Information Needs Of… ~ Patient / Public Education / Opinion / Preference
~ Genetics of Breast & Ovarian Cancer

Surveys of, presentations of, or commentary upon HBOC information needs of specific groups of patients/clients or the public, including psychosocial and support needs

List was last updated on Nov 21, 2019 @ 7:58 am.


    • Mainstreamed genetic testing in ovarian cancer: patient experience of the testing process.
    • McLeavy L, Rahman B, Kristeleit R, Ledermann J, Lockley M, McCormack M, Mould T, Side L, Lanceley A.
    • Int J Gynecol Cancer. 2019 Nov 19. pii: ijgc-2019-000630. doi: 10.1136/ijgc-2019-000630. [Epub ahead of print]
    • Prophylactic nipple-sparing mastectomy in young previvors: Examining decision-making, reconstructive outcomes, and patient satisfaction in BRCA+ patients under 30.
    • Salibian AA, Bekisz JM, Frey JD, Miller B, Choi M, Karp NS.
    • Breast J. 2019 Nov 17. doi: 10.1111/tbj.13692. [Epub ahead of print]
    • Decision Making About Genetic Testing Among Women With a Personal and Family History of Breast Cancer.
    • Scott D, Friedman S, Telli ML, Kurian AW.
    • J Oncol Pract. 2019 Oct 15:JOP1900221. doi: 10.1200/JOP.19.00221. [Epub ahead of print]
    • Exploring factors that impact uptake of risk-reducing bilateral salpingo-oophorectomy (RRBSO) in high-risk women.
    • Hickey M, Rio I, Trainer A, Marino JL, Wrede CD, Peate M.
    • Menopause. 2019 Oct 14. doi: 10.1097/GME.0000000000001422. [Epub ahead of print]
    • "How do we rally around the one who was positive?" Familial uncertainty management in the context of men managing BRCA-related cancer risks.
    • Rauscher EA, Dean M, Campbell-Salome G, Barbour JB.
    • Soc Sci Med. 2019 Oct 11;242:112592. doi: 10.1016/j.socscimed.2019.112592. [Epub ahead of print]
    • Health professional and at-risk BRCA young adult perspectives about information needs: What does Gen Y need to know?
    • Young AL, Butow PN, Tucker KM, Williams R, Healey E, Wakefield CE.
    • J Genet Couns. 2019 Sep 19. doi: 10.1002/jgc4.1167. [Epub ahead of print]
    • Epigenetic Risk Assessment of Female Cancers: Women's Information Needs and Attitudes.
    • Rebitschek FG, Reisel D, Lein I, Wegwarth O.
    • Public Health Genomics. 2019 Sep 4;22(1-2):46-57. doi: 10.1159/000501975. [Epub ahead of print]
    • The Genetic Education for Men (GEM) Trial: Development of Web-Based Education for Untested Men in BRCA1/2-Positive Families.
    • Peshkin BN, Ladd MK, Isaacs C, Segal H, Jacobs A, Taylor KL, Graves KD, O'Neill SC, Schwartz MD.
    • J Cancer Educ. 2019 Aug 11. doi: 10.1007/s13187-019-01599-y. [Epub ahead of print]
    • Effect of interventions including provision of personalised cancer risk information on accuracy of risk perception and psychological responses: A systematic review and meta-analysis.
    • Bayne M, Fairey M, Silarova B, Griffin SJ, Sharp SJ, Klein WMP, Sutton S, Usher-Smith JA.
    • Patient Educ Couns. 2019 Aug 11. pii: S0738-3991(19)30350-7. doi: 10.1016/j.pec.2019.08.010. [Epub ahead of print]
    • Women's initial experiences of their appearance after mastectomy and/or breast reconstruction: A qualitative study.
    • Herring B, Paraskeva N, Tollow P, Harcourt D.
    • Psychooncology. 2019 Aug 6. doi: 10.1002/pon.5196. [Epub ahead of print]
    • From Targeting Somatic Mutations to Finding Inherited Cancer Predispositions: The Other Side of the Coin.
    • Pujol P, De La Motte Rouge T, Penault-Llorca F.
    • Diagnostics (Basel). 2019 Jul 26;9(3). pii: E83. doi: 10.3390/diagnostics9030083.
    • How Safe Is Hormone Replacement Therapy After Risk-Reducing Salpingo-oophorectomy in Women With BRCA Mutations?
    • Markman M.
    • Medscape Oncology. 2019 Jun 14.

    Original research:

    Hormone replacement therapy after risk reducing salpingo-oophorectomy in patients with BRCA1 or BRCA2 mutations; a systematic review of risks and benefits.

    • Genetic testing and eHealth usage among Deaf women.
    • Kushalnagar P, Holcomb J, Sadler GR.
    • J Genet Couns. 2019 Jun 10. doi: 10.1002/jgc4.1134. [Epub ahead of print]
    • Previving: How Unaffected Women with a BRCA1/2 Mutation Navigate Previvor Identity.
    • Getachew-Smith H, Ross AA, Scherr CL, Dean M, Clements ML.
    • Health Commun. 2019 Jun 4:1-10. doi: 10.1080/10410236.2019.1625002. [Epub ahead of print]
    • Factors affecting breast cancer patients' need for genetic risk information: From information insufficiency to information need.
    • Hong SJ, Biesecker B, Ivanovich J, Goodman M, Kaphingst KA.
    • J Genet Couns. 2019 Jun;28(3):543-557. doi: 10.1002/jgc4.1087. Epub 2019 Jan 24.
    • Understanding BRCA Mutation Carriers' Preferences for Communication of Genetic Modifiers of Breast Cancer Risk.
    • Hovick SR, Tan N, Morr L, Senter L, Kinnamon DD, Pyatt RE, Toland AE.
    • J Health Commun. 2019 May 6:1-8. doi: 10.1080/10810730.2019.1604912. [Epub ahead of print]
    • Accuracy in risk understanding among BRCA1/2-mutation carriers.
    • Speiser D, Rebitschek FG, Feufel MA, Brand H, Besch L, Kendel F.
    • Patient Educ Couns. 2019 May 5. pii: S0738-3991(18)30887-5. doi: 10.1016/j.pec.2019.05.007. [Epub ahead of print]
    • A narrative overview of the patients' outcomes after multigene cancer panel testing, and a thorough evaluation of its implications for genetic counselling.
    • Esteban I, Lopez-Fernandez A, Balmaña J.
    • Eur J Med Genet. 2019 May;62(5):342-349. doi: 10.1016/j.ejmg.2018.11.027. Epub 2018 Nov 23.
    • Review
    • Women's perceptions of personalized risk-based breast cancer screening and prevention: An international focus group study.
    • Rainey L, Jervaeus A, Donnelly LS, Evans DG, Hammarström M, Hall P, Wengström Y, Broeders MJM, van der Waal D.
    • Psychooncology. 2019 May;28(5):1056-1062. doi: 10.1002/pon.5051. Epub 2019 Mar 25.
    • Cases in Precision Medicine: When Patients Present With Direct-to-Consumer Genetic Test Results.
    • Artin MG, Stiles D, Kiryluk K, Chung WK.
    • Ann Intern Med. 2019 Apr 30. doi: 10.7326/M18-2356. [Epub ahead of print]
    • Case report
    • Uptake of genetic testing for germline BRCA1/2 pathogenic variants in a predominantly Hispanic population.
    • McGuinness JE, Trivedi MS, Silverman T, Marte A, Mata J, Kukafka R, Crew KD.
    • Cancer Genet. 2019 Apr 24. pii: S2210-7762(19)30059-6. doi: 10.1016/j.cancergen.2019.04.063. [Epub ahead of print]
    • "It felt like unfinished business, it feels like that's finished now": Women's experiences of decision making around Contralateral Prophylactic Mastectomy (CPM).
    • Tollow P, Williams VS, Harcourt D, Paraskeva N.
    • Psychooncology. 2019 Apr 8. doi: 10.1002/pon.5086. [Epub ahead of print]
    • Expectations versus reality: The impact of men's expectancy violations in conversations with healthcare providers about BRCA-related cancer risks.
    • Dean M, Rauscher E, Gomez E, Fischer C.
    • Patient Educ Couns. 2019 Apr 6. pii: S0738-3991(19)30135-1. doi: 10.1016/j.pec.2019.04.010. [Epub ahead of print]
    • What The Surgeons Should Know About The Bilateral Prophylactic Mastectomy in BRCA Mutation Carriers.
    • Franceschini G, Masetti R.
    • Eur J Breast Health. 2019 Apr 1;15(2):135-136. doi: 10.5152/ejbh.2019.4651. eCollection 2019 Apr.

    Review:

    Risk-Reducing Options for Women with a Hereditary Breast Cancer Predisposition.

    • Communication about genetic testing with breast and ovarian cancer patients: a scoping review.
    • Jacobs C, Patch C, Michie S.
    • Eur J Hum Genet. 2019 Apr;27(4):511-524. doi: 10.1038/s41431-018-0310-4. Epub 2018 Dec 20.
    • Boosting care and knowledge about hereditary cancer: European Reference Network on Genetic Tumour Risk Syndromes.
    • Vos JR, Giepmans L, Röhl C, Geverink N, Hoogerbrugge N; ERN GENTURIS.
    • Fam Cancer. 2019 Apr;18(2):281-284. doi: 10.1007/s10689-018-0110-6.
    • A patient-centered mobile health application to motivate use of genetic counseling among women with ovarian cancer: A pilot randomized controlled trial.
    • Vogel RI, Niendorf K, Petzel S, Lee H, Teoh D, Blaes AH, Argenta P, Rivard C, Winterhoff B, Lee HY, Geller MA.
    • Gynecol Oncol. 2019 Apr;153(1):100-107. doi: 10.1016/j.ygyno.2019.01.019. Epub 2019 Feb 1.
    • Hormone replacement therapy after risk reducing salpingo-oophorectomy in patients with BRCA1 or BRCA2 mutations; a systematic review of risks and benefits.
    • Gordhandas S, Norquist BM, Pennington KP, Yung RL, Laya MB, Swisher EM.
    • Gynecol Oncol. 2019 Apr;153(1):192-200. doi: 10.1016/j.ygyno.2018.12.014. Epub 2019 Jan 17.
    • Review

    Commentary: How Safe Is Hormone Replacement Therapy After Risk-Reducing Salpingo-oophorectomy in Women With BRCA Mutations? (Medscape Oncology)

    • Uncertainty related to multigene panel testing for cancer: a qualitative study on counsellors' and counselees' views.
    • Medendorp NM, Hillen MA, Murugesu L, Aalfs CM, Stiggelbout AM, Smets EMA.
    • J Community Genet. 2019 Apr;10(2):303-312. doi: 10.1007/s12687-018-0393-1. Epub 2018 Nov 14.
    • Current Approaches to Cancer Genetic Counseling Services for Spanish-Speaking Patients.
    • Augusto B, Kasting ML, Couch FJ, Lindor NM, Vadaparampil ST.
    • J Immigr Minor Health. 2019 Apr;21(2):434-437. doi: 10.1007/s10903-018-0772-z.
    • Gaps in information about breast cancer risk and prevention impact African American women.
    • [No author given]
    • FORCE. XRAYS. 2019 Mar 14.

    Original research:

    Layers of information: interacting constraints on breast cancer risk-management by high-risk African American women.

    • Consumer and clinician perspectives on personalising breast cancer prevention information.
    • Keogh LA, Steel E, Weideman P, Butow P, Collins IM, Emery JD, Mann GB, Bickerstaffe A, Trainer AH, Hopper LJ, Phillips KA.
    • Breast. 2019 Feb;43:39-47. doi: 10.1016/j.breast.2018.11.002. Epub 2018 Nov 7.
    • Knowledge, attitudes, and perceived barriers towards genetic testing across three rural Illinois communities.
    • Fogleman AJ, Zahnd WE, Lipka AE, Malhi RS, Ganai S, Delfino KR, Jenkins WD.
    • J Community Genet. 2019 Jan 23. doi: 10.1007/s12687-019-00407-w. [Epub ahead of print]
    • Development and Testing of a Decision Aid for Unaffected Women with a BRCA1 or BRCA2 Mutation.
    • Jabaley T, Underhill-Blazey ML, Berry DL.
    • J Cancer Educ. 2019 Jan 19. doi: 10.1007/s13187-019-1470-9. [Epub ahead of print]
    • Risk-Reducing Mastectomy in BRCA1 and BRCA2 Mutation Carriers: A Complex Discussion.
    • Domchek SM.
    • JAMA. 2019 Jan 1;321(1):27. doi: 10.1001/jama.2018.18942.
    • Review, Commentary
    • Patients' Medical and Psychosocial Experiences After Detection of a CDH1 Variant With Multigene Panel Testing.
    • Hamilton JG, Long JM, Brandt AC, Brower J, Symecko H, Salo-Mullen EE, Christian SN, Harstad T, Couch FJ, Garber JE, Offit K, Robson ME, Domchek SM.
    • JCO Precis Oncol. 2019;3. doi: 10.1200/PO.18.00300. Epub 2019 Mar 28.
    • Layers of information: interacting constraints on breast cancer risk-management by high-risk African American women.
    • Padamsee TJ, Meadows R, Hils M.
    • Ethn Health. 2018 Dec 27:1-24. doi: 10.1080/13557858.2018.1562053. [Epub ahead of print]

    Research news: Gaps in information about breast cancer risk and prevention impact African American women (FORCE. XRAYS.)

    • Response to "Male Patients With Breast Cancer: Addressing Needs Using an Educational Task Force".
    • Mahon SM.
    • Clin J Oncol Nurs. 2018 Dec 1;22(6):610. doi: 10.1188/18.CJON.610.

    Original Research: Male Patients With Breast Cancer: Addressing Needs Using an Educational Task Force. (Clinical Journal of Oncology Nursing)

    • XRAYS (eXamining Relevance of Articles to Young Survivors) Program Survey of Information Needs and Media Use by Young Breast Cancer Survivors and Young Women at High-Risk for Breast Cancer.
    • Yi RHP, Rezende LF, Huynh J, Kramer K, Cranmer M, Schlager L, Dearfield CT, Friedman SJ.
    • Health Commun. 2018 Dec;33(12):1525-1530. doi: 10.1080/10410236.2017.1372051. Epub 2017 Sep 28.

    Research news: FORCE online survey: What breast cancer information do young women want and where do they look for it? (FORCE. XRAYS.)

    • "I Am Uncertain About What My Uncertainty Even Is": Men's Uncertainty and Information Management of Their BRCA-Related Cancer Risks.
    • Rauscher EA, Dean M, Campbell-Salome GM.
    • J Genet Couns. 2018 Dec;27(6):1417-1427. doi: 10.1007/s10897-018-0276-y. Epub 2018 Jul 3.
    • Role of the general practitioner in the care of BRCA1 and BRCA2 mutation carriers: General practitioner and patient perspectives.
    • Vande Perre P, Toledano D, Corsini C, Escriba E, Laporte M, Bertet H, Yauy K, Toledano A, Galibert V, Baudry K, Clotet L, Million E, Picot MC, Geneviève D, Pujol P.
    • Mol Genet Genomic Med. 2018 Nov;6(6):957-965. doi: 10.1002/mgg3.464. Epub 2018 Oct 11.
    • A randomized controlled trial of a supportive expressive group intervention for women with a family history of breast cancer.
    • Esplen MJ, Leszcz M, Hunter J, Wong J, Leung YW, Toner B, Messner S, Glendon G, Stuckless N, Butler C.
    • Psychooncology. 2018 Nov;27(11):2645-2653. doi: 10.1002/pon.4822. Epub 2018 Jul 17.
    • The development of a template for psychological assessment of women considering risk-reducing or contralateral prophylactic mastectomy: A national Delphi consensus study.
    • Braude L, Kirsten L, Gilchrist J, Juraskova I.
    • Psychooncology. 2018 Oct;27(10):2349-2356. doi: 10.1002/pon.4830. Epub 2018 Sep 4.
    • Factors associated with breast MRI use among women with a family history of breast cancer.
    • White MC, Soman A, Weinberg CR, Rodriguez JL, Sabatino SA, Peipins LA, DeRoo L, Nichols HB, Hodgson ME, Sandler DP.
    • Breast J. 2018 Sep;24(5):764-771. doi: 10.1111/tbj.13063. Epub 2018 May 20.
    • Involvement and Influence of Healthcare Providers, Family Members, and Other Mutation Carriers in the Cancer Risk Management Decision-Making Process of BRCA1 and BRCA2 Mutation Carriers.
    • Puski A, Hovick S, Senter L, Toland AE4.
    • J Genet Couns. 2018 Sep;27(5):1291-1301. doi: 10.1007/s10897-018-0254-4. Epub 2018 Mar 29.
    • A comparison of patient satisfaction (using the BREAST-Q questionnaire) with bilateral breast reconstruction following risk-reducing or therapeutic mastectomy.
    • Kazzazi F, Haggie R, Forouhi P, Kazzazi N, Wyld L, Malata CM.
    • J Plast Reconstr Aesthet Surg. 2018 Sep;71(9):1324-1331. doi: 10.1016/j.bjps.2018.06.011. Epub 2018 Jun 28.
    • Establishment of the Alabama Hereditary Cancer Cohort - strategies for the inclusion of underrepresented populations in cancer genetics research.
    • Bishop MR, Shah A, Shively M, Huskey ALW, Omeler SM, Bilgili EP, Jackson E, Daniell K, Stallworth E, Spina S, Shepp K, Bergstresser S, Davis A, Dean H, Gibson J, Johnson B, Merner ND.
    • Mol Genet Genomic Med. 2018 Sep;6(5):766-778. doi: 10.1002/mgg3.443. Epub 2018 Jul 1.
    • Male Patients With Breast Cancer: Addressing Needs Using an Educational Task Force.
    • Cutrone JN, Segna AN, Baron RH.
    • Clin J Oncol Nurs. 2018 Aug 1;22(4):415-420. doi: 10.1188/18.CJON.415–420.

    Letter, Comment:

    Response to "Male Patients With Breast Cancer: Addressing Needs Using an Educational Task Force".

    • Patients' perspectives and experiences concerning barriers to accessing information about bilateral prophylactic mastectomy.
    • Glassey R, O'Connor M, Ives A, Saunders C, kConFab Investigators, O'Sullivan S, Hardcastle SJ.
    • Breast. 2018 Aug;40:116-122. doi: 10.1016/j.breast.2018.05.003. Epub 2018 May 11.
    • Breast Cancer Genetics Knowledge and Testing Intentions among Nigerian Professional Women.
    • Ngene SO, Adedokun B, Adejumo P, Olopade O.
    • J Genet Couns. 2018 Aug;27(4):863-873. doi: 10.1007/s10897-017-0194-4. Epub 2017 Dec 19.
    • “Second-Class Status?” Insight into Communication Patterns and Common Concerns Among Men with Hereditary Breast and Ovarian Cancer Syndrome.
    • Suttman A, Pilarski R, Agnese DM, Senter L.
    • J Genet Couns. 2018 Aug;27(4):885-893. doi: 10.1007/s10897-018-0214-z. Epub 2018 Feb 5.
    • Reproductive Decision Support: Preferences and Needs of Couples at Risk for Hereditary Cancer and Clinical Geneticists.
    • Reumkens K, van Oudheusden AJG, Gietel-Habets JJG, Tummers MHE, de Die-Smulders CEM, van Osch LADM.
    • J Genet Couns. 2018 Aug;27(4):920-926. doi: 10.1007/s10897-017-0204-6. Epub 2018 Jan 25.
    • A qualitative study of barriers to genetic counseling and potential for mobile technology education among women with ovarian cancer.
    • Vogel RI, Niendorf K, Lee H, Petzel S, Lee HY, Geller MA.
    • Hered Cancer Clin Pract. 2018 Jul 4;16:13. doi: 10.1186/s13053-018-0095-z. eCollection 2018.
    • The Cancer Worry Scale Revised for Breast Cancer Genetic Counseling.
    • Caruso A, Vigna C, Gremigni P.
    • Cancer Nurs. 2018 Jul/Aug;41(4):311-319. doi: 10.1097/NCC.0000000000000511.
    • Information and support needs of young women regarding breast cancer risk and genetic testing: adapting effective interventions for a novel population.
    • O'Neill SC, Evans C, Hamilton RJ, Peshkin BN, Isaacs C, Friedman S, Tercyak KP.
    • Fam Cancer. 2018 Jul;17(3):351-360. doi: 10.1007/s10689-017-0059-x.
    • Support needs of couples with hereditary breast and ovarian cancer during reproductive decision-making.
    • Gietel-Habets JJG, de Die-Smulders CEM, Derks-Smeets IAP, Tibben A, Tjan-Heijnen VCG, van Golde R, Gomez-Garcia E, van Osch LADM.
    • Psychooncology. 2018 Jul;27(7):1795-1801. doi: 10.1002/pon.4729. Epub 2018 May 4.
    • Maternal perceptions of BRCA genetic counseling communication processes about disclosing cancer risk information to children and adult relatives.
    • Hamilton JG, Peshkin BN, Mays D, DeMarco TA, Patenaude AF, Tercyak KP.
    • Psychooncology. 2018 Jul;27(7):1825-1832. doi: 10.1002/pon.4733. Epub 2018 May 22.
    • Talking with Children About Adult-Onset Hereditary Cancer Risk: A Developmental Approach for Parents.
    • Werner-Lin A, Merrill SL, Brandt AC.
    • J Genet Couns. 2018 Jun;27(3):533-548. doi: 10.1007/s10897-017-0191-7. Epub 2018 Jan 30.
    • Making Sense of SNPs: Women's Understanding and Experiences of Receiving a Personalized Profile of Their Breast Cancer Risks.
    • Young MA, Forrest LE, Rasmussen VM, James P, Mitchell G, Sawyer SD, Reeve K, Hallowell N.
    • J Genet Couns. 2018 Jun;27(3):702-708. doi: 10.1007/s10897-017-0162-z. Epub 2017 Nov 22.
    • The development of an online decision aid to support persons having a genetic predisposition to cancer and their partners during reproductive decision-making: a usability and pilot study.
    • Reumkens K, Tummers MHE, Gietel-Habets JJG, van Kuijk SMJ, Aalfs CM, van Asperen CJ, Ausems MGEM, Collée M, Dommering CJ, Kets CM, van der Kolk LE, Oosterwijk JC, Tjan-Heijnen VCG, Weijden T, de Die-Smulders CEM, van Osch LADM.
    • Fam Cancer. 2018 May 30. doi: 10.1007/s10689-018-0092-4. [Epub ahead of print]
    • Patients' Views of Treatment-Focused Genetic Testing (TFGT): Some Lessons for the Mainstreaming of BRCA1 and BRCA2 Testing.
    • Wright S, Porteous M, Stirling D, Lawton J, Young O, Gourley C, Hallowell N.
    • J Genet Couns. 2018 May 11. doi: 10.1007/s10897-018-0261-5. [Epub ahead of print]
    • Communicating with Daughters About Familial Risk of Breast Cancer: Individual, Family, and Provider Influences on Women's Knowledge of Cancer Risk.
    • Peipins LA, Rodriguez JL, Hawkins NA, Soman A, White MC, Hodgson ME, DeRoo LA, Sandler DP.
    • J Womens Health (Larchmt). 2018 May;27(5):630-639. doi: 10.1089/jwh.2017.6528. Epub 2018 Jan 29.
    • Support needs of couples with hereditary breast and ovarian cancer during reproductive decision-making.
    • Gietel-Habets JJG, de Die-Smulders CEM, Derks-Smeets IAP, Tibben A, Tjan-Heijnen VCG, van Golde R, Gomez-Garcia E, van Osch LADM.
    • Psychooncology. 2018 Apr 12. doi: 10.1002/pon.4729. [Epub ahead of print]
    • Bilingual Cancer Genetic Education Modules for the Deaf Community: Development and Evaluation of the Online Video Material.
    • Boudreault P, Wolfson A, Berman B, Venne VL, Sinsheimer JS, Palmer C.
    • J Genet Couns. 2018 Apr;27(2):457-469. doi: 10.1007/s10897-017-0188-2. Epub 2017 Dec 20.
    • Take your time, follow your heart: strategies for communication about family planning.
    • [No author given]
    • FORCE. XRAYS. 2018 Mar 28.

    "Take your time, then follow your heart:" Previvors' advice for communicating about family planning after testing positive for a BRCA genetic variant.

    • NSGC Responds to U.S. Food and Drug Administration Approval of Direct-to-Consumer Cancer Test that Reports Three BRCA Mutations.
    • [No author given]
    • NSGC blog, 2018 Mar 6.

    FDA News Release: FDA authorizes, with special controls, direct-to-consumer test that reports three mutations in the BRCA breast cancer genes (U.S. Food & Drug Administration)

    • Patient-Centered Care in Breast Cancer Genetic Clinics.
    • Brédart A, Anota A, Dick J, Kuboth V, Lareyre O, De Pauw A, Cano A, Stoppa-Lyonnet D, Schmutzler R, Dolbeault S, Kop JL.
    • Int J Environ Res Public Health. 2018 Feb 12;15(2). pii: E319. doi: 10.3390/ijerph15020319.
    • Adaptation of Genetic Counseling According to an Individual's Literacy Regarding Genomics.
    • Nakamura S, Narimatsu H.
    • J Clin Oncol. 2018 Feb 10;36(5):516-517. doi: 10.1200/JCO.2017.76.3300. Epub 2018 Jan 2.
    • Letter, Comment

    National Estimates of Genetic Testing in Women With a History of Breast or Ovarian Cancer.

    Letter, Reply:

    Reply to S. Nakamura et al and S. Narod et al.

    • Cancer Genetic Counseling and Testing: Perspectives of Epithelial Ovarian Cancer Patients and Gynecologic Oncology Healthcare Providers.
    • Liang MI, Wong DH, Walsh CS, Farias-Eisner R, Cohen JG.
    • J Genet Couns. 2018 Feb;27(1):177-186. doi: 10.1007/s10897-017-0135-2. Epub 2017 Aug 7.
    • Perspectives of Women Considering Bilateral Prophylactic Mastectomy and their Peers towards a Telephone-Based Peer Support Intervention.
    • St-Pierre D, Bouchard K, Gauthier L, Chiquette J, Dorval M; Centre ROSE.
    • J Genet Couns. 2018 Feb;27(1):274-288. doi: 10.1007/s10897-017-0148-x. Epub 2017 Sep 15.
    • "I've just never gotten around to doing it": Men's approaches to managing BRCA-related cancer risks.
    • Rauscher EA, Dean M.
    • Patient Educ Couns. 2018 Feb;101(2):340-345. doi: 10.1016/j.pec.2017.07.015. Epub 2017 Jul 23.
    • Men's information-seeking behavior regarding cancer risk and screening: A meta-narrative systematic review.
    • Saab MM, Reidy M, Hegarty J, O'Mahony M, Murphy M, Von Wagner C, Drummond FJ.
    • Psychooncology. 2018 Feb;27(2):410-419. doi: 10.1002/pon.4506. Epub 2017 Aug 18.
    • Review
    • Preferences for learning different types of genome sequencing results among young breast cancer patients: Role of psychological and clinical factors.
    • Kaphingst KA, Ivanovich J, Lyons S, Biesecker B, Dresser R, Elrick A, Matsen C, Goodman M.
    • Transl Behav Med. 2018 Jan 29;8(1):71-79. doi: 10.1093/tbm/ibx042.
    • Rationale for Mastectomy after Neoadjuvant Chemotherapy.
    • Gusic LH, Walsh K, Flippo-Morton T, Sarantou T, Boselli D, White RL Jr..
    • Am Surg. 2018 Jan 1;84(1):126-132.
    • Quality-of-life implications of risk-reducing cancer surgery.
    • Altman AM, Hui JYC, Tuttle TM.
    • Br J Surg. 2018 Jan;105(2):e121-e130. doi: 10.1002/bjs.10725.
    • Heightened perception of breast cancer risk in young women at risk of familial breast cancer.
    • Glassey R, O'Connor M, Ives A, Saunders C; kConFab Investigators, O'Sullivan S, Hardcastle SJ.
    • Fam Cancer. 2018 Jan;17(1):15-22. doi: 10.1007/s10689-017-0001-2.
    • National Estimates of Genetic Testing in Women With a History of Breast or Ovarian Cancer.
    • Childers CP, Childers KK, Maggard-Gibbons M, Macinko J.
    • J Clin Oncol. 2017 Dec 1;35(34):3800-3806. doi: 10.1200/JCO.2017.73.6314. Epub 2017 Aug 18.

    Editorial:

    Genetic Testing: What Problem Are We Trying to Solve?

    Letter:

    Population-Based Genetic Testing for BRCA1 and BRCA2.

    Press: Huge Underuse of Genetic Testing Among Cancer Survivors. (Medscape Oncology)

    • Facilitating decision-making in women undergoing genetic testing for hereditary breast cancer: BRECONDA randomized controlled trial results.
    • Sherman KA, Kilby CJ, Shaw LK, Winch C, Kirk J, Tucker K, Elder E.
    • Breast. 2017 Dec;36:79-85. doi: 10.1016/j.breast.2017.10.001. Epub 2017 Oct 12.
    • Risk-reducing salpingo-oophorectomy in BRCA1 and BRCA2 mutated patients: An evidence-based approach on what women should know.
    • De Felice F, Marchetti C, Boccia SM, Romito A, Sassu CM, Porpora MG, Muzii L, Tombolini V, Benedetti Panici P.
    • Cancer Treat Rev. 2017 Dec;61:1-5. doi: 10.1016/j.ctrv.2017.09.005. Epub 2017 Sep 28.
    • Review
    • "Take your time, then follow your heart:" Previvors' advice for communicating about family planning after testing positive for a BRCA genetic variant.
    • Rauscher EA, Dean M.
    • Fam Syst Health. 2017 Dec;35(4):486-497. doi: 10.1037/fsh0000312.

    Research news: Take your time, follow your heart: strategies for communication about family planning. (FORCE. XRAYS.)

    • Universal BRCA1/BRCA2 Testing for Ovarian Cancer Patients is Welcomed, but with Care: How Women and Staff Contextualize Experiences of Expanded Access.
    • Shipman H, Flynn S, MacDonald-Smith CF, Brenton J, Crawford R, Tischkowitz M; GTEOC Study Group, Hulbert-Williams NJ.
    • J Genet Couns. 2017 Dec;26(6):1280-1291. doi: 10.1007/s10897-017-0108-5. Epub 2017 May 24.
    • Sexual Health Is Paramount in the Counseling of Women at Risk for Breast or Ovarian Cancer Undergoing Risk-Reducing Surgery.
    • Rullo JE, Pruthi S.
    • J Natl Compr Canc Netw. 2017 Nov 1;15(11):1297. doi: 10.6004/jnccn.2017.7016.
    • Commentary
    • The management of sexuality, intimacy, and menopause symptoms (SIMS) after prophylactic bilateral salpingo-oophorectomy: How to maintain sexual health in "previvors".
    • Alexandre M, Black J, Whicker M, Minkin MJ, Ratner E.
    • Maturitas. 2017 Nov;105:46-51. doi: 10.1016/j.maturitas.2017.06.003. Epub 2017 Jun 3.
    • Review
    • Key messages for communicating information about BRCA1 and BRCA2 to women with breast or ovarian cancer: consensus across health professionals and service users.
    • Jacobs C, Pichert G, Harris J, Tucker K, Michie S.
    • Psychooncology. 2017 Nov;26(11):1818-1824. doi: 10.1002/pon.4379. Epub 2017 Feb 10.
    • Patient experience with breast reconstruction process following bilateral mastectomy in BRCA mutation carriers.
    • Nurudeen S, Guo H, Chun Y, Coopey S, Barry W, Garber J, Dominici LS.
    • Am J Surg. 2017 Oct;214(4):687-694. doi: 10.1016/j.amjsurg.2017.06.017. Epub 2017 Jun 28.
    • Information Mismatch: Cancer Risk Counseling with Diverse Underserved Patients.
    • Joseph G, Pasick RJ, Schillinger D, Luce J, Guerra C, Cheng JK.
    • J Genet Couns. 2017 Oct;26(5):1090-1104. doi: 10.1007/s10897-017-0089-4. Epub 2017 Mar 13.
    • Cancer Predisposition Cascade Screening for Hereditary Breast/Ovarian Cancer and Lynch Syndromes in Switzerland: Study Protocol.
    • Katapodi MC, Viassolo V, Caiata-Zufferey M, Nikolaidis C, Bührer-Landolt R5, Buerki N, Graffeo R, Horváth HC, Kurzeder C, Rabaglio M, Scharfe M, Urech C, Erlanger TE, Probst-Hensch N, Heinimann K, Heinzelmann-Schwarz V, Pagani O, Chappuis PO.
    • JMIR Res Protoc. 2017 Sep 20;6(9):e184. doi: 10.2196/resprot.8138.
    • "When information is not enough": A model for understanding BRCA-positive previvors' information needs regarding hereditary breast and ovarian cancer risk.
    • Dean M, Scherr CL, Clements M, Koruo R, Martinez J, Ross A.
    • Patient Educ Couns. 2017 Sep;100(9):1738-1743. doi: 10.1016/j.pec.2017.03.013. Epub 2017 Mar 10.
    • Factors Associated with Interest in Gene-Panel Testing and Risk Communication Preferences in Women from BRCA1/2 Negative Families.
    • Flores KG, Steffen LE, McLouth CJ, Vicuña BE, Gammon A, Kohlmann W, Vigil L, Dayao ZR, Royce ME, Kinney AY.
    • J Genet Couns. 2017 Jun;26(3):480-490. doi: 10.1007/s10897-016-0001-7. Epub 2016 Aug 6.
    • Information Topics of Greatest Interest for Return of Genome Sequencing Results among Women Diagnosed with Breast Cancer at a Young Age.
    • Seo J, Ivanovich J, Goodman MS, Biesecker BB, Kaphingst KA.
    • J Genet Couns. 2017 Jun;26(3):511-521. doi: 10.1007/s10897-016-0006-2. Epub 2016 Aug 20.
    • Discussing molecular testing in oncology care: Comparing patient and physician information preferences.
    • Pinheiro APM, Pocock RH, Switchenko JM, Dixon MD, Shaib WL, Ramalingam SS, Pentz RD.
    • Cancer. 2017 May 1;123(9):1610-1616. doi: 10.1002/cncr.30494. Epub 2017 Jan 31.
    • Review Article: Sexuality and Risk-Reducing Salpingo-oophorectomy.
    • Tucker PE, Cohen PA.
    • Int J Gynecol Cancer. 2017 May;27(4):847-852. doi: 10.1097/IGC.0000000000000943.
    • Review
    • Issues Arising in Psychological Consultations to Help Parents Talk to Minor and Young Adult Children about their Cancer Genetic Test Result: a Guide to Providers.
    • Patenaude AF, Schneider KA.
    • J Genet Couns. 2017 Apr;26(2):251-260. doi: 10.1007/s10897-016-0010-6. Epub 2016 Oct 3.
    • Awareness and attitude regarding reproductive options of persons carrying a BRCA mutation and their partners.
    • Gietel-Habets JJ, de Die-Smulders CE, Derks-Smeets IA, Tibben A, Tjan-Heijnen VC, van Golde R, Gomez-Garcia E, Kets CM, van Osch LA.
    • Hum Reprod. 2017 Mar 1;32(3):588-597. doi: 10.1093/humrep/dew352.
    • Identifying Needs: a Qualitative Study of women's Experiences Regarding Rapid Genetic Testing for Hereditary Breast and Ovarian Cancer in the DNA BONus Study.
    • Augestad MT, Høberg-Vetti H, Bjorvatn C, Sekse RJ
    • J Genet Couns. 2017 Feb;26(1):182-189. doi: 10.1007/s10897-016-9996-z. Epub 2016 Jul 28.
    • Anxiety and depression symptoms among women attending group-based patient education courses for hereditary breast and ovarian cancer.
    • Listøl W, Høberg-Vetti H, Eide GE, Bjorvatn C.
    • Hered Cancer Clin Pract. 2017 Jan 11;15:2. doi: 10.1186/s13053-016-0062-5. eCollection 2017.
    • The knowledge of risk factors and prevention of breast cancer in Polish women.
    • Chmaj-Wierzchowska K, Jurczyk MU, Czech-Szczapa B, Wilczak M.
    • Eur J Gynaecol Oncol. 2017;38(3):387-390.
    • A Dedicated Follow-Up Clinic for BRCA Mutation Carriers.
    • Yerushalmi R, Rizel S, Zoref D, Sharon E, Eitan R, Sabah G, Grubstein A, Rafson Y, Cohen M, Magen A, Birenboim I, Margel D, Ozlavo R, Sulkes A, Brenner B, Perry S.
    • Isr Med Assoc J. 2016 Sep;18(9):549-552.

    Editorial:

    Handling Individuals with High Cancer Risk: One Size Doesn't Fit All.

    • Information Topics of Greatest Interest for Return of Genome Sequencing Results among Women Diagnosed with Breast Cancer at a Young Age.
    • Seo J, Ivanovich J, Goodman MS, Biesecker BB, Kaphingst KA.
    • J Genet Couns. 2016 Aug 20. [Epub ahead of print]
    • Women Need More Information to Cope With Aftermath of BRCA-Prompted Preventive Surgery.
    • Ellie Leick.
    • Oncology Nursing News. 2016 Aug 1
    • Decision making, psychological wellbeing and psychosocial outcomes for high risk women who choose to undergo bilateral prophylactic mastectomy - A review of the literature.
    • Glassey R, Ives A, Saunders C, Musiello T.
    • Breast. 2016 Aug;28:130-5. doi: 10.1016/j.breast.2016.05.012. Epub 2016 Jun 15.
    • Review
    • Young adult female cancer survivors' unmet information needs and reproductive concerns contribute to decisional conflict regarding posttreatment fertility preservation.
    • Benedict C, Thom B, N Friedman D, Diotallevi D, M Pottenger E, J Raghunathan N, Kelvin JF.
    • Cancer. 2016 Jul 1;122(13):2101-9. doi: 10.1002/cncr.29917. Epub 2016 May 23.

    Press: Young Female Cancer Survivors Not Clear on Infertility Risks. (Medscape/Reuters)

    • The double-edged sword of ovarian cancer information for women at increased risk who have previously taken part in screening.
    • Smits S, Boivin J, Menon U, Brain K.
    • Ecancermedicalscience. 2016 Jun 30;10:650. doi: 10.3332/ecancer.2016.650. eCollection 2016.
    • Understanding the Needs of Young Women Regarding Breast Cancer Risk Assessment and Genetic Testing: Convergence and Divergence among Patient-Counselor Perceptions and the Promise of Peer Support.
    • Evans C, Hamilton RJ, Tercyak KP, Peshkin BN, Rabemananjara K, Isaacs C, O'Neill SC.
    • Healthcare (Basel). 2016 Jun 28;4(3). pii: E35. doi: 10.3390/healthcare4030035.
    • Information requirements of young women with breast cancer treated with mastectomy or breast conserving surgery: A systematic review.
    • Recio-Saucedo A, Gerty S, Foster C, Eccles D, Cutress RI.
    • Breast. 2016 Feb;25:1-13. doi: 10.1016/j.breast.2015.11.001. Epub 2015 Nov 30.
    • Review
    • BRCA1 and BRCA2 genetic testing-pitfalls and recommendations for managing variants of uncertain clinical significance.
    • Eccles DM, Mitchell G, Monteiro AN, Schmutzler R, Couch FJ, Spurdle AB, Gómez-García EB; ENIGMA Clinical Working Group.
    • Ann Oncol. 2015 Oct;26(10):2057-65. doi: 10.1093/annonc/mdv278. Epub 2015 Jul 7.
    • Why do women not return family history forms when referred to breast cancer genetics services? A mixed-method study.
    • Hanning KA, Steel M, Goudie D, McLeish L, Dunlop J, Myring J, Sullivan F, Berg J, Humphris G, Ozakinci G.
    • Health Expect. 2015 Oct;18(5):1735-43. doi: 10.1111/hex.12166. Epub 2014 Jan 5.
    • Factors influencing breast cancer screening and risk assessment among young African American women: An integrative review of the literature.
    • Jones TP, Katapodi MC, Lockhart JS.
    • J Am Assoc Nurse Pract. 2015 Sep;27(9):521-9. doi: 10.1002/2327-6924.12223. Epub 2015 Mar 3.
    • Review
    • Evolving Information Needs among Colon, Breast, and Prostate Cancer Survivors: Results from a Longitudinal Mixed-Effects Analysis.
    • Tan AS, Nagler RH, Hornik RC, DeMichele A.
    • Cancer Epidemiol Biomarkers Prev. 2015 Jul;24(7):1071-8. doi: 10.1158/1055-9965.EPI-15-0041. Epub 2015 May 15.
    • Survey on Addressing the Information and Support Needs of Jewish Women at Increased Risk for or Diagnosed with Breast Cancer: The Sharsheret Experience.
    • Tercyak KP, Silber E, Johnson AC, Fleischmann A, Murphy SE, Mays D, O'Neill SC, Sharkey CM, Shoretz R.
    • Healthcare (Basel). 2015 May 22;3(2):324-37. doi: 10.3390/healthcare3020324.
    • A survey of genetic counselors about the needs of 18-25 year olds from families with hereditary breast and ovarian cancer syndrome.
    • Werner-Lin A, Ratner R, Hoskins LM, Lieber C.
    • J Genet Couns. 2015 Feb;24(1):78-87. doi: 10.1007/s10897-014-9739-y. Epub 2014 Jul 12.
    • Breast cancer information and support needs for women with intellectual disabilities: a scoping study.
    • Collins K, McClimens A, Mekonnen S, Wyld L.
    • Psychooncology. 2014 Aug;23(8):892-7. doi: 10.1002/pon.3500. Epub 2014 Feb 12.
    • Seeking Balance: Decision Support Needs of Women Without Cancer and a Deleterious BRCA1 or BRCA2 Mutation.
    • Underhill ML, Crotser CB.
    • J Genet Couns. 2014 Jun;23(3):350-62. doi: 10.1007/s10897-013-9667-2. Epub 2013 Nov 22.
    • Ovarian Cancer 101 for the Newly Diagnosed.
    • Ilana Cass.
    • FORCE. Be Empowered Webinars. 2014 Apr 11.
    • Newly Diagnosed with Breast Cancer: What You Need to Know.
    • Melinda Telli.
    • FORCE. Be Empowered Webinars. 2014 Mar 26.
    • In their own words: treating very young BRCA1/2 mutation-positive women with care and caution.
    • Hoskins LM, Werner-Lin A, Greene MH.
    • PLoS One. 2014 Feb 28;9(2):e87696. doi: 10.1371/journal.pone.0087696. eCollection 2014.
    • BRCA BROTHERHOOD.
    • Amy Byer Shainman @BRCAresponder.
    • The BRCA Responder, 2014 Jan 30.
    • Young Women with Breast Cancer: A Focus Group Study of Unmet Needs.
    • Ruddy KJ, Greaney ML, Sprunck-Harrild K, Meyer ME, Emmons KM, Partridge AH.
    • J Adolesc Young Adult Oncol. 2013 Dec 1;2(4):153-160.
    • Unmet support needs and distress among women with a BRCA1/2 mutation.
    • Farrelly A, White V, Meiser B, Jefford M, Young MA, Ieropoli S, Winship I, Duffy J.
    • Fam Cancer. 2013 Sep;12(3):509-18. doi: 10.1007/s10689-012-9596-5.
    • Square Pegs, Round Hole? Ensuring Fit in the AYAO Spectrum for Adolescents and Young Adults with Genetic Risk for Cancer.
    • Sanford SD, O'Connor ML, Smith KN, Young AE.
    • J Adolesc Young Adult Oncol. 2013 Sep;2(3):130-132.
    • A Public Health Education Initiative for Women With a Family History of Breast/Ovarian Cancer: Why Did it Take Angelina Jolie?
    • Nisker J.
    • J Obstet Gynaecol Can. 2013 Aug;35(8):689-91.
    • Editorial
    • Communication and information needs of women diagnosed with ovarian cancer regarding treatment-focused genetic testing.
    • Gleeson M, Meiser B, Barlow-Stewart K, Trainer AH, Tucker K, Watts KJ, Friedlander M, Kasparian N.
    • Oncol Nurs Forum. 2013 May 1;40(3):275-83. doi: 10.1188/13.ONF.40-03AP.
    • Understanding the Needs of Women Considering Risk-Reducing Salpingo-oophorectomy.
    • Cherry C, Ropka M, Lyle J, Napolitano L, Daly MB.
    • Cancer Nurs. 2013 May-Jun;36(3):E33-8. doi: 10.1097/NCC.0b013e3182642cb5.
    • Reproductive decision-making in young female carriers of a BRCA mutation.
    • Donnelly LS, Watson M, Moynihan C, Bancroft E, Evans DG, Eeles R, Lavery S, Ormondroyd E.
    • Hum Reprod. 2013 Apr;28(4):1006-12. doi: 10.1093/humrep/des441. Epub 2013 Jan 4.
    • The counselees' self-reported request for psychological help in genetic counseling for hereditary breast/ovarian cancer: not only psychopathology matters.
    • Vos J, van Asperen CJ, Oosterwijk JC, Menko FH, Collee MJ, Garcia EG, Tibben A.
    • Psychooncology. 2013 Apr;22(4):902-10. doi: 10.1002/pon.3081. Epub 2012 Jun 27.
    • Feasibility evaluation of an online tool to guide decisions for BRCA1/2 mutation carriers.
    • Schackmann EA, Munoz DF, Mills MA, Plevritis SK, Kurian AW.
    • Fam Cancer. 2013 Mar;12(1):65-73. doi: 10.1007/s10689-012-9577-8.
    • A multi-case report of the pathways to and through genetic testing and cancer risk management for BRCA mutation-positive women aged 18-25.
    • Hoskins LM, Werner-Lin A.
    • J Genet Couns. 2013 Feb;22(1):27-38. doi: 10.1007/s10897-012-9521-y. Epub 2012 Aug 3.
    • Factors Associated with Psychological Distress among Women of African Descent at High Risk for BRCA Mutations.
    • Cukier YR, Thompson HS, Sussner K, Forman A, Jandorf L, Edwards T, Bovbjerg DH, Schwartz MD, Valdimarsdottir HB.
    • J Genet Couns. 2013 Feb;22(1):101-7. doi: 10.1007/s10897-012-9510-1. Epub 2012 Jun 27.
    • Oral contraceptive use in women at increased risk of breast/ovarian cancer: knowledge and attitudes.
    • Bui KT, Wakefield CE, Kasparian NA, Tyler J, Abbott J, Tucker K.
    • Psychooncology. 2013 Jan;22(1):228-32. doi: 10.1002/pon.2049. Epub 2011 Sep 9.
    • Incorporating information regarding preimplantation genetic diagnosis into discussions concerning testing and risk management for BRCA1/2 mutations: A qualitative study of patient preferences.
    • Hurley K, Rubin LR, Werner-Lin A, Sagi M, Kemel Y, Stern R, Phillips A, Cholst I, Kauff N, Offit K.
    • Cancer. 2012 Dec 15;118(24):6270-7. doi: 10.1002/cncr.27695. Epub 2012 Jun 26.
    • Receipt of Genetic Counseling Recommendations Among Black Women at High Risk for BRCA Mutations.
    • Thompson HS, Sussner K, Schwartz MD, Edwards T, Forman A, Jandorf L, Brown K, Bovbjerg DH, Valdimarsdottir HB.
    • Genet Test Mol Biomarkers. 2012 Nov;16(11):1257-62. doi: 10.1089/gtmb.2012.0114. Epub 2012 Oct 11.
    • Anxiety and specific distress in women at intermediate and high risk of breast cancer before and after surveillance by magnetic resonance imaging and mammography versus standard mammography.
    • Brédart A, Kop JL, Fall M, Pelissier S, Simondi C, Dolbeault S, Livartowski A, Tardivon A; Magnetic Resonance Imaging study group (STIC IRM 2005).
    • Psychooncology. 2012 Nov;21(11):1185-94. doi: 10.1002/pon.2025. Epub 2011 Aug 3.
    • Role of Breast Surgery in BRCA Mutation Carriers.
    • Nestle-Krämling C, Kühn T.
    • Breast Care (Basel). 2012 Oct;7(5):378-82. doi: 10.1159/000343717.
    • Looking different, feeling different: women's reactions to risk-reducing breast and ovarian surgery.
    • Hallowell N, Baylock B, Heiniger L, Butow PN, Patel D, Meiser B, Saunders C; kConFab Psychosocial Group on behalf of the kConFab Investigators, Price MA.
    • Fam Cancer. 2012 Jun;11(2):215-24. doi: 10.1007/s10689-011-9504-4.
    • Closing the loop: action research in a multimodal hereditary cancer patient conference is an effective tool to assess and address patient needs.
    • Espenschied CR, MacDonald DJ, Culver JO, Sand S, Hurley K, Banks KC, Weitzel JN, Blazer KR.
    • J Cancer Educ. 2012 Jun;27(3):467-77. doi: 10.1007/s13187-012-0373-9.
    • BRCA1/2 carriers: their childbearing plans and theoretical intentions about having preimplantation genetic diagnosis and prenatal diagnosis.
    • Julian-Reynier C, Fabre R, Coupier I, Stoppa-Lyonnet D, Lasset C, Caron O, Mouret-Fourme E, Berthet P, Faivre L, Frenay M, Gesta P, Gladieff L, Bouhnik AD, Protière C, Noguès C.
    • Genet Med. 2012 May;14(5):527-34. doi: 10.1038/gim.2011.27. Epub 2012 Jan 12.
    • Parenting through genetic uncertainty: themes in the disclosure of breast cancer risk information to children.
    • Sharff ME, DeMarco TA, Mays D, Peshkin BN, Valdimarsdottir HB, Garber JE, Schneider KA, Patenaude AF, Tercyak KP.
    • Genet Test Mol Biomarkers. 2012 May;16(5):376-82. doi: 10.1089/gtmb.2011.0154. Epub 2011 Nov 15.
    • Breast cancer genetic testing awareness, attitudes and intentions of Latinas living along the US-Mexico border: a qualitative study.
    • Chalela P, Pagán JA, Su D, Muñoz E, Ramirez AG.
    • J Community Med Health Educ. [2012 May;]2. pii: 1000152.
    • Getting to the point: what women newly diagnosed with breast cancer want to know about treatment-focused genetic testing.
    • Meiser B, Gleeson M, Watts K, Peate M, Zilliacus E, Barlow-Stewart K, Saunders C, Mitchell G, Kirk J.
    • Oncol Nurs Forum. 2012 Mar;39(2):E101-11. doi: 10.1188/12.ONF.E101-E111.
    • Results of an online community needs assessment for psychoeducational interventions among partners of hereditary breast cancer previvors and survivors.
    • Tercyak KP, Mays D, DeMarco TA, Sharff ME, Friedman S.
    • J Med Internet Res. 2012 Jan 18;14(1):e15. doi: 10.2196/jmir.1847.
    • What made her give up her breasts: a qualitative study on decisional considerations for contralateral prophylactic mastectomy among breast cancer survivors undergoing BRCA1/2 genetic testing.
    • Kwong A, Chu AT.
    • Asian Pac J Cancer Prev. 2012;13(5):2241-7.
    • Barriers and facilitators for utilization of genetic counseling and risk assessment services in young female breast cancer survivors.
    • Anderson B, McLosky J, Wasilevich E, Lyon-Callo S, Duquette D, Copeland G.
    • J Cancer Epidemiol. 2012;2012:298745. doi: 10.1155/2012/298745. Epub 2012 Oct 22.