Educational Tools, Web Resources ~ Patient / Public Education / Opinion / Preference
~ Genetics of Breast & Ovarian Cancer

Any manner of tool, resource, publication, program for increasing the knowledge of patients/clients or the general public on any aspect of HBOC

List was last updated on Dec 3, 2019 @ 7:39 pm.


    • Low rates of cascade genetic testing among families with hereditary gynecologic cancer: An opportunity to improve cancer prevention.
    • Griffin NE, Buchanan TR, Smith SH, Leon AA, Meyer MF, Liu J, Tabak RG, Fuh KC, Thaker PH, Powell MA, Mutch DG, Massad LS, Colditz GA, Hagemann AR.
    • Gynecol Oncol. 2019 Nov 25. pii: S0090-8258(19)31626-9. doi: 10.1016/j.ygyno.2019.11.005. [Epub ahead of print]
    • Development and refinement of FoRtitude: An eHealth intervention to reduce fear of recurrence (FoR) among breast cancer survivors.
    • Wagner LI, Duffecy J, Begale M, Victorson D, Golden SL, Smith ML, Penedo FJ, Mohr DC, Cella D.
    • Psychooncology. 2019 Nov 23. doi: 10.1002/pon.5297. [Epub ahead of print]
    • Health professional and at-risk BRCA young adult perspectives about information needs: What does Gen Y need to know?
    • Young AL, Butow PN, Tucker KM, Williams R, Healey E, Wakefield CE.
    • J Genet Couns. 2019 Sep 19. doi: 10.1002/jgc4.1167. [Epub ahead of print]
    • The Genetic Education for Men (GEM) Trial: Development of Web-Based Education for Untested Men in BRCA1/2-Positive Families.
    • Peshkin BN, Ladd MK, Isaacs C, Segal H, Jacobs A, Taylor KL, Graves KD, O'Neill SC, Schwartz MD.
    • J Cancer Educ. 2019 Aug 11. doi: 10.1007/s13187-019-01599-y. [Epub ahead of print]
    • Research participants' experiences with return of genetic research results and preferences for web-based alternatives.
    • Gaieski JB, Patrick-Miller L, Egleston BL, Maxwell KN, Walser S, DiGiovanni L, Brower J, Fetzer D, Ganzak A, McKenna D, Long JM, Powers J, Stopfer JE, Nathanson KL, Domchek SM, Bradbury AR.
    • Mol Genet Genomic Med. 2019 Aug 3:e898. doi: 10.1002/mgg3.898. [Epub ahead of print]
    • Effectiveness of decision aids for female BRCA1 and BRCA2 mutation carriers: a systematic review.
    • Krassuski L, Vennedey V, Stock S, Kautz-Freimuth S.
    • BMC Med Inform Decis Mak. 2019 Aug 1;19(1):154. doi: 10.1186/s12911-019-0872-2.
    • MAGENTA (Making Genetic testing accessible): a prospective randomized controlled trial comparing online genetic education and telephone genetic counseling for hereditary cancer genetic testing.
    • Rayes N, Bowen DJ, Coffin T, Nebgen D, Peterson C, Munsell MF, Gavin K, Lechner R, Crase J, Polinsky D, Romero I, Blank SV, Levine DA, Norquist BM, Swisher EM, Lu KH.
    • BMC Cancer. 2019 Jul 2;19(1):648. doi: 10.1186/s12885-019-5868-x.
    • A randomized study to improve care for young women with breast cancer at community and academic medical oncology practices in the United States: The Young and Strong study.
    • Partridge AH, Ruddy KJ, Barry WT, Greaney ML, Ligibel JA, Sprunck-Harrild KM, Rosenberg SM, Baker EL, Hoverman JR, Emmons KM.
    • Cancer. 2019 Jun 1;125(11):1799-1806. doi: 10.1002/cncr.31984. Epub 2019 Feb 1.
    • Online decision support for persons having a genetic predisposition to cancer and their partners during reproductive decision-making.
    • Reumkens K, Tummers MHE, Gietel-Habets JJG, van Kuijk SMJ, Aalfs CM, van Asperen CJ, Ausems MGEM, Collée M, Dommering CJ, Kets CM, van der Kolk LE, Oosterwijk JC, Tjan-Heijnen VCG, van der Weijden T1, de Die-Smulders CEM, van Osch LADM.
    • J Genet Couns. 2019 Jun;28(3):533-542. doi: 10.1002/jgc4.1056. Epub 2018 Dec 21.
    • Startup GenomeSmart to Address Lack of Genetic Testing Knowledge With Digital Solution.
    • Ray T.
    • GenomeWeb. 2019 May 20.

    Press: NorthBay Healthcare to Pilot GenomeSmart Genetic Test Recommendation Platform. (GenomeWeb)

    • Developing a culturally targeted video to enhance the use of genetic counseling in Latina women at increased risk for hereditary breast and ovarian cancer.
    • Hurtado-de-Mendoza A, Graves KD, Gómez-Trillos S, Song M, Anderson L, Campos C, Carrera P, Ostrove N, Peshkin BN, Schwartz MD, Ficca N, Cupertino AP, Gonzalez N, Otero A, Huerta E, Sheppard VB.
    • J Community Genet. 2019 May 18. doi: 10.1007/s12687-019-00423-w. [Epub ahead of print]
    • A randomized controlled intervention to promote readiness to genetic counseling for breast cancer survivors.
    • Kasting ML, Conley CC, Hoogland AI, Scherr CL, Kim J, Thapa R, Reblin M, Meade CD, Lee MC, Pal T, Quinn GP, Vadaparampil ST.
    • Psychooncology. 2019 May;28(5):980-988. doi: 10.1002/pon.5059. Epub 2019 Apr 11.
    • "A natural progression" - Australian women's attitudes about an individualised breast screening model.
    • Lippey J, Keogh LA, Mann GB, Campbell IG, Forrest LE.
    • Cancer Prev Res (Phila). 2019 Apr 19. pii: canprevres.0443.2018. doi: 10.1158/1940-6207.CAPR-18-0443. [Epub ahead of print]
    • Development and testing of the KnowGene scale to assess general cancer genetic knowledge related to multigene panel testing.
    • Underhill-Blazey M, Stopfer J, Chittenden A, Nayak MM, Lansang K, Lederman R, Garber J, Gundersen DA.
    • Patient Educ Couns. 2019 Apr 13. pii: S0738-3991(19)30138-7. doi: 10.1016/j.pec.2019.04.014. [Epub ahead of print]
    • Hereditary Breast Cancer Risk Analysis in Uninsured Mexican-Origin Women Living in the U.S.-Mexico Border Region.
    • Salinas JJ, Roy R, Dwivedi AK, Shokar NK.
    • Hisp Health Care Int. 2019 Apr 12:1540415319837850. doi: 10.1177/1540415319837850. [Epub ahead of print]
    • Development and pilot testing of a leaflet informing women with breast cancer about genomic testing for polygenic risk.
    • Kaur R, Meiser B, Yanes T, Young MA, Barlow-Stewart K, Roscioli T, Smith S, James PA.
    • Fam Cancer. 2019 Apr;18(2):147-152. doi: 10.1007/s10689-018-0104-4.
    • Boosting care and knowledge about hereditary cancer: European Reference Network on Genetic Tumour Risk Syndromes.
    • Vos JR, Giepmans L, Röhl C, Geverink N, Hoogerbrugge N; ERN GENTURIS.
    • Fam Cancer. 2019 Apr;18(2):281-284. doi: 10.1007/s10689-018-0110-6.
    • Exploring the preferences of involved health professionals regarding the implementation of an online decision aid to support couples during reproductive decision-making in hereditary cancer: a mixed methods approach.
    • Reumkens K, de Die-Smulders CEM, van Osch LADM.
    • Fam Cancer. 2019 Apr;18(2):285-291. doi: 10.1007/s10689-019-00119-7.
    • A patient-centered mobile health application to motivate use of genetic counseling among women with ovarian cancer: A pilot randomized controlled trial.
    • Vogel RI, Niendorf K, Petzel S, Lee H, Teoh D, Blaes AH, Argenta P, Rivard C, Winterhoff B, Lee HY, Geller MA.
    • Gynecol Oncol. 2019 Apr;153(1):100-107. doi: 10.1016/j.ygyno.2019.01.019. Epub 2019 Feb 1.
    • High-risk women's risk perception after receiving personalized polygenic breast cancer risk information.
    • Forrest LE, Sawyer SD, Hallowell N, James PA, Young MA.
    • J Community Genet. 2019 Apr;10(2):197-206. doi: 10.1007/s12687-018-0378-0. Epub 2018 Aug 10.
    • RE: Cascade Genetic Testing of Relatives for Hereditary Cancer Risk: Results of an Online Initiative.
    • Peshkin BN, Isaacs C, Schwartz MD.
    • J Natl Cancer Inst. 2019 Mar 5. pii: djz028. doi: 10.1093/jnci/djz028. [Epub ahead of print]

    Letter, reply:

    Response to Peshkin, Isaacs, and Schwartz.

    Original research:

    Cascade Genetic Testing of Relatives for Hereditary Cancer Risk: Results of an Online Initiative.

    • Chemoprevention acceptance and adherence in women with high-risk breast lesions.
    • Roche CA, Tang R, Coopey SB, Hughes KS.
    • Breast J. 2019 Mar;25(2):190-195. doi: 10.1111/tbj.13064. Epub 2018 May 21

    Editorial:

    Applying the Hippocratic Oath in breast cancer-The case for promoting prevention.

    Press: Chemoprevention of Breast Cancer: Personal Touch Helps Uptake. (Medscape Oncology)

    • BRCA Exchange Launches.
    • [No authors listed]
    • Cancer Discov. 2019 Mar;9(3):311-312. doi: 10.1158/2159-8290.CD-NB2019-008. Epub 2019 Jan 24.
    • News
    • BRACAVENIR: an observational study of expectations and coping in young women with high hereditary risk of breast and ovarian cancer.
    • Kwiatkowski F, Gay-Bellile M, Dessenne P, Laquet C, Boussion V, Béguinot M, Petit MF, Grémeau AS, Verlet C, Chaptal C, Broult M, Jouvency S, Duclos M, Bignon YJ.
    • Hered Cancer Clin Pract. 2019 Feb 27;17:7. doi: 10.1186/s13053-019-0107-7. eCollection 2019.
    • Consumer and clinician perspectives on personalising breast cancer prevention information.
    • Keogh LA, Steel E, Weideman P, Butow P, Collins IM, Emery JD, Mann GB, Bickerstaffe A, Trainer AH, Hopper LJ, Phillips KA.
    • Breast. 2019 Feb;43:39-47. doi: 10.1016/j.breast.2018.11.002. Epub 2018 Nov 7.
    • Development and Testing of a Decision Aid for Unaffected Women with a BRCA1 or BRCA2 Mutation.
    • Jabaley T, Underhill-Blazey ML, Berry DL.
    • J Cancer Educ. 2019 Jan 19. doi: 10.1007/s13187-019-1470-9. [Epub ahead of print]
    • The Impact of a Risk-Based Breast Cancer Screening Decision Aid on Initiation of Mammography Among Younger Women: Report of a Randomized Trial.
    • Schapira MM, Hubbard RA, Seitz HH, Conant EF, Schnall M, Cappella JN, Harrington T, Inge C, Armstrong K.
    • MDM Policy Pract. 2019 Jan 17;4(1):2381468318812889. doi: 10.1177/2381468318812889. eCollection 2019 Jan-Jun.
    • Cascade Genetic Testing of Relatives for Hereditary Cancer Risk: Results of an Online Initiative.
    • Caswell-Jin JL, Zimmer AD, Stedden W, Kingham KE, Zhou AY, Kurian AW.
    • J Natl Cancer Inst. 2019 Jan 1;111(1):95-98. doi: 10.1093/jnci/djy147.

    Letter, comment:

    RE: Cascade Genetic Testing of Relatives for Hereditary Cancer Risk: Results of an Online Initiative.

    Letter, reply:

    Response to Peshkin, Isaacs, and Schwartz.

    • The development of an online decision aid to support persons having a genetic predisposition to cancer and their partners during reproductive decision-making: a usability and pilot study.
    • Reumkens K, Tummers MHE, Gietel-Habets JJG, van Kuijk SMJ, Aalfs CM, van Asperen CJ, Ausems MGEM, Collée M, Dommering CJ, Kets CM, van der Kolk LE, Oosterwijk JC, Tjan-Heijnen VCG, van der Weijden T, de Die-Smulders CEM, van Osch LADM.
    • Fam Cancer. 2019 Jan;18(1):137-146. doi: 10.1007/s10689-018-0092-4.
    • Evaluating and improving the implementation of a community-based hereditary cancer screening program.
    • Greenberg S, Yashar BM, Pearlman M, Duquette D, Milliron K, Marvin M.
    • J Community Genet. 2019 Jan;10(1):51-60. doi: 10.1007/s12687-018-0357-5. Epub 2018 Mar 5.
    • An Applied Framework in Support of Shared Decision Making about BRCA Genetic Testing.
    • Silverman TB, Kuperman GJ, Vanegas A, Sin M, Dimond J, Crew KD, Kukafka R.
    • AMIA Annu Symp Proc. 2018 Dec 5;2018:961-969. eCollection 2018.
    • Communication About Hereditary Cancers on Social Media: A Content Analysis of Tweets About Hereditary Breast and Ovarian Cancer and Lynch Syndrome.
    • Allen CG, Roberts M, Andersen B, Khoury MJ.
    • J Cancer Educ. 2018 Dec 3. doi: 10.1007/s13187-018-1451-4. [Epub ahead of print]
    • Response to "Male Patients With Breast Cancer: Addressing Needs Using an Educational Task Force".
    • Mahon SM.
    • Clin J Oncol Nurs. 2018 Dec 1;22(6):610. doi: 10.1188/18.CJON.610.

    Original Research: Male Patients With Breast Cancer: Addressing Needs Using an Educational Task Force. (Clinical Journal of Oncology Nursing)

    • XRAYS (eXamining Relevance of Articles to Young Survivors) Program Survey of Information Needs and Media Use by Young Breast Cancer Survivors and Young Women at High-Risk for Breast Cancer.
    • Yi RHP, Rezende LF, Huynh J, Kramer K, Cranmer M, Schlager L, Dearfield CT, Friedman SJ.
    • Health Commun. 2018 Dec;33(12):1525-1530. doi: 10.1080/10410236.2017.1372051. Epub 2017 Sep 28.

    Research news: FORCE online survey: What breast cancer information do young women want and where do they look for it? (FORCE. XRAYS.)

    • The iPrevent Online Breast Cancer Risk Assessment and Risk Management Tool: Usability and Acceptability Testing.
    • Lo LL, Collins IM, Bressel M, Butow P, Emery J, Keogh L, Weideman P, Steel E, Hopper JL, Trainer AH, Mann GB, Bickerstaffe A, Antoniou AC, Cuzick J, Phillips KA.
    • JMIR Form Res. 2018 Nov 7;2(2):e24. doi: 10.2196/formative.9935.
    • Knowledge regarding and patterns of genetic testing in patients newly diagnosed with breast cancer participating in the iCanDecide trial.
    • Gornick MC, Kurian AW, An LC, Fagerlin A, Jagsi R, Katz SJ, Hawley ST.
    • Cancer. 2018 Oct 15;124(20):4000-4009. doi: 10.1002/cncr.31731. Epub 2018 Oct 5.
    • Cancer experience in families affects decision making.
    • [No author given]
    • FORCE. XRAYS. 2018 Sep 25.

    Press: How a Loved One’s Experience With Cancer Guides Breast Cancer Decisions. (U.S. News & World Report)

    • Development and Pilot Testing of a Decision Aid for Genomic Research Participants Notified of Clinically Actionable Research Findings for Cancer Risk.
    • Willis AM, Smith SK, Meiser B, Ballinger ML, Thomas DM, Tattersall M; International Sarcoma Kindred Study (ISKS); Kathleen Cuningham National Consortium for Research into Familial Breast Cancer (kConFab), Young MA.
    • J Genet Couns. 2018 Sep;27(5):1055-1066. doi: 10.1007/s10897-018-0223-y. Epub 2018 Feb 17.
    • Establishment of the Alabama Hereditary Cancer Cohort - strategies for the inclusion of underrepresented populations in cancer genetics research.
    • Bishop MR, Shah A, Shively M, Huskey ALW, Omeler SM, Bilgili EP, Jackson E, Daniell K, Stallworth E, Spina S, Shepp K, Bergstresser S, Davis A, Dean H, Gibson J, Johnson B, Merner ND.
    • Mol Genet Genomic Med. 2018 Sep;6(5):766-778. doi: 10.1002/mgg3.443. Epub 2018 Jul 1.
    • Study protocol: a cluster randomized controlled trial of web-based decision support tools for increasing BRCA1/2 genetic counseling referral in primary care.
    • Silverman TB, Vanegas A, Marte A, Mata J, Sin M, Ramirez JCR, Tsai WY, Crew KD, Kukafka R.
    • BMC Health Serv Res. 2018 Aug 13;18(1):633. doi: 10.1186/s12913-018-3442-x.
    • Male Patients With Breast Cancer: Addressing Needs Using an Educational Task Force.
    • Cutrone JN, Segna AN, Baron RH.
    • Clin J Oncol Nurs. 2018 Aug 1;22(4):415-420. doi: 10.1188/18.CJON.415–420.

    Letter, Comment:

    Response to "Male Patients With Breast Cancer: Addressing Needs Using an Educational Task Force".

    • Reproductive Decision Support: Preferences and Needs of Couples at Risk for Hereditary Cancer and Clinical Geneticists.
    • Reumkens K, van Oudheusden AJG, Gietel-Habets JJG, Tummers MHE, de Die-Smulders CEM, van Osch LADM.
    • J Genet Couns. 2018 Aug;27(4):920-926. doi: 10.1007/s10897-017-0204-6. Epub 2018 Jan 25.
    • The Pink Underside: The Commercialization of Medical Risk Assessment and Decision-Making Tools for Hereditary Breast Cancer Risk.
    • Hesse-Biber S, Flynn B, Farrelly K.
    • Qual Health Res. 2018 Aug;28(10):1523-1538. doi: 10.1177/1049732318767395. Epub 2018 Apr 11.
    • Improving comprehension of genetic counseling for hereditary breast and ovarian cancer clients with a visual tool.
    • Tea MM, Tan YY, Staudigl C, Eibl B, Renz R, Asseryanis E, Berger A, Pfeiler G, Singer CF.
    • PLoS One. 2018 Jul 12;13(7):e0200559. doi: 10.1371/journal.pone.0200559. eCollection 2018.
    • A qualitative study of barriers to genetic counseling and potential for mobile technology education among women with ovarian cancer.
    • Vogel RI, Niendorf K, Lee H, Petzel S, Lee HY, Geller MA.
    • Hered Cancer Clin Pract. 2018 Jul 4;16:13. doi: 10.1186/s13053-018-0095-z. eCollection 2018.
    • Information and support needs of young women regarding breast cancer risk and genetic testing: adapting effective interventions for a novel population.
    • O'Neill SC, Evans C, Hamilton RJ, Peshkin BN, Isaacs C, Friedman S, Tercyak KP.
    • Fam Cancer. 2018 Jul;17(3):351-360. doi: 10.1007/s10689-017-0059-x.
    • A patient decision aid for risk-reducing surgery in premenopausal BRCA1/2 mutation carriers: Development process and pilot testing.
    • Harmsen MG, Steenbeek MP, Hoogerbrugge N, van Doorn HC, Gaarenstroom KN, Vos MC, Massuger LFAG, de Hullu JA, Hermens RPMG.
    • Health Expect. 2018 Jun;21(3):659-667. doi: 10.1111/hex.12661. Epub 2017 Dec 27.
    • Talking with Children About Adult-Onset Hereditary Cancer Risk: A Developmental Approach for Parents.
    • Werner-Lin A, Merrill SL, Brandt AC.
    • J Genet Couns. 2018 Jun;27(3):533-548. doi: 10.1007/s10897-017-0191-7. Epub 2018 Jan 30.
    • The development of an online decision aid to support persons having a genetic predisposition to cancer and their partners during reproductive decision-making: a usability and pilot study.
    • Reumkens K, Tummers MHE, Gietel-Habets JJG, van Kuijk SMJ, Aalfs CM, van Asperen CJ, Ausems MGEM, Collée M, Dommering CJ, Kets CM, van der Kolk LE, Oosterwijk JC, Tjan-Heijnen VCG, Weijden T, de Die-Smulders CEM, van Osch LADM.
    • Fam Cancer. 2018 May 30. doi: 10.1007/s10689-018-0092-4. [Epub ahead of print]
    • Development of a Web-based Family Intervention for BRCA Carriers and Their Biological Relatives: Acceptability, Feasibility, and Usability Study.
    • Katapodi MC, Jung M, Schafenacker AM, Milliron KJ, Mendelsohn-Victor KE, Merajver SD, Northouse LL.
    • JMIR Cancer. 2018 Apr 13;4(1):e7. doi: 10.2196/cancer.9210.
    • Increasing genetic counseling referral rates through bundled interventions after ovarian cancer diagnosis.
    • Swanson CL, Kumar A, Maharaj JM, Kemppainen JL, Thomas BC, Weinhold MR, Slaby KM, Mara KC, Wick MJ, Bakkum-Gamez JN.
    • Gynecol Oncol. 2018 Apr;149(1):121-126. doi: 10.1016/j.ygyno.2018.01.033. Epub 2018 Feb 3.
    • A Two-Phase Approach to Developing SNAP: an iPhone Application to Support Appointment Scheduling and Management for Women with a BRCA Mutation.
    • Scherr CL, Feuston JL, Nixon DM, Cohen SA.
    • J Genet Couns. 2018 Apr;27(2):439-445. doi: 10.1007/s10897-018-0222-z. Epub 2018 Feb 8.
    • An iPhone Application Intervention to Promote Surveillance Among Women with a BRCA Mutation: Pre-intervention Data.
    • Cohen SA, Scherr CL, Nixon DM.
    • J Genet Couns. 2018 Apr;27(2):446-456. doi: 10.1007/s10897-018-0224-x. Epub 2018 Feb 10.
    • Bilingual Cancer Genetic Education Modules for the Deaf Community: Development and Evaluation of the Online Video Material.
    • Boudreault P, Wolfson A, Berman B, Venne VL, Sinsheimer JS, Palmer C.
    • J Genet Couns. 2018 Apr;27(2):457-469. doi: 10.1007/s10897-017-0188-2. Epub 2017 Dec 20.
    • Commercially Available Lifestyle Modification Program Decreases Inflammatory Biomarkers in BRCA1/2+ Breast Cancer Survivors.
    • Sturgeon KM, Foo W, Schmitz KH/
    • Cancer Epidemiol Biomarkers Prev. 2018 Mar;27(3):357-357. doi: 10.1158/1055-9965.EPI-18-0063.
    • Conference abstract
    • BRCAsearch: written pre-test information and BRCA1/2 germline mutation testing in unselected patients with newly diagnosed breast cancer.
    • Nilsson MP, Törngren T, Henriksson K, Kristoffersson U, Kvist A, Silfverberg B, Borg Å, Loman N.
    • Breast Cancer Res Treat. 2018 Feb;168(1):117-126. doi: 10.1007/s10549-017-4584-y. Epub 2017 Nov 21.
    • Perspectives of Women Considering Bilateral Prophylactic Mastectomy and their Peers towards a Telephone-Based Peer Support Intervention.
    • St-Pierre D, Bouchard K, Gauthier L, Chiquette J, Dorval M; Centre ROSE.
    • J Genet Couns. 2018 Feb;27(1):274-288. doi: 10.1007/s10897-017-0148-x. Epub 2017 Sep 15.
    • Preferences for multigene panel testing for hereditary breast cancer risk among ethnically diverse BRCA-uninformative families.
    • Vicuña B, Delaney HD, Flores KG, Ballinger L, Royce M, Dayao Z, Pal T, Kinney AY.
    • J Community Genet. 2018 Jan;9(1):81-92. doi: 10.1007/s12687-017-0322-8. Epub 2017 Oct 2.
    • Facilitating decision-making in women undergoing genetic testing for hereditary breast cancer: BRECONDA randomized controlled trial results.
    • Sherman KA, Kilby CJ, Shaw LK, Winch C, Kirk J, Tucker K, Elder E.
    • Breast. 2017 Dec;36:79-85. doi: 10.1016/j.breast.2017.10.001. Epub 2017 Oct 12.
    • All in the family? Communication of cancer survivors with their families.
    • Bowen DJ, Hay JL, Harris-Wai JN, Meischke H, Burke W.
    • Fam Cancer. 2017 Oct;16(4):597-603. doi: 10.1007/s10689-017-9987-8.
    • Twitter and Non-Elites: Interpreting Power Dynamics in the Life Story of the (#)BRCA Twitter Stream.
    • Vicari S.
    • Soc Media Soc. 2017 Sep 23;3(3):2056305117733224. doi: 10.1177/2056305117733224. eCollection 2017 Sep.
    • Cancer Predisposition Cascade Screening for Hereditary Breast/Ovarian Cancer and Lynch Syndromes in Switzerland: Study Protocol.
    • Katapodi MC, Viassolo V, Caiata-Zufferey M, Nikolaidis C, Bührer-Landolt R5, Buerki N, Graffeo R, Horváth HC, Kurzeder C, Rabaglio M, Scharfe M, Urech C, Erlanger TE, Probst-Hensch N, Heinimann K, Heinzelmann-Schwarz V, Pagani O, Chappuis PO.
    • JMIR Res Protoc. 2017 Sep 20;6(9):e184. doi: 10.2196/resprot.8138.
    • Factors Associated with Interest in Gene-Panel Testing and Risk Communication Preferences in Women from BRCA1/2 Negative Families.
    • Flores KG, Steffen LE, McLouth CJ, Vicuña BE, Gammon A, Kohlmann W, Vigil L, Dayao ZR, Royce ME, Kinney AY.
    • J Genet Couns. 2017 Jun;26(3):480-490. doi: 10.1007/s10897-016-0001-7. Epub 2016 Aug 6.
    • Validation of the German version of the Mediterranean Diet Adherence Screener (MEDAS) questionnaire.
    • Hebestreit K, Yahiaoui-Doktor M, Engel C, Vetter W, Siniatchkin M, Erickson N, Halle M, Kiechle M, Bischoff SC.
    • BMC Cancer. 2017 May 18;17(1):341. doi: 10.1186/s12885-017-3337-y.
    • Tracking the dissemination of a culturally targeted brochure to promote awareness of hereditary breast and ovarian cancer among Black women.
    • Scherr CL, Bomboka L, Nelson A, Pal T, Vadaparampil ST.
    • Patient Educ Couns. 2017 May;100(5):805-811. doi: 10.1016/j.pec.2016.10.026. Epub 2016 Oct 31.

    Editorial, Comment:

    Special section on psychological aspects of cancer: Patient and clinician perspectives.

    • Can an educational application increase risk perception accuracy amongst patients attending a high-risk breast cancer clinic?
    • Keohane D, Lehane E, Rutherford E, Livingstone V, Kelly L, Kaimkhani S, O'Connell F, Redmond HP, Corrigan MA.
    • Breast. 2017 Apr;32:192-198. doi: 10.1016/j.breast.2017.02.009. Epub 2017 Feb 23.
    • Commercially available lifestyle modification program: randomized controlled trial addressing heart and bone health in BRCA1/2+ breast cancer survivors after risk-reducing salpingo-oophorectomy.
    • Sturgeon KM, Dean LT, Heroux M, Kane J, Bauer T, Palmer E, Long J, Lynch S, Jacobs L, Sarwer DB, Leonard MB, Schmitz K.
    • J Cancer Surviv. 2017 Apr;11(2):246-255. doi: 10.1007/s11764-016-0582-z. Epub 2016 Nov 21.
    • Effect of decision aid for breast cancer prevention on decisional conflict in women with a BRCA1 or BRCA2 mutation: a multisite, randomized, controlled trial.
    • Metcalfe KA, Dennis CL, Poll A, Armel S, Demsky R, Carlsson L, Nanda S, Kiss A, Narod SA.
    • Genet Med. 2017 Mar;19(3):330-336. doi: 10.1038/gim.2016.108. Epub 2016 Sep 1.
    • Anxiety and depression symptoms among women attending group-based patient education courses for hereditary breast and ovarian cancer.
    • Listøl W, Høberg-Vetti H, Eide GE, Bjorvatn C.
    • Hered Cancer Clin Pract. 2017 Jan 11;15:2. doi: 10.1186/s13053-016-0062-5. eCollection 2017.
    • Community attitudes towards a Jewish community BRCA1/2 testing program.
    • Cousens N, Kaur R, Meiser B, Andrews L.
    • Fam Cancer. 2017 Jan;16(1):17-28. doi: 10.1007/s10689-016-9918-0.
    • Experience of Social Media Support Group for BRCA Carriers.
    • Stefansdottir V.
    • J Genet Couns. 2016 Dec;25(6):1342-1344. Epub 2016 Sep 13.
    • Letter
    • Getting Beyond Impressions: An Evaluation of Engagement with Breast Cancer-related Facebook Content.
    • Theiss SK, Burke RM, Cory JL, Fairley TL.
    • Mhealth. 2016 Nov 7;2(41). doi: 10.21037/mhealth.2016.10.02.
    • New Toolkit Can Help Debunk Myths About Genetic Testing for Gynecologic Cancer.
    • Casey A.
    • Cure. 2016 Oct 27.

    Review. Toolkit: 2016 Genetics Toolkit (Society of Gynecologic Oncology)

    • How Patients Can Share Their Data.
    • [No author given]
    • My Gene Counsel. 2016 Oct 7.
    • Effective Referral of Low-Income Women at Risk for Hereditary Breast and Ovarian Cancer to Genetic Counseling: A Randomized Delayed Intervention Control Trial.
    • Pasick RJ, Joseph G, Stewart S, Kaplan C, Lee R, Luce J, Davis S, Marquez T, Nguyen T, Guerra C.
    • Am J Public Health. 2016 Oct;106(10):1842-1848. Epub 2016 Aug 23.
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    Comment, Editorial:

    Decision aids for breast cancer chemoprevention.

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    Retraction:

    Retraction: Effects of a pre-visit educational website on information recall and needs fulfilment in breast cancer genetic counselling, a randomized controlled trial.

    • A pre-visit tailored website enhances counselees' realistic expectations and knowledge and fulfils information needs for breast cancer genetic counselling.
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    Comments from NSGC Discussion Forum Cancer SIG

    Subject: An Online BRCA Positive Decision Guidance Tool.

    Comment:

    Are we ready for online tools in decision making for BRCA1/2 mutation carriers?

    Press: Are We Ready for Online Tools in Decision Making for BRCA1/2 Mutation Carriers? (Journal of Clinical Oncology)

    Press: Online tool helps those with BRCA mutations understand options. (Medical Xpress)

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