Approaches specifically used to facilitate sharing of genetic counseling/testing results with appropriate family members
List was last updated on
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- Disparities in the uptake of cascade genetic testing among family members of mutation-positive lynch and HBOC syndrome patients. [2022 CGA-IGC Annual Meeting: The collaborative group of the Americas on Inherited Gastrointestinal Cancer November 11–13, 2022.]
- Namey E, Dudley B, Horton C, Carraway C, Zhou J, Hatton W, Komala T, Milliard C, Namey T, Karloski E, Brand R.
- Fam Cancer. [O-05: Research Categories» Lynch syndrome.] 2023 Jan 23. doi: 10.1007/s10689-022-00324-x. Epub ahead of print.
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- Predicting Openness of Communication in Families With Hereditary Breast and Ovarian Cancer Syndrome: Natural Language Processing Analysis.
- Baroutsou V, Cerqueira Gonzalez Pena R, Schweighoffer R, Caiata-Zufferey M, Kim S, Hesse-Biber S, Ciorba FM, Lauer G, Katapodi M; CASCADE Consortium.
- JMIR Form Res. 2023 Jan 19;7:e38399. doi: 10.2196/38399.
- PMID: 36656633
- PubMed abstract
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- Australasian Genetic Counselors’ Perceptions of Their Role in Supporting Clients’ Behavior Change.
- Jacobs C, Turbitt E, McEwen A, Atkins L.
- J Pers Med. 2022 Dec 23;13(1):30. doi: 10.3390/jpm13010030.
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- BRCAShare-Assessment of an animated digital message for intrafamilial communication of pathogenic variant positive test results: A feasibility study.
- Aeilts AM, Carpenter KM, Hovick SR, Byrne L, Shoben AB, Senter L.
- J Genet Couns. 2022 Nov 25. doi: 10.1002/jgc4.1656. Epub ahead of print.
- PMID: 36426678
- PubMed abstract
- Source abstract
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- Fatalism and metaphor in Confucianism: A qualitative study of barriers to genetic testing among first-degree relatives of hereditary cancer patients from China.
- Jiang C, Liu L, Wang Y, Wu L, Zhang W, Wu X.
- Psychooncology. 2022 Nov 15. doi: 10.1002/pon.6068. Epub ahead of print.
- PMID: 36380559
- PubMed abstract
- Source abstract
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- Uptake of BRCA1/BRCA2 predictive genetic testing in an Irish population is low: a missed opportunity.
- O'Reilly DE, Dooley L, Watson GA, Clarke R, Nolan A, Nolan C, Berkeley E, Farrell M, McDevitt T, Rogers M, Clabby C, Gallagher DJ.
- Ir J Med Sci. 2022 Oct 19. doi: 10.1007/s11845-022-03176-7. Epub ahead of print.
- PMID: 36260241
- PubMed abstract
- Source abstract
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- Relatives from Hereditary Breast and Ovarian Cancer and Lynch Syndrome Families Forgoing Genetic Testing: Findings from the Swiss CASCADE Cohort.
- Sarki M, Ming C, Aceti M, Fink G, Aissaoui S, Bürki N, Graffeo R, Heinimann K, Zufferey MC, Monnerat C, Rabaglio M, Zürrer-Härdi U, Chappuis PO, Katapodi MC.
- J Pers Med. 2022 Oct 19;12(10):1740. doi: 10.3390/jpm12101740.
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- Proband-mediated interventions to increase disclosure of genetic risk in families with a BRCA or Lynch syndrome condition: a systematic review.
- Young AL, Imran A, Spoelma MJ, Williams R, Tucker KM, Halliday J, Forrest LE, Wakefield CE, Butow PN.
- Eur J Hum Genet. 2022 Oct 17. doi: 10.1038/s41431-022-01200-z. Epub ahead of print.
- PMID: 36253533
- PubMed abstract
- Review
- Free Full Text
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- Study: Teens and young adults respond well to learning about familial cancer risk
- [No author given]
- FORCE. XRAY. 2022 Oct 11.
- Research news
- Free Full Text
Original research:
Long-Term Adaptation Among Adolescent and Young Adult Children to Familial Cancer Risk.
- PMID: 35859209
- PubMed abstract
- Source abstract
Commentary:
Breaking Down the Barriers of Hereditary Cancer Risk Disclosure in AYA.
- PMID: 35859132
- PubMed abstract
- Source abstract
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- Barriers to completion of cascade genetic testing: how can we improve the uptake of testing for hereditary breast and ovarian cancer syndrome?
- Kahn RM, Ahsan MD, Chapman-Davis E, Holcomb K, Nitecki R, Rauh-Hain JA, Fowlkes RK, Tubito F, Pires M, Christos PJ, Tkachuk K, Krinsky H, Sharaf RN, Offit K, Lipkin S, Frey MK.
- Fam Cancer. 2022 Oct 8. doi: 10.1007/s10689-022-00316-x. Epub ahead of print.
- PMID: 36207653
- PubMed abstract
- Source abstract
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- Use of a chatbot to increase uptake of cascade genetic testing.
- Schmidlen T, Jones CL, Campbell-Salome G, McCormick CZ, Vanenkevort E, Sturm AC.
- J Genet Couns. 2022 Oct;31(5):1219-1230. doi: 10.1002/jgc4.1592. Epub 2022 May 26.
- PMID: 35616645
- PubMed abstract
- Source abstract
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- Cascade Testing for Hereditary Cancer Syndromes: Should We Move Toward Direct Relative Contact? A Systematic Review and Meta-Analysis.
- Frey MK, Ahsan MD, Bergeron H, Lin J, Li X, Fowlkes RK, Narayan P, Nitecki R, Rauh-Hain JA, Moss HA, Baltich Nelson B, Thomas C, Christos PJ, Hamilton JG, Chapman-Davis E, Cantillo E, Holcomb K, Kurian AW, Lipkin S, Offit K, Sharaf RN.
- J Clin Oncol. 2022 Aug 12:JCO2200303. doi: 10.1200/JCO.22.00303. Epub ahead of print.
- PMID: 35960887
- PubMed abstract
- Source abstract
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- Feasibility, acceptability, and limited efficacy of health system-led familial risk notification: protocol for a mixed-methods evaluation.
- Blasi PR, Scrol A, Anderson ML, Gray MF, Tiffany B, Fullerton SM, Ralston JD, Leppig KA, Henrikson NB.
- Pilot Feasibility Stud. 2022 Aug 9;8(1):174. doi: 10.1186/s40814-022-01142-9.
- PMID: 35945632
- PubMed abstract
- Study protocol
- Free Full Text
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- Motivation and family communication in hereditary prostate cancer genetic testing: Survey of patients from a US tertiary medical center.
- Finn CM, McCormick S, Peterson D, Niendorf KB, Rodgers LH.
- J Genet Couns. 2022 Aug 8. doi: 10.1002/jgc4.1624. Epub ahead of print.
- PMID: 35941805
- PubMed abstract
- Source abstract
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- Long-Term Adaptation Among Adolescent and Young Adult Children to Familial Cancer Risk.
- McDonnell GA, Peshkin BN, DeMarco TA, Peterson SK, Arun BK, Miesfeldt S, O'Neill SC, Schneider K, Garber J, Isaacs C, Luta G, Tercyak KP.
- Pediatrics. 2022 Aug 1;150(2):e2022056339. doi: 10.1542/peds.2022-056339.
- PMID: 35859209
- PubMed abstract
- Source abstract
Commentary:
Breaking Down the Barriers of Hereditary Cancer Risk Disclosure in AYA.
- PMID: 35859132
- PubMed abstract
- Free Full Text
Research news: Study: Teens and young adults respond well to learning about familial cancer risk. (FORCE. XRAYS)
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- Comparing the attitudes of physicians and non-physicians toward communicating a patient's BRCA1 mutation to a first-degree relative against a patient's wishes.
- Zebrack JE, Yang W, Milone M, Coppes MJ.
- J Community Genet. 2022 Aug;13(4):403-410. doi: 10.1007/s12687-022-00591-2. Epub 2022 May 21.
- PMID: 35596048
- PubMed abstract
- Source abstract
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- The Communication Chain of Genetic Risk: Analyses of Narrative Data Exploring Proband–Provider and Proband–Family Communication in Hereditary Breast and Ovarian Cancer.
- Pedrazzani C, Aceti M, Schweighoffer R, Kaiser-Grolimund A, Bürki N, Chappuis PO, Graffeo R, Monnerat C, Pagani O, Rabaglio M, Katapodi MC, Caiata-Zufferey M.
- J Pers Med. 2022 Jul 29;12(8):1249. doi: 10.3390/jpm12081249.
- PMID: 36013197
- PubMed abstract
- Source abstract
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- Article: How your ovarian cancer diagnosis can help your relatives.
- [No author given]
- FORCE. XRAY. 2022 Jul 28.
- Press
- Free Full Text
Press: How to Talk to Loved Ones About Ovarian Cancer Risk. (Healthline)
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- Insight into how patients with prostate cancer interpret and communicate genetic test results: implications for families.
- Leader AE, Mercado J, Klein A, Hyatt C, Gross L, Brandt R, Giri VN.
- J Community Genet. 2022 Jul 22. doi: 10.1007/s12687-022-00603-1. Epub ahead of print.
- PMID: 35869324
- PubMed abstract
- Source abstract
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- A systematic review of theory-informed strategies used in interventions fostering family genetic risk communication.
- Zhao J, Guan Y, McBride CM.
- Patient Educ Couns. 2022 Jul;105(7):1953-1962. doi: 10.1016/j.pec.2022.03.009. Epub 2022 Mar 11.
- PMID: 35304074
- PubMed abstract
- Review
- Free Full Text
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- TRACEBACK: Testing of Historical Tubo-Ovarian Cancer Patients for Hereditary Risk Genes as a Cancer Prevention Strategy in Family Members.
- Delahunty R, Nguyen L, Craig S, Creighton B, Ariyaratne D, Garsed DW, Christie E, Fereday S, Andrews L, Lewis A, Limb S, Pandey A, Hendley J, Traficante N, Carvajal N, Spurdle AB, Thompson B, Parsons MT, Beshay V, Volcheck M, Semple T, Lupat R, Doig K, Yu J, Chen XQ, Marsh A, Love C, Bilic S, Beilin M, Nichols CB, Greer C, Lee YC, Gerty S, Gill L, Newton E, Howard J, Williams R, Norris C, Stephens AN, Tutty E, Smyth C, O'Connell S, Jobling T, Stewart CJR, Tan A, Fox SB, Pachter N, Li J, Ellul J, Mir Arnau G, Young MA, Gordon L, Forrest L, Harris M, Livingstone K, Hill J, Chenevix-Trench G, Cohen PA, Webb PM, Friedlander M, James P, Bowtell D, Alsop K; Australian Ovarian Cancer Study, Ovarian Cancer Prognosis and Lifestyle Study and the TRACEBACK Study.
- J Clin Oncol. 2022 Jun 20;40(18):2036-2047. doi: 10.1200/JCO.21.02108. Epub 2022 Mar 9.
- PMID: 35263119
- PubMed abstract
- Source abstract
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- Healthcare Predictors of Information Dissemination About Genetic Risks.
- Henderson V, Strayhorn SM, Bergeron NQ, Strahan DC, Ganschow PS, Khanna AS, Watson K, Hoskins K, Molina Y.
- Cancer Control. 2022 Jan-Dec [First Published 2022 Jun 6];29:10732748221104666. doi: 10.1177/10732748221104666.
- PMID: 35658635
- PubMed abstract
- Source abstract
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- Helping Patients Understand and Cope with BRCA Mutations.
- Makhnoon S, Arun B, Bedrosian I.
- Curr Oncol Rep. 2022 Jun;24(6):733-740. doi: 10.1007/s11912-022-01254-8. Epub 2022 Mar 18.
- PMID: 35303253
- PubMed abstract
- Review
- Free PMC article
- Free Full Text
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- A new tool is helping families conduct life-saving conversations about hereditary cancer.
- Karavanov A.
- FORCE. Blog. 2022 May 17.
- Blog post
- Free Full Text
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- "I have always lived with the disease in the family": family adaptation to hereditary cancer-risk.
- Silva E, Gomes P, Matos PM, Silva ER, Silva J, Brandão C, Castro F, Neves MC, Sales CMD.
- BMC Prim Care. 2022 Apr 23;23(1):93. doi: 10.1186/s12875-022-01704-z.
- PMID: 35461227
- PubMed abstract
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- A randomized controlled trial comparing self-referred message to family-referred message promoting men's adherence to evidence-based guidelines on BRCA1/2 germline genetic testing: A registered study protocol.
- Petrocchi S, Ongaro G, Calvello M, Feroce I, Bonanni B, Pravettoni G.
- PLoS One. 2022 Apr 8;17(4):e0266327. doi: 10.1371/journal.pone.0266327.
- PMID: 35395021
- PubMed abstract
- Study protocol
- Free PMC article
- Free Full Text
Identifier: NCT04683068: Promoting Men's Adherence to BRCA1/2 Germline Genetic Testing (BRCA-MEN). (ClinicalTrials.gov)
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- Genetic Testing for All: Overcoming Disparities in Ovarian Cancer Genetic Testing.
- Frey MK, Finch A, Kulkarni A, Akbari MR, Chapman-Davis E.
- Am Soc Clin Oncol Educ Book. 2022 Apr;42:1-12. doi: 10.1200/EDBK_350292.
- PMID: 35452249
- PubMed abstract
- Source abstract
- Review
- Free Full Text
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- Outcomes of support groups for carriers of BRCA 1/2 pathogenic variants and their relatives: a systematic review.
- Bertonazzi B, Turchetti D, Godino L.
- Eur J Hum Genet. 2022 Apr;30(4):398-405. doi: 10.1038/s41431-022-01044-7.
- PMID: 35082397
- PubMed abstract
- Review
- Free Full Text
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- Intention to Inform Relatives, Rates of Cascade Testing, and Preference for Patient-Mediated Communication in Families Concerned with Hereditary Breast and Ovarian Cancer and Lynch Syndrome: The Swiss CASCADE Cohort.
- Sarki M, Ming C, Aissaoui S, Bürki N, Caiata-Zufferey M, Erlanger TE, Graffeo-Galbiati R, Heinimann K, Heinzelmann-Schwarz V, Monnerat C, Probst-Hensch N, Rabaglio M, Zürrer-Härdi U, Chappuis PO, Katapodi MC, On Behalf Of The Cascade Consortium.
- Cancers (Basel). 2022 Mar 23;14(7):1636. doi: 10.3390/cancers14071636.
- PMID: 35406409
- PubMed abstract
- Source abstract
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- Hospital-based ovarian cancer patient traceback program results in minimal genetic testing uptake.
- Weinmann S, Phillips S, Sweet K, Cosgrove CM, Senter L.
- Gynecol Oncol. 2022 Mar;164(3):615-621. doi: 10.1016/j.ygyno.2021.12.027. Epub 2022 Jan 5.
- PMID: 34998598
- PubMed abstract
- Source abstract
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- Tennis Star Chris Evert Teaches Us That Genetic Testing Is A Lifetime Match.
- Matloff E.
- Forbes. Healthcare. 2022 Jan 17.
- Commentary
- Free Full Text
News: Tennis Star Chris Evert Teaches Us That Genetic Testing Is a Lifetime Match. (My Gene Counsel)
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- Hereditary Cancer Risk Using a Genetic Chatbot Before Routine Care Visits.
- Nazareth S, Hayward L, Simmons E, Snir M, Hatchell KE, Rojahn S, Slotnick RN, Nussbaum RL.
- Obstet Gynecol. 2021 Dec 1;138(6):860-870. doi: 10.1097/AOG.0000000000004596.
- PMID: 34735417
- PubMed abstract
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- Unselected Women's Experiences of Receiving Genetic Research Results for Hereditary Breast and Ovarian Cancer: A Qualitative Study.
- Forbes Shepherd R, Forrest LE, Tutty E, Pearce A, Devereux L, James PA, Campbell IG, Trainer A, Young MA.
- Genet Test Mol Biomarkers. 2021 Dec;25(12):741-748. doi: 10.1089/gtmb.2021.0115.
- PMID: 34918982
- PubMed abstract
- Source abstract
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- Feasibility of a Traceback Approach for Using Pathology Specimens to Facilitate Genetic Testing in the Genetic Risk Analysis in Ovarian Cancer (GRACE) Study Protocol.
- Kauffman TL, Prado YK, Reyes AA, Zepp JM, Sawyer J, White LL, Martucci J, Salas SB, Vertrees S, Rope AF, Weinmann S, Henrikson NB, Lee SS, Feigelson HS, Hunter JE.
- J Pers Med. 2021 Nov 13;11(11):1194. doi: 10.3390/jpm11111194.
- PMID: 34834546
- PubMed abstract
- Source abstract
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- A Focus Group Study of Perceptions of Genetic Risk Disclosure in Members of the Public in Sweden: "I'll Phone the Five Closest Ones, but What Happens to the Other Ten?".
- Hawranek C, Hajdarevic S, Rosén A.
- J Pers Med. 2021 Nov 12;11(11):1191. doi: 10.3390/jpm11111191.
- PMID: 34834542
- PubMed abstract
- Source abstract
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- Novel Models of Genetic Education and Testing for Pancreatic Cancer Interception: Preliminary Results from the GENERATE Study.
- Furniss CS, Yurgelun MB, Ukaegbu C, Constantinou PE, Lafferty CC, Talcove-Berko ER, Schwartz AN, Stopfer JE, Underhill-Blazey M, Kenner B, Nelson SH, Okumura S, Law S, Zhou AY, Coffin TB, Rodriguez NJ, Uno H, Ocean AJ, McAllister F, Lowy AM, Lippman SM, Klein AP, Madlensky L, Petersen GM, Garber JE, Goggins MG, Maitra A, Syngal S.
- Cancer Prev Res (Phila). 2021 Nov;14(11):1021-1032. doi: 10.1158/1940-6207.CAPR-20-0642. Epub 2021 Oct 8.
- PMID: 34625409
- PubMed abstract
- Source abstract
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- Cascade Genetic Testing for Hereditary Cancer Risk: An Underutilized Tool for Cancer Prevention.
- Whitaker KD, Obeid E, Daly MB, Hall MJ.
- JCO Precis Oncol. 2021 Nov;5:1387-1396. doi: 10.1200/PO.21.00163.
- PMID: 34994636
- PubMed abstract
- Source abstract
- Review
- Free Full Text
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- Do Not Wait: Empowering Other Families by Sharing My Story.
- Johnson F.
- FORCE. Blog. 2021 Oct 28.
- Blog post
- Free Full Text
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- MSK Fellows Develop Online Resource to Increase Awareness of Genetic Cascade Testing.
- Kanski A.
- Precision Oncology News. Technology. 2021 Oct 21.
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- IMProving care After inherited Cancer Testing (IMPACT) study: protocol of a randomized trial evaluating the efficacy of two interventions designed to improve cancer risk management and family communication of genetic test results.
- Cragun D, Beckstead J, Farmer M, Hooker G, Dean M, Matloff E, Reid S, Tezak A, Weidner A, Whisenant JG, Pal T.
- BMC Cancer. 2021 Oct 13;21(1):1099. doi: 10.1186/s12885-021-08822-4.
- PMID: 34645413
- PubMed abstract
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- Communication processes about predictive genetic testing within high-risk breast cancer families: a two-phase study design.
- Blomen CL, Pott A, Volk AE, Budäus L, Witzel I.
- Sci Rep. 2021 Oct 11;11(1):20178. doi: 10.1038/s41598-021-98737-8.
- PMID: 34635688
- PubMed abstract
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- Improving our model of cascade testing for hereditary cancer risk by leveraging patient peer support: a concept report.
- O'Neill SC, Hamilton JG, Conley CC, Peshkin BN, Sacca R, McDonnell GA, Isaacs C, Robson ME, Tercyak KP.
- Hered Cancer Clin Pract. 2021 Sep 26;19(1):40. doi: 10.1186/s13053-021-00198-7.
- PMID: 34565430
- PubMed abstract
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- Cancer surveillance awareness and practice among families at increased risk for pancreatic adenocarcinoma.
- Everett JN, Burgos G, Chun J, Baptiste A, Khanna LG, Oberstein PE, Simeone DM.
- Cancer. 2021 Jul 1;127(13):2271-2278. doi: 10.1002/cncr.33500. Epub 2021 Mar 15.
- PMID: 33721345
- PubMed abstract
- Source abstract
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- Disclosure of familial implications of pathogenic variants in breast-cancer genes to patients: Opportunity for prompting family communication.
- Makhnoon S, Smith HS, Bednar EM, Bhatt A, Turner L, Arun B, Volk RJ, Peterson SK.
- J Community Genet. 2021 Jul;12(3):439-447. doi: 10.1007/s12687-021-00504-9. Epub 2021 Jan 22.
- PMID: 33481188
- PubMed abstract
- Source abstract
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- Using a Tailored Digital Health Intervention for Family Communication and Cascade Genetic Testing in Swiss and Korean Families With Hereditary Breast and Ovarian Cancer: Protocol for the DIALOGUE Study.
- Kim S, Aceti M, Baroutsou V, Bürki N, Caiata-Zufferey M, Cattaneo M, Chappuis PO, Ciorba FM, Graffeo-Galbiati R, Heinzelmann-Schwarz V, Jeong J, Jung MM, Kim SW, Kim J, Lim MC, Ming C, Monnerat C, Park HS, Park SH, Pedrazzani CA, Rabaglio M, Ryu JM, Saccilotto R, Wieser S, Zürrer-Härdi U, Katapodi MC.
- JMIR Res Protoc. 2021 Jun 11;10(6):e26264. doi: 10.2196/26264.
- PMID: 34114954
- PubMed abstract
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- The impact of a cascade testing video on recipients' knowledge, cognitive message processing, and affective reactions: A formative evaluation.
- Aeilts AM, Carpenter KM, Hovick SR, Byrne L, Shoben AB, Senter L.
- J Genet Couns. 2021 Jun;30(3):656-664. doi: 10.1002/jgc4.1345. Epub 2020 Nov 3.
- PMID: 33142025
- PubMed abstract
- Source abstract
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- How patients deal with an ambiguous medical test: Decision-making after genetic testing.
- Scherr CL, Ramesh S, Getachew-Smith H, Kalke K, Ramsey K, Fischhoff B, Vadaparampil ST.
- Patient Educ Couns. 2021 May;104(5):953-959. doi: 10.1016/j.pec.2020.10.020. Epub 2020 Oct 18.
- PMID: 33214013
- PubMed abstract
- Source abstract
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- The Prevent Ovarian Cancer Program (POCP): Identification of women at risk for ovarian cancer using complementary recruitment approaches.
- Tone AA, McCuaig JM, Ricker N, Boghosian T, Romagnuolo T, Stickle N, Virtanen C, Zhang T, Kim RH, Ferguson SE, May T, Laframboise S, Armel S, Demsky R, Volenik A, Stuart-McEwan T, Shaw P, Oza A, Kamel-Reid S, Stockley T, Bernardini MQ.
- Gynecol Oncol. 2021 Apr 13:S0090-8258(21)00321-8. doi: 10.1016/j.ygyno.2021.04.011. Epub ahead of print.
- PMID: 33858678
- PubMed abstract
- Source abstract
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- Psychosocial factors related to BRCA1/2 disclosures.
- Timbs M.
- Nursing. 2021 Apr 1;51(4):58-61. doi: 10.1097/01.NURSE.0000733956.47297.e6.
- PMID: 33759867
- PubMed abstract
- Source abstract
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- Sharing genetic test results with family members of BRCA, PALB2, CHEK2, and ATM carriers.
- Dean M, Tezak AL, Johnson S, Pierce JK, Weidner A, Clouse K, Pal T, Cragun D.
- Patient Educ Couns. 2021 Apr;104(4):720-725. doi: 10.1016/j.pec.2020.12.019. Epub 2021 Jan 5.
- PMID: 33455826
- PubMed abstract
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- What improves the likelihood of people receiving genetic test results communicating to their families about genetic risk?
- Bowen DJ, Makhnoon S, Shirts BH, Fullerton SM, Larson E, Ralston JD, Leppig K, Crosslin DR, Veenstra D, Jarvik GP.
- Patient Educ Couns. 2021 Apr;104(4):726-731. doi: 10.1016/j.pec.2021.01.001. Epub 2021 Jan 7.
- PMID: 33455827
- PubMed abstract
- Source abstract
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- Knowledge and psychosocial impact of genetic counseling and multigene panel testing among individuals with ovarian cancer.
- Pozzar RA, Hong F, Xiong N, Stopfer JE, Nayak MM, Underhill-Blazey M.
- Fam Cancer. 2021 Mar 10. doi: 10.1007/s10689-021-00240-6. Epub ahead of print.
- PMID: 33751319
- PubMed abstract
- Source abstract
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- Interventions Facilitating Family Communication of Genetic Testing Results and Cascade Screening in Hereditary Breast/Ovarian Cancer or Lynch Syndrome: A Systematic Review and Meta-Analysis.
- Baroutsou V, Underhill-Blazey ML, Appenzeller-Herzog C, Katapodi MC.
- Cancers (Basel). 2021 Feb 23;13(4):925. doi: 10.3390/cancers13040925.
- PMID: 33672149
- PubMed abstract
- Source abstract
- Review
- Free PMC article
- Free Full Text
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- Parent-Child Communication and Reproductive Considerations in Families with Genetic Cancer Predisposition Syndromes: A Systematic Review.
- Dattilo TM, Lipak KG, Clark OE, Gehred A, Sampson A, Quinn G, Zajo K, Sutter ME, Bowman-Curci M, Gardner M, Gerhardt CA, Nahata L.
- J Adolesc Young Adult Oncol. 2021 Feb;10(1):15-25. doi: 10.1089/jayao.2020.0084. Epub 2020 Sep 8.
- PMID: 32898455
- PubMed abstract
- Source abstract
- Review
- Free PMC article
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- Facilitated cascade testing (FaCT): a randomized controlled trial.
- Nitecki R, Moss HA, Watson CH, Urbauer DL, Melamed A, Lu KH, Lipkin SM, Offit K, Rauh-Hain JA, Frey MK.
- Int J Gynecol Cancer. 2020 Dec 18:ijgc-2020-002118. doi: 10.1136/ijgc-2020-002118. Epub ahead of print.
- PMID: 33443030
- PubMed abstract
- Source abstract
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- Communication about positive BRCA1 and BRCA2 genetic test results and uptake of testing in relatives in a diverse Asian setting.
- Lee DS, Meiser B, Mariapun S, Hassan T, Yip CH, Mohd Taib NA, Teo SH, Thong MK, Yoon SY.
- J Genet Couns. 2020 Nov 27. doi: 10.1002/jgc4.1360. Epub ahead of print.
- PMID: 33245177
- PubMed abstract
- Source abstract
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- Family communication of genetic test results among women with inherited breast cancer genes.
- Cragun D, Weidner A, Tezak A, Clouse K, Pal T.
- J Genet Couns. 2020 Nov 10. doi: 10.1002/jgc4.1356. Epub ahead of print.
- PMID: 33174380
- PubMed abstract
- Source abstract
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- The mediating effects of public genomic knowledge in precision medicine implementation: A structural equation model approach.
- Mogaka JJO, Chimbari MJ.
- PLoS One. 2020 Oct 14;15(10):e0240585. doi: 10.1371/journal.pone.0240585.
- PMID: 33052984
- PubMed abstract
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- Ethical challenges of precision cancer medicine.
- Winkler EC, Knoppers BM.
- Semin Cancer Biol. 2020 Oct 9:S1044-579X(20)30201-7. doi: 10.1016/j.semcancer.2020.09.009. Epub ahead of print.
- PMID: 33045356
- PubMed abstract
- Source abstract
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- Intrafamilial communication of hereditary breast and ovarian cancer genetic information in Italian women: towards a personalised approach.
- Di Pietro ML, Zaçe D, Orfino A, Di Raimo FR, Poscia A, de Matteis E, Turchetti D, Godino L, Beronazzi B, Franiuk M, Bruzzone C, Varesco L, Lucci-Cordisco E, Genuardi M.
- Eur J Hum Genet. 2020 Sep 14. doi: 10.1038/s41431-020-00723-7. Epub ahead of print.
- PMID: 32929237
- PubMed abstract
- Source abstract
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- Parent of Origin Effects on Family Communication of Risk in BRCA+ Women: A Qualitative Investigation of Human Factors in Cascade Screening.
- Dwyer AA, Hesse-Biber S, Flynn B, Remick S.
- Cancers (Basel). 2020 Aug 17;12(8):2316. doi: 10.3390/cancers12082316.
- PMID: 32824510
- PubMed abstract
- Source abstract
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- From Probands to Relatives: Communication of Genetic Risk for Hereditary Breast-Ovarian Cancer and Its Influence on Subsequent Testing.
- Seven M, Shah LL, Yazici H, Daack-Hirsch S.
- Cancer Nurs. 2020 Aug 13. doi: 10.1097/NCC.0000000000000876. Epub ahead of print.
- PMID: 32804756
- PubMed abstract
- Source abstract
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- Uptake of Family-Specific Mutation Genetic Testing Among Relatives of Patients with Ovarian Cancer with BRCA1 or BRCA2 Mutation.
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Comments on NSGC Discussion Forum Cancer SIG
Subject: Register for June Journal Club; Reminder, webinar this Friday
Webinar: June 2016 Webinar: Spreading the word: a review of two family communication intervention studies (NSGC Cancer SIG: Webinar Recordings)
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- Do Breast Cancer Patients Tested in the Oncology Care Setting Share BRCA Mutation Results with Family Members and Health Care Providers?
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