• Measuring high-risk parents' opinions about direct-to-consumer genetic testing for adult-onset inherited cancer syndromes in their adolescent and young adult children.
    • Hasser E, Peshkin BN, Hamilton JG, Brower J, Ovadia H, Friedman Ross L, Sacca R, Tarini B, Domchek SM, Vittone S, Sleiman M Jr, Isaacs C, Knerr S, Wilfond BS, Tercyak KP.
    • J Genet Couns. 2023 Feb 7. doi: 10.1002/jgc4.1685. Epub ahead of print.
    • Attitudes about sharing genetic test results in families with hereditary cancer syndromes. [2022 CGA-IGC Annual Meeting: The collaborative group of the Americas on Inherited Gastrointestinal Cancer November 11–13, 2022.]
    • Guivatchian E, Koeppe E, Stoffel EM.
    • Fam Cancer. [P-22: Research Categories » Other.] 2023 Jan 23. doi: 10.1007/s10689-022-00324-x. Epub ahead of print.
    • Conference abstract
    • Predicting Openness of Communication in Families With Hereditary Breast and Ovarian Cancer Syndrome: Natural Language Processing Analysis.
    • Baroutsou V, Cerqueira Gonzalez Pena R, Schweighoffer R, Caiata-Zufferey M, Kim S, Hesse-Biber S, Ciorba FM, Lauer G, Katapodi M; CASCADE Consortium.
    • JMIR Form Res. 2023 Jan 19;7:e38399. doi: 10.2196/38399.
    • Predictors of Women’s Intentions to Communicate Updated Genetic Test Results to Immediate and Extended Family Members.
    • Winskill C, Goodman MS, Daly BM, Elrick A, Mooney R, Espinel W, Kohlmann W, Kaphingst KA.
    • Public Health Genomics. 2023 Jan 14. doi: 10.1159/000528522. Epub ahead of print.
    • Australasian Genetic Counselors’ Perceptions of Their Role in Supporting Clients’ Behavior Change.
    • Jacobs C, Turbitt E, McEwen A, Atkins L.
    • J Pers Med. 2022 Dec 23;13(1):30. doi: 10.3390/jpm13010030.
    • Clinical Cancer and Direct-to-Consumer Genetic Test Result-Sharing Behavior: Findings from HINTS 2020.
    • Makhnoon S, Yu R, Peterson SK, Shete S.
    • J Pers Med. 2022 Dec 22;13(1):18. doi: 10.3390/jpm13010018.
    • Informational needs of individuals from BRCA-harboring families: a systematic review and content analysis.
    • Park SY, Kim Y, Kim S, Katapodi MC.
    • Genet Med. 2022 Dec 18:S1098-3600(22)01068-1. doi: 10.1016/j.gim.2022.100001. Epub ahead of print.
    • Genetic medicine in companion diagnostics of germline BRCA testing of Japanese pancreatic cancer patients.
    • Matsubayashi H, Todaka A, Kawakami T, Hamauchi S, Yokota T, Higashigawa S, Kiyozumi Y, Harada R, Kado N, Nishimura S, Ishiwatari H, Sato J, Niiya F, Ono H, Sugiura T, Sasaki K, Yasui H, Yamazaki K.
    • J Hum Genet. 2022 Dec 8. doi: 10.1038/s10038-022-01097-y. Epub ahead of print.
    • BRCAShare-Assessment of an animated digital message for intrafamilial communication of pathogenic variant positive test results: A feasibility study.
    • Aeilts AM, Carpenter KM, Hovick SR, Byrne L, Shoben AB, Senter L.
    • J Genet Couns. 2022 Nov 25. doi: 10.1002/jgc4.1656. Epub ahead of print.
    • Proband-mediated interventions to increase disclosure of genetic risk in families with a BRCA or Lynch syndrome condition: a systematic review.
    • Young AL, Imran A, Spoelma MJ, Williams R, Tucker KM, Halliday J, Forrest LE, Wakefield CE, Butow PN.
    • Eur J Hum Genet. 2022 Oct 17. doi: 10.1038/s41431-022-01200-z. Epub ahead of print.
    • Study: Teens and young adults respond well to learning about familial cancer risk
    • [No author given]
    • FORCE. XRAY. 2022 Oct 11.

    Related:

    Original research:

    Long-Term Adaptation Among Adolescent and Young Adult Children to Familial Cancer Risk.

    Commentary:

    Breaking Down the Barriers of Hereditary Cancer Risk Disclosure in AYA.

    • Use of a chatbot to increase uptake of cascade genetic testing.
    • Schmidlen T, Jones CL, Campbell-Salome G, McCormick CZ, Vanenkevort E, Sturm AC.
    • J Genet Couns. 2022 Oct;31(5):1219-1230. doi: 10.1002/jgc4.1592. Epub 2022 May 26.
    • Cascade Testing for Hereditary Cancer Syndromes: Should We Move Toward Direct Relative Contact? A Systematic Review and Meta-Analysis.
    • Frey MK, Ahsan MD, Bergeron H, Lin J, Li X, Fowlkes RK, Narayan P, Nitecki R, Rauh-Hain JA, Moss HA, Baltich Nelson B, Thomas C, Christos PJ, Hamilton JG, Chapman-Davis E, Cantillo E, Holcomb K, Kurian AW, Lipkin S, Offit K, Sharaf RN.
    • J Clin Oncol. 2022 Aug 12:JCO2200303. doi: 10.1200/JCO.22.00303. Epub ahead of print.
    • Meta-Analysis
    • Feasibility, acceptability, and limited efficacy of health system-led familial risk notification: protocol for a mixed-methods evaluation.
    • Blasi PR, Scrol A, Anderson ML, Gray MF, Tiffany B, Fullerton SM, Ralston JD, Leppig KA, Henrikson NB.
    • Pilot Feasibility Stud. 2022 Aug 9;8(1):174. doi: 10.1186/s40814-022-01142-9.
    • Motivation and family communication in hereditary prostate cancer genetic testing: Survey of patients from a US tertiary medical center.
    • Finn CM, McCormick S, Peterson D, Niendorf KB, Rodgers LH.
    • J Genet Couns. 2022 Aug 8. doi: 10.1002/jgc4.1624. Epub ahead of print.
    • Long-Term Adaptation Among Adolescent and Young Adult Children to Familial Cancer Risk.
    • McDonnell GA, Peshkin BN, DeMarco TA, Peterson SK, Arun BK, Miesfeldt S, O'Neill SC, Schneider K, Garber J, Isaacs C, Luta G, Tercyak KP.
    • Pediatrics. 2022 Aug 1;150(2):e2022056339. doi: 10.1542/peds.2022-056339.

    Related:

    Commentary:

    Breaking Down the Barriers of Hereditary Cancer Risk Disclosure in AYA.

    Related:

    Research news: Study: Teens and young adults respond well to learning about familial cancer risk. (FORCE. XRAYS)

    • Cancer patients' understandings of genetic variants of uncertain significance in clinical care.
    • Amano Y, Raz A, Timmermans S, Shkedi-Rafid S.
    • J Community Genet. 2022 Aug;13(4):381-388. doi: 10.1007/s12687-022-00594-z. Epub 2022 May 26.
    • Comparing the attitudes of physicians and non-physicians toward communicating a patient's BRCA1 mutation to a first-degree relative against a patient's wishes.
    • Zebrack JE, Yang W, Milone M, Coppes MJ.
    • J Community Genet. 2022 Aug;13(4):403-410. doi: 10.1007/s12687-022-00591-2. Epub 2022 May 21.
    • Toward a better understanding of the experience of patients with moderate penetrance breast cancer gene pathogenic/likely pathogenic variants: A focus on ATM and CHEK2.
    • McCormick S, Hicks S, Wooters M, Grant C.
    • J Genet Couns. 2022 Aug;31(4):956-964. doi: 10.1002/jgc4.1568. Epub 2022 Mar 4.
    • The Communication Chain of Genetic Risk: Analyses of Narrative Data Exploring Proband–Provider and Proband–Family Communication in Hereditary Breast and Ovarian Cancer.
    • Pedrazzani C, Aceti M, Schweighoffer R, Kaiser-Grolimund A, Bürki N, Chappuis PO, Graffeo R, Monnerat C, Pagani O, Rabaglio M, Katapodi MC, Caiata-Zufferey M.
    • J Pers Med. 2022 Jul 29;12(8):1249. doi: 10.3390/jpm12081249.
    • Article: How your ovarian cancer diagnosis can help your relatives.
    • [No author given]
    • FORCE. XRAY. 2022 Jul 28.

    Related:

    Press: How to Talk to Loved Ones About Ovarian Cancer Risk. (Healthline)

    • A qualitative study of unaffected ATM and CHEK2 carriers: How participants make meaning of 'moderate risk' genetic results in a population breast cancer screening trial.
    • James JE, Riddle L, Caruncho M, Koenig BA, Joseph G.
    • J Genet Couns. 2022 Jul 25. doi: 10.1002/jgc4.1617. Epub ahead of print.
    • Public Interest in Population Genetic Screening for Cancer Risk.
    • Roberts MC, Foss KS, Henderson GE, Powell SN, Saylor KW, Weck KE, Milko LV.
    • Front Genet. 2022 Jul 22;13:886640. doi: 10.3389/fgene.2022.886640.
    • Insight into how patients with prostate cancer interpret and communicate genetic test results: implications for families.
    • Leader AE, Mercado J, Klein A, Hyatt C, Gross L, Brandt R, Giri VN.
    • J Community Genet. 2022 Jul 22. doi: 10.1007/s12687-022-00603-1. Epub ahead of print.
    • The Clinical and Psychosocial Outcomes for Women Who Received Unexpected Clinically Actionable Germline Information Identified through Research: An Exploratory Sequential Mixed-Methods Comparative Study.
    • Forrest LE, Forbes Shepherd R, Tutty E, Pearce A, Campbell I, Devereux L, Trainer AH, James PA, Young MA.
    • J Pers Med. 2022 Jul 7;12(7):1112. doi: 10.3390/jpm12071112.
    • Women's thoughts on receiving and sharing genetic information: Considerations for genetic counseling.
    • Pfledderer CD, Gren LH, Frost CJ, Andrulis IL, Chung WK, Genkinger J, Glendon G, Hopper JL, John EM, Southey M, Terry MB, Daly MB.
    • J Genet Couns. 2022 Jul 6. doi: 10.1002/jgc4.1599. Epub ahead of print.
    • Patient ethnicity and cascade genetic testing: a descriptive study of a publicly funded hereditary cancer program.
    • Braley EF, Bedard AC, Nuk J, Hong Q, Bedard JEJ, Sun S, Schrader KA.
    • Fam Cancer. 2022 Jul;21(3):369-374. doi: 10.1007/s10689-021-00270-0. Epub 2021 Jul 7.
    • A systematic review of theory-informed strategies used in interventions fostering family genetic risk communication.
    • Zhao J, Guan Y, McBride CM.
    • Patient Educ Couns. 2022 Jul;105(7):1953-1962. doi: 10.1016/j.pec.2022.03.009. Epub 2022 Mar 11.
    • High Number of Familial Breast Cancer Cases in the Arabian Gulf Countries: Investigating the Reasons.
    • Mohammed EM.
    • Breast Cancer (Auckl). 2022 Jun 28;16:11782234221107121. doi: 10.1177/11782234221107121.
    • TRACEBACK: Testing of Historical Tubo-Ovarian Cancer Patients for Hereditary Risk Genes as a Cancer Prevention Strategy in Family Members.
    • Delahunty R, Nguyen L, Craig S, Creighton B, Ariyaratne D, Garsed DW, Christie E, Fereday S, Andrews L, Lewis A, Limb S, Pandey A, Hendley J, Traficante N, Carvajal N, Spurdle AB, Thompson B, Parsons MT, Beshay V, Volcheck M, Semple T, Lupat R, Doig K, Yu J, Chen XQ, Marsh A, Love C, Bilic S, Beilin M, Nichols CB, Greer C, Lee YC, Gerty S, Gill L, Newton E, Howard J, Williams R, Norris C, Stephens AN, Tutty E, Smyth C, O'Connell S, Jobling T, Stewart CJR, Tan A, Fox SB, Pachter N, Li J, Ellul J, Mir Arnau G, Young MA, Gordon L, Forrest L, Harris M, Livingstone K, Hill J, Chenevix-Trench G, Cohen PA, Webb PM, Friedlander M, James P, Bowtell D, Alsop K; Australian Ovarian Cancer Study, Ovarian Cancer Prognosis and Lifestyle Study and the TRACEBACK Study.
    • J Clin Oncol. 2022 Jun 20;40(18):2036-2047. doi: 10.1200/JCO.21.02108. Epub 2022 Mar 9.
    • Healthcare Predictors of Information Dissemination About Genetic Risks.
    • Henderson V, Strayhorn SM, Bergeron NQ, Strahan DC, Ganschow PS, Khanna AS, Watson K, Hoskins K, Molina Y.
    • Cancer Control. 2022 Jan-Dec [First Published 2022 Jun 6];29:10732748221104666. doi: 10.1177/10732748221104666.
    • Perceptions and care Recommendations from Previvors: Qualitative analysis of female BRCA1/2 mutation Carriers' experience with genetic testing and counseling.
    • Dibble KE, Donorfio LKM, Britner PA, Bellizzi KM.
    • Gynecol Oncol Rep. 2022 May 2 [eCollection 2022 Jun];41:100989. doi: 10.1016/j.gore.2022.100989.
    • Transgender patients' perspectives on their cancer genetic counseling experiences.
    • Rolle L, Zayhowski K, Koeller D, Chiluiza D, Carmichael N.
    • J Genet Couns. 2022 Jun;31(3):781-791. doi: 10.1002/jgc4.1544. Epub 2021 Dec 28.
    • UC Davis Looks to Expand Genetic Breast Cancer Risk Education, Outreach for Hispanic Women.
    • Kanski A.
    • Precision Oncology News. Technology. 2022 May 19.
    • News
    • Differences in Willingness to Undergo BRCA1/2 Testing and Risk Reducing Surgery among the General Public, Cancer Patients, and Healthcare Professionals: A Large Population-Based Survey.
    • Chang YJ, Cho S, Joo J, Ryu KH, Lee S, Cho J, Lim MC, Jung SY, Han JH, Lee ES, Kong SY.
    • J Pers Med. 2022 May 18;12(5):818. doi: 10.3390/jpm12050818.
    • A new tool is helping families conduct life-saving conversations about hereditary cancer.
    • Karavanov A.
    • FORCE. Blog. 2022 May 17.
    • Previvorship Posting: Why Breast Cancer Previvors Share Their Stories on Social Media.
    • Wellman ML, Holton AE, Kaphingst KA.
    • Health Commun. 2022 May 17:1-9. doi: 10.1080/10410236.2022.2074780. Epub ahead of print.
    • African American Women Need to Know More About High-Risk Breast Cancer.
    • Johnson F.
    • FORCE. Blog. 2022 May 2.

    Related:

    Video: Felicia's Story: Genetic Testing Sheds Light on a Family's Cancer History. (YouTube / Breastcancer.org)

    • Incomplete Penetrance of Population-Based Genetic Screening Results in Electronic Health Record.
    • Elhanan G, Kiser D, Neveux I, Dabe S, Bolze A, Metcalf WJ, Lu JT, Grzymski JJ.
    • Front Genet. 2022 Apr 27;13:866169. doi: 10.3389/fgene.2022.866169.
    • "I have always lived with the disease in the family": family adaptation to hereditary cancer-risk.
    • Silva E, Gomes P, Matos PM, Silva ER, Silva J, Brandão C, Castro F, Neves MC, Sales CMD.
    • BMC Prim Care. 2022 Apr 23;23(1):93. doi: 10.1186/s12875-022-01704-z.
    • A randomized controlled trial comparing self-referred message to family-referred message promoting men's adherence to evidence-based guidelines on BRCA1/2 germline genetic testing: A registered study protocol.
    • Petrocchi S, Ongaro G, Calvello M, Feroce I, Bonanni B, Pravettoni G.
    • PLoS One. 2022 Apr 8;17(4):e0266327. doi: 10.1371/journal.pone.0266327.

    Related:

    Identifier: NCT04683068: Promoting Men's Adherence to BRCA1/2 Germline Genetic Testing (BRCA-MEN). (ClinicalTrials.gov)

    • Outcomes of support groups for carriers of BRCA 1/2 pathogenic variants and their relatives: a systematic review.
    • Bertonazzi B, Turchetti D, Godino L.
    • Eur J Hum Genet. 2022 Apr;30(4):398-405. doi: 10.1038/s41431-022-01044-7.
    • Assessing the relationship between patient preferences for recontact after BRCA1 or BRCA2 genetic testing and their monitoring coping style in a Norwegian sample.
    • Dahle Ommundsen RM, Strømsvik N, Hamang A.
    • J Genet Couns. 2022 Apr;31(2):554-564. doi: 10.1002/jgc4.1526. Epub 2021 Oct 30.
    • Genetic testing and family entanglements.
    • Dimond R, Doheny S, Ballard L, Clarke A.
    • Soc Sci Med. 2022 Apr;298:114857. doi: 10.1016/j.socscimed.2022.114857. Epub 2022 Feb 24.
    • Intention to Inform Relatives, Rates of Cascade Testing, and Preference for Patient-Mediated Communication in Families Concerned with Hereditary Breast and Ovarian Cancer and Lynch Syndrome: The Swiss CASCADE Cohort.
    • Sarki M, Ming C, Aissaoui S, Bürki N, Caiata-Zufferey M, Erlanger TE, Graffeo-Galbiati R, Heinimann K, Heinzelmann-Schwarz V, Monnerat C, Probst-Hensch N, Rabaglio M, Zürrer-Härdi U, Chappuis PO, Katapodi MC, On Behalf Of The Cascade Consortium.
    • Cancers (Basel). 2022 Mar 23;14(7):1636. doi: 10.3390/cancers14071636.
    • Impact of BRCA Status on Reproductive Decision-Making and Self-Concept: A Mixed-Methods Study Informing the Development of Tailored Interventions.
    • Hesse-Biber S, Seven M, Jiang J, Schaik SV, Dwyer AA.
    • Cancers (Basel). 2022 Mar 15;14(6):1494. doi: 10.3390/cancers14061494.
    • An overview of genetic services delivery for hereditary breast cancer.
    • Reid S, Spalluto LB, Lang K, Weidner A, Pal T.
    • Breast Cancer Res Treat. 2022 Feb;191(3):491-500. doi: 10.1007/s10549-021-06478-z. Epub 2022 Jan 26.
    • Stakeholder attitudes towards establishing a national genomics registry of inherited cancer predisposition: a qualitative study.
    • Meiser B, Monnik M, Austin R, Nichols C, Cops E, Salmon L, Spurdle AB, Macrae F, Taylor N, Pachter N, James P, Kaur R.
    • J Community Genet. 2022 Feb;13(1):59-73. doi: 10.1007/s12687-021-00559-8. Epub 2021 Nov 2.
    • Tennis Star Chris Evert Teaches Us That Genetic Testing Is A Lifetime Match.
    • Matloff E.
    • Forbes. Healthcare. 2022 Jan 17.

    Related:

    News: Tennis Star Chris Evert Teaches Us That Genetic Testing Is a Lifetime Match. (My Gene Counsel)

    • Characteristics and experiences of patients from a community-based and consumer-directed hereditary cancer population screening initiative.
    • Greve V, Odom K, Pudner S, Lamb NE, Cooper SJ, East K.
    • HGG Adv. 2021 Aug 24 [eCollection 2022 Jan 13];3(1):100055. doi: 10.1016/j.xhgg.2021.100055.
    • Let’s Talk About It: Hereditary Cancer.
    • Meyer Krause C.
    • FORCE. Blog. 2021 Dec 22.

    Related:

    Video: Let's Talk About It - by Caitlin Meyer Krause (YouTube)

    Guide booklet: The Genes Between Us: Your guide to sharing genetic test results with relatives. (FORCE)

    Resources: Sharing information about hereditary cancer with children. (FORCE)

    Guide booklet: Talking About BRCA in Your Family Tree (FORCE)

    • Genetic Literacy and Communication of Genetic Information in Families Concerned with Hereditary Breast and Ovarian Cancer: A Cross-Study Comparison in Two Countries and within a Timeframe of More Than 10 Years.
    • Pedrazzani C, Ming C, Bürki N, Caiata-Zufferey M, Chappuis PO, Duquette D, Heinimann K, Heinzelmann-Schwarz V, Graffeo-Galbiati R, Merajver SD, Milliron KJ, Monnerat C, Pagani O, Rabaglio M, Katapodi MC.
    • Cancers (Basel). 2021 Dec 13;13(24):6254. doi: 10.3390/cancers13246254.
    • Feasibility of a Traceback Approach for Using Pathology Specimens to Facilitate Genetic Testing in the Genetic Risk Analysis in Ovarian Cancer (GRACE) Study Protocol.
    • Kauffman TL, Prado YK, Reyes AA, Zepp JM, Sawyer J, White LL, Martucci J, Salas SB, Vertrees S, Rope AF, Weinmann S, Henrikson NB, Lee SS, Feigelson HS, Hunter JE.
    • J Pers Med. 2021 Nov 13;11(11):1194. doi: 10.3390/jpm11111194.
    • A Focus Group Study of Perceptions of Genetic Risk Disclosure in Members of the Public in Sweden: "I'll Phone the Five Closest Ones, but What Happens to the Other Ten?".
    • Hawranek C, Hajdarevic S, Rosén A.
    • J Pers Med. 2021 Nov 12;11(11):1191. doi: 10.3390/jpm11111191.
    • Do Not Wait: Empowering Other Families by Sharing My Story.
    • Johnson F.
    • FORCE. Blog. 2021 Oct 28.
    • MSK Fellows Develop Online Resource to Increase Awareness of Genetic Cascade Testing.
    • Kanski A.
    • Precision Oncology News. Technology. 2021 Oct 21.
    • News
    • IMProving care After inherited Cancer Testing (IMPACT) study: protocol of a randomized trial evaluating the efficacy of two interventions designed to improve cancer risk management and family communication of genetic test results.
    • Cragun D, Beckstead J, Farmer M, Hooker G, Dean M, Matloff E, Reid S, Tezak A, Weidner A, Whisenant JG, Pal T.
    • BMC Cancer. 2021 Oct 13;21(1):1099. doi: 10.1186/s12885-021-08822-4.
    • Communication processes about predictive genetic testing within high-risk breast cancer families: a two-phase study design.
    • Blomen CL, Pott A, Volk AE, Budäus L, Witzel I.
    • Sci Rep. 2021 Oct 11;11(1):20178. doi: 10.1038/s41598-021-98737-8.
    • Coping response and family communication of cancer risk in men harboring a BRCA mutation: A mixed methods study.
    • Dwyer AA, Hesse-Biber S, Shea H, Zeng Z, Yi S.
    • Psychooncology. 2021 Sep 28. doi: 10.1002/pon.5831. Epub ahead of print.
    • Improving our model of cascade testing for hereditary cancer risk by leveraging patient peer support: a concept report.
    • O'Neill SC, Hamilton JG, Conley CC, Peshkin BN, Sacca R, McDonnell GA, Isaacs C, Robson ME, Tercyak KP.
    • Hered Cancer Clin Pract. 2021 Sep 26;19(1):40. doi: 10.1186/s13053-021-00198-7.
    • Feasibility of genetic testing for cancer risk assessment programme in Nigeria.
    • Adejumo PO, Aniagwu TIG, Awolude OA, Oni AO, Ajayi OO, Fagbenle O, Ogungbade D, Kochheiser M, Ogundiran T, Olopade OI.
    • Ecancermedicalscience. 2021 Sep 7;15:1283. doi: 10.3332/ecancer.2021.1283.
    • Pretest Genetic Education Video Versus Genetic Counseling for Men Considering Prostate Cancer Germline Testing: A Patient-Choice Study to Address Urgent Practice Needs.
    • Russo J, McDougall C, Bowler N, Shimada A, Gross L, Hyatt C, Kelly WK, Calvaresi A, Handley NR, Hirsch IH, Izes JK, Lallas CD, Mann M, Mark JR, Mille PJ, Preate D Jr, Trabulsi EJ, Tsang M, Chandrasekar T, Weiner PR, Gomella LG, Giri VN.
    • JCO Precis Oncol. 2021 Sep 1;5:PO.21.00238. doi: 10.1200/PO.21.00238.

    Related:

    Research news: Men Give Thumbs Up to Video on Genetic Testing in Prostate Cancer. (Medscape Oncology)

    • Patient-Reported Outcomes following Genetic Testing for Familial Hypercholesterolemia, Breast and Ovarian Cancer Syndrome, and Lynch Syndrome: A Systematic Review.
    • Hendricks-Sturrup RM, Joseph L, Lu CY.
    • J Pers Med. 2021 Aug 27;11(9):850. doi: 10.3390/jpm11090850.
    • Barriers to family history knowledge and family communication among LGBTQ+ individuals in the context of hereditary cancer risk assessment.
    • Rolf BA, Schneider JL, Amendola LM, Davis JV, Mittendorf KF, Schmidt MA, Jarvik GP, Wilfond BS, Goddard KAB, Ezzell Hunter J.
    • J Genet Couns. 2021 Jul 23. doi: 10.1002/jgc4.1476. Epub ahead of print.
    • Cancer surveillance awareness and practice among families at increased risk for pancreatic adenocarcinoma.
    • Everett JN, Burgos G, Chun J, Baptiste A, Khanna LG, Oberstein PE, Simeone DM.
    • Cancer. 2021 Jul 1;127(13):2271-2278. doi: 10.1002/cncr.33500. Epub 2021 Mar 15.
    • Disclosure of familial implications of pathogenic variants in breast-cancer genes to patients: Opportunity for prompting family communication.
    • Makhnoon S, Smith HS, Bednar EM, Bhatt A, Turner L, Arun B, Volk RJ, Peterson SK.
    • J Community Genet. 2021 Jul;12(3):439-447. doi: 10.1007/s12687-021-00504-9. Epub 2021 Jan 22.
    • Genetic Testing Challenges in Oncology: Inaccurate Patient Claims Complicate Cancer Risk Management.
    • Ray T.
    • Precision Oncology News. Biomarkers. BRCA. 2021 Jun 30.

    Related:

    Blog post: Genetic Testing Challenges in Oncology: Inaccurate Patient Claims Complicate Cancer Risk Management. (My Gene Counsel)

    • One Woman’s Breast Cancer Journey: It’s Not Just About the Breast.
    • [No author given]
    • FORCE. Blog. 2021 Jun 21.

    Related:

    Information: It's Not (Just) About the Breast. (Well Strong Courage)

    • Ashkenazi Dads Can Pass the BRCA Mutation to Their Kids. It Turns Out I Did.
    • Hertz B.
    • Kveller. 2021 Jun 14.

    Related:

    Blog post: Surviving, and Thriving, as a Dad with a Cancer Gene Mutation. (FORCE Blog)

    • Using a Tailored Digital Health Intervention for Family Communication and Cascade Genetic Testing in Swiss and Korean Families With Hereditary Breast and Ovarian Cancer: Protocol for the DIALOGUE Study.
    • Kim S, Aceti M, Baroutsou V, Bürki N, Caiata-Zufferey M, Cattaneo M, Chappuis PO, Ciorba FM, Graffeo-Galbiati R, Heinzelmann-Schwarz V, Jeong J, Jung MM, Kim SW, Kim J, Lim MC, Ming C, Monnerat C, Park HS, Park SH, Pedrazzani CA, Rabaglio M, Ryu JM, Saccilotto R, Wieser S, Zürrer-Härdi U, Katapodi MC.
    • JMIR Res Protoc. 2021 Jun 11;10(6):e26264. doi: 10.2196/26264.
    • The impact of a cascade testing video on recipients' knowledge, cognitive message processing, and affective reactions: A formative evaluation.
    • Aeilts AM, Carpenter KM, Hovick SR, Byrne L, Shoben AB, Senter L.
    • J Genet Couns. 2021 Jun;30(3):656-664. doi: 10.1002/jgc4.1345. Epub 2020 Nov 3.
    • How patients deal with an ambiguous medical test: Decision-making after genetic testing.
    • Scherr CL, Ramesh S, Getachew-Smith H, Kalke K, Ramsey K, Fischhoff B, Vadaparampil ST.
    • Patient Educ Couns. 2021 May;104(5):953-959. doi: 10.1016/j.pec.2020.10.020. Epub 2020 Oct 18.
    • Baseline knowledge and receptiveness to genetic testing for hereditary breast and ovarian cancer syndromes in Chinese high-risk females.
    • Chu AT, Tse DM, Suen DTK, Kwong A.
    • J Community Genet. 2021 Apr 30. doi: 10.1007/s12687-021-00518-3. Epub ahead of print.
    • Psychological Distress and Coping Ability of Women at High Risk of Hereditary Breast and Ovarian Cancer before Undergoing Genetic Counseling-An Exploratory Study from Germany.
    • Vajen B, Rosset M, Wallaschek H, Baumann E, Schlegelberger B.
    • Int J Environ Res Public Health. 2021 Apr 19;18(8):4338. doi: 10.3390/ijerph18084338.
    • Psychosocial factors related to BRCA1/2 disclosures.
    • Timbs M.
    • Nursing. 2021 Apr 1;51(4):58-61. doi: 10.1097/01.NURSE.0000733956.47297.e6.
    • Sharing genetic test results with family members of BRCA, PALB2, CHEK2, and ATM carriers.
    • Dean M, Tezak AL, Johnson S, Pierce JK, Weidner A, Clouse K, Pal T, Cragun D.
    • Patient Educ Couns. 2021 Apr;104(4):720-725. doi: 10.1016/j.pec.2020.12.019. Epub 2021 Jan 5.
    • What improves the likelihood of people receiving genetic test results communicating to their families about genetic risk?
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    • Letter

    Related:

    Original research:

    Assessing relatives' readiness for hereditary cancer cascade genetic testing.

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    Related:

    Letter:

    Correspondence on "Assessing relatives' readiness for hereditary cancer cascade genetic testing" by Bednar et al.

    • Ethical Issues in Genetic Testing for Inherited Cancer Predisposition Syndromes: the Potentially Conflicting Interests of Patients and Their Relatives.
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    Related:

    Press: Genome Sequencing in Newborns Raises Ethical Issues (NY Times/Reuters)

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    Related:

    Commentary:

    Our genes, our selves: hereditary breast cancer and biological citizenship in Norway.

    Our genes, our selves: hereditary breast cancer and biological citizenship in Norway.

    • Family communication and patient distress after germline genetic testing in individuals with pancreatic ductal adenocarcinoma.
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    Related:

    Letter, reply:

    Response to Peshkin, Isaacs, and Schwartz.

    Original research:

    Cascade Genetic Testing of Relatives for Hereditary Cancer Risk: Results of an Online Initiative.

    • Legacies and Relationships: Diverse Social Networks and BRCA1/2 Risk Management Decisions and Actions.
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    • J Natl Cancer Inst. 2019 Jan 1;111(1):95-98. doi: 10.1093/jnci/djy147.

    Related:

    Letter, comment:

    RE: Cascade Genetic Testing of Relatives for Hereditary Cancer Risk: Results of an Online Initiative.

    Letter, reply:

    Response to Peshkin, Isaacs, and Schwartz.

    • The uptake of presymptomatic genetic testing in hereditary breast-ovarian cancer and Lynch syndrome: a systematic review of the literature and implications for clinical practice.
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    • Our genes, our selves: hereditary breast cancer and biological citizenship in Norway.
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    Related:

    Our genes, our selves: hereditary breast cancer and biological citizenship in Norway.

    Commentary, Reply:

    Scientific supremacy as an obstacle to establishing and sustaining interdisciplinary dialogue across knowledge paradigms in health medicine.

    • Genetic Privacy, Disease Prevention, and the Principle of Rescue.
    • Kilbride MK.
    • Hastings Cent Rep. 2018 May;48(3):10-17. doi: 10.1002/hast.849.
    • Communicating with Daughters About Familial Risk of Breast Cancer: Individual, Family, and Provider Influences on Women's Knowledge of Cancer Risk.
    • Peipins LA, Rodriguez JL, Hawkins NA, Soman A, White MC, Hodgson ME, DeRoo LA, Sandler DP.
    • J Womens Health (Larchmt). 2018 May;27(5):630-639. doi: 10.1089/jwh.2017.6528. Epub 2018 Jan 29.
    • Development of a Web-based Family Intervention for BRCA Carriers and Their Biological Relatives: Acceptability, Feasibility, and Usability Study.
    • Katapodi MC, Jung M, Schafenacker AM, Milliron KJ, Mendelsohn-Victor KE, Merajver SD, Northouse LL.
    • JMIR Cancer. 2018 Apr 13;4(1):e7. doi: 10.2196/cancer.9210.
    • Is there a "right time" for bad news? Kairos in familial communication on hereditary breast and ovarian cancer risk.
    • Derbez B.
    • Soc Sci Med. 2018 Apr;202:13-19. doi: 10.1016/j.socscimed.2018.02.022. Epub 2018 Feb 23.
    • Involvement and Influence of Healthcare Providers, Family Members, and Other Mutation Carriers in the Cancer Risk Management Decision-Making Process of BRCA1 and BRCA2 Mutation Carriers.
    • Puski A, Hovick S, Senter L, Toland AE.
    • J Genet Couns. 2018 Mar 29. doi: 10.1007/s10897-018-0254-4. [Epub ahead of print]
    • Take your time, follow your heart: strategies for communication about family planning.
    • [No author given]
    • FORCE. XRAYS. 2018 Mar 28.

    Related:

    "Take your time, then follow your heart:" Previvors' advice for communicating about family planning after testing positive for a BRCA genetic variant.

    • The Right Not to Know: When Ignorance Is Bliss but Deadly.
    • Clausen AM.
    • Global Health NOW. 2018 Mar 20.

    Related:

    Commentary: The right not to know when not knowing is dangerous. (FORCE. XRAYS.)

    • Factors Influencing Clinical Follow-Up for Individuals with a Personal History of Breast and/or Ovarian Cancer and Previous Uninformative BRCA1 and BRCA2 Testing.
    • Chadwell SE, He H, Knapke S, Lewis J, Sisson R, Hopper J.
    • J Genet Couns. 2018 Mar 17. doi: 10.1007/s10897-018-0241-9. [Epub ahead of print]
    • Factors influencing the decision to share cancer genetic results among family members: an in-depth interview study of women in an Asian setting.
    • Li ST, Sun S, Lie D, Met-Domestici M, Courtney E, Menon S, Lim GH, Ngeow J.
    • Psychooncology. 2018 Mar;27(3):998-1004. doi: 10.1002/pon.4627. Epub 2018 Jan 24.
    • Estimating the number of potential family members eligible for BRCA1 and BRCA2 mutation testing in a "Traceback" approach.
    • Moss HA, Samimi G, Havrilesky LJ, Sherman ME, Myers ER.
    • Genet Epidemiol. 2018 Feb;42(1):117-122. doi: 10.1002/gepi.22095. Epub 2017 Nov 30.
    • Communication of cancer-related genetic and genomic information: A landscape analysis of reviews.
    • Peterson EB, Chou WS, Gaysynsky A, Krakow M, Elrick A, Khoury MJ, Kaphingst KA.
    • Transl Behav Med. 2018 Jan 29;8(1):59-70. doi: 10.1093/tbm/ibx063.
    • "Take your time, then follow your heart:" Previvors' advice for communicating about family planning after testing positive for a BRCA genetic variant.
    • Rauscher EA, Dean M.
    • Fam Syst Health. 2017 Dec;35(4):486-497. doi: 10.1037/fsh0000312.

    Related:

    Research news: Take your time, follow your heart: strategies for communication about family planning. (FORCE. XRAYS.)

    • Quantifying family dissemination and identifying barriers to communication of risk information in Australian BRCA families.
    • Healey E, Taylor N, Greening S, Wakefield CE, Warwick L, Williams R, Tucker K.
    • Genet Med. 2017 Dec;19(12):1323-1331. doi: 10.1038/gim.2017.52. Epub 2017 May 11.
    • Family Communication, Risk Perception and Cancer Knowledge of Young Adults from BRCA1/2 Families: a Systematic Review.
    • Young AL, Butow PN, Vetsch J, Quinn VF, Patenaude AF, Tucker KM, Wakefield CE.
    • J Genet Couns. 2017 Dec;26(6):1179-1196. doi: 10.1007/s10897-017-0125-4. Epub 2017 Jun 30.
    • Review
    • Genetics of Breast and Gynecologic Cancers (PDQ®): Health Professional Version. Psychosocial Issues in Inherited Breast and Ovarian Cancer Syndromes. Family Effects.
    • PDQ Cancer Genetics Editorial Board.
    • PDQ Cancer Information Summaries [Internet]. Bethesda, MD: National Cancer Institute. Updated 2017 Nov 30. Accessed 2017 Dec 8.
    • Experiences of "openness" between mothers & daughters during breast cancer: implications for coping and healthy outcomes.
    • Fisher CL, Wolf BM, Fowler C, Canzona MR.
    • Psychooncology. 2017 Nov;26(11):1872-1880. doi: 10.1002/pon.4253. Epub 2016 Sep 20.
    • All in the family? Communication of cancer survivors with their families.
    • Bowen DJ, Hay JL, Harris-Wai JN, Meischke H, Burke W.
    • Fam Cancer. 2017 Oct;16(4):597-603. doi: 10.1007/s10689-017-9987-8.
    • Cancer Predisposition Cascade Screening for Hereditary Breast/Ovarian Cancer and Lynch Syndromes in Switzerland: Study Protocol.
    • Katapodi MC, Viassolo V, Caiata-Zufferey M, Nikolaidis C, Bührer-Landolt R5, Buerki N, Graffeo R, Horváth HC, Kurzeder C, Rabaglio M, Scharfe M, Urech C, Erlanger TE, Probst-Hensch N, Heinimann K, Heinzelmann-Schwarz V, Pagani O, Chappuis PO.
    • JMIR Res Protoc. 2017 Sep 20;6(9):e184. doi: 10.2196/resprot.8138.
    • When to Tell Daughters About a Genetic Breast Cancer Risk.
    • Jill Werman Harris
    • New York Times, Well | Family, 2017 Apr 20.
    • Issues Arising in Psychological Consultations to Help Parents Talk to Minor and Young Adult Children about their Cancer Genetic Test Result: a Guide to Providers.
    • Patenaude AF, Schneider KA.
    • J Genet Couns. 2017 Apr;26(2):251-260. doi: 10.1007/s10897-016-0010-6. Epub 2016 Oct 3.
    • Recruiting families at risk for hereditary breast and ovarian cancer from a statewide cancer registry: a methodological study.
    • Katapodi MC, Duquette D, Yang JJ, Mendelsohn-Victor K, Anderson B, Nikolaidis C, Mancewicz E, Northouse LL, Duffy S, Ronis D, Milliron KJ, Probst-Herbst N, Merajver SD, Janz NK, Copeland G, Roberts S.
    • Cancer Causes Control. 2017 Mar;28(3):191-201. doi: 10.1007/s10552-017-0858-2. Epub 2017 Feb 14.
    • Our genes, our selves: hereditary breast cancer and biological citizenship in Norway.
    • Solbrække KN, Søiland H, Lode K, Gripsrud BH.
    • Med Health Care Philos. 2017 Mar;20(1):89-103. doi: 10.1007/s11019-016-9737-y.

    Related:

    Commentary:

    Our genes, our selves: hereditary breast cancer and biological citizenship in Norway.

    Commentary, Reply:

    Scientific supremacy as an obstacle to establishing and sustaining interdisciplinary dialogue across knowledge paradigms in health medicine.

    • Psychosocial and Clinical Factors Associated with Family Communication of Cancer Genetic Test Results among Women Diagnosed with Breast Cancer at a Young Age.
    • Elrick A, Ashida S, Ivanovich J, Lyons S, Biesecker BB, Goodman MS, Kaphingst KA.
    • J Genet Couns. 2017 Feb;26(1):173-181. doi: 10.1007/s10897-016-9995-0. Epub 2016 Jul 16.
    • Cancer Risk Information Sharing: The Experience of Individuals Receiving Genetic Counseling for BRCA1/2 Mutations.
    • Chopra I, Kelly KM.
    • J Health Commun. 2017 Feb;22(2):143-152. doi: 10.1080/10810730.2016.1258743. Epub 2017 Jan 23.
    • Preparing young people for future decision-making about cancer risk in families affected or at risk from hereditary breast cancer: A qualitative interview study.
    • Rowland E, Plumridge G, Considine AM, Metcalfe A.
    • Eur J Oncol Nurs. 2016 Dec;25:9-15. doi: 10.1016/j.ejon.2016.08.006. Epub 2016 Sep 20.
    • Design and Feasibility of an Intervention to Support Cancer Genetic Counselees in Informing their At-Risk Relatives.
    • de Geus E, Eijzenga W, Menko FH, Sijmons RH, de Haes HC, Aalfs CM, Smets EM.
    • J Genet Couns. 2016 Dec;25(6):1179-1187. Epub 2016 Apr 22.

    Related:

    Webinar: June 2016 Webinar: Spreading the word: a review of two family communication intervention studies. (NSGC. Cancer SIG. Webinar Recordings. 2016 Jun 29.)

    • How Patients Can Share Their Data.
    • [No author given]
    • My Gene Counsel. 2016 Oct 7.
    • Modeling the dyadic effects of parenting, stress, and coping on parent-child communication in families tested for hereditary breast-ovarian cancer risk.
    • Hamilton JG, Mays D, DeMarco T, Tercyak KP.
    • Fam Cancer. 2016 Oct;15(4):513-22. doi: 10.1007/s10689-016-9876-6.
    • Communicating genetic test results within the family: Is it lost in translation? A survey of relatives in the randomized six-step study.
    • Daly MB, Montgomery S, Bingler R, Ruth K.
    • Fam Cancer. 2016 Oct;15(4):697-706. doi: 10.1007/s10689-016-9889-1.

    Related:

    Comments on NSGC Discussion Forum Cancer SIG

    Subject: Register for June Journal Club; Reminder, webinar this Friday

    Webinar: June 2016 Webinar: Spreading the word: a review of two family communication intervention studies (NSGC Cancer SIG: Webinar Recordings)

    • Predictors of Self-Reported Family Health History of Breast Cancer.
    • Ricks-Santi LJ, Thompson N, Ewing A, Harrison B, Higginbotham K, Spencer C, Laiyemo A, DeWitty R, Wilson L, Horton S, Dunmore-Griffith J, Williams C, Frederick W.
    • J Immigr Minor Health. 2016 Oct;18(5):1175-82. doi: 10.1007/s10903-015-0253-6.
    • Multigene Panel Tests Yield Clues to Breast and Ovarian Cancer Risk.
    • Greg Kennelty.
    • Oncology Nursing News. 2016 Aug 3.
    • The psychological impact of genetic information on children: a systematic review.
    • Wakefield CE, Hanlon LV, Tucker KM, Patenaude AF, Signorelli C, McLoone JK, Cohn RJ.
    • Genet Med. 2016 Aug;18(8):755-62. doi: 10.1038/gim.2015.181. Epub 2016 Jan 7.

    Related:

    Commentary:

    Predictive genetic testing of minors: evidence and experience with families.

    • June 2016 Webinar: Spreading the word: a review of two family communication intervention studies.
    • Ilana Solomon.
    • NSGC. Cancer SIG. Webinar Recordings. 2016 Jun 29.

    Related:

    Communicating genetic test results within the family: Is it lost in translation? A survey of relatives in the randomized six-step study.

    Design and Feasibility of an Intervention to Support Cancer Genetic Counselees in Informing their At-Risk Relatives.

    • Communication Between Breast Cancer Patients Who Received Inconclusive Genetic Test Results and Their Daughters and Sisters Years After Testing.
    • Baars JE, Ausems MG, van Riel E, Kars MC, Bleiker EM.
    • J Genet Couns. 2016 Jun;25(3):461-71. doi: 10.1007/s10897-015-9889-6. Epub 2015 Oct 8.
    • Coping Together, Side by Side: Enriching Mother–Daughter Communication Across the Breast Cancer Journey. Written by Carla L. Fisher. Hampton Press Inc., New York, NY, 2014. 242 pp. Price: $29.95 (US), ₤17.01 (UK). ISBN: 978-1612891415 (paperbound).
    • David Wellisch, Valerie Yarema.
    • Psycho-Oncology. 25(6):744. doi: 10.1002/pon.4122. 2016 Jun.
    • Book review
    • Parental Decision Making Regarding the Disclosure or Nondisclosure of a Mutation-Positive BRCA1/2 Test Result to Minors.
    • Seenandan-Sookdeo KA, Hack TF, Lobchuk M, Murphy L, Marles S.
    • Oncol Nurs Forum. 2016 May 1;43(3):330-41. doi: 10.1188/16.ONF.330-341.
    • The impact of an interventional counselling procedure in families with a BRCA1/2 gene mutation: efficacy and safety.
    • Sermijn E, Delesie L, Deschepper E, Pauwels I, Bonduelle M, Teugels E, De Grève J.
    • Fam Cancer. 2016 Apr;15(2):155-62. doi: 10.1007/s10689-015-9854-4.
    • Breast Cancer Risk Perceptions among Relatives of Women with Uninformative Negative BRCA1/2 Test Results: The Moderating Effect of the Amount of Shared Information.
    • Himes DO, Clayton MF, Donaldson GW, Ellington L, Buys SS, Kinney AY.
    • J Genet Couns. 2016 Apr;25(2):258-69. doi: 10.1007/s10897-015-9866-0. Epub 2015 Aug 7.
    • The Double Helix: Applying an Ethic of Care to the Duty to Warn Genetic Relatives of Genetic Information.
    • Weaver M.
    • Bioethics. 2016 Mar;30(3):181-7. doi: 10.1111/bioe.12176. Epub 2015 Jul 21.
    • Strategies for recruitment of relatives of BRCA mutation carriers to a genetic testing program in the Bahamas.
    • Trottier M, Lunn J, Butler R, Curling D, Turnquest T, Royer R, Akbari MR, Donenberg T, Hurley J, Narod SA.
    • Clin Genet. 2015 Aug;88(2):182-6. doi: 10.1111/cge.12468. Epub 2014 Sep 6.
    • Familial risk for lifestyle-related chronic diseases: can family health history be used as a motivational tool to promote health behaviour in young adults?
    • Prichard I, Lee A, Hutchinson AD, Wilson C.
    • Health Promot J Austr. 2015 Aug;26(2):122-8.
    • Development of the Informing Relatives Inventory (IRI): Assessing Index Patients' Knowledge, Motivation and Self-Efficacy Regarding the Disclosure of Hereditary Cancer Risk Information to Relatives.
    • de Geus E, Aalfs CM, Menko FH, Sijmons RH, Verdam MG, de Haes HC, Smets EM.
    • Int J Behav Med. 2015 Aug;22(4):551-60. doi: 10.1007/s12529-014-9455-x.
    • [Informing the family: emotions and attitudes of oncogenetic counselees for familial breast/ovarian and/or colon cancer risk].
    • Kwiatkowski F, Laquet C, Dessenne P, Bignon YJ.
    • Bull Cancer. 2015 Feb;102(2):162-73. doi: 10.1016/j.bulcan.2014.09.001. Epub 2015 Jan 27.
    • [Article in French]
    • Prevalence and correlates of receiving and sharing high-penetrance cancer genetic test results: findings from the Health Information National Trends Survey.
    • Taber JM, Chang CQ, Lam TK, Gillanders EM, Hamilton JG, Schully SD.
    • Public Health Genomics. [2015 Feb;]18(2):67-77. doi: 10.1159/000368745.
    • Women's concerns about the emotional impact of awareness of heritable breast cancer risk and its implications for their children.
    • O'Neill SC, Mays D, Patenaude AF, Garber JE, DeMarco TA, Peshkin BN, Schneider KA, Tercyak KP.
    • J Community Genet. 2015 Jan;6(1):55-62. doi: 10.1007/s12687-014-0201-5. Epub 2014 Aug 7.
    • Genetic Privacy Part 1: The Case Against.
    • Ellen T. Matloff.
    • My Gene Counsel. 2014 Dec 15.
    • Completeness of pedigree and family cancer history for ovarian cancer patients.
    • Son Y, Lim MC, Seo SS, Kang S, Park SY.
    • J Gynecol Oncol. 2014 Oct;25(4):342-8. doi: 10.3802/jgo.2014.25.4.342. Epub 2014 Aug 5.
    • Distress and the parenting dynamic among BRCA1/2 tested mothers and their partners.
    • Mays D, DeMarco TA, Luta G, Peshkin BN, Patenaude AF, Schneider KA, Garber JE, Tercyak KP.
    • Health Psychol. 2014 Aug;33(8):765-73. doi: 10.1037/a0033418. Epub 2013 Jun 24.
    • Disclosure Pattern and Follow-Up After the Molecular Diagnosis of BRCA/CHEK2 Mutations.
    • Kegelaers D, Merckx W, Odeurs P, van den Ende J, Blaumeiser B.
    • J Genet Couns. 2014 Apr;23(2):254-61. doi: 10.1007/s10897-013-9656-5. Epub 2013 Oct 11.
    • [Psychological and familial aspects of the familial breast and ovarian cancer genetic counseling process].
    • Flugelman A, Rennert G, Eidelman S.
    • Harefuah. 2014 Jan;153(1):22-6, 65.
    • Review, [Article in Hebrew]
    • Is the psychological impact of genetic testing moderated by support and sharing of test results to family and friends?
    • Lapointe J, Dorval M, Noguès C, Fabre R; GENEPSO Cohort, Julian-Reynier C.
    • Fam Cancer. 2013 Dec;12(4):601-10. doi: 10.1007/s10689-013-9621-3.
    • Experience of BRCA1/2 mutation-negative young women from families with hereditary breast and ovarian cancer: a qualitative study.
    • Macrae L, de Souza AN, Loiselle CG, Wong N.
    • Hered Cancer Clin Pract. 2013 Oct 16;11(1):14. doi: 10.1186/1897-4287-11-14.
    • Family Communication of BRCA1/2 Results and Family Uptake of BRCA1/2 Testing in a Diverse Population of BRCA1/2 Carriers.
    • Fehniger J, Lin F, Beattie MS, Joseph G, Kaplan C.
    • J Genet Couns. 2013 Oct;22(5):603-12. doi: 10.1007/s10897-013-9592-4. Epub 2013 May 12.
    • Preparing individuals to communicate genetic test results to their relatives: report of a randomized control trial.
    • Montgomery SV, Barsevick AM, Egleston BL, Bingler R, Ruth K, Miller SM, Malick J, Cescon TP, Daly MB.
    • Fam Cancer. 2013 Sep;12(3):537-546.
    • Young adult daughters of BRCA1/2 positive mothers: What do they know about hereditary cancer and how much do they worry?
    • Patenaude AF, Tung N, Ryan PD, Ellisen LW, Hewitt L, Schneider KA, Tercyak KP, Aldridge J, Garber JE.
    • Psychooncology. 2013 Sep;22(9):2024-31. doi: 10.1002/pon.3257. Epub 2013 Feb 18.
    • Decisional Outcomes of Maternal Disclosure of BRCA1/2 Genetic Test Results to Children.
    • Tercyak KP, Mays D, Demarco TA, Peshkin BN, Valdimarsdottir HB, Schneider KA, Garber JE, Patenaude AF.
    • Cancer Epidemiol Biomarkers Prev. 2013 Jul;22(7):1260-6. doi: 10.1158/1055-9965.EPI-13-0198.

    Related:

    Press: Telling kids about breast cancer genetic testing. (CNN)

    Press: Full Disclosure: Why Moms Share Results of Their Genetic Breast Cancer Tests With Their Kids. (Time)

    • Talking to children about maternal BRCA1/2 genetic test results: a qualitative study of parental perceptions and advice.
    • Farkas Patenaude A, DeMarco TA, Peshkin BN, Valdimarsdottir H, Garber JE, Schneider KA, Hewitt L, Hamilton J, Tercyak KP.
    • J Genet Couns. 2013 Jun;22(3):303-14. doi: 10.1007/s10897-012-9549-z. Epub 2012 Oct 24.
    • Family Communication Following BRCA1/2 Genetic Testing: A Close Look at the Process.
    • Lafrenière D, Bouchard K, Godard B, Simard J, Dorval M.
    • J Genet Couns. 2013 Jun;22(3):323-35. doi: 10.1007/s10897-012-9559-x. Epub 2012 Dec 16.
    • Intrafamilial disclosure of risk for hereditary breast and ovarian cancer: points to consider.
    • Black L, McClellan KA, Avard D, Knoppers BM.
    • J Community Genet. 2013 Apr;4(2):203-14. doi: 10.1007/s12687-012-0132-y. Epub 2012 Dec 29.
    • Life Events may Contribute to Family Communication About Cancer Risk Following BRCA1/2 Testing.
    • Lapointe J, Côté C, Bouchard K, Godard B, Simard J, Dorval M.
    • J Genet Couns. 2013 Apr;22(2):249-257. Epub 2012 Aug 15.
    • The counselees' self-reported request for psychological help in genetic counseling for hereditary breast/ovarian cancer: not only psychopathology matters.
    • Vos J, van Asperen CJ, Oosterwijk JC, Menko FH, Collee MJ, Garcia EG, Tibben A.
    • Psychooncology. 2013 Apr;22(4):902-10. doi: 10.1002/pon.3081. Epub 2012 Jun 27.
    • Dealing with the unexpected: consumer responses to direct-access BRCA mutation testing.
    • Francke U, Dijamco C, Kiefer AK, Eriksson N, Moiseff B, Tung JY, Mountain JL.
    • PeerJ. 2013 Feb 12;1:e8. doi: 10.7717/peerj.8. Print 2013.

    Related:

    Comments on NSGC Discussion Forum

    Subject: Current thoughts on 23andme?

    Press: Consumers have few negative reactions to the results of genetic testing for cancer mutations. (EurekAlert!)

    Press: Get ready for the risks of genetic testing. (CNN)

    • Family communication of genetic test results and uptake of genetic testing in a diverse population of BRCA1 and BRCA2 (BRCA1/2) carriers.
    • Fehniger J, Lin F, Beattie M.
    • Gynecol Oncol 2012 Oct;127(1):s22-3. doi: 10.1016/j.ygyno.2012.07.062.
    • Conference abstract
    • Spontaneous disclosure of BRCA1/2 genetic test results to employers: a French prospective study.
    • Eisinger F, Fabre R, Lasset C, Stoppa-Lyonnet D, Julian-Reynier C, Nogues C.
    • Eur J Hum Genet. 2012 Sep;20(9):981-3. doi: 10.1038/ejhg.2012.37. Epub 2012 Feb 29.
    • How should we discuss genetic testing with women newly diagnosed with breast cancer? Design and implementation of a randomized controlled trial of two models of delivering education about treatment-focused genetic testing to younger women newly diagnosed with breast cancer.
    • Watts KJ, Meiser B, Mitchell G, Kirk J, Saunders C, Peate M, Duffy J, Kelly PJ, Gleeson M, Barlow-Stewart K, Rahman B, Friedlander M, Tucker K; TFGT Collaborative Group.
    • BMC Cancer. 2012 Jul 28;12:320. doi: 10.1186/1471-2407-12-320.
    • Grace Rock's consent.
    • Ross TS.
    • Endocr Relat Cancer. 2012 Jul 22;19(4):C29-31. doi: 10.1530/ERC-12-0186. Print 2012 Aug.
    • When parents disclose BRCA1/2 test results: Their communication and perceptions of offspring response.
    • Bradbury AR, Patrick-Miller L, Egleston BL, Olopade OI, Daly MB, Moore CW, Sands CB, Schmidheiser H, Kondamudi PK, Feigon M, Ibe CN, Daugherty CK.
    • Cancer. 2012 Jul 1;118(13):3417-25. doi: 10.1002/cncr.26471. Epub 2012 Jan 9.

    Related:

    Press: Most parents who get tested for breast cancer genes share results with their children. (EurekAlert!)

    Press: Most Parents Disclose Cancer Gene Results to Children. (Medscape)

    • Parenting through genetic uncertainty: themes in the disclosure of breast cancer risk information to children.
    • Sharff ME, DeMarco TA, Mays D, Peshkin BN, Valdimarsdottir HB, Garber JE, Schneider KA, Patenaude AF, Tercyak KP.
    • Genet Test Mol Biomarkers. 2012 May;16(5):376-82. doi: 10.1089/gtmb.2011.0154. Epub 2011 Nov 15.
    • A Pilot study of the Sharing Risk Information Tool (ShaRIT) for Families with Hereditary Breast and Ovarian Cancer Syndrome.
    • Kardashian A, Fehniger J, Creasman J, Cheung E, Beattie MS.
    • Hered Cancer Clin Pract. 2012 Apr 12;10(1):4. doi: 10.1186/1897-4287-10-4.
    • Sources of Uncertainty About Daughters' Breast Cancer Risk that Emerge During Genetic Counseling Consultations.
    • Bylund CL, Fisher CL, Brashers D, Edgerson S, Glogowski EA, Boyar SR, Kemel Y, Spencer S, Kissane D.
    • J Genet Couns. 2012 Apr;21(2):292-304. Epub 2011 Aug 11.
    • The impact of social and personal resources on psychological distress in women at risk for hereditary breast cancer.
    • den Heijer M, Vos J, Seynaeve C, Vanheusden K, Duivenvoorden HJ, Tilanus-Linthorst M, Menke-Pluymers MB, Tibben A.
    • Psychooncology. 2012 Feb;21(2):153-60. doi: 10.1002/pon.1879. Epub 2010 Dec 2.
    • Children can take news calmly when parents tell them about family breast cancer risk.
    • [No authors listed]
    • Nurs Stand. 2012 Jan 25;26(21):17. doi: 10.7748/ns.26.21.17.s23.
    • Research News
    • Incidence and predictors of positive and negative effects of BRCA1/2 genetic testing on familial relationships: a 3-year follow-up study.
    • Lapointe J, Bouchard K, Patenaude AF, Maunsell E, Simard J, Dorval M.
    • Genet Med. 2012 Jan;14(1):60-8. doi: 10.1038/gim.0b013e3182310a7f. Epub 2011 Sep 26.
    • Do Breast Cancer Patients Tested in the Oncology Care Setting Share BRCA Mutation Results with Family Members and Health Care Providers?
    • Vadaparampil ST, Malo T, de la Cruz C, Christie J.
    • J Cancer Epidemiol. 2012;2012:498062. Epub 2012 Jul 15.
    • What women with breast cancer discuss with clinicians about risk for their adolescent daughters.
    • Maloney E, Edgerson S, Robson M, Offit K, Brown R, Bylund C, Kissane DW.
    • J Psychosoc Oncol. 2012;30(4):484-502. doi: 10.1080/07347332.2012.684855.