• Exploring the role of a multidisciplinary hereditary gynecologic oncology clinic in epithelial ovarian cancer risk-reducing surgical decision-making practices: A mixed-methods study.
    • Casalino S, Bruce S, Serfas K, Altman AD, Kean S, Lambert P, McManus KJ, Hartley JN, Nachtigal MW.
    • J Genet Couns. 2023 Feb 20. doi: 10.1002/jgc4.1684. Epub ahead of print.
    • The Psychosocial Impact of the Decision to Undergo Risk-Reducing Salpingo-Oophorectomy Surgery in BRCA Mutation Carriers and the Role of Physician-Patient Communication.
    • Alves-Nogueira AC, Melo D, Carona C, Figueiredo-Dias M.
    • Curr Oncol. 2023 Feb 18;30(2):2429-2440. doi: 10.3390/curroncol30020185.
    • Preventative Surgeries at Age 32 Because of My BRCA1 Gene Mutation.
    • Clem E.
    • FORCE. Blog. 2023 Feb 13.
    • Women's Metaphors About BRCA Gene Testing and How They Can Inform Health Communication Theory and Practice.
    • Martin SC, Scott AM, Stone AM.
    • Health Commun. 2023 Feb 12:1-13. doi: 10.1080/10410236.2023.2178051. Epub ahead of print.
    • Psychological distress and decision-making factors for prophylactic bilateral mastectomy in cancer-unaffected BRCA1/2 pathogenic variant carriers.
    • Isselhard A, Tüchler A, Dick J, Scherer A, Aue V, Schmutzler RK, Rhiem K.
    • Psychooncology. 2023 Feb 12. doi: 10.1002/pon.6111. Epub ahead of print.
    • Mitigating fear of cancer recurrence.
    • Sorscher S.
    • Breast Cancer Res Treat. 2023 Feb 3. doi: 10.1007/s10549-022-06824-9. Epub ahead of print.
    • Financial toxicity in BRCA1 and BRCA2 carriers.
    • Proussaloglou EM, Rosenthal AE, Raker CA, Wilbur JS, Stuckey AR, Robison KM.
    • Gynecol Oncol. 2023 Jan 24;170:160-166. doi: 10.1016/j.ygyno.2023.01.007. Epub ahead of print.
    • We All Love a Good Book or Movie.
    • [No author given]
    • FORCE. Blog. 2023 Jan 23.
    • Coping Self-Efficacy and Its Relationship with Psychological Morbidity after Genetic Test Result Disclosure: Results from Cancer-Unaffected BRCA1/2 Mutation Carriers.
    • Isselhard A, Lautz Z, Töpper M, Rhiem K, Schmutzler R, Vitinius F, Fischer H, Berger-Höger B, Steckelberg A, Beifus K, Köberlein-Neu J, Stock S.
    • Int J Environ Res Public Health. 2023 Jan 17;20(3):1684. doi: 10.3390/ijerph20031684.
    • Learning about My Mother’s PALB2 Mutation was a Gift to Our Family.
    • Smith K.
    • FORCE. Blog. 2023 Jan 13.
    • The research landscape of the quality of life or psychological impact on gynecological cancer patients: a bibliometric analysis.
    • Zhao J, Kong Y, Xiang Y, Yang J.
    • Front Oncol. 2023 Jan 10;12:1115852. doi: 10.3389/fonc.2023.1115852.
    • Fertility Preferences and Practices Among Young Women With Breast Cancer: Germline Genetic Carriers Versus Non-carriers.
    • Lewinsohn R, Zheng Y, Rosenberg SM, Ruddy KJ, Tamimi RM, Schapira L, Peppercorn J, Borges VF, Come S, Snow C, Ginsburg ES, Partridge AH.
    • Clin Breast Cancer. 2022 Dec 21:S1526-8209(22)00290-7. doi: 10.1016/j.clbc.2022.12.012. Epub ahead of print.

    •• Identifier: NCT01468246: The Young Women's Breast Cancer Study (HOHO). (ClinicalTrials.gov . Accessed 2022 Dec 21.)

    • Psychological factors and the uptake of preventative measures in BRCA1/2 pathogenic variant carriers: results of a prospective cohort study.
    • Dick J, Tüchler A, Brédart A, Vitinius F, Wassermann K, Rhiem K, Schmutzler RK.
    • Hered Cancer Clin Pract. 2022 Dec 19;20(1):38. doi: 10.1186/s13053-022-00244-y.
    • Informational needs of individuals from BRCA-harboring families: a systematic review and content analysis.
    • Park SY, Kim Y, Kim S, Katapodi MC.
    • Genet Med. 2022 Dec 18:S1098-3600(22)01068-1. doi: 10.1016/j.gim.2022.100001. Epub ahead of print.
    • Providers' perspectives on the reproductive decision-making of BRCA-positive women.
    • Dason ES, Drost L, Greenblatt EM, Scheer AS, Han J, Sobel M, Allen L, Jacobson M, Doshi T, Wolff E, McMahon E, Jones CA.
    • BMC Womens Health. 2022 Dec 8;22(1):506. doi: 10.1186/s12905-022-02093-2.
    • Patient-reported outcomes associated with reflex BRCA1/2 tumor and subsequent germline panel genetic testing for high-grade serous ovarian cancer.
    • McCuaig JM, Stockley TL, Ferguson SE, Vicus D, Brennenstuhl S, Ott K, Kim RH, Metcalfe KA.
    • J Genet Couns. 2022 Dec 7. doi: 10.1002/jgc4.1661. Epub ahead of print.
    • The neglected role of preimplantation genetic testing for Lynch syndrome.
    • Dallagiovanna C, Filippi F, Riccaboni A, Vigano' P, Martinelli F, Somigliana E, Ricci MT, Vitellaro M.
    • Reprod Biomed Online. 2022 Dec 5:S1472-6483(22)00832-X. doi: 10.1016/j.rbmo.2022.12.001. Epub ahead of print.
    • Desire for Children and Distress in Women with Hereditary Cancer Syndromes.
    • Kastner AM, Kocak HK, Fischer-Jacobs J, Hahne A, Zimmermann T.
    • Int J Environ Res Public Health. 2022 Nov 4;19(21):14517. doi: 10.3390/ijerph192114517.
    • Study: Teens and young adults respond well to learning about familial cancer risk
    • [No author given]
    • FORCE. XRAY. 2022 Oct 11.

    Original research:

    Long-Term Adaptation Among Adolescent and Young Adult Children to Familial Cancer Risk.

    Commentary:

    Breaking Down the Barriers of Hereditary Cancer Risk Disclosure in AYA.

    • Validation of the modified Chinese Information and Support Needs Questionnaire (ISNQ-C) for daughters of mothers with breast cancer.
    • Fang SY, Chen TC.
    • Palliat Support Care. 2022 Oct 11:1-9. doi: 10.1017/S1478951522001407. Epub ahead of print.
    • Initial outcomes and insights from a novel high-risk prostate cancer screening clinic.
    • Harper JB, Greenberg SE, Hunt TC, Cooney KA, O'Neil BB.
    • Prostate. 2022 Oct 7. doi: 10.1002/pros.24447. Epub ahead of print.
    • Developing theory-driven narrative messages with personal stories: A step-by-step guide.
    • Conley CC, Davidson LG, Scherr CL, Dean M.
    • Psychooncology. 2022 Oct 7. doi: 10.1002/pon.6047. Epub ahead of print.
    • Why I Chose Preventive Mastectomy.
    • Swirsky N.
    • FORCE. Blog. 2022 Oct 3.
    • Investigating factors that influence genetic counselors' decisions to refer patients to mental health providers.
    • Hayes T, Cunningham M, Trepanier A.
    • J Genet Couns. 2022 Oct;31(5):1113-1124. doi: 10.1002/jgc4.1582. Epub 2022 Apr 23.
    • Effects of diet education on empowerment for individuals who have an increased risk of developing breast or colon cancer: A pilot study.
    • Tlusty K, Jackson M, Riley B, Blase T.
    • J Genet Couns. 2022 Oct;31(5):1138-1147. doi: 10.1002/jgc4.1584. Epub 2022 May 3.
    • Resilience as a Source of Easement to Health-Related Worries in Women at Increased Risk for Breast or Ovarian Cancer During the COVID-19 Pandemic.
    • Schwab R, Droste A, Stewen K, Elger T, Theis S, Heimes AS, Peters K, Schmidt M, Brenner W, Hasenburg A.
    • Int J Gen Med. 2022 Sep 5;15:7039-7052. doi: 10.2147/IJGM.S373191.
    • Comparison of psychological distress for breast, ovarian and colorectal cancer predisposition in a Spanish sample at high risk of hereditary cancer.
    • Costa-Requena G, Garcia-Garijo M, Richart-Aznar P, Segura-Huerta Á.
    • Eur J Cancer Prev. 2022 Sep 1;31(5):482-486. doi: 10.1097/CEJ.0000000000000734. Epub 2021 Dec 15.
    • Assessment of psychosocial difficulties by genetic clinicians and distress in women at high risk of breast cancer: a prospective study.
    • Brédart A, Kop JL, Tüchler A, De Pauw A, Cano A, Dick J, Rhiem K, Devilee P, Schmutzler R, Stoppa-Lyonnet D, Dolbeault S.
    • Eur J Hum Genet. 2022 Sep;30(9):1067-1075. doi: 10.1038/s41431-022-01096-9. Epub 2022 Apr 11.
    • Breast cancer genetic mutation: Synthesis of women's experience.
    • McNamara N, Feeney M, Giltenane M, Dowling M.
    • J Clin Nurs. 2022 Aug 25. doi: 10.1111/jocn.16498. Epub ahead of print.
    • Review
    • A qualitative reflexive thematic analysis into the experiences of being identified with a BRCA1/2 gene alteration: "So many little, little traumas could have been avoided".
    • Warner NZ, Groarke A.
    • BMC Health Serv Res. 2022 Aug 6;22(1):1007. doi: 10.1186/s12913-022-08372-w.
    • What Causes Cancer in Women with a gBRCA Pathogenic Variant? Counselees’ Causal Attributions and Associations with Perceived Control.
    • Kendel F, Klein K, Schüürhuis S, Besch L, Feufel MA, Speiser D.
    • Genes (Basel). 2022 Aug 6;13(8):1399. doi: 10.3390/genes13081399.
    • Good Genes.
    • Demarest K.
    • J Clin Oncol. 2022 Aug 3:JCO2200871. doi: 10.1200/JCO.22.00871. Epub ahead of print.
    • Impact of BRCA1/2 cascade testing on anxiety, depression, and cancer worry levels among unaffected relatives in a multiethnic Asian cohort.
    • Padmanabhan H, Mariapun S, Lee SY, Hassan NT, Lee DS, Meiser B, Wong SW, Lee YQ, Yip CH, Teo SH, Thong MK, Taib NAM, Yoon SY.
    • J Genet Couns. 2022 Aug 1. doi: 10.1002/jgc4.1619. Epub ahead of print.
    • Long-Term Adaptation Among Adolescent and Young Adult Children to Familial Cancer Risk.
    • McDonnell GA, Peshkin BN, DeMarco TA, Peterson SK, Arun BK, Miesfeldt S, O'Neill SC, Schneider K, Garber J, Isaacs C, Luta G, Tercyak KP.
    • Pediatrics. 2022 Aug 1;150(2):e2022056339. doi: 10.1542/peds.2022-056339.

    Commentary:

    Breaking Down the Barriers of Hereditary Cancer Risk Disclosure in AYA.

    Research news: Study: Teens and young adults respond well to learning about familial cancer risk. (FORCE. XRAYS)

    • Experiences of individuals with a variant of uncertain significance on genetic testing for hereditary cancer risks: a mixed method systematic review.
    • Gould D, Walker R, Makari-Judson G, Seven M.
    • J Community Genet. 2022 Aug;13(4):371-379. doi: 10.1007/s12687-022-00600-4. Epub 2022 Jul 12.
    • A qualitative study of unaffected ATM and CHEK2 carriers: How participants make meaning of 'moderate risk' genetic results in a population breast cancer screening trial.
    • James JE, Riddle L, Caruncho M, Koenig BA, Joseph G.
    • J Genet Couns. 2022 Jul 25. doi: 10.1002/jgc4.1617. Epub ahead of print.
    • The Clinical and Psychosocial Outcomes for Women Who Received Unexpected Clinically Actionable Germline Information Identified through Research: An Exploratory Sequential Mixed-Methods Comparative Study.
    • Forrest LE, Forbes Shepherd R, Tutty E, Pearce A, Campbell I, Devereux L, Trainer AH, James PA, Young MA.
    • J Pers Med. 2022 Jul 7;12(7):1112. doi: 10.3390/jpm12071112.
    • BRCA1/2 pathogenetic variant carriers and reproductive decisions: Gender differences and factors associated with the choice of preimplantation genetic diagnosis (PGD) and prenatal diagnosis (PND).
    • Lombardi L, Trumello C, Stuppia L, Antonucci I, Brandão T, Babore A.
    • J Assist Reprod Genet. 2022 Jul;39(7):1433-1443. doi: 10.1007/s10815-022-02523-y. Epub 2022 Jun 4.
    • Distress facing increased genetic risk of cancer: The role of social support and emotional suppression.
    • Gomes P, Matos PM, Silva ER, Silva J, Silva E, Sales CMD.
    • Patient Educ Couns. 2022 Jul;105(7):2436-2442. doi: 10.1016/j.pec.2022.03.018. Epub 2022 Mar 22.
    • Anxiety and depression among racial/ethnic minorities and impoverished women testing positive for BRCA1/2 mutations in the United States.
    • Dibble KE, Connor AE.
    • Support Care Cancer. 2022 Jul;30(7):5769-5778. doi: 10.1007/s00520-022-07004-7. Epub 2022 Mar 26.
    • Psychological and health behaviour outcomes following multi-gene panel testing for hereditary breast and ovarian cancer risk: a mini-review of the literature.
    • Carlsson L, Thain E, Gillies B, Metcalfe K.
    • Hered Cancer Clin Pract. 2022 Jun 22;20(1):25. doi: 10.1186/s13053-022-00229-x.
    • Stress, anxiety, and health-related quality of life in BRCA1/2-positive women with and without cancer: A comparison of four US female samples.
    • Dibble KE, Donorfio LKM, Britner PA, Bellizzi KM.
    • Gynecol Oncol Rep. 2022 Jun 20;42:101033. doi: 10.1016/j.gore.2022.101033.
    • Healthcare Predictors of Information Dissemination About Genetic Risks.
    • Henderson V, Strayhorn SM, Bergeron NQ, Strahan DC, Ganschow PS, Khanna AS, Watson K, Hoskins K, Molina Y.
    • Cancer Control. 2022 Jan-Dec [First Published 2022 Jun 6];29:10732748221104666. doi: 10.1177/10732748221104666.
    • Helping Patients Understand and Cope with BRCA Mutations.
    • Makhnoon S, Arun B, Bedrosian I.
    • Curr Oncol Rep. 2022 Jun;24(6):733-740. doi: 10.1007/s11912-022-01254-8. Epub 2022 Mar 18.
    • Perceptions and care Recommendations from Previvors: Qualitative analysis of female BRCA1/2 mutation Carriers' experience with genetic testing and counseling.
    • Dibble KE, Donorfio LKM, Britner PA, Bellizzi KM.
    • Gynecol Oncol Rep. 2022 May 2 [eCollection 2022 Jun];41:100989. doi: 10.1016/j.gore.2022.100989.
    • Sex Differences in Attitudes Toward Marriage and Childbearing Based on the Assumption of Being BRCA1/2 Mutation Carriers Among Young People.
    • Jeong J, Park B, Kim D, Kim J, Lee BY, Yoon J, Kim SW.
    • J Breast Cancer. 2022 Jun;25(3):233-243. doi: 10.4048/jbc.2022.25.e25.
    • Psychiatric symptoms in a Spanish sample with hereditary cancer risk.
    • Costa-Requena G, Garcia-Garijo M, Richart-Aznar P, Segura-Huerta Á.
    • J Community Genet. 2022 Jun;13(3):339-346. doi: 10.1007/s12687-022-00580-5. Epub 2022 Feb 8.

    Identifier: NCT04428710: Assessment Psychological Distress for Cancer Heredity Test. (ClinicalTrials.gov)

    • Medical knowledge and information needs among women with pathogenic variants in moderate-risk genes for hereditary breast cancer attending genetic counseling at an academic hospital in Germany-A qualitative approach.
    • Stracke C, Lemmen C, Rhiem K, Schmutzler R, Kautz-Freimuth S, Stock S.
    • J Genet Couns. 2022 Jun;31(3):698-712. doi: 10.1002/jgc4.1536. Epub 2021 Nov 26.
    • Olaparib for ovarian cancer: a single-institution, multi-site qualitative study.
    • Martin NA, Hanna M, Ehret C, Asiedu G, Jatoi A.
    • Support Care Cancer. 2022 Jun;30(6):4807-4812. doi: 10.1007/s00520-022-06879-w. Epub 2022 Feb 11.
    • Perceived risk and risk reduction behaviours of female first-degree relatives of breast cancer patients attending care at Uganda cancer institute.
    • Ainembabazi P, Abila DB, Manyangwa G, Anguzu G, Musaazi J, Mutyaba I, Osingada CP, Mwaka AD.
    • Psychooncology. 2022 May 18. doi: 10.1002/pon.5963. Epub ahead of print.
    • Previvorship Posting: Why Breast Cancer Previvors Share Their Stories on Social Media.
    • Wellman ML, Holton AE, Kaphingst KA.
    • Health Commun. 2022 May 17:1-9. doi: 10.1080/10410236.2022.2074780. Epub ahead of print.
    • Genetic testing is becoming more accessible — and it's raising difficult questions.
    • Shapiro A, Mehta J, Brown A.
    • NPR. 2022 May 10.

    News, Audio: How genetic testing led a food lover to live without a stomach. (NPR)

    • African American Women Need to Know More About High-Risk Breast Cancer.
    • Johnson F.
    • FORCE. Blog. 2022 May 2.

    Video: Felicia's Story: Genetic Testing Sheds Light on a Family's Cancer History. (YouTube / Breastcancer.org)

    • Pancreatic cancer risk to siblings of probands in bilineal cancer settings.
    • Rabe KG, Stevens MA, Hernández AT, Chandra S, Hubbard JM, Kemppainen JL, Majumder S, Petersen GM.
    • Genet Med. 2022 May;24(5):1008-1016. doi: 10.1016/j.gim.2022.01.016. Epub 2022 Feb 25.
    • Embodied risk for families with Li-Fraumeni syndrome: Like electricity through my body.
    • Werner-Lin A, Forbes Shepherd R, Young JL, Wilsnack C, Merrill SL, Greene MH, Khincha PP.
    • Soc Sci Med. 2022 May;301:114905. doi: 10.1016/j.socscimed.2022.114905. Epub 2022 Mar 17.
    • "I have always lived with the disease in the family": family adaptation to hereditary cancer-risk.
    • Silva E, Gomes P, Matos PM, Silva ER, Silva J, Brandão C, Castro F, Neves MC, Sales CMD.
    • BMC Prim Care. 2022 Apr 23;23(1):93. doi: 10.1186/s12875-022-01704-z.
    • Partner Spotlight: Sharsheret.
    • Montoto R.
    • FORCE. Blog. 2022 Apr 8.
    • “You are BRCA2-Positive”: Studies that Have Helped Me.
    • Dreher ME.
    • FORCE. Blog. 2022 Apr 5.
    • Outcomes of support groups for carriers of BRCA 1/2 pathogenic variants and their relatives: a systematic review.
    • Bertonazzi B, Turchetti D, Godino L.
    • Eur J Hum Genet. 2022 Apr;30(4):398-405. doi: 10.1038/s41431-022-01044-7.
    • "I wish that there was more info": characterizing the uncertainty experienced by carriers of pathogenic ATM and/or CHEK2 variants.
    • Reyes KG, Clark C, Gerhart M, Newson AJ, Ormond KE.
    • Fam Cancer. 2022 Apr;21(2):143-155. doi: 10.1007/s10689-021-00251-3. Epub 2021 Apr 15.
    • The psychological impact and experience of breast cancer screening in young women with an increased risk of breast cancer due to neurofibromatosis type 1.
    • Crook A, Kwa R, Ephraums S, Wilding M, Thiyagarajan L, Fleming J, Moore K, Berman Y.
    • Fam Cancer. 2022 Apr;21(2):241-253. doi: 10.1007/s10689-021-00259-9. Epub 2021 May 8.
    • Cancer worry among BRCA1/2 pathogenic variant carriers choosing surgery to prevent tubal/ovarian cancer: course over time and associated factors.
    • van Bommel MHD, Steenbeek MP, IntHout J, Hermens RPMG, Hoogerbrugge N, Harmsen MG, van Doorn HC, Mourits MJE, van Beurden M, Zweemer RP, Gaarenstroom KN, Slangen BFM, Brood-van Zanten MMA, Vos MC, Piek JM, van Lonkhuijzen LRCW, Apperloo MJA, Coppus SFPJ, Prins JB, Custers JAE, de Hullu JA.
    • Support Care Cancer. 2022 Apr;30(4):3409-3418. doi: 10.1007/s00520-021-06726-4. Epub 2022 Jan 8.
    • every.single.one - A New Play about Hereditary Cancer.
    • Sampson C.
    • FORCE. Blog. 2022 Mar 22.
    • "You Always Have It in the Back of Your Mind"-Feelings, Coping, and Support Needs of Women with Pathogenic Variants in Moderate-Risk Genes for Hereditary Breast Cancer Attending Genetic Counseling in Germany: A Qualitative Interview Study.
    • Stracke C, Lemmen C, Rhiem K, Schmutzler R, Kautz-Freimuth S, Stock S.
    • Int J Environ Res Public Health. 2022 Mar 16;19(6):3525. doi: 10.3390/ijerph19063525.
    • Impact of BRCA Status on Reproductive Decision-Making and Self-Concept: A Mixed-Methods Study Informing the Development of Tailored Interventions.
    • Hesse-Biber S, Seven M, Jiang J, Schaik SV, Dwyer AA.
    • Cancers (Basel). 2022 Mar 15;14(6):1494. doi: 10.3390/cancers14061494.
    • Cancer Anxiety Mediates the Association Between Satisfaction With Medical Communication and Psychological Quality of Life After Prophylactic Bilateral Salpingo-Oophorectomy.
    • Zarbo C, Brugnera A, Frigerio L, Celi C, Compare A, Dessì V, Giordano R, Malandrino C, Sina FP, Strepparava MG, Tessitore IV, Ventura M, Fruscio R.
    • Front Psychol. 2022 Mar 9;13:840931. doi: 10.3389/fpsyg.2022.840931.
    • Couplelinks online intervention for young couples facing breast cancer: A randomised controlled trial.
    • Fergus K, Ahmad S, Gardner S, Ianakieva I, McLeod D, Stephen J, Carter W, Periera A, Warner E, Panchaud J.
    • Psychooncology. 2022 Mar;31(3):512-520. doi: 10.1002/pon.5836. Epub 2021 Nov 2.
    • Predictors of cardiopulmonary fitness in cancer-affected and -unaffected women with a pathogenic germline variant in the genes BRCA1/2 (LIBRE-1).
    • Berling-Ernst A, Yahiaoui-Doktor M, Kiechle M, Engel C, Lammert J, Grill S, Dukatz R, Rhiem K, Baumann FT, Bischoff SC, Erickson N, Schmidt T, Niederberger U, Siniatchkin M, Halle M.
    • Sci Rep. 2022 Feb 21;12(1):2907. doi: 10.1038/s41598-022-06913-1.
    • Evaluation of two evidence-based decision aids for female BRCA1/2 mutation carriers in Germany: study protocol for a randomised controlled parallel-group trial.
    • Kautz-Freimuth S, Redaèlli M, Isselhard A, Shukri A, Vodermaier A, Rhiem K, Schmutzler R, Stock S.
    • Trials. 2022 Feb 16;23(1):157. doi: 10.1186/s13063-022-06081-7.
    • Psychosocial outcome and health behaviour intent of breast cancer patients with BRCA1/2 and PALB2 pathogenic variants unselected by a priori risk.
    • Padmanabhan H, Hassan NT, Wong SW, Lee YQ, Lim J, Hasan SN, Yip CH, Teo SH, Thong MK, Mohd Taib NA, Yoon SY.
    • PLoS One. 2022 Feb 15;17(2):e0263675. doi: 10.1371/journal.pone.0263675.
    • BRCA2, Early-Stage Prostate Cancer and a Decision at 54.
    • Axler J.
    • FORCE. Blog. 2022 Feb 11.
    • A Fertility Journey Through the Eyes of a Young Previvor.
    • Walens A.
    • FORCE. Blog. 2022 Feb 8.
    • Pink Ribbons.
    • Prsic E.
    • JAMA Oncol. 2022 Feb 1;8(2):207. doi: 10.1001/jamaoncol.2021.6413.
    • Commentary
    • Impact of rapid genetic testing for BRCA1 and BRCA2 at time of breast cancer diagnosis on psychosocial functioning.
    • Metcalfe KA, Eisen A, Wright F, Poll A, Candib A, McCready D, Cil T, Armel S, Silberman Y, Brennenstuhl S, Narod SA.
    • Breast Cancer Res Treat. 2022 Feb;191(3):631-641. doi: 10.1007/s10549-021-06457-4. Epub 2021 Nov 30.
    • Psychosexual Morbidity in Women With Ovarian Cancer: Evaluation by Germline BRCA Gene Mutational Status.
    • Logue CA, Pugh J, Foden P, Mahmood RD, Morgan RD, Mitchell C, Hasan J, Clamp AR, Jayson GC.
    • Sex Med. 2022 Feb;10(1):100465. doi: 10.1016/j.esxm.2021.100465. Epub 2021 Dec 15.
    • Chris Evert opens up about her stage 1C ovarian cancer diagnosis.
    • McKendry C, Evert C.
    • ESPN. 2022 Jan 14.

    News: Chris Evert's ovarian cancer diagnosis highlights the importance of genetic counseling and testing. (FORCE. XRAY.)

    • Debbie Denardi: Finding Community With Hereditary Cancer.
    • Bringle J.
    • FORCE. Blog. 2022 Jan 6.
    • Volunteer Spotlight – Will and Maddie.
    • T W, Williamson M.
    • FORCE. Blog. 2022 Jan 3.
    • COVID-19 experiences predicting high anxiety and depression among a sample of BRCA1/BRCA2-positive women in the US.
    • Dibble KE, Connor AE.
    • Sci Rep. 2021 Dec 30;11(1):24501. doi: 10.1038/s41598-021-04353-x.
    • Can Social Media Be Used as a Community-Building and Support Tool among Jewish Women Impacted by Breast and Ovarian Cancer? An Evidence-Based Observational Report.
    • Dunn C, Campbell S, Marku N, Fleischmann A, Silber E, Rosen M, Tercyak KP.
    • Healthcare (Basel). 2021 Dec 28;10(1):51. doi: 10.3390/healthcare10010051.
    • A dangerous breast cancer gene mutation changed my life. As a health reporter, I want you to know about it. The PALB2 mutation is lesser-known than BRCA. It’s time to change that.
    • Berger S.
    • The Lily. (Washington Post). 2021 Dec 27.
    • Body Image in BRCA-Positive Young Women Following Bilateral Risk-Reducing Mastectomy: A Review of the Literature.
    • Torrisi C.
    • Front Psychol. 2021 Dec 16;12:778484. doi: 10.3389/fpsyg.2021.778484.
    • The Challenges and Rewards of Being a Caregiver in a Hereditary Cancer Family.
    • Walens A.
    • FORCE. Blog. 2021 Dec 13.
    • A systematic review of psycho-social interventions for individuals with a BRCA1/2 pathogenic variant.
    • Warner NZ, Matthews S, Groarke A, McSharry J.
    • J Genet Couns. 2021 Dec;30(6):1695-1706. doi: 10.1002/jgc4.1436. Epub 2021 Jun 1.
    • Genetic Risks for Cancer Should Not Mean Financial Hardship.
    • Pierson L, Pierson E.
    • New York Times. Opinion. 2021 Nov 26.
    • Commentary

    Commentary: The Medical Side Effect We Must Stop Ignoring: Financial Toxicity. (Forbes)

    • Conference Session Highlight: I'm Not White, Can I Still Have a Mutation?
    • Stallings E, Goldberg D.
    • FORCE. Blog. 2021 Nov 19.
    • What does the ‘breast cancer gene’ mean for men? For some, pancreatic and prostate cancer.
    • Simpson M.
    • FORCE. Blog. 2021 Nov 3.
    • Volunteer Spotlight – Karen Ewing.
    • Ewing K.
    • FORCE. Blog. 2021 Nov 2.
    • The role of interpretation biases and symptom burden in fear of cancer recurrence/progression among ovarian cancer survivors.
    • Pradhan P, Sharpe L, Butow P, Russell H.
    • Psychooncology. 2021 Nov;30(11):1948-1956. doi: 10.1002/pon.5748. Epub 2021 Jul 22.
    • Do Not Wait: Empowering Other Families by Sharing My Story.
    • Johnson F.
    • FORCE. Blog. 2021 Oct 28.
    • Review: The Breast Cancer Book.
    • Steligo K.
    • FORCE. Blog. 2021 Oct 19.
    • Experience and Perceptions of a Family Health History Risk Assessment Tool among Multi-Ethnic Asian Breast Cancer Patients.
    • Yoon S, Goh H, Fung SM, Tang S, Matchar D, Ginsburg GS, Orlando LA, Ngeow J, Wu RR.
    • J Pers Med. 2021 Oct 19;11(10):1046. doi: 10.3390/jpm11101046.
    • Self-Transcendence of Japanese Female Breast Cancer Patients with Hereditary Breast and Ovarian Cancer Syndrome.
    • Aoki S, Fujita S.
    • Asia Pac J Oncol Nurs. 2021 Oct 4;8(6):670-678. doi: 10.4103/apjon.apjon-218.
    • Fertility Considerations for Reproductive-Aged Carriers of Deleterious BRCA Mutations: A Call for Early Intervention.
    • Fine E, Knoll MA, Maslow BL.
    • JCO Oncol Pract. 2021 Oct 4:OP2100389. doi: 10.1200/OP.21.00389. Epub ahead of print.
    • Understanding BRCA1/2 Previvors’ Information and Support Needs: Results from a Community Needs Assessment.
    • Boumis JK, Dean M.
    • FORCE. Blog. 2021 Sep 20.
    • "The Continuous Shadow of My Mother's Breast Cancer": exploring the voice of daughters.
    • Fang SY, Wang YM, Lee KT.
    • Support Care Cancer. 2021 Sep 16. doi: 10.1007/s00520-021-06551-9. Epub ahead of print.
    • After Three Cancer Diagnoses and a Positive BRCA Test, Endometrial Cancer.
    • Walter P.
    • FORCE. Blog. 2021 Sep 9.
    • Volunteer Spotlight – Faith Miller.
    • Miller F.
    • FORCE. Blog. 2021 Aug 30.
    • Patient-Reported Outcomes following Genetic Testing for Familial Hypercholesterolemia, Breast and Ovarian Cancer Syndrome, and Lynch Syndrome: A Systematic Review.
    • Hendricks-Sturrup RM, Joseph L, Lu CY.
    • J Pers Med. 2021 Aug 27;11(9):850. doi: 10.3390/jpm11090850.
    • COVID-19 Experiences Predicting High Anxiety and Depression Among a Sample of BRCA1/BRCA2-positive Women in the US.
    • Dibble KE, Connor AE.
    • Res Sq [Preprint]. 2021 Aug 9:rs.3.rs-763516. doi: 10.21203/rs.3.rs-763516/v1.
    • Breast cancer worry in higher-risk women offered preventive therapy: a UK multicentre prospective study.
    • Lloyd KE, Hall LH, Ziegler L, Smith SG; ENGAGE investigators.
    • Breast Cancer Res Treat. 2021 Aug;188(3):703-712. doi: 10.1007/s10549-021-06183-x. Epub 2021 Mar 17.
    • Psychological consequences of MRI-based screening among women with strong family histories of breast cancer.
    • Castelo M, Brown Z, D'Abbondanza JA, Wasilewski NV, Eisen A, Muradali D, Hansen BE, Grunfeld E, Scheer AS.
    • Breast Cancer Res Treat. 2021 Jul 2. doi: 10.1007/s10549-021-06300-w. Epub ahead of print.
    • How does genetic testing influence anxiety, depression, and quality of life? A hereditary breast and ovarian cancer syndrome suspects trial.
    • Oliveira FFB, de Barros Silva PG, de Sant'Ana RO, de Albuquerque CGP, Bezerra MJB, Wong DVT, da Silveira Bitencourt F, de Lima Silva-Fernandes IJ, Lima MVA.
    • Support Care Cancer. 2021 Jul;29(7):3521-3530. doi: 10.1007/s00520-020-05867-2. Epub 2020 Nov 5.
    • Volunteer Spotlight - Scott Lanman
    • Lanman S.
    • FORCE. Blog. 2021 Jun 30.
    • The evolving role of germline genetic testing and management in prostate cancer: Report from the Princess Margaret Cancer Centre International Retreat.
    • Clark R, Kenk M, McAlpine K, Thain E, Farncombe KM, Pritchard CC, Nussbaum R, Wyatt AW, de Bono J, Vesprini D, Bombard Y, Lorentz J, Narod S, Kim R, Fleshner N.
    • Can Urol Assoc J. 2021 Jun 22. doi: 10.5489/cuaj.7383. Epub ahead of print.
    • One Woman’s Breast Cancer Journey: It’s Not Just About the Breast.
    • [No author given]
    • FORCE. Blog. 2021 Jun 21.

    Information: It's Not (Just) About the Breast. (Well Strong Courage)

    • Ashkenazi Dads Can Pass the BRCA Mutation to Their Kids. It Turns Out I Did.
    • Hertz B.
    • Kveller. 2021 Jun 14.

    Blog post: Surviving, and Thriving, as a Dad with a Cancer Gene Mutation. (FORCE Blog)

    • Why I’m Choosing to Keep My Breasts (For Now).
    • Kingery R.
    • FORCE. Blog. 2021 Jun 11.
    • Living Life to its Fullest with an ATM Mutation in a Coronavirus Pandemic.
    • Sandhu S.
    • FORCE. Blog. 2021 Jun 11.
    • An evaluation of memory and attention in BRCA mutation carriers using an online cognitive assessment tool.
    • Kotsopoulos J, Kim SJ, Armel S, Bordeleau L, Foulkes WD, McKinnon W, Panchal S, Cohen SA, Sun S, Sun P, McKetton L, Troyer AK, Narod SA.
    • Cancer. 2021 Jun 2. doi: 10.1002/cncr.33654. Epub ahead of print.
    • Making Sense of a Health Threat: Illness Representations, Coping, and Psychological Distress among BRCA1/2 Mutation Carriers.
    • Brand H, Speiser D, Besch L, Roseman J, Kendel F.
    • Genes (Basel). 2021 May 14;12(5):741. doi: 10.3390/genes12050741.
    • What happens after menopause? (WHAM): A prospective controlled study of depression and anxiety up to 12 months after premenopausal risk-reducing bilateral salpingo-oophorectomy.
    • Hickey M, Moss KM, Brand A, Wrede CD, Domchek SM, Meiser B, Mishra GD, Joffe H.
    • Gynecol Oncol. 2021 May;161(2):527-534. doi: 10.1016/j.ygyno.2021.02.001. Epub 2021 Feb 11.
    • Family planning in carriers of BRCA1 and BRCA2 pathogenic variants.
    • Haddad JM, Robison K, Beffa L, Laprise J, ScaliaWilbur J, Raker CA, Clark MA, Hofstatter E, Dalela D, Brown A, Bradford L, Toland M, Stuckey A.
    • J Genet Couns. 2021 Apr 27. doi: 10.1002/jgc4.1423. Epub ahead of print.
    • New advancements in cancer screenings bring hope for the future.
    • Meyer Krause C.
    • FORCE. Blog. 2021 Apr 23.

    Research news: Update: FDA approves new imaging drug for detecting spread of prostate cancer. (FORCE. XRAY.)

    • Psychological Distress and Coping Ability of Women at High Risk of Hereditary Breast and Ovarian Cancer before Undergoing Genetic Counseling-An Exploratory Study from Germany.
    • Vajen B, Rosset M, Wallaschek H, Baumann E, Schlegelberger B.
    • Int J Environ Res Public Health. 2021 Apr 19;18(8):4338. doi: 10.3390/ijerph18084338.
    • Controversies in Hereditary Cancer Management.
    • AlHilli MM, Pederson HJ.
    • Obstet Gynecol. 2021 Apr 8. doi: 10.1097/AOG.0000000000004364. Epub ahead of print.
    • Clinical and Psychosocial Challenges of Breast Cancer in Adolescent and Young Adult Women Under the Age of 40 Years.
    • Chaudhary LN.
    • JCO Oncol Pract. 2021 Apr 1:OP2100111. doi: 10.1200/OP.21.00111. Epub ahead of print.
    • Decision-making for Risk-reducing Salpingo-oophorectomy (RRSO) in Southeast Asian BRCA Mutation Carriers With Breast Cancer: A Qualitative Study.
    • Sa'at H, Lee YK, Yoon SY, Wong SW, Woo YL, Barlow-Stewart K, Mohd Taib NA.
    • Int J Behav Med. 2021 Mar 31. doi: 10.1007/s12529-021-09984-y. Epub ahead of print.
    • Psychosocial Interventions for Women with a BRCA1 or BRCA2 Mutation: A Scoping Review.
    • Boghosian T, McCuaig JM, Carlsson L, Metcalfe KA.
    • Cancers (Basel). 2021 Mar 24;13(7):1486. doi: 10.3390/cancers13071486.
    • Genetic Testing Challenges in Oncology: Forged Genetic Test Report Leads to Incorrect Management.
    • Ray T.
    • Precision Oncology News. Diagnostics. 2021 Mar 1.
    • The needs of Southeast Asian BRCA mutation carriers considering risk-reducing salpingo-oophorectomy: a qualitative study.
    • Sa'at H, Lee YK, Yoon SY, Wong SW, Woo YL, Barlow-Stewart K, Mohd Taib NA.
    • Fam Cancer. 2021 Feb 19. doi: 10.1007/s10689-021-00232-6. Epub ahead of print.
    • (Ex-)breast cancer patients with (pre-existing) symptoms of anxiety and/or depression experience higher barriers to contact health care providers during the COVID-19 pandemic.
    • Mink van der Molen DR, Bargon CA, Batenburg MCT, Gal R, Young-Afat DA, van Stam LE, van Dam IE, van der Leij F, Baas IO, Ernst MF, Maarse W, Vermulst N, Schoenmaeckers EJP, van Dalen T, Bijlsma RM, Doeksen A, Verkooijen HM; UMBRELLA study group.
    • Breast Cancer Res Treat. 2021 Feb 18. doi: 10.1007/s10549-021-06112-y. Epub ahead of print.
    • Parent-Child Communication and Reproductive Considerations in Families with Genetic Cancer Predisposition Syndromes: A Systematic Review.
    • Dattilo TM, Lipak KG, Clark OE, Gehred A, Sampson A, Quinn G, Zajo K, Sutter ME, Bowman-Curci M, Gardner M, Gerhardt CA, Nahata L.
    • J Adolesc Young Adult Oncol. 2021 Feb;10(1):15-25. doi: 10.1089/jayao.2020.0084. Epub 2020 Sep 8.
    • Cost-Effectiveness of Targeted Genetic Testing for Breast and Ovarian Cancer: A Systematic Review.
    • Koldehoff A, Danner M, Civello D, Rhiem K, Stock S, Müller D.
    • Value Health. 2021 Feb;24(2):303-312. doi: 10.1016/j.jval.2020.09.016. Epub 2021 Jan 5.
    • Review
    • Challenges of Genomic Testing for Hereditary Breast and Ovarian Cancers.
    • McAlarnen L, Stearns K, Uyar D.
    • Appl Clin Genet. 2021 Jan 14;14:1-9. doi: 10.2147/TACG.S245021.
    • Tracing Our Family Mutation to an Unlikely Place.
    • Eldridge C.
    • FORCE. Blog. 2021 Jan 13.
    • #TripleNegativeBreastCancer on Instagram.
    • Henderson A, Miller CA, Sutton AL, Guidry JPD.
    • Health Educ Behav. 2021 Jan 10:1090198120985450. doi: 10.1177/1090198120985450. Epub ahead of print.
    • Volunteer Spotlight – Ashley Dedmon
    • Dedmon A.
    • FORCE. Blog. 2021 Jan 6.
    • Beyond BRCA: Cowden Syndrome (PTEN)
    • [No author given]
    • My Gene Counsel. Genetic Journal. 2021 Jan 6.
    • Germline TP53 Testing in Breast Cancers: Why, When and How?
    • Evans DG, Woodward ER, Bajalica-Lagercrantz S, Oliveira C, Frebourg T.
    • Cancers (Basel). 2020 Dec 14;12(12):3762. doi: 10.3390/cancers12123762.
    • The psychosexual effects of risk-reducing bilateral salpingo-oophorectomy in female BRCA1/2 mutation carriers: A systematic review of qualitative studies.
    • Hickey I, Jha S, Wyld L.
    • Gynecol Oncol. 2020 Dec 11:S0090-8258(20)34164-0. doi: 10.1016/j.ygyno.2020.12.001. Epub ahead of print.
    • Review
    • BRCA Family Traditions.
    • Spittal K.
    • FORCE. Blog. 2020 Dec 10.
    • Can personality traits affect the quality of life of women with the BRCA1/BRCA2 mutations before and after prophylactic adnexectomy?
    • Stanisz M, Schneider-Matyka D, Panczyk M, Branecka-Wozniak D, Kurzawa R, Knyszynska A, Grochans E.
    • Eur Rev Med Pharmacol Sci. 2020 Dec;24(23):12342-12349. doi: 10.26355/eurrev_202012_24028.
    • Outcomes of endoscopic ultrasound as a one-off pancreatic cancer screening tool for 122 high- and moderate-risk patients.
    • Efthymiou M, Chandran S, Zorron Cheng Tao Pu L, Collins A, Rajadurai A, Nikfarjam M, Vaughan R.
    • JGH Open. 2020 Oct 17[eCollection 2020 Dec];4(6):1217-1223. doi: 10.1002/jgh3.12432.
    • A PALB2 Gene has Taken a Terrible Toll on my Family.
    • Apke M.
    • FORCE. Blog. 2020 Nov 20.
    • I am a PALB2 Previvor.
    • Dinschel A.
    • FORCE. Blog. 2020 Nov 19.
    • Finding Hope on the Other Side of Surgery After Learning of my ATM Mutation.
    • Townsend C.
    • FORCE. Blog. 2020 Nov 13.
    • An ATM Gene Mutation Caused My Breast Cancer
    • Cohen E.
    • FORCE. Blog. 2020 Nov 12.
    • Previvor at 25 - The Beginning has just Begun.
    • Wilson L.
    • FORCE. Blog. 2020 Nov 10.
    • An in-depth exploration of the post-test informational needs of BRCA1 and BRCA2 pathogenic variant carriers in Asia.
    • Yuen J, Fung SM, Sia CL, Venkatramani M, Shaw T, Courtney E, Li ST, Chiang J, Tan VK, Tan BK, Ngeow J.
    • Hered Cancer Clin Pract. 2020 Oct 23;18:22. doi: 10.1186/s13053-020-00154-x.
    • Group Therapy for Patients With Medical Illness.
    • Leszcz M.
    • Am J Psychother. 2020 Oct 22:appipsychotherapy20200005. doi: 10.1176/appi.psychotherapy.20200005. Epub ahead of print.
    • The factors associated with distress a minimum of six months after BRCA1/2 confirmation: A systematic review.
    • Butler E, Collier S, Hevey D.
    • J Psychosoc Oncol. 2020 Oct 22:1-27. doi: 10.1080/07347332.2020.1836109. Epub ahead of print.
    • Review
    • Physicians communicating with women at genetic risk of breast and ovarian cancer: Are we in the middle of the ford between contradictory messages and unshared decision making?
    • Fadda M, Chappuis PO, Katapodi MC, Pagani O, Monnerat C, Membrez V, Unger S, Caiata Zufferey M.
    • PLoS One. 2020 Oct 8;15(10):e0240054. doi: 10.1371/journal.pone.0240054.
    • Fertility in BRCA mutation carriers: counseling BRCA-mutated patients on reproductive issues.
    • Knabben L, Siegenthaler F, Imboden S, Mueller MD.
    • Horm Mol Biol Clin Investig. 2020 Oct 6. doi: 10.1515/hmbci-2020-0005. Epub ahead of print.
    • Review
    • Self-concept and health anxiety relate to psychological outcomes for BRCA1/2 carriers.
    • Butler E, Collier S, Boland M, Hanhauser Y, Connolly E, Hevey D.
    • Psychooncology. 2020 Oct;29(10):1638-1645. doi: 10.1002/pon.5483. Epub 2020 Aug 11.
    • Bioethics and healthcare policies. The benefit of using genetic tests of BRCA 1 and BRCA 2 in elderly patients.
    • Fonseca V, Caeiro J.
    • Int J Health Plann Manage. 2020 Sep 25. doi: 10.1002/hpm.3072. Epub ahead of print.
    • Commentary
    • Integrative Review of Reproductive Decision Making of Women Who Are BRCA Positive.
    • Skrovanek E, Dunbar-Jacob J, Dunwoody C, Wesmiller S.
    • J Obstet Gynecol Neonatal Nurs. 2020 Sep 11:S0884-2175(20)30117-9. doi: 10.1016/j.jogn.2020.07.006. Epub ahead of print.
    • Review
    • Reproductive decision-making in the context of hereditary cancer: the effects of an online decision aid on informed decision-making.
    • Reumkens K, Tummers MHE, Severijns Y, Gietel-Habets JJG, van Kuijk SMJ, Aalfs CM, van Asperen CJ, Ausems MGEM, Collée M, Dommering CJ, Kets M, van der Kolk LE, Oosterwijk JC, Tjan-Heijnen VCG, van der Weijden T, de Die-Smulders CEM, van Osch LADM.
    • J Community Genet. 2020 Sep 2. doi: 10.1007/s12687-020-00484-2. Epub ahead of print.
    • Parent of Origin Effects on Family Communication of Risk in BRCA+ Women: A Qualitative Investigation of Human Factors in Cascade Screening.
    • Dwyer AA, Hesse-Biber S, Flynn B, Remick S.
    • Cancers (Basel). 2020 Aug 17;12(8):2316. doi: 10.3390/cancers12082316.
    • Pinning Pink: Messages About Hereditary Breast Cancer Risk on Pinterest.
    • Miller CA, Henderson AN, Guidry JPD, McGuire KP, Fuemmeler BF.
    • J Cancer Educ. 2020 Aug 8. doi: 10.1007/s13187-020-01842-x. Epub ahead of print.
    • Whether, when, and how to communicate genetic risk to minors: 'I wanted more information but I think they were scared I couldn't handle it'.
    • Stuttgen K, McCague A, Bollinger J, Dvoskin R, Mathews D.
    • J Genet Couns. 2020 Jul 23. doi: 10.1002/jgc4.1314. Epub ahead of print.
    • How to Prepare for a Mastectomy Amid COVID and Other Life Events.
    • Wheaton J.
    • FORCE Blog. 2020 Jul 8.
    • Genetic Testing Challenges in Oncology: Lynch Syndrome Patient Has Ovaries, Uterus Removed at Age 22.
    • Ray T.
    • Precision Oncology News. 2020 Jul 1.
    • Personal Story: A young woman’s story of genetic testing.
    • [No author given.]
    • For the Breast of US. 2020 Jun 23.
    • Posttraumatic Stress in Breast Cancer Survivors Diagnosed at a Young Age.
    • Vazquez D, Rosenberg S, Gelber S, Ruddy KJ, Morgan E, Recklitis C, Come S, Schapira L, Partridge AH.
    • Psychooncology. 2020 Jun 8. doi: 10.1002/pon.5438. Epub ahead of print.
    • Implementation and evaluation of a nurse-led decision-coaching program for healthy breast cancer susceptibility gene (BRCA1/2) mutation carriers: a study protocol for the randomized controlled EDCP-BRCA study.
    • Isselhard A, Töpper M, Berger-Höger B, Steckelberg A, Fischer H, Vitinius F, Beifus K, Köberlein-Neu J, Wiedemann R, Rhiem K, Schmutzler R, Stock S.
    • Trials. 2020 Jun 8;21(1):501. doi: 10.1186/s13063-020-04431-x.
    • "It wasn't just for me": Motivations and implications of genetic testing for women at a low risk of hereditary breast and ovarian cancer syndrome.
    • Gill G, Beard C, Storey K, Taylor S, Sexton A.
    • Psychooncology. 2020 Jun 4. doi: 10.1002/pon.5436. Epub ahead of print.
    • Defining health-related quality of life in localized and advanced stages of breast cancer - the first step towards hereditary cancer genetic counseling.
    • Žigman T, Lukša I, Mihaljevic G, Žarkovic M, Kirac I, Vrdoljak DV, Šerman L.
    • Acta Clin Croat. 2020 Jun;59(2):209-215. doi: 10.20471/acc.2020.59.02.02.
    • Utilization of Complementary Alternative Medicine, Diet, and Exercise Among Women at High Risk for Developing Breast Cancer.
    • Lee RT, Amico A, Malaka D, Lewin R, Cummings SA, Verp M, Patrick-Miller L, Bradbury AR, Olopade OI.
    • Integr Cancer Ther. 2020 Jan-Dec;19:1534735420922610. doi: 10.1177/1534735420922610. [First Published 2020 May 23.]
    • Predictors of long-term cancer-related distress among female BRCA1 and BRCA2 mutation carriers without a cancer diagnosis: an international analysis.
    • Metcalfe KA, Price MA, Mansfield C, Hallett DC, Lindeman GJ, Fairchild A, Posner J, Friedman S, Snyder C; Kathleen Cunningham Foundation Consortium for Research into Familial Breast Cancer, Lynch HT, Evans DG, Narod SA, Liede A.
    • Br J Cancer. 2020 May 12. doi: 10.1038/s41416-020-0861-3. Epub ahead of print.1
    • Engaging Men With BRCA-Related Cancer Risks: Practical Advice for BRCA Risk Management From Male Stakeholders.
    • Dean M, Campbell-Salome G, Rauscher EA.
    • Am J Mens Health. 2020 May-Jun;14(3):1557988320924932. doi: 10.1177/1557988320924932.
    • Expectations and psychological issues before genetic counseling: analysis of distress determinant factors.
    • Ballatore Z, Bracci R, Maccaroni E, Svarca L, Bianchi F, Belvederesi L, Bruciati C, Pagliaretta S, Murrone A, Bini F, Pistelli M, Ricci G, Berardi R.
    • Hered Cancer Clin Pract. 2020 Apr 29;18:10. doi: 10.1186/s13053-020-00142-1. eCollection 2020.
    • Cancer-related worry and risk perception in Brazilian individuals seeking genetic counseling for hereditary breast cancer.
    • Palmero EI, Campacci N, Schüler-Faccini L, Giugliani R, Rocha JCCD, Vargas FR, Ashton-Prolla P.
    • Genet Mol Biol. 2020 Apr 22;43(2):e20190097. doi: 10.1590/1678-4685-GMB-2019-0097. eCollection 2020.
    • Comparison of mammography behaviors, health beliefs, and fear levels of women with and without familial breast cancer history.
    • Erdogan E, Tuzcu A.
    • Women Health. 2020 Apr 6:1-16. doi: 10.1080/03630242.2020.1746949. [Epub ahead of print]
    • Longitudinal outcomes with cancer multigene panel testing in previously tested BRCA1/2 negative patients.
    • Bradbury AR, Egleston BL, Patrick-Miller LJ, Rustgi N, Brandt A, Brower J, DiGiovanni L, Fetzer D, Berkelbach C, Long JM, Powers J, Stopfer JE, Domchek SM.
    • Clin Genet. 2020 Apr;97(4):601-609. doi: 10.1111/cge.13716.
    • Knowledge and attitude of hereditary breast cancer among Japanese university female students.
    • Terui-Kohbata H, Egawa M, Yura K, Yoshida M.
    • J Hum Genet. 2020 Mar 18. doi: 10.1038/s10038-020-0743-9. [Epub ahead of print]
    • DNA tests grow more vital in hereditary breast cancer treatments. They also raise unanswerable questions.
    • Richards SE.
    • Washington Post. Health & Science. 2020 Mar 15.
    • A Systematized review of experiences of individuals in Arnett's emerging adulthood stage who live with or are at-risk for genetic conditions.
    • Shelley AR, McCarthy Veach P, LeRoy B, Redlinger-Grosse K.
    • J Genet Couns. 2020 Mar 7. doi: 10.1002/jgc4.1238. [Epub ahead of print]
    • The narrative paradox of the BRCA gene: an ethnographic study in the clinical encounters of ovarian cancer patients.
    • Therond C, Lanceley A, Gibbon S, Rahman B.
    • Anthropol Med. 2020 Feb 3:1-16. doi: 10.1080/13648470.2019.1663784. [Epub ahead of print]
    • Genetic cancer risk assessment: A screenshot of the psychosocial profile of women at risk for hereditary breast and ovarian cancer syndrome.
    • Campacci N, de Campos Reis Galvão H, Garcia LF, Ribeiro PC, Grasel RS, Goldim JR, Ashton-Prolla P, Palmero EI.
    • Psychooncology. 2020 Jan 26. doi: 10.1002/pon.5305. [Epub ahead of print]
    • Family storytelling about hereditary cancer: Framing shared understandings of risk.
    • Campbell-Salome G, Rauscher EA.
    • J Genet Couns. 2020 Jan 22. doi: 10.1002/jgc4.1218. [Epub ahead of print]
    • How to facilitate psychosocial adjustment in women tested for hereditary breast or ovarian cancer susceptibility? Insights from network analysis.
    • Brédart A, Dick J, Cano A, Robieux L, De Pauw A, Schmutzler R, Stoppa-Lyonnet D, Dolbeault S, Kop JL.
    • Psychooncology. 2019 Dec 11. doi: 10.1002/pon.5302. [Epub ahead of print]
    • BRCA and Motherhood: A Matter of Time and Timing.
    • Possick C, Kestler-Peleg M.
    • Qual Health Res. 2019 Dec 7:1049732319885113. doi: 10.1177/1049732319885113. [Epub ahead of print]
    • Development and refinement of FoRtitude: An eHealth intervention to reduce fear of recurrence (FoR) among breast cancer survivors.
    • Wagner LI, Duffecy J, Begale M, Victorson D, Golden SL, Smith ML, Penedo FJ, Mohr DC, Cella D.
    • Psychooncology. 2019 Nov 23. doi: 10.1002/pon.5297. [Epub ahead of print]
    • The OncoLifeS data-biobank for oncology: a comprehensive repository of clinical data, biological samples, and the patient's perspective.
    • Sidorenkov G, Nagel J, Meijer C, Duker JJ, Groen HJM, Halmos GB, Oonk MHM, Oostergo RJ, van der Vegt B, Witjes MJH, Nijland M, Havenga K, Maduro JH, Gietema JA, de Bock GH.
    • J Transl Med. 2019 Nov 14;17(1):374. doi: 10.1186/s12967-019-2122-x.
    • Parent of origin differences in psychosocial burden and approach to BRCA risk management.
    • Hesse-Biber S, Dwyer AA, Yi S.
    • Breast J. 2019 Oct 28. doi: 10.1111/tbj.13633. [Epub ahead of print]
    • Sexual function, menopausal symptoms, depression and cancer worry in women with BRCA mutations.
    • Powell CB, Alabaster A, Le A, Stoller N, Armstrong MA, Raine-Bennett T.
    • Psychooncology. 2019 Oct 26. doi: 10.1002/pon.5253. [Epub ahead of print]
    • Long-term positive psychological outcomes in an Australian pancreatic cancer screening program.
    • O'Neill RS, Meiser B, Emmanuel S, Williams DB, Stoita A.
    • Fam Cancer. 2019 Oct 17. doi: 10.1007/s10689-019-00147-3. [Epub ahead of print]
    • "How do we rally around the one who was positive?" Familial uncertainty management in the context of men managing BRCA-related cancer risks.
    • Rauscher EA, Dean M, Campbell-Salome G, Barbour JB.
    • Soc Sci Med. 2019 Oct 11;242:112592. doi: 10.1016/j.socscimed.2019.112592. [Epub ahead of print]
    • Psychosocial problems in women attending French, German and Spanish genetics clinics before and after targeted or multigene testing results: an observational prospective study.
    • Brédart A, Kop JL, Dick J, Cano A, De Pauw A, Anota A, Brunet J, Devilee P, Stoppa-Lyonnet D, Schmutzler R, Dolbeault S.
    • BMJ Open. 2019 Sep 24;9(9):e029926. doi: 10.1136/bmjopen-2019-029926.
    • Psychological aspects, risk and protective factors related to BRCA genetic testing: a review of the literature.
    • Lombardi L, Bramanti SM, Babore A, Stuppia L, Trumello C, Antonucci I, Cavallo A.
    • Support Care Cancer. 2019 Jun 15. doi: 10.1007/s00520-019-04918-7. [Epub ahead of print]
    • Review
    • Previving: How Unaffected Women with a BRCA1/2 Mutation Navigate Previvor Identity.
    • Getachew-Smith H, Ross AA, Scherr CL, Dean M, Clements ML.
    • Health Commun. 2019 Jun 4:1-10. doi: 10.1080/10410236.2019.1625002. [Epub ahead of print]
    • Talking across generations: Family communication about BRCA1 and BRCA2 genetic cancer risk.
    • Young AL, Butow PN, Rhodes P, Tucker KM, Williams R, Healey E, Wakefield CE.
    • J Genet Couns. 2019 Jun;28(3):516-532. doi: 10.1002/jgc4.1055. Epub 2019 Jan 29.
    • Online decision support for persons having a genetic predisposition to cancer and their partners during reproductive decision-making.
    • Reumkens K, Tummers MHE, Gietel-Habets JJG, van Kuijk SMJ, Aalfs CM, van Asperen CJ, Ausems MGEM, Collée M, Dommering CJ, Kets CM, van der Kolk LE, Oosterwijk JC, Tjan-Heijnen VCG, van der Weijden T1, de Die-Smulders CEM, van Osch LADM.
    • J Genet Couns. 2019 Jun;28(3):533-542. doi: 10.1002/jgc4.1056. Epub 2018 Dec 21.
    • I Had a Preventive Mastectomy—Then Found Out I Already Had Breast Cancer.
    • Campoverdi A, Brody B.
    • Health. 2019 May 16.

    Blog post: Personal Story: A young woman’s story of genetic testing. (For the Breast of US)

    • Cancer genetic health communication in families tested for hereditary breast/ovarian cancer risk: a qualitative investigation of impact on children's genetic health literacy and psychosocial adjustment.
    • Tercyak KP, Bronheim SM, Kahn N, Robertson HA, Anthony BJ, Mays D, O'Neill SC, Peterson SK, Miesfeldt S, Peshkin BN, DeMarco TA.
    • Transl Behav Med. 2019 May 16;9(3):493-503. doi: 10.1093/tbm/ibz012.
    • Scientific supremacy as an obstacle to establishing and sustaining interdisciplinary dialogue across knowledge paradigms in health medicine.
    • Gripsrud BH, Solbrække KN.
    • Med Health Care Philos. 2019 Apr 25. doi: 10.1007/s11019-019-09901-x. [Epub ahead of print]

    Commentary:

    Our genes, our selves: hereditary breast cancer and biological citizenship in Norway.

    Our genes, our selves: hereditary breast cancer and biological citizenship in Norway.

    • High-risk women's risk perception after receiving personalized polygenic breast cancer risk information.
    • Forrest LE, Sawyer SD, Hallowell N, James PA, Young MA.
    • J Community Genet. 2019 Apr;10(2):197-206. doi: 10.1007/s12687-018-0378-0. Epub 2018 Aug 10.
    • Experiences and interpretations of BRCA1/2 testing among women affected by breast or ovarian cancer who received a negative result.
    • Stafford L, Flehr A, Judd F, Lindeman GJ, Gibson P, Komiti A, Mann GB, Kentwell M.
    • J Community Genet. 2019 Mar 27. doi: 10.1007/s12687-019-00415-w. [Epub ahead of print]
    • BRACAVENIR: an observational study of expectations and coping in young women with high hereditary risk of breast and ovarian cancer.
    • Kwiatkowski F, Gay-Bellile M, Dessenne P, Laquet C, Boussion V, Béguinot M, Petit MF, Grémeau AS, Verlet C, Chaptal C, Broult M, Jouvency S, Duclos M, Bignon YJ.
    • Hered Cancer Clin Pract. 2019 Feb 27;17:7. doi: 10.1186/s13053-019-0107-7. eCollection 2019.
    • The cost of cancer care and impact of financial hardship on treatment.
    • [No author given]
    • FORCE. XRAYS. 2019 Feb 8.

    Original research:

    BRCA1 and BRCA2 Testing in Medically Underserved Medicare Beneficiaries With Breast or Ovarian Cancer.

    News: Labs, Advocacy Groups Push Back on Medicare Policy Shift on NGS Testing for Hereditary Cancer Risk. (GenomeWeb)

    News: Pricey Precision Medicine Often Financially Toxic For Cancer Patients. (Kaiser Health News)

    • Legacies and Relationships: Diverse Social Networks and BRCA1/2 Risk Management Decisions and Actions.
    • Ersig AL, Werner-Lin A, Hoskins L, Young J, Loud JT, Peters J, Greene MH.
    • J Fam Nurs. 2019 Feb;25(1):28-53. doi: 10.1177/1074840718815844. Epub 2018 Dec 12.
    • Improving outcomes for young women with breast cancer: fertility and childbearing issues.
    • [No author given]
    • FORCE. XRAYS. 2019 Jan 7.

    ClinicalTrials.gov: Pregnancy Outcome and Safety of Interrupting Therapy for Women With Endocrine Responsive Breast Cancer (POSITIVE) (NIH. ClinicalTrials.gov.)

    • The development of an online decision aid to support persons having a genetic predisposition to cancer and their partners during reproductive decision-making: a usability and pilot study.
    • Reumkens K, Tummers MHE, Gietel-Habets JJG, van Kuijk SMJ, Aalfs CM, van Asperen CJ, Ausems MGEM, Collée M, Dommering CJ, Kets CM, van der Kolk LE, Oosterwijk JC, Tjan-Heijnen VCG, van der Weijden T, de Die-Smulders CEM, van Osch LADM.
    • Fam Cancer. 2019 Jan;18(1):137-146. doi: 10.1007/s10689-018-0092-4.
    • False-positive screening events and worry influence decisions about surgery among high-risk women.
    • Andersen MR, Karlan BY, Drescher CW, Paley P, Hawley S, Palomares M, Daly MB, Urban N.
    • Health Psychol. 2019 Jan;38(1):43-52. doi: 10.1037/hea0000647. Epub 2018 Nov 15.
    • Preventative Health and Risk Behaviors Among Adolescent Girls With and Without Family Histories of Breast Cancer.
    • Schwartz LA, Henry-Moss D, Egleston B, Patrick-Miller L, Markman E, Daly M, Tuchman L, Moore C, Rauch PK, Karpink K, Sands CB, Domchek SM, Bradbury AR.
    • J Adolesc Health. 2019 Jan;64(1):116-123. doi: 10.1016/j.jadohealth.2018.07.011. Epub 2018 Oct 6.
    • A Systematic Review of the Psychological Implications of Genetic Testing: A Comparative Analysis Among Cardiovascular, Neurodegenerative and Cancer Diseases.
    • Oliveri S, Ferrari F, Manfrinati A, Pravettoni G.
    • Front Genet. 2018 Dec 10;9:624. doi: 10.3389/fgene.2018.00624.
    • Psychosocial impact of BRCA testing in young Black breast cancer survivors.
    • Gonzalez BD, Hoogland AI, Kasting ML, Cragun D, Kim J, Ashing K, Holt CL, Hughes Halbert C, Pal T, Vadaparampil ST.
    • Psychooncology. 2018 Dec;27(12):2778-2785. doi: 10.1002/pon.4887. Epub 2018 Oct 9.
    • Men's and Women's Approaches to Disclosure About BRCA-Related Cancer Risks and Family Planning Decision-Making.
    • Dean M, Rauscher EA.
    • Qual Health Res. 2018 Dec;28(14):2155-2168. doi: 10.1177/1049732318788377. Epub 2018 Jul 27.
    • A randomized controlled trial of a supportive expressive group intervention for women with a family history of breast cancer.
    • Esplen MJ, Leszcz M, Hunter J, Wong J, Leung YW, Toner B, Messner S, Glendon G, Stuckless N, Butler C.
    • Psychooncology. 2018 Nov;27(11):2645-2653. doi: 10.1002/pon.4822. Epub 2018 Jul 17.
    • Adaptation of couples living with a high risk of breast/ovarian cancer and the association with risk-reducing surgery.
    • Shapira R, Turbitt E, Erby LH, Biesecker BB, Klein WMP3, Hooker GW.
    • Fam Cancer. 2018 Oct;17(4):485-493. doi: 10.1007/s10689-017-0065-z.
    • A Systematic Review of How Young People Live with Inherited Disease: What Can We Learn for Li-Fraumeni Syndrome?
    • Forbes Shepherd R, Lewis A, Keogh LA, Werner-Lin A, Delatycki MB, Forrest LE.
    • J Adolesc Young Adult Oncol. 2018 Oct;7(5):525-545. doi: 10.1089/jayao.2018.0028. Epub 2018 Jul 13.
    • Cancer experience in families affects decision making.
    • [No author given]
    • FORCE. XRAYS. 2018 Sep 25.

    Press: How a Loved One’s Experience With Cancer Guides Breast Cancer Decisions. (U.S. News & World Report)

    • Twisting Fate. My Journey with BRCA—from Breast Cancer Doctor to Patient and Back
    • Pamela Munster
    • The Experiment (publisher). 2018 Sep 25. ISBN 978-1-61519-478-0. 272 pages. Hardcover, Ebook.
    • Book

    Essay: My Father’s Fight Against the Breast-Cancer Gene. (The Wall Street Journal.)

    • Determinants of fertility issues experienced by young women diagnosed with breast or gynaecological cancer - a quantitative, cross-cultural study.
    • Sobota A, Ozakinci G.
    • BMC Cancer. 2018 Sep 6;18(1):874. doi: 10.1186/s12885-018-4766-y.
    • Catalysts towards cancer risk management action: A longitudinal study of reproductive-aged women with BRCA1/2 mutations.
    • Werner-Lin A, Ersig AL, Mueller R, Young JL, Hoskins LM, Desai R, Greene MH.
    • J Psychosoc Oncol. 2018 Sep-Oct;36(5):529-544. doi: 10.1080/07347332.2018.1469565. Epub 2018 Jun 4.
    • Identification as a Mutation Carrier and Effects on Life According to Experiences of Finnish Male BRCA1/2 Mutation Carriers.
    • Kajula O, Kuismin O, Kyngäs H.
    • J Genet Couns. 2018 Aug;27(4):874-884. doi: 10.1007/s10897-017-0209-1. Epub 2018 Jan 13.
    • “Second-Class Status?” Insight into Communication Patterns and Common Concerns Among Men with Hereditary Breast and Ovarian Cancer Syndrome.
    • Suttman A, Pilarski R, Agnese DM, Senter L.
    • J Genet Couns. 2018 Aug;27(4):885-893. doi: 10.1007/s10897-018-0214-z. Epub 2018 Feb 5.
    • Does stress increase risk of breast cancer? A 15-year prospective study.
    • Butow P, Price M, Coll J, Tucker K, Meiser B, Milne R, Wilson J, Heiniger L, Baylock B, Bullen T, Weideman P, Phillips KA; kConFab investigators; kConFab Clinical Follow-Up investigators; kConFab psychosocial investigators.
    • Psychooncology. 2018 Aug;27(8):1908-1914. doi: 10.1002/pon.4740. Epub 2018 May 4.
    • Coping Mechanisms, Psychological Distress, and Quality of Life Prior to Cancer Genetic Counseling.
    • Di Mattei VE, Carnelli L, Bernardi M, Bienati R, Brombin C, Cugnata F, Rabaiotti E, Zambetti M, Sarno L, Candiani M, Gentilini O.
    • Front Psychol. 2018 Jul 16;9:1218. doi: 10.3389/fpsyg.2018.01218. eCollection 2018.
    • "Guys Don't Have Breasts": The Lived Experience of Men Who Have BRCA Gene Mutations and Are at Risk for Male Breast Cancer.
    • Skop M, Lorentz J, Jassi M, Vesprini D, Einstein G.
    • Am J Mens Health. 2018 Jul;12(4):961-972. doi: 10.1177/1557988317753241. Epub 2018 Feb 5.
    • Information and support needs of young women regarding breast cancer risk and genetic testing: adapting effective interventions for a novel population.
    • O'Neill SC, Evans C, Hamilton RJ, Peshkin BN, Isaacs C, Friedman S, Tercyak KP.
    • Fam Cancer. 2018 Jul;17(3):351-360. doi: 10.1007/s10689-017-0059-x.
    • Support needs of couples with hereditary breast and ovarian cancer during reproductive decision-making.
    • Gietel-Habets JJG, de Die-Smulders CEM, Derks-Smeets IAP, Tibben A, Tjan-Heijnen VCG, van Golde R, Gomez-Garcia E, van Osch LADM.
    • Psychooncology. 2018 Jul;27(7):1795-1801. doi: 10.1002/pon.4729. Epub 2018 May 4.
    • Talking with Children About Adult-Onset Hereditary Cancer Risk: A Developmental Approach for Parents.
    • Werner-Lin A, Merrill SL, Brandt AC.
    • J Genet Couns. 2018 Jun;27(3):533-548. doi: 10.1007/s10897-017-0191-7. Epub 2018 Jan 30.
    • High demoralization in a minority of oophorectomized BRCA1/2 mutation carriers influences quality of life.
    • Arts-de Jong M, DeJong CAJ, Hermens RP, Kissane DW, Massuger LM, Hoogerbrugge N, Prins JB, deHullu JA.
    • J Psychosom Obstet Gynaecol. 2018 Jun;39(2):96-104. doi: 10.1080/0167482X.2017.1296429. Epub 2017 Mar 10.
    • Our genes, our selves: hereditary breast cancer and biological citizenship in Norway.
    • Møller P, Hovig E.
    • Med Health Care Philos. 2018 Jun;21(2):239-242. doi: 10.1007/s11019-017-9803-0.

    Our genes, our selves: hereditary breast cancer and biological citizenship in Norway.

    Commentary, Reply:

    Scientific supremacy as an obstacle to establishing and sustaining interdisciplinary dialogue across knowledge paradigms in health medicine.

    • Returning Individual Genetic Research Results to Research Participants: Uptake and Outcomes Among Patients With Breast Cancer.
    • Bradbury AR, Patrick-Miller L, Egleston BL, Maxwell KN, DiGiovanni L, Brower J, Fetzer D, Bennett Gaieski J, Brandt A, McKenna D, Long J, Powers J, Stopfer JE, Nathanson KL, Domchek SM.
    • JCO Precis Oncol. 2018;2. doi: 10.1200/po.17.00250. Epub 2018 Apr 16.
    • Patient experience and utility of genetic information: a cross-sectional study among patients tested for cancer susceptibility and thrombophilia.
    • D'Andrea E, Lagerberg T, De Vito C, Pitini E, Marzuillo C, Massimi A, Vacchio MR, Grammatico P, Villari P.
    • Eur J Hum Genet. 2018 Apr;26(4):518-526. doi: 10.1038/s41431-017-0083-1. Epub 2018 Jan 26.
    • Take your time, follow your heart: strategies for communication about family planning.
    • [No author given]
    • FORCE. XRAYS. 2018 Mar 28.

    "Take your time, then follow your heart:" Previvors' advice for communicating about family planning after testing positive for a BRCA genetic variant.

    • The Right Not to Know: When Ignorance Is Bliss but Deadly.
    • Clausen AM.
    • Global Health NOW. 2018 Mar 20.

    Commentary: The right not to know when not knowing is dangerous. (FORCE. XRAYS.)

    • When BRCA Mutations Meet Complications.
    • Clausen AM.
    • Global Health NOW. 2018 Mar 20.
    • Patient-Centered Care in Breast Cancer Genetic Clinics.
    • Brédart A, Anota A, Dick J, Kuboth V, Lareyre O, De Pauw A, Cano A, Stoppa-Lyonnet D, Schmutzler R, Dolbeault S, Kop JL.
    • Int J Environ Res Public Health. 2018 Feb 12;15(2). pii: E319. doi: 10.3390/ijerph15020319.
    • Previvors' Uncertainty Management Strategies for Hereditary Breast and Ovarian Cancer.
    • Dean M, Davidson LG.
    • Health Commun. 2018 Feb;33(2):122-130. doi: 10.1080/10410236.2016.1250187. Epub 2016 Dec 15.
    • Self-compassion, physical fitness and climacteric symptoms in oophorectomized BRCA1/2 mutation carriers.
    • Arts-de Jong M, van Westerop LL, Hoogerbrugge N, Massuger LF, Maas AH, van Beek MH, de Hullu JA.
    • Maturitas. 2018 Feb;108:13-17. doi: 10.1016/j.maturitas.2017.11.002. Epub 2017 Nov 3.
    • Heightened perception of breast cancer risk in young women at risk of familial breast cancer.
    • Glassey R, O'Connor M, Ives A, Saunders C; kConFab Investigators, O'Sullivan S, Hardcastle SJ.
    • Fam Cancer. 2018 Jan;17(1):15-22. doi: 10.1007/s10689-017-0001-2.
    • Influences on anticipated time to ovarian cancer symptom presentation in women at increased risk compared to population risk of ovarian cancer.
    • Smits S, Boivin J, Menon U, Brain K.
    • BMC Cancer. 2017 Dec 4;17(1):814. doi: 10.1186/s12885-017-3835-y.
    • "Take your time, then follow your heart:" Previvors' advice for communicating about family planning after testing positive for a BRCA genetic variant.
    • Rauscher EA, Dean M.
    • Fam Syst Health. 2017 Dec;35(4):486-497. doi: 10.1037/fsh0000312.

    Research news: Take your time, follow your heart: strategies for communication about family planning. (FORCE. XRAYS.)

    • "It was an Emotional Baby": Previvors' Family Planning Decision-Making Styles about Hereditary Breast and Ovarian Cancer Risk.
    • Dean M, Rauscher EA.
    • J Genet Couns. 2017 Dec;26(6):1301-1313. doi: 10.1007/s10897-017-0069-8. Epub 2017 Jan 30.
    • Genetics of Breast and Gynecologic Cancers (PDQ®): Health Professional Version. Psychosocial Issues in Inherited Breast and Ovarian Cancer Syndromes. What People Bring to Genetic Testing: Impact of Risk Perception, Health Beliefs, and Personality Characteristics.
    • PDQ Cancer Genetics Editorial Board.
    • PDQ Cancer Information Summaries [Internet]. Bethesda, MD: National Cancer Institute. Updated 2017 Nov 30. Accessed 2017 Dec 8.
    • Genetics of Breast and Gynecologic Cancers (PDQ®): Health Professional Version. Psychosocial Issues in Inherited Breast and Ovarian Cancer Syndromes. Genetic Counseling for Hereditary Predisposition to Breast Cancer.
    • PDQ Cancer Genetics Editorial Board.
    • PDQ Cancer Information Summaries [Internet]. Bethesda, MD: National Cancer Institute. Updated 2017 Nov 30. Accessed 2017 Dec 8.
    • Feasibility of structured endurance training and Mediterranean diet in BRCA1 and BRCA2 mutation carriers - an interventional randomized controlled multicenter trial (LIBRE-1).
    • Kiechle M, Dukatz R, Yahiaoui-Doktor M, Berling A, Basrai M, Staiger V, Niederberger U, Marter N, Lammert J, Grill S, Pfeifer K, Rhiem K, Schmutzler RK, Laudes M, Siniatchkin M, Halle M, Bischoff SC, Engel C.
    • BMC Cancer. 2017 Nov 10;17(1):752. doi: 10.1186/s12885-017-3732-4.
    • Randomized Trial of ConquerFear: A Novel, Theoretically Based Psychosocial Intervention for Fear of Cancer Recurrence.
    • Butow PN, Turner J, Gilchrist J, Sharpe L, Smith AB, Fardell JE, Tesson S, O'Connell R, Girgis A, Gebski VJ, Asher R, Mihalopoulos C, Bell ML, Zola KG, Beith J, Thewes B.
    • J Clin Oncol. 2017 Nov 2:JCO2017731257. doi: 10.1200/JCO.2017.73.1257. [Epub ahead of print]
    • Experiences of "openness" between mothers & daughters during breast cancer: implications for coping and healthy outcomes.
    • Fisher CL, Wolf BM, Fowler C, Canzona MR.
    • Psychooncology. 2017 Nov;26(11):1872-1880. doi: 10.1002/pon.4253. Epub 2016 Sep 20.
    • Ambiguity in a masculine world: Being a BRCA1/2 mutation carrier and a man with prostate cancer.
    • Moynihan C, Bancroft EK, Mitra A, Ardern-Jones A, Castro E, Page EC, Eeles RA.
    • Psychooncology. 2017 Nov;26(11):1987-1993. doi: 10.1002/pon.4530. Epub 2017 Sep 18.
    • Emotional impact on the results of BRCA1 and BRCA2 genetic test: an observational retrospective study.
    • Mella S, Muzzatti B, Dolcetti R, Annunziata MA.
    • Hered Cancer Clin Pract. 2017 Oct 2;15:16. doi: 10.1186/s13053-017-0077-6. eCollection 2017.
    • Cancer Predisposition Cascade Screening for Hereditary Breast/Ovarian Cancer and Lynch Syndromes in Switzerland: Study Protocol.
    • Katapodi MC, Viassolo V, Caiata-Zufferey M, Nikolaidis C, Bührer-Landolt R5, Buerki N, Graffeo R, Horváth HC, Kurzeder C, Rabaglio M, Scharfe M, Urech C, Erlanger TE, Probst-Hensch N, Heinimann K, Heinzelmann-Schwarz V, Pagani O, Chappuis PO.
    • JMIR Res Protoc. 2017 Sep 20;6(9):e184. doi: 10.2196/resprot.8138.
    • Moving In and Out of the What-Ifs: The Experiences of Unaffected Women Living in Families Where a Breast Cancer 1 or 2 Genetic Mutation Was Not Found.
    • Schroeder D, Duggleby W, Cameron BL.
    • Cancer Nurs. 2017 Sep/Oct;40(5):386-393. doi: 10.1097/NCC.0000000000000438.
    • Efficacy of Blended Cognitive Behavior Therapy for High Fear of Recurrence in Breast, Prostate, and Colorectal Cancer Survivors: The SWORD Study, a Randomized Controlled Trial.
    • van de Wal M, Thewes B, Gielissen M, Speckens A, Prins J.
    • J Clin Oncol. 2017 Jul 1;35(19):2173-2183. doi: 10.1200/JCO.2016.70.5301. Epub 2017 May 4.
    • Longitudinal cancer risk management trajectories of BRCA1/2 mutation-positive reproductive-age women.
    • Young JL, Werner-Lin A, Mueller R, Hoskins L, Epstein N, Greene MH.
    • J Psychosoc Oncol. 2017 Jul-Aug;35(4):393-408. doi: 10.1080/07347332.2017.1292574. Epub 2017 Feb 14.
    • "I Don't Want to Be an Ostrich": Managing Mothers' Uncertainty during BRCA1/2 Genetic Counseling.
    • Fisher CL, Roccotagliata T, Rising CJ, Kissane DW, Glogowski EA, Bylund CL.
    • J Genet Couns. 2017 Jun;26(3):455-468. doi: 10.1007/s10897-016-9998-x. Epub 2016 Jul 30.
    • Reproductive Decision-Making in Women with BRCA1/2 Mutations.
    • Chan JL, Johnson LN, Sammel MD, DiGiovanni L, Voong C, Domchek SM, Gracia CR.
    • J Genet Couns. 2017 Jun;26(3):594-603. doi: 10.1007/s10897-016-0035-x. Epub 2016 Oct 28.
    • A pilot randomized controlled trial of cognitive bias modification to reduce fear of breast cancer recurrence.
    • Lichtenthal WG, Corner GW, Slivjak ET, Roberts KE, Li Y, Breitbart W, Lacey S, Tuman M, DuHamel KN, Blinder VS, Beard C.
    • Cancer. 2017 Apr 15;123(8):1424-1433. doi: 10.1002/cncr.30478. Epub 2017 Jan 5.
    • Issues Arising in Psychological Consultations to Help Parents Talk to Minor and Young Adult Children about their Cancer Genetic Test Result: a Guide to Providers.
    • Patenaude AF, Schneider KA.
    • J Genet Couns. 2017 Apr;26(2):251-260. doi: 10.1007/s10897-016-0010-6. Epub 2016 Oct 3.
    • Our genes, our selves: hereditary breast cancer and biological citizenship in Norway.
    • Solbrække KN, Søiland H, Lode K, Gripsrud BH.
    • Med Health Care Philos. 2017 Mar;20(1):89-103. doi: 10.1007/s11019-016-9737-y.

    Commentary:

    Our genes, our selves: hereditary breast cancer and biological citizenship in Norway.

    Commentary, Reply:

    Scientific supremacy as an obstacle to establishing and sustaining interdisciplinary dialogue across knowledge paradigms in health medicine.

    • An exploratory study of patients' views about being at high-risk for breast cancer and risk management beliefs and intentions, before and after risk counselling: Preliminary evidence of the influence of beliefs on post-counselling prevention intentions.
    • Paquet L, Simmonds L, Yang C, Verma S.
    • Patient Educ Couns. 2017 Mar;100(3):575-582. doi: 10.1016/j.pec.2016.10.005. Epub 2016 Oct 11.
    • Health Behaviors and their Relationship with Disease Control in People Attending Genetic Clinics with a Family History of Breast or Colorectal Cancer.
    • Anderson AS, Caswell S, Macleod M, Steele RJ, Berg J, Dunlop J, Stead M, Eadie D, O'Carroll RE.
    • J Genet Couns. 2017 Feb;26(1):40-51. doi: 10.1007/s10897-016-9977-2. Epub 2016 Jun 17.
    • The 'cause' of my cancer, beliefs about cause among breast cancer patients and survivors who do and do not seek IO care.
    • Andersen MR, Afdem K, Hager S, Gaul M, Sweet E, Standish LJ.
    • Psychooncology. 2017 Feb;26(2):248-254. doi: 10.1002/pon.4028. Epub 2015 Nov 9.
    • Preparing young people for future decision-making about cancer risk in families affected or at risk from hereditary breast cancer: A qualitative interview study.
    • Rowland E, Plumridge G, Considine AM, Metcalfe A.
    • Eur J Oncol Nurs. 2016 Dec;25:9-15. doi: 10.1016/j.ejon.2016.08.006. Epub 2016 Sep 20.
    • Experience of Norwegian Female BRCA1 and BRCA2 Mutation-Carrying Participants in Educational Support Groups: a Qualitative Study.
    • Myklebust M, Gjengedal E, Strømsvik N.
    • J Genet Couns. 2016 Dec;25(6):1198-1206. Epub 2016 Apr 19.
    • Experience of Social Media Support Group for BRCA Carriers.
    • Stefansdottir V.
    • J Genet Couns. 2016 Dec;25(6):1342-1344. Epub 2016 Sep 13.
    • Letter
    • Beyond BRCA: Hereditary Diffuse Gastric Cancer Syndrome and CDH1 Mutations.
    • [No author given]
    • My Gene Counsel. 2016 Nov 22.
    • BRACAVENIR - impact of a psychoeducational intervention on expectations and coping in young women (aged 18-30 years) exposed to a high familial breast/ovarian cancer risk: study protocol for a randomized controlled trial.
    • Kwiatkowski F, Dessenne P, Laquet C, Daures JP, Gay-Bellile M, Bignon YJ.
    • Trials. 2016 Oct 21;17(1):509.
    • An exploratory study of patients' views about being at high-risk for breast cancer and risk management beliefs and intentions, before and after risk counselling: Preliminary evidence of the influence of beliefs on post-counselling prevention intentions.
    • Paquet L, Simmonds L, Yang C, Verma S.
    • Patient Educ Couns. 2016 Oct 11. pii: S0738-3991(16)30455-4. doi: 10.1016/j.pec.2016.10.005. [Epub ahead of print]
    • Psychosocial Adjustment and Perceived Risk Among Adolescent Girls From Families With BRCA1/2 or Breast Cancer History.
    • Bradbury AR, Patrick-Miller L, Schwartz LA, Egleston BL, Henry-Moss D, Domchek SM, Daly MB, Tuchman L, Moore C, Rauch PK, Shorter R, Karpink K, Sands CB.
    • J Clin Oncol. 2016 Oct 1;34(28):3409-16. doi: 10.1200/JCO.2015.66.3450. Epub 2016 Aug 22.
    • Psychological Distress, Anxiety, and Depression of Cancer-Affected BRCA1/2 Mutation Carriers: a Systematic Review.
    • Ringwald J, Wochnowski C, Bosse K, Giel KE, Schäffeler N, Zipfel S, Teufel M.
    • J Genet Couns. 2016 Oct;25(5):880-891. Epub 2016 Apr 14.
    • Review
    • Genetic Testing and Post-Testing Decision Making among BRCA-Positive Mutation Women: A Psychosocial Approach.
    • Hesse-Biber S, An C.
    • J Genet Couns. 2016 Oct;25(5):978-992. Epub 2016 Jan 13.
    • The psychological impact of genetic information on children: a systematic review.
    • Wakefield CE, Hanlon LV, Tucker KM, Patenaude AF, Signorelli C, McLoone JK, Cohn RJ.
    • Genet Med. 2016 Aug;18(8):755-62. doi: 10.1038/gim.2015.181. Epub 2016 Jan 7.

    Commentary:

    Predictive genetic testing of minors: evidence and experience with families.

    • Fatalism Revisited: Further Psychometric Testing Across Two Studies.
    • Heiney SP, Gullatte M, Hayne PD, Powe B, Habing B.
    • J Relig Health. 2016 Aug;55(4):1472-81. doi: 10.1007/s10943-015-0159-6.
    • "It's not if I get cancer, it's when I get cancer": BRCA-positive patients' (un)certain health experiences regarding hereditary breast and ovarian cancer risk.
    • Dean M.
    • Soc Sci Med. 2016 Aug;163:21-7. doi: 10.1016/j.socscimed.2016.06.039. Epub 2016 Jun 23.
    • Quality of Life and Psychological State in Chinese Breast Cancer Patients Who Received BRCA1/2 Genetic Testing.
    • Qiu J, Guan J, Yang X, Wu J, Liu G, Di G, Chen C, Hou Y, Han Q, Shen Z, Shao Z, Hu Z.
    • PLoS One. 2016 Jul 18;11(7):e0158531. doi: 10.1371/journal.pone.0158531. eCollection 2016.
    • Understanding the Needs of Young Women Regarding Breast Cancer Risk Assessment and Genetic Testing: Convergence and Divergence among Patient-Counselor Perceptions and the Promise of Peer Support.
    • Evans C, Hamilton RJ, Tercyak KP, Peshkin BN, Rabemananjara K, Isaacs C, O'Neill SC.
    • Healthcare (Basel). 2016 Jun 28;4(3). pii: E35. doi: 10.3390/healthcare4030035.
    • Coping Together, Side by Side: Enriching Mother–Daughter Communication Across the Breast Cancer Journey. Written by Carla L. Fisher. Hampton Press Inc., New York, NY, 2014. 242 pp. Price: $29.95 (US), ₤17.01 (UK). ISBN: 978-1612891415 (paperbound).
    • David Wellisch, Valerie Yarema.
    • Psycho-Oncology. 25(6):744. doi: 10.1002/pon.4122. 2016 Jun.
    • Book review
    • Women's Health Issues for BRCA Mutation Carriers.
    • Sabatini ME, Ellisen LW.
    • Am Soc Clin Oncol Educ Book. 2016 May;(36):14-17. doi: 10.1200/EDBK_100001.
    • Exploration of Male Attitudes on Partnerships and Sexuality with Female BRCA1/2 Mutation Carriers.
    • Mauer C, Spencer S, Dungan J, Hurley K.
    • J Genet Couns. 2016 Apr;25(2):290-7. doi: 10.1007/s10897-015-9870-4. Epub 2015 Aug 8.
    • Development and pilot testing of a psychosocial intervention program for young breast cancer survivors.
    • Ahmed K, Marchand E, Williams V, Coscarelli A, Ganz PA.
    • Patient Educ Couns. 2016 Mar;99(3):414-20. doi: 10.1016/j.pec.2015.09.014. Epub 2015 Oct 9.
    • Podcast: Making Prophylactic Surgery Decisions.
    • Ellen T. Matloff.
    • My Gene Counsel. 2016 Feb 24.
    • [Cultural scale adaptation and validation of the Spanish version of the BRCA Self-Concept Scale in women carriers at high risk for hereditary breast and ovarian cancer].
    • Castejón V, Rovira T, Sumalla EC, Darder E, Iglesias S, Ochoa C, Blanco I.
    • Med Clin (Barc). 2016 Feb 19;146(4):148-54. doi: 10.1016/j.medcli.2015.09.018. Epub 2015 Dec 3.
    • [Article in Spanish]
    • Beyond BRCA: Testing negative and living in the 'gray zone' for cancer risk.
    • [No author given]
    • My Gene Counsel. 2016 Feb 16.
    • The Life Course Perspective: a Guide for Genetic Counselors.
    • Hamilton RJ, Innella NA, Bounds DT.
    • J Genet Couns. 2016 Feb;25(1):44-8. doi: 10.1007/s10897-015-9878-9. Epub 2015 Aug 27.
    • Living With Genetic Vulnerability: a Life Course Perspective.
    • Hamilton RJ, Innella NA, Bounds DT.
    • J Genet Couns. 2016 Feb;25(1):49-61. doi: 10.1007/s10897-015-9877-x. Epub 2015 Sep 2.
    • Experiences of Women Who Underwent Predictive BRCA 1/2 Mutation Testing Before the Age of 30.
    • Brunstrom K, Murray A, McAllister M.
    • J Genet Couns. 2016 Feb;25(1):90-100. doi: 10.1007/s10897-015-9845-5. Epub 2015 May 19.
    • Women's beliefs about breast cancer causation in a breast cancer case-control study.
    • Lizama N, Rogers P, Thomson A, Slevin T, Fritschi L, Saunders C, Heyworth J.
    • Psychooncology. 2016 Jan;25(1):36-42. doi: 10.1002/pon.3869. Epub 2015 Jun 18.
    • Women's Health Issues for BRCA Mutation Carriers.
    • Sabatini ME, Ellisen LW.
    • Am Soc Clin Oncol Educ Book. 2016;35:14-17. doi: 10.14694/EDBK_100001.

    Comments from NSGC Discussion Forum Cancer SIG

    Subject: hormonal birth control with ATM mutations?

    • Facilitators and Challenges in Psychosocial Adaptation to Being at Increased Familial Risk of Breast Cancer.
    • Heiniger L, Price MA, Charles M, Butow PN; kConFab Psychosocial Group on behalf of the kConFab Investigators.
    • J Genet Couns. 2015 Dec;24(6):890-907. doi: 10.1007/s10897-015-9824-x. Epub 2015 Mar 5.
    • Partner support and anxiety in young women with breast cancer.
    • Borstelmann NA, Rosenberg SM, Ruddy KJ, Tamimi RM, Gelber S, Schapira L, Come S, Borges V, Morgan E, Partridge AH.
    • Psychooncology. 2015 Dec;24(12):1679-85. doi: 10.1002/pon.3780. Epub 2015 Mar 13.
    • Optimism and depression: a new look at social support as a mediator among women at risk for breast cancer.
    • Garner MJ, McGregor BA, Murphy KM, Koenig AL, Dolan ED, Albano D.
    • Psychooncology. 2015 Dec;24(12):1708-13. doi: 10.1002/pon.3782. Epub 2015 Mar 18.
    • National Caregivers Month: Gabbie & Meaghan’s Story.
    • [No author given].
    • My Gene Counsel. 2015 Nov 19.
    • Psychosocial Adjustment in School-age Girls With a Family History of Breast Cancer.
    • Bradbury AR, Patrick-Miller L, Schwartz L, Egleston B, Sands CB, Chung WK, Glendon G, McDonald JA, Moore C, Rauch P, Tuchman L, Andrulis IL, Buys SS, Frost CJ, Keegan TH, Knight JA, Terry MB, John EM, Daly MB.
    • Pediatrics. 2015 Nov;136(5):927-37. doi: 10.1542/peds.2015-0498. Epub 2015 Oct 19.

    Press: Are the kids all right? When breast cancer runs in the family (CBS News)

    • Putting it off: family breast cancer history and women's retirement planning.
    • Zick CD, Mayer RN, Smith KR.
    • Psychooncology. 2015 Nov;24(11):1500-5. doi: 10.1002/pon.3759. Epub 2015 Jan 29.
    • Emotional suppression and depressive symptoms in women newly diagnosed with early breast cancer.
    • Li L, Yang Y, He J, Yi J, Wang Y, Zhang J, Zhu X.
    • BMC Womens Health. 2015 Oct 24;15:91. doi: 10.1186/s12905-015-0254-6.

    Press: Emotional suppression and depressive symptoms in women newly diagnosed with early breast cancer. (Medscape)

    • Intuition versus cognition: a qualitative exploration of how women understand and manage their increased breast cancer risk.
    • Heiniger L, Butow PN, Charles M; kConFab Psychosocial Group on behalf of the kConFab Investigators, Price MA.
    • J Behav Med. 2015 Oct;38(5):727-39. doi: 10.1007/s10865-015-9632-7. Epub 2015 Mar 28.
    • Challenges in managing genetic cancer risk: a long-term qualitative study of unaffected women carrying BRCA1/BRCA2 mutations.
    • Caiata-Zufferey M, Pagani O, Cina V, Membrez V, Taborelli M, Unger S, Murphy A, Monnerat C, Chappuis PO.
    • Genet Med. 2015 Sep 2;17(9):726-32. doi: 10.1038/gim.2014.183. Epub 2014 Dec 11.
    • Podcast: I Will Survive!
    • Ellen T. Matloff.
    • My Gene Counsel. 2015 Jun 2.
    • Impact of BRCA1/2 mutation on young women's 5-year parenthood rates: a prospective comparative study (GENEPSO-PS cohort).
    • Mancini J, Mouret-Fourme E, Noguès C, Julian-Reynier C.
    • Fam Cancer. 2015 Jun;14(2):273-9. doi: 10.1007/s10689-014-9777-5.
    • Randomized controlled trial of Inquiry-Based Stress Reduction (IBSR) technique for BRCA1/2 mutation carriers.
    • Landau C, Lev-Ari S, Cohen-Mansfield J, Tillinger E, Geva R, Tarrasch R, Mitnik I, Friedman E.
    • Psychooncology. 2015 Jun;24(6):726-31. doi: 10.1002/pon.3703. Epub 2014 Oct 18.
    • Podcast: Genetic Counseling for Survivors.
    • Ellen T. Matloff.
    • My Gene Counsel. 2015 May 26.
    • The Consequences of a BRCA Mutation in Women.
    • Famorca-Tran J, Roux G.
    • J Adv Pract Oncol. 2015 May-Jun;6(3):194-210. Epub 2015 May 1.
    • Genetically at-risk status and individual agency. A qualitative study on asymptomatic women living with genetic risk of breast/ovarian cancer.
    • Caiata-Zufferey M.
    • Soc Sci Med. 2015 May;132:141-8. doi: 10.1016/j.socscimed.2015.03.037. Epub 2015 Mar 19.
    • Genetic testing: When prediction generates stigmatization.
    • DiMillo J, Samson A, Thériault A, Lowry S, Corsini L, Verma S, Tomiak E.
    • J Health Psychol. 2015 Apr;20(4):393-400. doi: 10.1177/1359105313502566. Epub 2013 Sep 13.
    • Cognitive and affective influences on perceived risk of ovarian cancer.
    • Peipins LA, McCarty F, Hawkins NA, Rodriguez JL, Scholl LE, Leadbetter S.
    • Psychooncology. 2015 Mar;24(3):279-86. doi: 10.1002/pon.3593. Epub 2014 Jun 11.
    • Women's concerns about the emotional impact of awareness of heritable breast cancer risk and its implications for their children.
    • O'Neill SC, Mays D, Patenaude AF, Garber JE, DeMarco TA, Peshkin BN, Schneider KA, Tercyak KP.
    • J Community Genet. 2015 Jan;6(1):55-62. doi: 10.1007/s12687-014-0201-5. Epub 2014 Aug 7.
    • Perceived breast cancer risk and breast cancer worry among women with a family history of breast cancer: a new perspective on coping as a mediator.
    • Molina Y, Ceballos RM, Dolan ED, Albano D, McGregor BA.
    • Psychooncology. 2015 Jan;24(1):113-6. doi: 10.1002/pon.3587. Epub 2014 Jul 2.
    • Cancer risk management decision making for BRCA+ women.
    • Leonarczyk TJ, Mawn BE.
    • West J Nurs Res. 2015 Jan;37(1):66-84. doi: 10.1177/0193945913519870. Epub 2014 Jan 26.
    • From Diagnosis to Gnosis: writing, knowledge, and repair in breast cancer and BRCA memoirs.
    • Boesky A.
    • Perspect Biol Med. 2015;58(1):74-88. doi: 10.1353/pbm.2015.0019.
    • Offspring of a parent with genetic disease: Childhood experiences and adult psychological characteristics.
    • van der Meer L, van Duijn E, Wolterbeek R, Tibben A.
    • Health Psychol. 2014 Dec;33(12):1445-53. doi: 10.1037/a0034530. Epub 2013 Nov 25.
    • Preliminary report of the relationship between experience of death of a relative, illness perception, and psychological outcome among BRCA carriers.
    • Samama D, Hasson-Ohayon I, Perry S, Morag O, Goldzweig G.
    • Psychol Health Med. 2014 Dec;19(6):698-704. doi: 10.1080/13548506.2013.861600. Epub 2013 Nov 26.
    • The loss of a mother and dealing with genetic cancer risk: women who have undergone prophylactic removal of the ovaries.
    • Mæland MK, Eriksen EO, Synnes O.
    • Eur J Oncol Nurs. 2014 Oct;18(5):521-6. doi: 10.1016/j.ejon.2014.04.006. Epub 2014 May 28.
    • Characterizing biased cancer-related cognitive processing: Relationships with BRCA1/2 genetic mutation status, personal cancer history, age, and prophylactic surgery.
    • Carpenter KM, Eisenberg S, Weltfreid S, Low CA, Beran T, Stanton AL.
    • Health Psychol. 2014 Sep;33(9):1003-11. doi: 10.1037/a0032737. Epub 2013 Jun 17.
    • Maximising survival: the main concern of women with hereditary breast and ovarian cancer who undergo genetic testing for BRCA1/2.
    • Jeffers L, Morrison PJ, McCaughan E, Fitzsimons D.
    • Eur J Oncol Nurs. 2014 Aug;18(4):411-8. doi: 10.1016/j.ejon.2014.03.007. Epub 2014 Apr 13.
    • Distress and the parenting dynamic among BRCA1/2 tested mothers and their partners.
    • Mays D, DeMarco TA, Luta G, Peshkin BN, Patenaude AF, Schneider KA, Garber JE, Tercyak KP.
    • Health Psychol. 2014 Aug;33(8):765-73. doi: 10.1037/a0033418. Epub 2013 Jun 24.
    • Randomized Controlled Trial of “The Work” Meditation-Based Intervention for BRCA1/2 Mutation Carriers.
    • Lev-Ari Shahar, Landau Carla, Cohen-Mensfild Jiska, Friedman Eitan.
    • Journal of Alternative and Complementary Medicine. May 2014, 20(5): A59-A60; doi:10.1089/acm.2014.5155.abstract. 2014 May 7.
    • The impact of a breast cancer diagnosis in young women on their relationship with their mothers.
    • Ali A, Fergus K, Wright FC, Pritchard KI, Kiss A, Warner E.
    • Breast. 2014 Feb;23(1):50-5. doi: 10.1016/j.breast.2013.10.004. Epub 2013 Nov 27.
    • Living with the BRCA1 and BRCA2 genetic mutation: Learning how to adapt to a virtual chronic illness.
    • Samson A, Dimillo J, Thériault A, Lowry S, Corsini L, Verma S, Tomiak E.
    • Psychol Health Med. 2014 Feb;19(1):103-14. doi: 10.1080/13548506.2013.779729. Epub 2013 Apr 23.
    • [Psychological and familial aspects of the familial breast and ovarian cancer genetic counseling process].
    • Flugelman A, Rennert G, Eidelman S.
    • Harefuah. 2014 Jan;153(1):22-6, 65.
    • Review, [Article in Hebrew]
    • Mapping Jewish Identities: Migratory Histories and the Transnational Re-Framing of ‘Ashkenazi BRCA Mutations’ in the UK and Brazil.
    • Mozersky J, Gibbon S.
    • In: Breast Cancer Gene Research and Medical Practices: Transnational Perspectives in the Time of BRCA. Oxon (UK): Routledge; 2014. Gibbon S, Joseph G, Mozersky J, zur Nieden A, Palfner S, editors. Wellcome Trust–Funded Monographs and Book Chapters.
    • Young Women with Breast Cancer: A Focus Group Study of Unmet Needs.
    • Ruddy KJ, Greaney ML, Sprunck-Harrild K, Meyer ME, Emmons KM, Partridge AH.
    • J Adolesc Young Adult Oncol. 2013 Dec 1;2(4):153-160.
    • Is the psychological impact of genetic testing moderated by support and sharing of test results to family and friends?
    • Lapointe J, Dorval M, Noguès C, Fabre R; GENEPSO Cohort, Julian-Reynier C.
    • Fam Cancer. 2013 Dec;12(4):601-10. doi: 10.1007/s10689-013-9621-3.
    • Can we test for hereditary cancer at 18 years when we start surveillance at 25? Patient reported outcomes.
    • Sie AS, Prins JB, Spruijt L, Kets CM, Hoogerbrugge N.
    • Fam Cancer. 2013 Dec;12(4):675-82. doi: 10.1007/s10689-013-9644-9.
    • Psychological morbidity and stress but not social factors influence level of fear of cancer recurrence in young women with early breast cancer: results of a cross-sectional study.
    • Thewes B, Bell ML, Butow P, Beith J, Boyle F, Friedlander M, McLachlan SA; Members of the FCR Study Advisory Committee.
    • Psychooncology. 2013 Dec;22(12):2797-806. doi: 10.1002/pon.3348. Epub 2013 Aug 23.
    • A literature review of the social and psychological needs of ovarian cancer survivors.
    • Roland KB, Rodriguez JL, Patterson JR, Trivers KF.
    • Psychooncology. 2013 Nov;22(11):2408-18. doi: 10.1002/pon.3322. Epub 2013 Jun 13.
    • Experience of BRCA1/2 mutation-negative young women from families with hereditary breast and ovarian cancer: a qualitative study.
    • Macrae L, de Souza AN, Loiselle CG, Wong N.
    • Hered Cancer Clin Pract. 2013 Oct 16;11(1):14. doi: 10.1186/1897-4287-11-14.
    • Unmet support needs and distress among women with a BRCA1/2 mutation.
    • Farrelly A, White V, Meiser B, Jefford M, Young MA, Ieropoli S, Winship I, Duffy J.
    • Fam Cancer. 2013 Sep;12(3):509-18. doi: 10.1007/s10689-012-9596-5.
    • Square Pegs, Round Hole? Ensuring Fit in the AYAO Spectrum for Adolescents and Young Adults with Genetic Risk for Cancer.
    • Sanford SD, O'Connor ML, Smith KN, Young AE.
    • J Adolesc Young Adult Oncol. 2013 Sep;2(3):130-132.
    • Young adult daughters of BRCA1/2 positive mothers: What do they know about hereditary cancer and how much do they worry?
    • Patenaude AF, Tung N, Ryan PD, Ellisen LW, Hewitt L, Schneider KA, Tercyak KP, Aldridge J, Garber JE.
    • Psychooncology. 2013 Sep;22(9):2024-31. doi: 10.1002/pon.3257. Epub 2013 Feb 18.
    • Body image in recently diagnosed young women with early breast cancer.
    • Rosenberg SM, Tamimi RM, Gelber S, Ruddy KJ, Kereakoglow S, Borges VF, Come SE, Schapira L, Winer EP, Partridge AH.
    • Psychooncology. 2013 Aug;22(8):1849-55. doi: 10.1002/pon.3221. Epub 2012 Nov 7.
    • Psychometric properties of a French version of a Dutch scale for assessing breast and body image (BBIS) in healthy women.
    • Resseguier N, Noguès C, Giorgi R, Julian-Reynier C.
    • BMC Womens Health. 2013 May 16;13:24. doi: 10.1186/1472-6874-13-24.
    • The impact of having a sister diagnosed with breast cancer on cancer-related distress and breast cancer risk perception.
    • Metcalfe KA, Quan ML, Eisen A, Cil T, Sun P, Narod SA.
    • Cancer. 2013 May 1;119(9):1722-8. doi: 10.1002/cncr.27924. Epub 2013 Feb 7.
    • Much more than a gene: hereditary breast and ovarian cancer, reproductive choices and family life.
    • Dekeuwer C, Bateman S.
    • Med Health Care Philos. 2013 May;16(2):231-44. doi: 10.1007/s11019-011-9361-9.
    • Reproductive decision-making in young female carriers of a BRCA mutation.
    • Donnelly LS, Watson M, Moynihan C, Bancroft E, Evans DG, Eeles R, Lavery S, Ormondroyd E.
    • Hum Reprod. 2013 Apr;28(4):1006-12. doi: 10.1093/humrep/des441. Epub 2013 Jan 4.
    • The counselees' self-reported request for psychological help in genetic counseling for hereditary breast/ovarian cancer: not only psychopathology matters.
    • Vos J, van Asperen CJ, Oosterwijk JC, Menko FH, Collee MJ, Garcia EG, Tibben A.
    • Psychooncology. 2013 Apr;22(4):902-10. doi: 10.1002/pon.3081. Epub 2012 Jun 27.
    • Long-term psychological distress in women at risk for hereditary breast cancer adhering to regular surveillance: a risk profile.
    • den Heijer M, Seynaeve C, Vanheusden K, Timman R, Duivenvoorden HJ, Tilanus-Linthorst M, Menke-Pluijmers MB, Tibben A.
    • Psychooncology. 2013 Mar;22(3):598-604. doi: 10.1002/pon.3039. Epub 2012 Feb 7.
    • A multi-case report of the pathways to and through genetic testing and cancer risk management for BRCA mutation-positive women aged 18-25.
    • Hoskins LM, Werner-Lin A.
    • J Genet Couns. 2013 Feb;22(1):27-38. doi: 10.1007/s10897-012-9521-y. Epub 2012 Aug 3.
    • Factors Associated with Psychological Distress among Women of African Descent at High Risk for BRCA Mutations.
    • Cukier YR, Thompson HS, Sussner K, Forman A, Jandorf L, Edwards T, Bovbjerg DH, Schwartz MD, Valdimarsdottir HB.
    • J Genet Couns. 2013 Feb;22(1):101-7. doi: 10.1007/s10897-012-9510-1. Epub 2012 Jun 27.
    • A follow-up study on men tested for BRCA1/BRCA2 mutations: impacts and coping processes.
    • Shiloh S, Dagan E, Friedman I, Blank N, Friedman E.
    • Psychooncology. 2013 Feb;22(2):417-25. doi: 10.1002/pon.2106. Epub 2011 Dec 2.
    • Anticipatory loss and early mastectomy for young female BRCA1/2 mutation carriers.
    • Hoskins LM, Greene MH.
    • Qual Health Res. 2012 Dec;22(12):1633-46. doi: 10.1177/1049732312458182. Epub 2012 Aug 27.
    • Biopsychological stress factors in BRCA mutationcarriers.
    • Wenzel L, Osann K, Lester J, Kurz R, Hsieh S, Nelson EL, Karlan B.
    • Psychosomatics. 2012 Nov-Dec;53(6):582-90. doi: 10.1016/j.psym.2012.06.007.
    • Living My Family's Story: Identifying the LivedExperience in Healthy Women at Risk for Hereditary Breast Cancer.
    • Underhill ML, Lally RM, Kiviniemi MT, Murekeyisoni C, Dickerson SS.
    • Cancer Nurs. 2012 Nov;35(6):493-504. doi: 10.1097/NCC.0b013e31824530fa.
    • 'Cancer doesn't have an age': Genetic testing and cancer risk management in BRCA1/2 mutation-positive women aged 18-24.
    • Werner-Lin A, Hoskins LM, Doyle MH, Greene MH.
    • Health (London). 2012 Nov;16(6):636-54. doi: 10.1177/1363459312442420. Epub 2012 Apr 30.
    • Being young, female, and BRCA positive.
    • Hamilton R.
    • Am J Nurs. 2012 Oct;112(10):26-31, quiz 46, 32.
    • Surveillance for hereditary cancer: does the benefit outweigh the psychological burden?--A systematic review.
    • Gopie JP, Vasen HF, Tibben A.
    • Crit Rev Oncol Hematol. 2012 Sep;83(3):329-40. doi: 10.1016/j.critrevonc.2012.01.004. Epub 2012 Feb 25.
    • Review
    • When parents disclose BRCA1/2 test results: Their communication and perceptions of offspring response.
    • Bradbury AR, Patrick-Miller L, Egleston BL, Olopade OI, Daly MB, Moore CW, Sands CB, Schmidheiser H, Kondamudi PK, Feigon M, Ibe CN, Daugherty CK.
    • Cancer. 2012 Jul 1;118(13):3417-25. doi: 10.1002/cncr.26471. Epub 2012 Jan 9.

    Press: Most parents who get tested for breast cancer genes share results with their children. (EurekAlert!)

    Press: Most Parents Disclose Cancer Gene Results to Children. (Medscape)

    • Living with the BRCA genetic mutation: an uncertain conclusion to an unending process.
    • DiMillo J, Samson A, Thériault A, Lowry S, Corsini L, Verma S, Tomiak E.
    • Psychol Health Med. 2013;18(2):125-34. doi: 10.1080/13548506.2012.687827. Epub 2012 Jun 6.
    • Body image and psychological distress after prophylactic mastectomy and breast reconstruction in genetically predisposed women: a prospective long-term follow-up study.
    • den Heijer M, Seynaeve C, Timman R, Duivenvoorden HJ, Vanheusden K, Tilanus-Linthorst M, Menke-Pluijmers MB, Tibben A.
    • Eur J Cancer. 2012 Jun;48(9):1263-8. doi: 10.1016/j.ejca.2011.10.020. Epub 2011 Nov 19.
    • Who's to blame? Accounts of genetic responsibility and blame among Ashkenazi Jewish women at risk of BRCA breast cancer.
    • Mozersky J.
    • Sociol Health Illn. 2012 Jun;34(5):776-90. doi: 10.1111/j.1467-9566.2011.01427.x. Epub 2012 Jan 18.
    • BRCA1/2 carriers: their childbearing plans and theoretical intentions about having preimplantation genetic diagnosis and prenatal diagnosis.
    • Julian-Reynier C, Fabre R, Coupier I, Stoppa-Lyonnet D, Lasset C, Caron O, Mouret-Fourme E, Berthet P, Faivre L, Frenay M, Gesta P, Gladieff L, Bouhnik AD, Protière C, Noguès C.
    • Genet Med. 2012 May;14(5):527-34. doi: 10.1038/gim.2011.27. Epub 2012 Jan 12.
    • Exploring online support spaces: using cluster analysis to examine breast cancer, diabetes and fibromyalgia support groups.
    • Chen AT.
    • Patient Educ Couns. 2012 May;87(2):250-7. doi: 10.1016/j.pec.2011.08.017. Epub 2011 Sep 17.
    • Influence of the family cluster effect on psychosocial variables in families undergoing BRCA1/2 genetic testing for cancer susceptibility.
    • Lapointe J, Abdous B, Camden S, Bouchard K, Goldgar D, Simard J, Dorval M.
    • Psychooncology. 2012 May;21(5):515-23. doi: 10.1002/pon.1936. Epub 2011 Mar 2.
    • Long-term psychosocial outcomes of BRCA1/BRCA2 testing: differences across affected status and risk-reducing surgery choice.
    • Graves KD, Vegella P, Poggi EA, Peshkin BN, Tong A, Isaacs C, Finch C, Kelly S, Taylor KL, Luta G, Schwartz MD.
    • Cancer Epidemiol Biomarkers Prev. 2012 Mar;21(3):445-55. doi: 10.1158/1055-9965.EPI-11-0991. Epub 2012 Feb 10.
    • Toward a new understanding of risk perception among young female BRCA1/2 "previvors".
    • Hoskins LM, Roy KM, Greene MH.
    • Fam Syst Health. 2012 Mar;30(1):32-46. doi: 10.1037/a0027276.
    • Exploring the short-term impact of DNA-testing in breast cancer patients: the counselees' perception matters, but the actual BRCA1/2 result does not.
    • Vos J, Oosterwijk JC, Gomez-Garcia E, Menko FH, Collee MJ, van Asperen CJ, Jansen AM, Stiggelbout AM, Tibben A.
    • Patient Educ Couns. 2012 Feb;86(2):239-51. doi: 10.1016/j.pec.2011.04.017. Epub 2011 Dec 27.
    • The impact of social and personal resources on psychological distress in women at risk for hereditary breast cancer.
    • den Heijer M, Vos J, Seynaeve C, Vanheusden K, Duivenvoorden HJ, Tilanus-Linthorst M, Menke-Pluymers MB, Tibben A.
    • Psychooncology. 2012 Feb;21(2):153-60. doi: 10.1002/pon.1879. Epub 2010 Dec 2.
    • Results of an online community needs assessment for psychoeducational interventions among partners of hereditary breast cancer previvors and survivors.
    • Tercyak KP, Mays D, DeMarco TA, Sharff ME, Friedman S.
    • J Med Internet Res. 2012 Jan 18;14(1):e15. doi: 10.2196/jmir.1847.
    • Adverse childhood experiences of persons at risk for Huntington's disease or BRCA1/2 hereditary breast/ovarian cancer.
    • van der Meer L, van Duijn E, Wolterbeek R, Tibben A.
    • Clin Genet. 2012 Jan;81(1):18-23. doi: 10.1111/j.1399-0004.2011.01778.x. Epub 2011 Oct 3.
    • Attitudes to reproductive genetic testing in women who had a positive BRCA test before having children: a qualitative analysis.
    • Ormondroyd E, Donnelly L, Moynihan C, Savona C, Bancroft E, Evans DG, Eeles R, Lavery S, Watson M.
    • Eur J Hum Genet. 2012 Jan;20(1):4-10. doi: 10.1038/ejhg.2011.146. Epub 2011 Aug 3.
    • Incidence and predictors of positive and negative effects of BRCA1/2 genetic testing on familial relationships: a 3-year follow-up study.
    • Lapointe J, Bouchard K, Patenaude AF, Maunsell E, Simard J, Dorval M.
    • Genet Med. 2012 Jan;14(1):60-8. doi: 10.1038/gim.0b013e3182310a7f. Epub 2011 Sep 26.