiarelli AM.
    • BMC Public Health. 2012 Jul 12;12:518. doi: 10.1186/1471-2458-12-518.
    • BRCA genetic testing of individuals from families with low prevalence of cancer: experiences of carriers and implications for population screening.
    • Shkedi-Rafid S, Gabai-Kapara E, Grinshpun-Cohen J, Levy-Lahad E.
    • Genet Med. 2012 Jul;14(7):688-94.
    • Surgical treatment differences among Latina and African American breast cancer survivors.
    • Campesino M, Koithan M, Ruiz E, Glover JU, Juarez G, Choi M, Krouse RS.
    • Oncol Nurs Forum. 2012 Jul;39(4):E324-31. doi: 10.1188/12.ONF.E324-E331.
    • Breast cancer survivors' beliefs about the causes of breast cancer.
    • Panjari M, Davis SR, Fradkin P, Bell RJ.
    • Psychooncology. 2012 Jul;21(7):724-9. doi: 10.1002/pon.1949. Epub 2011 Mar 7.
    • Long-term follow-up of Jewish women with a BRCA1 and BRCA2 mutation who underwent population genetic screening.
    • Metcalfe KA, Mian N, Enmore M, Poll A, Llacuachaqui M, Nanda S, Sun P, Hughes KS, Narod SA.
    • Breast Cancer Res Treat. 2012 Jun;133(2):735-40. doi: 10.1007/s10549-011-1941-0. Epub 2012 Jan 13.
    • Body image and psychological distress after prophylactic mastectomy and breast reconstruction in genetically predisposed women: a prospective long-term follow-up study.
    • den Heijer M, Seynaeve C, Timman R, Duivenvoorden HJ, Vanheusden K, Tilanus-Linthorst M, Menke-Pluijmers MB, Tibben A.
    • Eur J Cancer. 2012 Jun;48(9):1263-8. doi: 10.1016/j.ejca.2011.10.020. Epub 2011 Nov 19.
    • Looking different, feeling different: women's reactions to risk-reducing breast and ovarian surgery.
    • Hallowell N, Baylock B, Heiniger L, Butow PN, Patel D, Meiser B, Saunders C; kConFab Psychosocial Group on behalf of the kConFab Investigators, Price MA.
    • Fam Cancer. 2012 Jun;11(2):215-24. doi: 10.1007/s10689-011-9504-4.
    • French women's breast self-examination practices with time after undergoing BRCA1/2 genetic testing.
    • Maheu C, Apostolidis T, Petri-Cal A, Mouret-Fourme E, Gauthier-Villars M, Lasset C, Berthet P, Fricker JP, Caron O, Luporsi E, Gladieff L, Noguès C, Julian-Reynier C.
    • Fam Cancer. 2012 Jun;11(2):269-78. doi: 10.1007/s10689-012-9512-z.
    • BRCA1/2 carriers: their childbearing plans and theoretical intentions about having preimplantation genetic diagnosis and prenatal diagnosis.
    • Julian-Reynier C, Fabre R, Coupier I, Stoppa-Lyonnet D, Lasset C, Caron O, Mouret-Fourme E, Berthet P, Faivre L, Frenay M, Gesta P, Gladieff L, Bouhnik AD, Protière C, Noguès C.
    • Genet Med. 2012 May;14(5):527-34. doi: 10.1038/gim.2011.27. Epub 2012 Jan 12.
    • Which eligible breast conservation patients choose mastectomy in the setting of newly diagnosed breast cancer?
    • Adkisson CD, Bagaria SP, Parker AS, Bray JM, Gibson T, Thomas CS, Heckman MG, McLaughlin SA.
    • Ann Surg Oncol. 2012 Apr;19(4):1129-36.
    • Sources of Uncertainty About Daughters' Breast Cancer Risk that Emerge During Genetic Counseling Consultations.
    • Bylund CL, Fisher CL, Brashers D, Edgerson S, Glogowski EA, Boyar SR, Kemel Y, Spencer S, Kissane D.
    • J Genet Couns. 2012 Apr;21(2):292-304. Epub 2011 Aug 11.
    • Breast cancer recurrence risk reduction beliefs in breast cancer survivors: prevalence and relation to behavior.
    • Burris JL, Jacobsen PB, Loftus LS, Andrykowski MA.
    • Psychooncology. 2012 Apr;21(4):427-35. doi: 10.1002/pon.1925. Epub 2011 Feb 10.
    • Long-term psychosocial outcomes of BRCA1/BRCA2 testing: differences across affected status and risk-reducing surgery choice.
    • Graves KD, Vegella P, Poggi EA, Peshkin BN, Tong A, Isaacs C, Finch C, Kelly S, Taylor KL, Luta G, Schwartz MD.
    • Cancer Epidemiol Biomarkers Prev. 2012 Mar;21(3):445-55. doi: 10.1158/1055-9965.EPI-11-0991. Epub 2012 Feb 10.
    • Toward a new understanding of risk perception among young female BRCA1/2 "previvors".
    • Hoskins LM, Roy KM, Greene MH.
    • Fam Syst Health. 2012 Mar;30(1):32-46. doi: 10.1037/a0027276.
    • Risk-reducing bilateral salpingo-oophorectomy and sexual health: a qualitative study.
    • Brotto LA, Branco N, Dunkley C, McCullum M, McAlpine JN.
    • J Obstet Gynaecol Can. 2012 Feb;34(2):172-8.
    • Exploring the short-term impact of DNA-testing in breast cancer patients: the counselees' perception matters, but the actual BRCA1/2 result does not.
    • Vos J, Oosterwijk JC, Gomez-Garcia E, Menko FH, Collee MJ, van Asperen CJ, Jansen AM, Stiggelbout AM, Tibben A.
    • Patient Educ Couns. 2012 Feb;86(2):239-51. doi: 10.1016/j.pec.2011.04.017. Epub 2011 Dec 27.
    • Less correspondence between expectations before and cosmetic results after risk-reducing mastectomy in women who are mutation carriers: a prospective study.
    • Brandberg Y, Arver B, Johansson H, Wickman M, Sandelin K, Liljegren A.
    • Eur J Surg Oncol. 2012 Jan;38(1):38-43. doi: 10.1016/j.ejso.2011.10.010. Epub 2011 Oct 26.
    • There is no decision to make: experiences and attitudes toward treatment-focused genetic testing among women diagnosed with ovarian cancer.
    • Meiser B, Gleeson M, Kasparian N, Barlow-Stewart K, Ryan M, Watts K, Menon D, Mitchell G, Tucker K.
    • Gynecol Oncol. 2012 Jan;124(1):153-7. doi: 10.1016/j.ygyno.2011.09.040. Epub 2011 Oct 26.
    • Withdrawal from familial ovarian cancer screening for surgery: Findings from a psychological evaluation study (PsyFOCS).
    • Lifford KJ, Fraser L, Rosenthal AN, Rogers MT, Lancastle D, Phelps C, Watson EK, Clements A, Iredale R, Jacobs I, Menon U, Brain KE.
    • Gynecol Oncol. 2012 Jan;124(1):158-163. Epub 2011 Oct 15.
    • What made her give up her breasts: a qualitative study on decisional considerations for contralateral prophylactic mastectomy among breast cancer survivors undergoing BRCA1/2 genetic testing.
    • Kwong A, Chu AT.
    • Asian Pac J Cancer Prev. 2012;13(5):2241-7.
    • Worry is good for breast cancer screening: a study of female relatives from the ontario site of the breast cancer family registry.
    • Zhang LR, Chiarelli AM, Glendon G, Mirea L, Knight JA, Andrulis IL, Ritvo P.
    • J Cancer Epidemiol. 2012;2012:545062. doi: 10.1155/2012/545062. Epub 2012 Jun 28.
    • Knowledge, attitude and practice of prophylactic mastectomy among patients and relations attending a surgical outpatient clinic.
    • Oguntola AS, Olaitan PB, Omotoso O, Oseni GO.
    • Pan Afr Med J. 2012;13:20. Epub 2012 Sep 30.